CreakyJoints®
@creakyjoints.bsky.social
Community of people living with arthritis & rheumatic disease.
EST 1999.
EST 1999.
Awareness matters — we’re proud to highlight the work of the TED Community Organization, a 501(c)(3) nonprofit that educates, supports, and connects everyone affected by Thyroid Eye Disease.
Learn more and join the movement: tedcommunity.org
#TEDAwarenessWeek #ThyroidEyeDisease
Learn more and join the movement: tedcommunity.org
#TEDAwarenessWeek #ThyroidEyeDisease
TED Community Organization | Thyroid Eye Disease Education & Emotional Support
The TED Community Organization is a 501c3 nonprofit dedicated to Education, Support and Connection for patients with Thyroid Eye Disease. And a trusted source of collaboration among TED researchers, h...
tedcommunity.org
November 15, 2025 at 11:02 PM
Awareness matters — we’re proud to highlight the work of the TED Community Organization, a 501(c)(3) nonprofit that educates, supports, and connects everyone affected by Thyroid Eye Disease.
Learn more and join the movement: tedcommunity.org
#TEDAwarenessWeek #ThyroidEyeDisease
Learn more and join the movement: tedcommunity.org
#TEDAwarenessWeek #ThyroidEyeDisease
On a new episode, we break down “TrumpRx,” PBMs, rebates, and how drug prices are really set — plus 4 reforms needed to ensure patients actually pay less.
Watch here: ghlf.org/healthcarema...
#HealthAdvocacy #Trump
Watch here: ghlf.org/healthcarema...
#HealthAdvocacy #Trump
November 15, 2025 at 10:27 PM
On a new episode, we break down “TrumpRx,” PBMs, rebates, and how drug prices are really set — plus 4 reforms needed to ensure patients actually pay less.
Watch here: ghlf.org/healthcarema...
#HealthAdvocacy #Trump
Watch here: ghlf.org/healthcarema...
#HealthAdvocacy #Trump
COVID and flu season are here, and staying protected shouldn’t be complicated.
Take a moment today to make a plan for your annual COVID shot — your future self will thank you. 💙
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
Take a moment today to make a plan for your annual COVID shot — your future self will thank you. 💙
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
November 15, 2025 at 9:54 PM
COVID and flu season are here, and staying protected shouldn’t be complicated.
Take a moment today to make a plan for your annual COVID shot — your future self will thank you. 💙
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
Take a moment today to make a plan for your annual COVID shot — your future self will thank you. 💙
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
For people living with chronic conditions or weakened immune systems, COVID is still a real risk.
Boosters, masking in high-risk settings, and staying informed can make a meaningful difference in staying protected this season. 💛
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
Boosters, masking in high-risk settings, and staying informed can make a meaningful difference in staying protected this season. 💛
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
November 14, 2025 at 9:36 PM
For people living with chronic conditions or weakened immune systems, COVID is still a real risk.
Boosters, masking in high-risk settings, and staying informed can make a meaningful difference in staying protected this season. 💛
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
Boosters, masking in high-risk settings, and staying informed can make a meaningful difference in staying protected this season. 💛
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
COVID isn’t gone — and protection from past vaccines or infections fades over time. This season’s updated booster is designed to help reduce viral load, lower your risk of severe illness, and protect the people you love.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
November 14, 2025 at 9:09 PM
COVID isn’t gone — and protection from past vaccines or infections fades over time. This season’s updated booster is designed to help reduce viral load, lower your risk of severe illness, and protect the people you love.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
We’re conducting a confidential survey to learn from people who use subcutaneous injections as part of their HIV treatment. Your experience can help researchers and healthcare providers better understand what matters most to patients.
Take the survey here:
ghlf.org/injectables-...
#HIV
Take the survey here:
ghlf.org/injectables-...
#HIV
November 14, 2025 at 8:52 PM
We’re conducting a confidential survey to learn from people who use subcutaneous injections as part of their HIV treatment. Your experience can help researchers and healthcare providers better understand what matters most to patients.
Take the survey here:
ghlf.org/injectables-...
#HIV
Take the survey here:
ghlf.org/injectables-...
#HIV
OPPORTUNITY:
Are you currently taking a subcutaneous injection to treat cancer? We’re conducting a survey study to better understand what the experience of using injectable medication is like. Your input may help improve support for others.
Take the survey here:
ghlf.org/injectables-...
#cancer
Are you currently taking a subcutaneous injection to treat cancer? We’re conducting a survey study to better understand what the experience of using injectable medication is like. Your input may help improve support for others.
Take the survey here:
ghlf.org/injectables-...
#cancer
November 14, 2025 at 8:36 PM
OPPORTUNITY:
Are you currently taking a subcutaneous injection to treat cancer? We’re conducting a survey study to better understand what the experience of using injectable medication is like. Your input may help improve support for others.
Take the survey here:
ghlf.org/injectables-...
#cancer
Are you currently taking a subcutaneous injection to treat cancer? We’re conducting a survey study to better understand what the experience of using injectable medication is like. Your input may help improve support for others.
Take the survey here:
ghlf.org/injectables-...
#cancer
LISTEN TO YOUR EYES. This week is Thyroid Eye Disease (TED) Awareness Week — November 10–16.
💙 Visit to learn more: www.thyroideyes.com
#ThyroidEyeDisease #TEDAwarenessWeek
@amgen.bsky.social
💙 Visit to learn more: www.thyroideyes.com
#ThyroidEyeDisease #TEDAwarenessWeek
@amgen.bsky.social
Thyroid Eye Disease | Information on Symptoms, Treatment, and Resources
Discover how Thyroid Eye Disease can affect you or your loved one and find information on signs and symptoms, treatment, and specialists.
www.thyroideyes.com
November 13, 2025 at 9:58 PM
LISTEN TO YOUR EYES. This week is Thyroid Eye Disease (TED) Awareness Week — November 10–16.
💙 Visit to learn more: www.thyroideyes.com
#ThyroidEyeDisease #TEDAwarenessWeek
@amgen.bsky.social
💙 Visit to learn more: www.thyroideyes.com
#ThyroidEyeDisease #TEDAwarenessWeek
@amgen.bsky.social
After 34 years living with lupus, Julie Norris found her strength through advocacy and hope. Her new treatment changed her life — and she’s using her voice to help others find theirs.
“Knowledge is power”
Latest #PatientPrepRheum episode out now, tune in: creakyjoints.org.au/patientprepr...
#lupus
“Knowledge is power”
Latest #PatientPrepRheum episode out now, tune in: creakyjoints.org.au/patientprepr...
#lupus
November 13, 2025 at 9:43 PM
After 34 years living with lupus, Julie Norris found her strength through advocacy and hope. Her new treatment changed her life — and she’s using her voice to help others find theirs.
“Knowledge is power”
Latest #PatientPrepRheum episode out now, tune in: creakyjoints.org.au/patientprepr...
#lupus
“Knowledge is power”
Latest #PatientPrepRheum episode out now, tune in: creakyjoints.org.au/patientprepr...
#lupus
What ‘I’m Fine’ Really Means: An Open Letter from a Thyroid Eye Disease (TED) Patient: www.ophthalmologytimes.com/view/what-im...
#ThyroidEyeDisease #TEDAwarenessWeek #HealthcareAdvocacy #PatientVoices
#ThyroidEyeDisease #TEDAwarenessWeek #HealthcareAdvocacy #PatientVoices
What ‘I’m Fine’ Really Means: An Open Letter from a Thyroid Eye Disease (TED) Patient | Ophthalmology Times - Clinical Insights for Eye Specialists
Ophthalmology Times connects eye care professionals with surgery, imaging, gene therapy, & diagnostic advances to enhance clinical and patient care.
www.ophthalmologytimes.com
November 12, 2025 at 9:47 AM
What ‘I’m Fine’ Really Means: An Open Letter from a Thyroid Eye Disease (TED) Patient: www.ophthalmologytimes.com/view/what-im...
#ThyroidEyeDisease #TEDAwarenessWeek #HealthcareAdvocacy #PatientVoices
#ThyroidEyeDisease #TEDAwarenessWeek #HealthcareAdvocacy #PatientVoices
Happy Veterans Day! We are grateful for your service and the sacrifices you've made. Thank you!
#VeteransDay
#VeteransDay
November 11, 2025 at 11:04 PM
Happy Veterans Day! We are grateful for your service and the sacrifices you've made. Thank you!
#VeteransDay
#VeteransDay
Do you or someone you know have eczema (atopic dermatitis)?
Your experiences matter! Take our short survey to help researchers understand what life is really like for people living with this condition.
Get started: ghlf.org/inflammatory...
#EczemaAwareness #ChronicIllnessCommunity #PatientVoices
Your experiences matter! Take our short survey to help researchers understand what life is really like for people living with this condition.
Get started: ghlf.org/inflammatory...
#EczemaAwareness #ChronicIllnessCommunity #PatientVoices
November 11, 2025 at 10:30 AM
Do you or someone you know have eczema (atopic dermatitis)?
Your experiences matter! Take our short survey to help researchers understand what life is really like for people living with this condition.
Get started: ghlf.org/inflammatory...
#EczemaAwareness #ChronicIllnessCommunity #PatientVoices
Your experiences matter! Take our short survey to help researchers understand what life is really like for people living with this condition.
Get started: ghlf.org/inflammatory...
#EczemaAwareness #ChronicIllnessCommunity #PatientVoices
How inflammatory Arthritis can really affect marriage and relationships, according to 8 couples coping with it:
creakyjoints.org/support/how-...
#chronicillness #arthritis
creakyjoints.org/support/how-...
#chronicillness #arthritis
How Inflammatory Arthritis Can Really Affect Marriage and Relationships, According to 8 Couples Coping with It
Couples share candid thoughts about how having arthritis affects your relationship both negatively and positively.
creakyjoints.org
November 11, 2025 at 10:13 AM
How inflammatory Arthritis can really affect marriage and relationships, according to 8 couples coping with it:
creakyjoints.org/support/how-...
#chronicillness #arthritis
creakyjoints.org/support/how-...
#chronicillness #arthritis
Open enrollment for 2026 is underway — and for people living with chronic or rare diseases, choosing the right coverage matters more than ever.
Steven Newmark explains what’s new this year and how to make informed decisions about your plan.
🎧 Tune in: ghlf.org/the-health-a...
Steven Newmark explains what’s new this year and how to make informed decisions about your plan.
🎧 Tune in: ghlf.org/the-health-a...
November 9, 2025 at 12:20 AM
Open enrollment for 2026 is underway — and for people living with chronic or rare diseases, choosing the right coverage matters more than ever.
Steven Newmark explains what’s new this year and how to make informed decisions about your plan.
🎧 Tune in: ghlf.org/the-health-a...
Steven Newmark explains what’s new this year and how to make informed decisions about your plan.
🎧 Tune in: ghlf.org/the-health-a...
COVID isn’t over — but your protection doesn’t have to be, either.
Everyone 6 months and older can get the new 2025–2026 COVID vaccine, available in mRNA and protein-based forms. Stay protected and help prevent long COVID this season.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
Everyone 6 months and older can get the new 2025–2026 COVID vaccine, available in mRNA and protein-based forms. Stay protected and help prevent long COVID this season.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
November 7, 2025 at 8:45 AM
COVID isn’t over — but your protection doesn’t have to be, either.
Everyone 6 months and older can get the new 2025–2026 COVID vaccine, available in mRNA and protein-based forms. Stay protected and help prevent long COVID this season.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
Everyone 6 months and older can get the new 2025–2026 COVID vaccine, available in mRNA and protein-based forms. Stay protected and help prevent long COVID this season.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
🌟 Call for Participants: Gout Patient Advisory Board 🌟
Do you live with gout? Help shape resources, education, and support programs that reflect the real experiences of people managing gout.
Visit www.research.net/r/goutadvisory to learn more and apply.
#GoutAwareness #PatientVoice #PatientAdvocacy
Do you live with gout? Help shape resources, education, and support programs that reflect the real experiences of people managing gout.
Visit www.research.net/r/goutadvisory to learn more and apply.
#GoutAwareness #PatientVoice #PatientAdvocacy
November 7, 2025 at 8:30 AM
🌟 Call for Participants: Gout Patient Advisory Board 🌟
Do you live with gout? Help shape resources, education, and support programs that reflect the real experiences of people managing gout.
Visit www.research.net/r/goutadvisory to learn more and apply.
#GoutAwareness #PatientVoice #PatientAdvocacy
Do you live with gout? Help shape resources, education, and support programs that reflect the real experiences of people managing gout.
Visit www.research.net/r/goutadvisory to learn more and apply.
#GoutAwareness #PatientVoice #PatientAdvocacy
No needles, no problem! The flu nasal spray is a safe and effective option for healthy, non-pregnant people ages 2–49 — and now it can even be self-administered at home! Ask your doctor if it’s right for you and stay protected this flu season.
Learn more: ghlf.org/issues/vacci...
#FluSeason
Learn more: ghlf.org/issues/vacci...
#FluSeason
November 5, 2025 at 11:47 PM
No needles, no problem! The flu nasal spray is a safe and effective option for healthy, non-pregnant people ages 2–49 — and now it can even be self-administered at home! Ask your doctor if it’s right for you and stay protected this flu season.
Learn more: ghlf.org/issues/vacci...
#FluSeason
Learn more: ghlf.org/issues/vacci...
#FluSeason
“COVID is not in the past. It never will be, because it’s endemic now,” says Dr. Tyler Evans.
Staying up to date on vaccines helps reduce the impact if and when we get infected again. Listen now: ghlf.org/informed-imm...
#COVID19 #Vaccines #PublicHealth #StayProtected
Staying up to date on vaccines helps reduce the impact if and when we get infected again. Listen now: ghlf.org/informed-imm...
#COVID19 #Vaccines #PublicHealth #StayProtected
November 1, 2025 at 9:34 AM
“COVID is not in the past. It never will be, because it’s endemic now,” says Dr. Tyler Evans.
Staying up to date on vaccines helps reduce the impact if and when we get infected again. Listen now: ghlf.org/informed-imm...
#COVID19 #Vaccines #PublicHealth #StayProtected
Staying up to date on vaccines helps reduce the impact if and when we get infected again. Listen now: ghlf.org/informed-imm...
#COVID19 #Vaccines #PublicHealth #StayProtected
The words “your labs came back normal” hit different when your symptoms are anything but.
a man in a suit and tie is saying `` here we go '' while looking at something .
ALT: a man in a suit and tie is saying `` here we go '' while looking at something .
media.tenor.com
October 27, 2025 at 7:13 PM
The words “your labs came back normal” hit different when your symptoms are anything but.
A new special episode of #TheHealthAdvocates features Kathi, who shares her GCA journey from diagnosis to advocacy — discussing how staying informed, engaged, and connected has empowered her to take control of her care and help others.
🎧 Listen now:
ghlf.org/the-health-a...
#Rheumatology
🎧 Listen now:
ghlf.org/the-health-a...
#Rheumatology
October 24, 2025 at 7:14 AM
A new special episode of #TheHealthAdvocates features Kathi, who shares her GCA journey from diagnosis to advocacy — discussing how staying informed, engaged, and connected has empowered her to take control of her care and help others.
🎧 Listen now:
ghlf.org/the-health-a...
#Rheumatology
🎧 Listen now:
ghlf.org/the-health-a...
#Rheumatology
GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss.
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
October 23, 2025 at 6:27 AM
GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss.
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
Invisible ≠ Imaginary.
“You might not be able to see our pain — physical and mental — but we sure can feel it.” — @chroniceileen.bsky.social
👉 Read the full story:
creakyjoints.org/living-with-...
#InvisibleDisabilitiesWeek #InvisibleNoMore #ChronicIllness
“You might not be able to see our pain — physical and mental — but we sure can feel it.” — @chroniceileen.bsky.social
👉 Read the full story:
creakyjoints.org/living-with-...
#InvisibleDisabilitiesWeek #InvisibleNoMore #ChronicIllness
My Mini Rant About the Frustrations of a Living with Invisible Disability: A Rheumatoid Arthritis Patient Speaks Out
Learn more about a rheumatoid arthritis patient’s take on why it’s challenging to live with an invisible disability that is misunderstood by others.
creakyjoints.org
October 22, 2025 at 8:04 AM
Invisible ≠ Imaginary.
“You might not be able to see our pain — physical and mental — but we sure can feel it.” — @chroniceileen.bsky.social
👉 Read the full story:
creakyjoints.org/living-with-...
#InvisibleDisabilitiesWeek #InvisibleNoMore #ChronicIllness
“You might not be able to see our pain — physical and mental — but we sure can feel it.” — @chroniceileen.bsky.social
👉 Read the full story:
creakyjoints.org/living-with-...
#InvisibleDisabilitiesWeek #InvisibleNoMore #ChronicIllness
What Is Giant Cell Arteritis? These Are the Signs You Could Have It...
Read: creakyjoints.org/education/gi...
#GCAAwareness
Read: creakyjoints.org/education/gi...
#GCAAwareness
What Is Giant Cell Arteritis? These Are the Signs You Could Have It
Giant cell arteritis, or temporal arteritis, is an inflammatory disease that affects large blood vessels in the head. Learn about CGA symptoms & treatment.
creakyjoints.org
October 21, 2025 at 8:24 AM
What Is Giant Cell Arteritis? These Are the Signs You Could Have It...
Read: creakyjoints.org/education/gi...
#GCAAwareness
Read: creakyjoints.org/education/gi...
#GCAAwareness
The hardest part of living with an invisible illness isn’t always the pain — it’s feeling unseen.
This #InvisibleDisabilitiesWeek, we’re standing with everyone living with conditions that don’t always show.
What helps you feel seen, believed, or supported? 💙
#InvisibleNoMore
This #InvisibleDisabilitiesWeek, we’re standing with everyone living with conditions that don’t always show.
What helps you feel seen, believed, or supported? 💙
#InvisibleNoMore
October 20, 2025 at 6:36 AM
The hardest part of living with an invisible illness isn’t always the pain — it’s feeling unseen.
This #InvisibleDisabilitiesWeek, we’re standing with everyone living with conditions that don’t always show.
What helps you feel seen, believed, or supported? 💙
#InvisibleNoMore
This #InvisibleDisabilitiesWeek, we’re standing with everyone living with conditions that don’t always show.
What helps you feel seen, believed, or supported? 💙
#InvisibleNoMore