Ricky Chotai
@rickychotai.co.uk
📍Manchester
🏢 Operations - NUS Charity
🦋Trustee - Lupus UK
🦋 Special Advisor - Lupus Europe
#northern | #LoveSUs | #politics | #lupusadvocate hello@rickychotai.co.uk | Views: own
🏢 Operations - NUS Charity
🦋Trustee - Lupus UK
🦋 Special Advisor - Lupus Europe
#northern | #LoveSUs | #politics | #lupusadvocate hello@rickychotai.co.uk | Views: own
Reposted by Ricky Chotai
🚨 Do men with #lupus receive the support they need?
😃 Join us today at room C3, as @rickychotai.co.uk, Special Advisor to the Board & Co-leader of our Men's network, presents data from our Swiss Knife Survey on stigma, #depression & unmet needs of men living with #SLE.
#EULAR2025
😃 Join us today at room C3, as @rickychotai.co.uk, Special Advisor to the Board & Co-leader of our Men's network, presents data from our Swiss Knife Survey on stigma, #depression & unmet needs of men living with #SLE.
#EULAR2025
June 12, 2025 at 10:02 AM
🚨 Do men with #lupus receive the support they need?
😃 Join us today at room C3, as @rickychotai.co.uk, Special Advisor to the Board & Co-leader of our Men's network, presents data from our Swiss Knife Survey on stigma, #depression & unmet needs of men living with #SLE.
#EULAR2025
😃 Join us today at room C3, as @rickychotai.co.uk, Special Advisor to the Board & Co-leader of our Men's network, presents data from our Swiss Knife Survey on stigma, #depression & unmet needs of men living with #SLE.
#EULAR2025
Reposted by Ricky Chotai
🦋Lupus Europe’s 2024 Swiss Knife Survey is now published in Autoimmunity Reviews!
With 4525 responses from 36 countries, it’s a🔝step forward in understanding the real burden of SLE from the patient’s perspective.
https://f.mtr.cool/xrvljwnsvd
With 4525 responses from 36 countries, it’s a🔝step forward in understanding the real burden of SLE from the patient’s perspective.
https://f.mtr.cool/xrvljwnsvd
May 27, 2025 at 3:01 PM
🦋Lupus Europe’s 2024 Swiss Knife Survey is now published in Autoimmunity Reviews!
With 4525 responses from 36 countries, it’s a🔝step forward in understanding the real burden of SLE from the patient’s perspective.
https://f.mtr.cool/xrvljwnsvd
With 4525 responses from 36 countries, it’s a🔝step forward in understanding the real burden of SLE from the patient’s perspective.
https://f.mtr.cool/xrvljwnsvd
Reposted by Ricky Chotai
🌟 Being a finalist in the 2025 Made with Patients Awards is recognition of LupusGPT’s mission to empower the #lupus community with:
✅ Reliable, evidence-based information about lupus
✅ Free access
✅ Multilingual support to break language & literacy barriers
✅ Reliable, evidence-based information about lupus
✅ Free access
✅ Multilingual support to break language & literacy barriers
May 29, 2025 at 4:02 PM
🌟 Being a finalist in the 2025 Made with Patients Awards is recognition of LupusGPT’s mission to empower the #lupus community with:
✅ Reliable, evidence-based information about lupus
✅ Free access
✅ Multilingual support to break language & literacy barriers
✅ Reliable, evidence-based information about lupus
✅ Free access
✅ Multilingual support to break language & literacy barriers
Reposted by Ricky Chotai
😃Our Board & Extended Board met last week for2️⃣exciting days of work on the strategic plan. Joined by NVLE to kick off the planning of our 2025 Convention, which will take place in the Netherlands!
👥Also hosted an engaging Industry Roundtable, with updates, workshops and more!
👥Also hosted an engaging Industry Roundtable, with updates, workshops and more!
April 4, 2025 at 3:30 PM
😃Our Board & Extended Board met last week for2️⃣exciting days of work on the strategic plan. Joined by NVLE to kick off the planning of our 2025 Convention, which will take place in the Netherlands!
👥Also hosted an engaging Industry Roundtable, with updates, workshops and more!
👥Also hosted an engaging Industry Roundtable, with updates, workshops and more!
Big news! 🎉 My abstract, “Living with lupus as a man – a major challenge to image of self”, has been selected for an Oral Presentation at #EULAR2025 in Barcelona! 💜 Grateful for @lupuseurope.bsky.social support & excited to share this important topic. #LupusAwareness #Rheumatology
March 27, 2025 at 7:44 PM
Big news! 🎉 My abstract, “Living with lupus as a man – a major challenge to image of self”, has been selected for an Oral Presentation at #EULAR2025 in Barcelona! 💜 Grateful for @lupuseurope.bsky.social support & excited to share this important topic. #LupusAwareness #Rheumatology
Off to Amsterdam for my first @LupusEurope board meeting !
March 20, 2025 at 5:29 PM
Off to Amsterdam for my first @LupusEurope board meeting !
Reposted by Ricky Chotai
@lupusuk.bsky.social is conducting a survey to understand what is important to you as someone living with lupus, or caring for someone with #lupus, and what you think the charity should be focusing on to better support your needs.
For more information, visit: www.lupusuk.org.uk/2025/03/04/survey
For more information, visit: www.lupusuk.org.uk/2025/03/04/survey
March 12, 2025 at 11:53 AM
@lupusuk.bsky.social is conducting a survey to understand what is important to you as someone living with lupus, or caring for someone with #lupus, and what you think the charity should be focusing on to better support your needs.
For more information, visit: www.lupusuk.org.uk/2025/03/04/survey
For more information, visit: www.lupusuk.org.uk/2025/03/04/survey
UK healthcare pros & lupus researchers: Your input is crucial! 🏥🔬
Help @lupusuk.bsky.social shape support for lupus patients. Quick, anonymous survey closing May 1st, 4PM BST.
Your expertise can make a difference!
Survey link: bit.ly/Lupussurveyhcp
#Lupus #UKHealthcare #LupusResearch
Help @lupusuk.bsky.social shape support for lupus patients. Quick, anonymous survey closing May 1st, 4PM BST.
Your expertise can make a difference!
Survey link: bit.ly/Lupussurveyhcp
#Lupus #UKHealthcare #LupusResearch
The needs of the lupus community
Take this survey powered by surveymonkey.com. Create your own surveys for free.
bit.ly
March 4, 2025 at 8:47 PM
UK healthcare pros & lupus researchers: Your input is crucial! 🏥🔬
Help @lupusuk.bsky.social shape support for lupus patients. Quick, anonymous survey closing May 1st, 4PM BST.
Your expertise can make a difference!
Survey link: bit.ly/Lupussurveyhcp
#Lupus #UKHealthcare #LupusResearch
Help @lupusuk.bsky.social shape support for lupus patients. Quick, anonymous survey closing May 1st, 4PM BST.
Your expertise can make a difference!
Survey link: bit.ly/Lupussurveyhcp
#Lupus #UKHealthcare #LupusResearch
Today I think is very much a moment in history and sadly for the world it feels even more scary. The Ukrainian people have fought hard for their freedom and it is not up to Trump if and when they should compromise.
February 28, 2025 at 8:30 PM
Today I think is very much a moment in history and sadly for the world it feels even more scary. The Ukrainian people have fought hard for their freedom and it is not up to Trump if and when they should compromise.
Wendy is an amazing advocate and campaigner for #lupus and volunteers significantly for @lupusuk.bsky.social. We the #lupus community are lucky to have her!
In 2021, thanks to tireless advocacy from our Volunteer Autoimmune Champion, Wendy Diment, alongside valued members of the FTWW community, we published our report, 'Making the Case for Better #Lupus and Rare Autoimmune Disease Provision for Patients in Wales' (ftww.org.uk/autoimmune/)
Autoimmune - FTWW
{:en}It is estimated that over 3,000 people in Wales have Lupus, and over 80% of Lupus patients and those living with other RAIRDs are female (or assigned female at birth). In addition, Lupus has a 3-...
ftww.org.uk
February 28, 2025 at 8:27 PM
Wendy is an amazing advocate and campaigner for #lupus and volunteers significantly for @lupusuk.bsky.social. We the #lupus community are lucky to have her!
Reposted by Ricky Chotai
Last night, the chapel facade of Magdalen College was lit up ahead of #RareDiseaseDay.
A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.
📷 | @oxfordpaediatrics.bsky.social
A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.
📷 | @oxfordpaediatrics.bsky.social
February 28, 2025 at 10:18 AM
Last night, the chapel facade of Magdalen College was lit up ahead of #RareDiseaseDay.
A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.
📷 | @oxfordpaediatrics.bsky.social
A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.
📷 | @oxfordpaediatrics.bsky.social
Thanks for sharing #lupus
#BlackHistoryMonth What do R&B singers Toni Braxton and Muni Long have in common? They have lupus and have spoken about how chronic illness has affected their music careers as Grammy winners.
#BlackSky #DisabilitySky #Lupus #ChronicIllness #BlackMusic #BlackMusicHistory #BlackHistory #LupusWarrior
#BlackSky #DisabilitySky #Lupus #ChronicIllness #BlackMusic #BlackMusicHistory #BlackHistory #LupusWarrior
February 28, 2025 at 8:23 PM
Thanks for sharing #lupus
✨ *Breaking News!* ✨ The latest issue of *New Scientist* highlights amazing progress in autoimmune disease research (lupus, rheumatoid arthritis, Type 1 diabetes). Hope is on the horizon! 💜
Read about CAR-T cell therapy for lupus via @lupusuk.bsky.social : lupusuk.org.uk/2024/11/08/c...
Read about CAR-T cell therapy for lupus via @lupusuk.bsky.social : lupusuk.org.uk/2024/11/08/c...
February 27, 2025 at 11:01 PM
✨ *Breaking News!* ✨ The latest issue of *New Scientist* highlights amazing progress in autoimmune disease research (lupus, rheumatoid arthritis, Type 1 diabetes). Hope is on the horizon! 💜
Read about CAR-T cell therapy for lupus via @lupusuk.bsky.social : lupusuk.org.uk/2024/11/08/c...
Read about CAR-T cell therapy for lupus via @lupusuk.bsky.social : lupusuk.org.uk/2024/11/08/c...
Just wrapped up our virtual trustee board meeting at @lupusuk.bsky.social 📊💻! Exciting plans ahead for our 35th year 🎉 and a fresh strategy on the horizon 🚀. Let's make it a year to remember! 💜 Follow @lupusuk.bsky.social for more updates 📱 #LupusUK #Lupus
February 22, 2025 at 1:44 PM
Just wrapped up our virtual trustee board meeting at @lupusuk.bsky.social 📊💻! Exciting plans ahead for our 35th year 🎉 and a fresh strategy on the horizon 🚀. Let's make it a year to remember! 💜 Follow @lupusuk.bsky.social for more updates 📱 #LupusUK #Lupus
Wrapped up my final onboarding meeting with @lupuseurope.bsky.social today! Excited to dive into impactful projects for the European Lupus Community, including exploring the intersection of #sex and #lupus. Thrilled to work alongside such an inspiring team!
a cat is dancing in front of a mirror with its paws up
ALT: a cat is dancing in front of a mirror with its paws up
media.tenor.com
February 17, 2025 at 9:08 PM
Wrapped up my final onboarding meeting with @lupuseurope.bsky.social today! Excited to dive into impactful projects for the European Lupus Community, including exploring the intersection of #sex and #lupus. Thrilled to work alongside such an inspiring team!
Reposted by Ricky Chotai
🦋 Lupus Europe, Prof Arnaud, and Dr @go-daniel.bsky.social are thrilled to unveil LUPUS-ALERT!
🌍 A groundbreaking global project to transform SLE care: 𝐋𝐔𝐏𝐔𝐒 erythematosus glob𝑨L cont𝐄xt sc𝐑eening 𝐓ool.
Thank you to all the Doctors & patients driving this key project forward!
🌍 A groundbreaking global project to transform SLE care: 𝐋𝐔𝐏𝐔𝐒 erythematosus glob𝑨L cont𝐄xt sc𝐑eening 𝐓ool.
Thank you to all the Doctors & patients driving this key project forward!
February 17, 2025 at 1:04 PM
🦋 Lupus Europe, Prof Arnaud, and Dr @go-daniel.bsky.social are thrilled to unveil LUPUS-ALERT!
🌍 A groundbreaking global project to transform SLE care: 𝐋𝐔𝐏𝐔𝐒 erythematosus glob𝑨L cont𝐄xt sc𝐑eening 𝐓ool.
Thank you to all the Doctors & patients driving this key project forward!
🌍 A groundbreaking global project to transform SLE care: 𝐋𝐔𝐏𝐔𝐒 erythematosus glob𝑨L cont𝐄xt sc𝐑eening 𝐓ool.
Thank you to all the Doctors & patients driving this key project forward!
I have not seen this sort of innovation in the Health Charities or non profits.
Great to see AI being used to improve the patient experience. #lupus #ai #innovation
Great to see AI being used to improve the patient experience. #lupus #ai #innovation
🦋 Living with #lupus can be tricky, especially when searching for high-quality, reliable information.
😵💫 Feeling overwhelmed? Discover #LupusGPT! Our AI tool offers a world of doctor/patient-validated knowledge.
🤩Available in most languages!
Visit https://lupusgpt.org/ now
😵💫 Feeling overwhelmed? Discover #LupusGPT! Our AI tool offers a world of doctor/patient-validated knowledge.
🤩Available in most languages!
Visit https://lupusgpt.org/ now
February 5, 2025 at 8:48 PM
I have not seen this sort of innovation in the Health Charities or non profits.
Great to see AI being used to improve the patient experience. #lupus #ai #innovation
Great to see AI being used to improve the patient experience. #lupus #ai #innovation
Ooo welcome to Bluesky @lupuseurope.bsky.social if you are interested in #Lupus things check them out. If you are UK based check out @lupusuk.bsky.social
February 5, 2025 at 8:46 PM
Ooo welcome to Bluesky @lupuseurope.bsky.social if you are interested in #Lupus things check them out. If you are UK based check out @lupusuk.bsky.social
I'm Ricky, based in Manchester. Living with #Lupus and doing some volunteer work with two brilliant organisations - @lupusuk.bsky.social and Lupus Europe.
When I'm not going on about #lupus, you'll probably see me posting about #LoveSUs and #realitytv.
When I'm not going on about #lupus, you'll probably see me posting about #LoveSUs and #realitytv.
February 3, 2025 at 10:06 PM
I'm Ricky, based in Manchester. Living with #Lupus and doing some volunteer work with two brilliant organisations - @lupusuk.bsky.social and Lupus Europe.
When I'm not going on about #lupus, you'll probably see me posting about #LoveSUs and #realitytv.
When I'm not going on about #lupus, you'll probably see me posting about #LoveSUs and #realitytv.
An excellent meeting with the #LupusEurope team.
So many exciting projects going on. Looking forward to the next few months. #Lupus
So many exciting projects going on. Looking forward to the next few months. #Lupus
February 3, 2025 at 10:00 PM
An excellent meeting with the #LupusEurope team.
So many exciting projects going on. Looking forward to the next few months. #Lupus
So many exciting projects going on. Looking forward to the next few months. #Lupus
Stark facts about health care inequality for lupus patients in the UK. @lupusuk.bsky.social #lupus
#UK #lupus "Black people in England eight times more likely to be hospitalised with lupus
Exclusive: Experts say ‘stark’ inequality with white people could be a result of delayed diagnoses"
www.theguardian.com/society/2025...
Exclusive: Experts say ‘stark’ inequality with white people could be a result of delayed diagnoses"
www.theguardian.com/society/2025...
Black people in England eight times more likely to be hospitalised with lupus
Exclusive: Experts say ‘stark’ inequality with white people could be a result of delayed diagnoses
www.theguardian.com
February 3, 2025 at 9:58 PM
Stark facts about health care inequality for lupus patients in the UK. @lupusuk.bsky.social #lupus
#TheTraitors sponsored by kleenex
a young man is sitting on a couch wearing a nicc t-shirt and making a funny face .
ALT: a young man is sitting on a couch wearing a nicc t-shirt and making a funny face .
media.tenor.com
January 8, 2025 at 9:50 PM
#TheTraitors sponsored by kleenex
Amazing episode of #TheTraitors tonight!
a woman in a black hood holds her finger to her lips in front of bbc
ALT: a woman in a black hood holds her finger to her lips in front of bbc
media.tenor.com
January 3, 2025 at 11:18 PM
Amazing episode of #TheTraitors tonight!
Reposted by Ricky Chotai
okay I love this diva 💅 #TheTraitors
January 3, 2025 at 10:45 PM
okay I love this diva 💅 #TheTraitors