Patients with Power
@ptswithpower.com
Patient-scientist fighting for medicine based on SCIENCE; NOT BIAS. Taking a stand against patient abuse, neglect & exploitation. 🦾 Studying doctor behaviour 🧐
⚡EDS, ME/CFS certified. (BPsych Hons & other less significant credentials too)
⚡EDS, ME/CFS certified. (BPsych Hons & other less significant credentials too)
Pinned
Patients with Power
@ptswithpower.com
· Dec 5
Reposted by Patients with Power
Many with ME/CFS and other chronic illnesses may be able to relate some if not many of these
This was posted as a comment on my FB page today, but I'm not sure who created it originally.
#LongCovid #MEcfs #chronicillness #hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #Spoonie
This was posted as a comment on my FB page today, but I'm not sure who created it originally.
#LongCovid #MEcfs #chronicillness #hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #Spoonie
January 4, 2026 at 7:26 PM
Many with ME/CFS and other chronic illnesses may be able to relate some if not many of these
This was posted as a comment on my FB page today, but I'm not sure who created it originally.
#LongCovid #MEcfs #chronicillness #hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #Spoonie
This was posted as a comment on my FB page today, but I'm not sure who created it originally.
#LongCovid #MEcfs #chronicillness #hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #Spoonie
Doctors often don't go by the book when it comes to treating patients. They like to cut corners. They usually don't see the consequences of the corners they cut off. #ChronicIllness #Disability
January 8, 2026 at 9:03 PM
Doctors often don't go by the book when it comes to treating patients. They like to cut corners. They usually don't see the consequences of the corners they cut off. #ChronicIllness #Disability
Can you think of any other groups that deal with extra bias in healthcare?
So far I've got:
People who have/are
- women
- not the dominant race
- mental health conditions
- complex, invisible or rare conditions
- different body shapes, thin/fat
- disabled
- age, old/young
- lgbtqa+
#NEISvoid
So far I've got:
People who have/are
- women
- not the dominant race
- mental health conditions
- complex, invisible or rare conditions
- different body shapes, thin/fat
- disabled
- age, old/young
- lgbtqa+
#NEISvoid
December 22, 2025 at 2:21 PM
Can you think of any other groups that deal with extra bias in healthcare?
So far I've got:
People who have/are
- women
- not the dominant race
- mental health conditions
- complex, invisible or rare conditions
- different body shapes, thin/fat
- disabled
- age, old/young
- lgbtqa+
#NEISvoid
So far I've got:
People who have/are
- women
- not the dominant race
- mental health conditions
- complex, invisible or rare conditions
- different body shapes, thin/fat
- disabled
- age, old/young
- lgbtqa+
#NEISvoid
There's nothing to stop people with #narcissism or psychopathy from becoming doctors. They're protected by the assumption that people become doctors because they want to help people.
In my experience, I've found some to just like the power trip.
⚡ #ChronicIllness #ChronicPain #NEISvoid #DoNoHarm
In my experience, I've found some to just like the power trip.
⚡ #ChronicIllness #ChronicPain #NEISvoid #DoNoHarm
December 4, 2025 at 1:34 AM
There's nothing to stop people with #narcissism or psychopathy from becoming doctors. They're protected by the assumption that people become doctors because they want to help people.
In my experience, I've found some to just like the power trip.
⚡ #ChronicIllness #ChronicPain #NEISvoid #DoNoHarm
In my experience, I've found some to just like the power trip.
⚡ #ChronicIllness #ChronicPain #NEISvoid #DoNoHarm
Reposted by Patients with Power
It's really soul crushing going from doctor to doctor, "one more specialist" "one more test" etc then to be talked down to office space at every office and gas lit on top of that really just pours salt right in the wound.
I shouldn't have to be the one doing the research, but I have no choice. 4/
I shouldn't have to be the one doing the research, but I have no choice. 4/
December 2, 2025 at 12:03 AM
It's really soul crushing going from doctor to doctor, "one more specialist" "one more test" etc then to be talked down to office space at every office and gas lit on top of that really just pours salt right in the wound.
I shouldn't have to be the one doing the research, but I have no choice. 4/
I shouldn't have to be the one doing the research, but I have no choice. 4/
I want to share my story of harm in the healthcare system. ✍🏻 I just have such low energy and time, and I'm pretty nervous to put myself out there like that.
People who have shared their story - do you have any advice?
(about the above or anything)
⚡ #NEISvoid #ChroncIllness #Writing
People who have shared their story - do you have any advice?
(about the above or anything)
⚡ #NEISvoid #ChroncIllness #Writing
November 29, 2025 at 2:41 AM
I want to share my story of harm in the healthcare system. ✍🏻 I just have such low energy and time, and I'm pretty nervous to put myself out there like that.
People who have shared their story - do you have any advice?
(about the above or anything)
⚡ #NEISvoid #ChroncIllness #Writing
People who have shared their story - do you have any advice?
(about the above or anything)
⚡ #NEISvoid #ChroncIllness #Writing
I love that there's heaps of doctors making audio recordings of their appointments now. Yes, they control the audio and never share it with the patient, but the step between now and mandatory patient-accessible recording of all healthcare encounters just got smaller.
⚡ #NEISvoid
⚡ #NEISvoid
November 18, 2025 at 11:02 PM
I love that there's heaps of doctors making audio recordings of their appointments now. Yes, they control the audio and never share it with the patient, but the step between now and mandatory patient-accessible recording of all healthcare encounters just got smaller.
⚡ #NEISvoid
⚡ #NEISvoid
You have to baby doctors too. Like, if you're forced to mention a mistake they made - god forbid - you have to talk about it so delicately and phrase it as if it wasn't their fault. #NEISvoid
November 10, 2025 at 5:00 AM
You have to baby doctors too. Like, if you're forced to mention a mistake they made - god forbid - you have to talk about it so delicately and phrase it as if it wasn't their fault. #NEISvoid
Just another doctor-scammer using lies to make money. If you check out this guy's linktree & website, he's making 💵 off of vaccine lies in so many ways. He'll never stop telling them - they're making him rich & famous. These people are what keep the misinformation alive.
#MedSky #NEISvoid
#MedSky #NEISvoid
September 29, 2025 at 12:33 AM
which contradicts the first philosophy of medicine DO NO HARM.
Which put patients at harm by telling them they have a mental problem they do not have. By denying them treatment for the medical problems they do have.
Which put patients at harm by telling them they have a mental problem they do not have. By denying them treatment for the medical problems they do have.
September 27, 2025 at 7:55 PM
Art is great. You can use your art as a distraction and to feel good and to connect with others, but you can also use it as a weapon.
And in these times where we can reach people's minds and hearts all over the world on social media, it's probably the best weapon we have.
And in these times where we can reach people's minds and hearts all over the world on social media, it's probably the best weapon we have.
I see people posting that getting involved in community and making art help us survive the awfulness and I do agree.
Strongly.
I just want to add that making nice food also helps. Feeling a nice lil’ happiness boost after making and eating some soup.
Strongly.
I just want to add that making nice food also helps. Feeling a nice lil’ happiness boost after making and eating some soup.
September 22, 2025 at 5:16 AM
Art is great. You can use your art as a distraction and to feel good and to connect with others, but you can also use it as a weapon.
And in these times where we can reach people's minds and hearts all over the world on social media, it's probably the best weapon we have.
And in these times where we can reach people's minds and hearts all over the world on social media, it's probably the best weapon we have.
Medical gaslighting is like taking a cracked mirror to be repaired, and instead being told, “No, the glass is perfect. It’s your self-image that’s distorted.”
Instead of looking for medical causes, the doctor flips reality, making the patient doubt their own perception.
#NEISvoid #MedicalGaslighting
Instead of looking for medical causes, the doctor flips reality, making the patient doubt their own perception.
#NEISvoid #MedicalGaslighting
September 21, 2025 at 2:40 PM
Medical gaslighting is like taking a cracked mirror to be repaired, and instead being told, “No, the glass is perfect. It’s your self-image that’s distorted.”
Instead of looking for medical causes, the doctor flips reality, making the patient doubt their own perception.
#NEISvoid #MedicalGaslighting
Instead of looking for medical causes, the doctor flips reality, making the patient doubt their own perception.
#NEISvoid #MedicalGaslighting
Reposted by Patients with Power
When a child dies from brain cancer or someone dies from the measles or gets polio, can they sue RFK Jr. and the regime for severe negligence and medical malpractice for taking away the scientific research and the vaccines? Serious question.
That Trump and Trumpism are fascist doesn’t explain the sheer vandalism of unleashing mass murdering mayhem via RFK to replace medical/scientific institutions of immense value and prestige with medieval peasant superstitions. That is a criminal madness facilitated by but above and beyond fascism.
August 30, 2025 at 10:51 PM
When a child dies from brain cancer or someone dies from the measles or gets polio, can they sue RFK Jr. and the regime for severe negligence and medical malpractice for taking away the scientific research and the vaccines? Serious question.
August 20, 2025 at 9:05 AM
Reposted by Patients with Power
If you love them, tell them.
If they’ve changed your life, let them know.
If they’re important to you, make sure they hear it from you.
If they’ve changed your life, let them know.
If they’re important to you, make sure they hear it from you.
August 14, 2025 at 11:28 AM
If you love them, tell them.
If they’ve changed your life, let them know.
If they’re important to you, make sure they hear it from you.
If they’ve changed your life, let them know.
If they’re important to you, make sure they hear it from you.
Doctors,
Stop defending abusive & neglectful behaviour from other docs towards patients.
Don't assume your colleagues were in the right.
Often they weren't.
If a patient has to tell you what happened to them, and you blindly defend the perpetrator, you make the trauma worse.
⚡️ #NEISvoid #MedSky
Stop defending abusive & neglectful behaviour from other docs towards patients.
Don't assume your colleagues were in the right.
Often they weren't.
If a patient has to tell you what happened to them, and you blindly defend the perpetrator, you make the trauma worse.
⚡️ #NEISvoid #MedSky
August 20, 2025 at 5:40 AM
Oh I love Nikita Gill but I hadn't seen this one before, thanks for sharing @jacysonne.bsky.social 💛🧡❤️
⚡️ #DisabilityRights #PatientRights
⚡️ #DisabilityRights #PatientRights
August 19, 2025 at 3:07 AM
Oh I love Nikita Gill but I hadn't seen this one before, thanks for sharing @jacysonne.bsky.social 💛🧡❤️
⚡️ #DisabilityRights #PatientRights
⚡️ #DisabilityRights #PatientRights
Reposted by Patients with Power
What saved my life when the hospital discharged me with no hope from my sudden paralysis? Facebook. Networking with my community who helped me find a surgeon who fixed me. Connecting with others who had the same diagnosis and recovered. *They* want online communities to go away. We can’t let them go
August 15, 2025 at 11:49 AM
What saved my life when the hospital discharged me with no hope from my sudden paralysis? Facebook. Networking with my community who helped me find a surgeon who fixed me. Connecting with others who had the same diagnosis and recovered. *They* want online communities to go away. We can’t let them go