Pam Mace
@pdmace2.bsky.social
RN. Raising awareness of Fibromuscular Dysplasia. Survivor of bilateral carotid and vertebral dissections. ED of FMDSA
Reposted by Pam Mace
Honored and grateful to receive transformative support from the 𝗟𝗲𝗱𝘂𝗰𝗾 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻 of our research on 𝗙𝗶𝗯𝗿𝗼𝗺𝘂𝘀𝗰𝘂𝗹𝗮𝗿 𝗗𝘆𝘀𝗽𝗹𝗮𝘀𝗶𝗮. Excited to begin work with our 𝗔𝗟𝗜𝗚𝗡-𝗙𝗠𝗗 Network and proud to partner with Jason Kovacic, Stéphanie Debette, Nabila Bouatia-Naji, Manuel Mayr, and Mark Lindsay. #FMD
We are thrilled to share that Michigan Medicine has been awarded a new, international research grant for more than $8.5 million by the Leducq Foundation to advance research into fibromuscular… | Michi...
We are thrilled to share that Michigan Medicine has been awarded a new, international research grant for more than $8.5 million by the Leducq Foundation to advance research into fibromuscular dysplasi...
www.linkedin.com
July 22, 2025 at 5:59 PM
Honored and grateful to receive transformative support from the 𝗟𝗲𝗱𝘂𝗰𝗾 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻 of our research on 𝗙𝗶𝗯𝗿𝗼𝗺𝘂𝘀𝗰𝘂𝗹𝗮𝗿 𝗗𝘆𝘀𝗽𝗹𝗮𝘀𝗶𝗮. Excited to begin work with our 𝗔𝗟𝗜𝗚𝗡-𝗙𝗠𝗗 Network and proud to partner with Jason Kovacic, Stéphanie Debette, Nabila Bouatia-Naji, Manuel Mayr, and Mark Lindsay. #FMD
Attending the #AAEM25 in Miami? stop by booth 305 and meet Kelly to learn the latest updates on #FMD #FibromuscularDysplasia #dissection #stroke #aneurysm #SCAD
April 7, 2025 at 3:59 PM
Attending the #AAEM25 in Miami? stop by booth 305 and meet Kelly to learn the latest updates on #FMD #FibromuscularDysplasia #dissection #stroke #aneurysm #SCAD
Reposted by Pam Mace
Congrats to Case Western MS2 Karen Ji on her presentation at #ACC25 ~10% of patients with multifocal FMD seen at UH Harrington HVI with comprehensive vasc imaging had aortic involvement, most commonly thoracic aortic dilation (ectasia and aneurysm); supports head to pelvis imaging #cardiosky
March 29, 2025 at 5:56 PM
Congrats to Case Western MS2 Karen Ji on her presentation at #ACC25 ~10% of patients with multifocal FMD seen at UH Harrington HVI with comprehensive vasc imaging had aortic involvement, most commonly thoracic aortic dilation (ectasia and aneurysm); supports head to pelvis imaging #cardiosky
Reposted by Pam Mace
#ACC25 @2scottish.bsky.social higher TMAO levels associated with more rapid infrarenal AAA growth…emerging marker for risk stratification #CarsioSky
March 30, 2025 at 10:36 PM
#ACC25 @2scottish.bsky.social higher TMAO levels associated with more rapid infrarenal AAA growth…emerging marker for risk stratification #CarsioSky
Reposted by Pam Mace
Rare diseases can impact anyone, anywhere. Our disorders may differ from one another, but we share the experience of being on a rare journey. We understand one another. This #RareDiseaseDay, get to know us: rarediseases.org/rare-disease...
February 28, 2025 at 7:13 PM
Rare diseases can impact anyone, anywhere. Our disorders may differ from one another, but we share the experience of being on a rare journey. We understand one another. This #RareDiseaseDay, get to know us: rarediseases.org/rare-disease...
I signed the petition. Our lives matter! #FMD #rarediseases
📣 Calling all rare disease community members. #RareDC2025
Sign this petition urging Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources.
Take action: everylifefoundation.quorum.us/campaign/111...
Sign this petition urging Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources.
Take action: everylifefoundation.quorum.us/campaign/111...
February 27, 2025 at 11:26 PM
I signed the petition. Our lives matter! #FMD #rarediseases
Reposted by Pam Mace
Every parent knows this feeling: Please let my child be healthy. But 15 million kids in America face the challenges of life with a #RareDisease, a diagnosis that turns parents into fierce advocates.
Read one family’s story: www.bostonglobe.com/2025/02/20/m... @bostonchildrens.bsky.social
Read one family’s story: www.bostonglobe.com/2025/02/20/m... @bostonchildrens.bsky.social
Advocating for a child with a rare disorder brings heartbreak. And then there’s the joy. - The Boston Globe
Advocating for a child with a rare diagnosis can be frustrating and heartbreaking. And then there’s the joy.
www.bostonglobe.com
February 25, 2025 at 4:47 PM
Every parent knows this feeling: Please let my child be healthy. But 15 million kids in America face the challenges of life with a #RareDisease, a diagnosis that turns parents into fierce advocates.
Read one family’s story: www.bostonglobe.com/2025/02/20/m... @bostonchildrens.bsky.social
Read one family’s story: www.bostonglobe.com/2025/02/20/m... @bostonchildrens.bsky.social
Done. Will you get involved?
Rare patients and families cannot afford delays or obstacles to receiving quality #healthcare. Take action now and urge Congress to prioritize several pieces of lifesaving #RareDisease legislation this #RareDiseaseDay, February 28.
All it takes to send your message is one minute: bit.ly/41ytHhR
All it takes to send your message is one minute: bit.ly/41ytHhR
February 27, 2025 at 11:21 PM
Done. Will you get involved?
Reposted by Pam Mace
Rare patients and families cannot afford delays or obstacles to receiving quality #healthcare. Take action now and urge Congress to prioritize several pieces of lifesaving #RareDisease legislation this #RareDiseaseDay, February 28.
All it takes to send your message is one minute: bit.ly/41ytHhR
All it takes to send your message is one minute: bit.ly/41ytHhR
February 26, 2025 at 10:25 PM
Rare patients and families cannot afford delays or obstacles to receiving quality #healthcare. Take action now and urge Congress to prioritize several pieces of lifesaving #RareDisease legislation this #RareDiseaseDay, February 28.
All it takes to send your message is one minute: bit.ly/41ytHhR
All it takes to send your message is one minute: bit.ly/41ytHhR
Reposted by Pam Mace
Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT
https://pubmed.ncbi.nlm.nih.gov/39845280
https://pubmed.ncbi.nlm.nih.gov/39845280
January 24, 2025 at 11:13 AM
Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT
https://pubmed.ncbi.nlm.nih.gov/39845280
https://pubmed.ncbi.nlm.nih.gov/39845280
Karena is an amazing advocate. I wish she never had to experience the pain and loss of her sister. We need more research, awareness, and education of #FMD. With so many newly diagnosed patients we have to do better.
Karena Spencer only discovered she had fibromuscular dysplasia after losing her sister Cristy. She shares her story with @theheraldsun to raise much-needed awareness of this vascular disease thought to affect one in 20 women:@FMDartery @pdmace2
heraldsun.com.au/news/victoria/…
heraldsun.com.au/news/victoria/…
February 13, 2025 at 1:44 PM
Karena is an amazing advocate. I wish she never had to experience the pain and loss of her sister. We need more research, awareness, and education of #FMD. With so many newly diagnosed patients we have to do better.
Reposted by Pam Mace
#RadSky #Radiology #PedsRad #Education
Pediatric Imaging
7 y/o with hypertension. Angiography - Segmental renovascular stenosis (blue) with intervening aneurysms (red).
Gold Standard - Catheter based angiography
Fibromuscular dysplasia
pmc.ncbi.nlm.nih.gov/articles/PMC...
Pediatric Imaging
7 y/o with hypertension. Angiography - Segmental renovascular stenosis (blue) with intervening aneurysms (red).
Gold Standard - Catheter based angiography
Fibromuscular dysplasia
pmc.ncbi.nlm.nih.gov/articles/PMC...
February 11, 2025 at 1:17 AM
#RadSky #Radiology #PedsRad #Education
Pediatric Imaging
7 y/o with hypertension. Angiography - Segmental renovascular stenosis (blue) with intervening aneurysms (red).
Gold Standard - Catheter based angiography
Fibromuscular dysplasia
pmc.ncbi.nlm.nih.gov/articles/PMC...
Pediatric Imaging
7 y/o with hypertension. Angiography - Segmental renovascular stenosis (blue) with intervening aneurysms (red).
Gold Standard - Catheter based angiography
Fibromuscular dysplasia
pmc.ncbi.nlm.nih.gov/articles/PMC...
Reposted by Pam Mace
Resistant Renovascular Hypertension in Youth: Fibromuscular Dysplasia or Takayasu Arteritis?
https://pubmed.ncbi.nlm.nih.gov/39834060
https://pubmed.ncbi.nlm.nih.gov/39834060
January 22, 2025 at 7:03 PM
Resistant Renovascular Hypertension in Youth: Fibromuscular Dysplasia or Takayasu Arteritis?
https://pubmed.ncbi.nlm.nih.gov/39834060
https://pubmed.ncbi.nlm.nih.gov/39834060
This is a very well done video on Fibromuscular Dysplasia by @jasonkovacic.bsky.social
One in 20 women are thought to have a vascular condition which in severe cases can cause stroke. Fibromuscular dysplasia affects any medium-sized blood vessel in the body + can also drive heart attack. Prof @Kovacic_Jason explains more:#NationalStrokeWeek
youtube.com/watch?v=AWcnIB…
youtube.com/watch?v=AWcnIB…
What is Fibromuscular Dysplasia (FMD)? Cardiologist Prof Kovacic explains
FMD is a vascular disease thought to affect one in 20 people. Victor Chang Cardiac Research Institute scientist and cardiologist Professor Jason Kovacic explains what FMD is, what are the symptoms of FMD, what causes FMD, how to treat FMD and the link between FMD and SCAD heart attacks.
Learn more about FMD: https://www.victorchang.edu.au/heart-disease/fibromuscular-dysplasia
Support vital heart research at the Institute: https://www.victorchang.edu.au/donate
#HeartDisease #FMD
www.youtube.com
February 13, 2025 at 1:03 PM
This is a very well done video on Fibromuscular Dysplasia by @jasonkovacic.bsky.social
Reposted by Pam Mace
Recently Published: Integrative gene regulatory network analysis discloses key driver genes of fibromuscular dysplasia
dlvr.it/TDDm4k
dlvr.it/TDDm4k
NCBI - WWW Error Blocked Diagnostic
Your access to the NCBI website at www.ncbi.nlm.nih.gov has been
temporarily blocked due to a possible misuse/abuse situation
involving your site. This is not an indication of a security issue
such as a virus or attack. It could be something as simple as a run
away script or learning how to better use E-utilities,
http://www.ncbi.nlm.nih.gov/books/NBK25497/,
for more efficient work such that your work does not impact the ability of other researchers
to also use our site.
To restore access and understand how to better interact with our site
to avoid this in the future, please have your system administrator
contact
info@ncbi.nlm.nih.gov.
dlvr.it
January 29, 2025 at 3:15 AM
Recently Published: Integrative gene regulatory network analysis discloses key driver genes of fibromuscular dysplasia
dlvr.it/TDDm4k
dlvr.it/TDDm4k
Reposted by Pam Mace
Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT
Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT
Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT
pubmed.ncbi.nlm.nih.gov
January 23, 2025 at 11:57 AM
Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT
Reposted by Pam Mace
At least 24 million people in the U.S. have caught the #flu so far this season, and that number only continues to climb.
time.com/7221325/why-...
time.com/7221325/why-...
This Is One of the Worst Flu Seasons in Decades
You're not imagining it: a lot of people are sick right now.
time.com
February 13, 2025 at 4:12 AM
At least 24 million people in the U.S. have caught the #flu so far this season, and that number only continues to climb.
time.com/7221325/why-...
time.com/7221325/why-...
Reposted by Pam Mace
How a heart medication—digoxin—might help prevent cancer spread by dissolving clusters of circulating tumor cells
www.nature.com/articles/s41...
www.nature.com/articles/s41...
January 24, 2025 at 2:50 PM
How a heart medication—digoxin—might help prevent cancer spread by dissolving clusters of circulating tumor cells
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Reposted by Pam Mace
A total of $12 million in grant funding is available to fund 3 investigators/investigative teams proposing novel uses of Artificial Intelligence to revolutionize cardiovascular and cerebrovascular/brain health and health care delivery.
Learn more: professional.heart.org/en/research-...
Learn more: professional.heart.org/en/research-...
Novel Artificial Intelligence Approaches to Advance Cardiovascular and Cerebrovascular/Brain Health
Research funding opportunity focused on novel AI approaches to advance cardiovascular and cerebrovascular/brain health
professional.heart.org
January 28, 2025 at 11:58 PM
A total of $12 million in grant funding is available to fund 3 investigators/investigative teams proposing novel uses of Artificial Intelligence to revolutionize cardiovascular and cerebrovascular/brain health and health care delivery.
Learn more: professional.heart.org/en/research-...
Learn more: professional.heart.org/en/research-...
Reposted by Pam Mace
Painful, chronic peripheral neuropathy from cancer chemotherapy is common, especially from platinum-based drugs and taxanes, as reported today in a meta-analysis of 77 studies from 28 countries
January 29, 2025 at 12:07 AM
Painful, chronic peripheral neuropathy from cancer chemotherapy is common, especially from platinum-based drugs and taxanes, as reported today in a meta-analysis of 77 studies from 28 countries
Reposted by Pam Mace
JCI Insight - Map2k6 is a potent genetic modifier of arterial rupture in vascular Ehlers-Danlos syndrome mice insight.jci.org/articles/vie...
JCI Insight -
Map2k6 is a potent genetic modifier of arterial rupture in vascular Ehlers-Danlos syndrome mice
insight.jci.org
January 24, 2025 at 1:15 AM
JCI Insight - Map2k6 is a potent genetic modifier of arterial rupture in vascular Ehlers-Danlos syndrome mice insight.jci.org/articles/vie...
Reposted by Pam Mace
A randomized trial showed Factor XIa inhibitor (abelacimab) compared with the currently used Factor Xa blocking agents (rivoroxaban) for atrial fibrillation led to significantly less bleeding events, leading to early trial termination
nejm.org/doi/full/10....
nejm.org/doi/full/10....
January 22, 2025 at 10:11 PM
A randomized trial showed Factor XIa inhibitor (abelacimab) compared with the currently used Factor Xa blocking agents (rivoroxaban) for atrial fibrillation led to significantly less bleeding events, leading to early trial termination
nejm.org/doi/full/10....
nejm.org/doi/full/10....
Reposted by Pam Mace
Agree 💯 that more work is needed to address gaps in women's health research in the recent National Academies report, including CVDs.
www.science.org/content/arti...
nap.nationalacademies.org/download/28586
www.science.org/content/arti...
nap.nationalacademies.org/download/28586
A New Vision for Women's Health Research: Transformative Change at the National Institutes of Health
Read online, download a free PDF, or order a copy in print.
nap.nationalacademies.org
December 10, 2024 at 9:29 PM
Agree 💯 that more work is needed to address gaps in women's health research in the recent National Academies report, including CVDs.
www.science.org/content/arti...
nap.nationalacademies.org/download/28586
www.science.org/content/arti...
nap.nationalacademies.org/download/28586
Reposted by Pam Mace
Reposted by Pam Mace
