More Sleep Please
@moresleepplease.bsky.social
A mostly humorous look at a woman with all the finesse of a tap dancing elephant and more chronic ailments than a medical textbook, ranting about the arseholery of living life with a twat-waffle of a body that also refuses to cooperate.
Days 5 of being in indescribable pain, which indescribably, is hard to decribe because of it's indescribablity.
Because it's an open wound, my mouth smells as though something has crawled into my maw and promptly died.
#indescribablepain
#pain
#morepain
#andyetmorepain
#surgery
#openwound
Because it's an open wound, my mouth smells as though something has crawled into my maw and promptly died.
#indescribablepain
#pain
#morepain
#andyetmorepain
#surgery
#openwound
July 5, 2025 at 4:39 PM
Days 5 of being in indescribable pain, which indescribably, is hard to decribe because of it's indescribablity.
Because it's an open wound, my mouth smells as though something has crawled into my maw and promptly died.
#indescribablepain
#pain
#morepain
#andyetmorepain
#surgery
#openwound
Because it's an open wound, my mouth smells as though something has crawled into my maw and promptly died.
#indescribablepain
#pain
#morepain
#andyetmorepain
#surgery
#openwound
Me about every pain I've ever experienced - "Surely it can't get any worse than this!"
Throat surgery - "Hold my beer..."
It seriously feels as though my throat has been hacked with a serrated blade that's been held over the burning flames of Hades before being dipped in acid.
#surgery
#pain
Throat surgery - "Hold my beer..."
It seriously feels as though my throat has been hacked with a serrated blade that's been held over the burning flames of Hades before being dipped in acid.
#surgery
#pain
July 4, 2025 at 1:27 PM
I am so unbelievably bored with this life.
April 4, 2025 at 8:41 PM
I am so unbelievably bored with this life.
I can't say that I'm depressed but there's an overwhelming feeling of sadness that won't go away. I don't feel like I'm under a dark cloud. There's no feeling as though there's a vapid hole in my chest. No 'Big Black Dog' nestling down beside me. Just a deep deep sadness.
#chronicillness
#sadness
#chronicillness
#sadness
April 2, 2025 at 2:23 AM
I can't say that I'm depressed but there's an overwhelming feeling of sadness that won't go away. I don't feel like I'm under a dark cloud. There's no feeling as though there's a vapid hole in my chest. No 'Big Black Dog' nestling down beside me. Just a deep deep sadness.
#chronicillness
#sadness
#chronicillness
#sadness
I felt quite offended when my bloods came back as "unremarkable." Not that I want it to be remarkable in a "you've got an incurable disease," way. But maybe they could have typed it as, "although unremarkable, her haemoglobins were very pleasant."
#chronicillness
#spooniesky
#nicebloodyougotthere
#chronicillness
#spooniesky
#nicebloodyougotthere
April 1, 2025 at 5:17 PM
I felt quite offended when my bloods came back as "unremarkable." Not that I want it to be remarkable in a "you've got an incurable disease," way. But maybe they could have typed it as, "although unremarkable, her haemoglobins were very pleasant."
#chronicillness
#spooniesky
#nicebloodyougotthere
#chronicillness
#spooniesky
#nicebloodyougotthere
Friends, I have borne witness to a miraculous event! Like a rainbow coloured Unicorn frolicking amidst the joy of playful fairies, like dragons taking to a sunburnt sky & like Kim Kardashian being fully clothed, I never thought such a thing existed.
#chronicillness
#mcas
#spooniesky
#allergies
#chronicillness
#mcas
#spooniesky
#allergies
April 1, 2025 at 1:27 AM
Friends, I have borne witness to a miraculous event! Like a rainbow coloured Unicorn frolicking amidst the joy of playful fairies, like dragons taking to a sunburnt sky & like Kim Kardashian being fully clothed, I never thought such a thing existed.
#chronicillness
#mcas
#spooniesky
#allergies
#chronicillness
#mcas
#spooniesky
#allergies
Why do some people insist on working with members of the public when they have no people skills whatever? Trying to explain my symptoms and could this nurse look anymore bored? Biatch actually yawned half way through and then looked away like I was inconveniencing her by being ill!
March 31, 2025 at 5:20 PM
Why do some people insist on working with members of the public when they have no people skills whatever? Trying to explain my symptoms and could this nurse look anymore bored? Biatch actually yawned half way through and then looked away like I was inconveniencing her by being ill!
MRI on Saturday but I can't help feeling what's the point? Whether they find something or not doesn't take away from the fact that my life is still 50 Shades of shit. A new diagnosis isn't going to eradicate the old conditions and the old conditions aren't going anywhere. So again, what's the point?
March 26, 2025 at 6:09 PM
MRI on Saturday but I can't help feeling what's the point? Whether they find something or not doesn't take away from the fact that my life is still 50 Shades of shit. A new diagnosis isn't going to eradicate the old conditions and the old conditions aren't going anywhere. So again, what's the point?
Yay! I've finally been discharged from the head & neck cancer pathway! But there's still lymphoid
tissue on the posterior nasopharyngeal wall, tongue base and cobblestoning of the pharyngeal walls & a small area of cystic appearance at the interarytenoid space. Just awaiting my 2nd MRI. #spooniesky
tissue on the posterior nasopharyngeal wall, tongue base and cobblestoning of the pharyngeal walls & a small area of cystic appearance at the interarytenoid space. Just awaiting my 2nd MRI. #spooniesky
March 24, 2025 at 1:27 PM
Yay! I've finally been discharged from the head & neck cancer pathway! But there's still lymphoid
tissue on the posterior nasopharyngeal wall, tongue base and cobblestoning of the pharyngeal walls & a small area of cystic appearance at the interarytenoid space. Just awaiting my 2nd MRI. #spooniesky
tissue on the posterior nasopharyngeal wall, tongue base and cobblestoning of the pharyngeal walls & a small area of cystic appearance at the interarytenoid space. Just awaiting my 2nd MRI. #spooniesky
'Issue 5' of my mock Horror book covers/posters, created to present REAL quotes that delve into the minds of those that perpetuate misinformation, pseudo psychology and quack diagnosis regarding the cause & potential cure for chronic illness
#fibromyalgia
#chronicillness
#spooniesky
#nocureforstupid
#fibromyalgia
#chronicillness
#spooniesky
#nocureforstupid
March 13, 2025 at 2:52 PM
'Issue 5' of my mock Horror book covers/posters, created to present REAL quotes that delve into the minds of those that perpetuate misinformation, pseudo psychology and quack diagnosis regarding the cause & potential cure for chronic illness
#fibromyalgia
#chronicillness
#spooniesky
#nocureforstupid
#fibromyalgia
#chronicillness
#spooniesky
#nocureforstupid
"By now I was hunched over like a wizened old crone, the pain no longer allowing me to stand upright."
*Originally titled "Adventures in Laundering."
#chronicfatigue
#chronicpain
#spooniesky
themighty.com/topic/chroni...
*Originally titled "Adventures in Laundering."
#chronicfatigue
#chronicpain
#spooniesky
themighty.com/topic/chroni...
Doing the Laundry When You Have Chronic Fatigue
"Will this tiredness never cease?"
themighty.com
March 13, 2025 at 2:22 PM
"By now I was hunched over like a wizened old crone, the pain no longer allowing me to stand upright."
*Originally titled "Adventures in Laundering."
#chronicfatigue
#chronicpain
#spooniesky
themighty.com/topic/chroni...
*Originally titled "Adventures in Laundering."
#chronicfatigue
#chronicpain
#spooniesky
themighty.com/topic/chroni...
Oh the life of an invalid. It's 1:30 am & I'm literally stuck in bed. Left leg is on strike so I can't walk & my shoulders/neck/back have decided that they will not be used for their intended purposes. So here I lie, heat pad wrapped around neck contemplating my existence #chronicillness #spooniesky
March 13, 2025 at 1:32 AM
Oh the life of an invalid. It's 1:30 am & I'm literally stuck in bed. Left leg is on strike so I can't walk & my shoulders/neck/back have decided that they will not be used for their intended purposes. So here I lie, heat pad wrapped around neck contemplating my existence #chronicillness #spooniesky
Continuing my Horror book covers/posters, created to present REAL quotes that delve into the minds of those that perpetuate misinformation, pseudo psychology and quack diagnosis regarding the cause & potential cure for chronic illness.
#chronicillness
#spooniesky
#ohthehorror
#chronicillness
#spooniesky
#ohthehorror
March 12, 2025 at 2:11 PM
Continuing my Horror book covers/posters, created to present REAL quotes that delve into the minds of those that perpetuate misinformation, pseudo psychology and quack diagnosis regarding the cause & potential cure for chronic illness.
#chronicillness
#spooniesky
#ohthehorror
#chronicillness
#spooniesky
#ohthehorror
Starmer says targeting #disabilitybenefits is about fairnes but what's fair about forcing those with long-term health conditions into further poverty? PIP fraud was 0.2% compared to the estimated £60 million in underpayments caused by DWP and yet we, the chronically disabled, are being penalised.
March 12, 2025 at 2:04 PM
Starmer says targeting #disabilitybenefits is about fairnes but what's fair about forcing those with long-term health conditions into further poverty? PIP fraud was 0.2% compared to the estimated £60 million in underpayments caused by DWP and yet we, the chronically disabled, are being penalised.
"But it's hard to trust the Doctor paid to heal you when they seem more intent on causing you harm."
#medicalgaslighting
#anappleadaykeepsthedoctorawayifyouthrowithardenough
moresleeppleaseblog.wordpress.com/2025/03/12/d...
#medicalgaslighting
#anappleadaykeepsthedoctorawayifyouthrowithardenough
moresleeppleaseblog.wordpress.com/2025/03/12/d...
Don’t Trust Me, I’m A Doctor
So, can anyone tell me the correct etiquette for when one discovers that their Doctor is a treacherous, meritless, duplicitous, Janus-faced piece of human excrement and not the upstanding man of me…
moresleeppleaseblog.wordpress.com
March 12, 2025 at 10:08 AM
"But it's hard to trust the Doctor paid to heal you when they seem more intent on causing you harm."
#medicalgaslighting
#anappleadaykeepsthedoctorawayifyouthrowithardenough
moresleeppleaseblog.wordpress.com/2025/03/12/d...
#medicalgaslighting
#anappleadaykeepsthedoctorawayifyouthrowithardenough
moresleeppleaseblog.wordpress.com/2025/03/12/d...
So Temu Tory Keir Starmer, wants to cut #DisabilityBenefits for those who can't work. That's 'CAN'T' work, not 'won't' work. Cutting off people's only means of financial help, is not going to suddenly cure them of their long-term/life-long disabilities. As if life isn't hard or scary enough as it is
March 11, 2025 at 11:00 PM
So Temu Tory Keir Starmer, wants to cut #DisabilityBenefits for those who can't work. That's 'CAN'T' work, not 'won't' work. Cutting off people's only means of financial help, is not going to suddenly cure them of their long-term/life-long disabilities. As if life isn't hard or scary enough as it is
Reposted by More Sleep Please
“I find myself incredibly #disabled & yet limited to only #FreshFood that can be prepared & eaten right away. It’s exhausting. Many days it’s impossible & I either don’t eat or have to rely on someone else to prepare my food for me": buff.ly/3XZoRHj
by @Broadwaybabyto.bsky.social
#MCAS #NEisVoid
by @Broadwaybabyto.bsky.social
#MCAS #NEisVoid
When You're Allergic to Everything and Nothing... That's MCAS
An intro guide to Mast Cell Activation Syndrome and how it has fundamentally changed my life. Living under the constant threat of anaphylaxis is hard - but there are ways to make it easier.
buff.ly
March 11, 2025 at 2:30 PM
“I find myself incredibly #disabled & yet limited to only #FreshFood that can be prepared & eaten right away. It’s exhausting. Many days it’s impossible & I either don’t eat or have to rely on someone else to prepare my food for me": buff.ly/3XZoRHj
by @Broadwaybabyto.bsky.social
#MCAS #NEisVoid
by @Broadwaybabyto.bsky.social
#MCAS #NEisVoid
Reposted by More Sleep Please
"You don’t want to feed them,
But they’re waiting to feed you.
Don’t you understand?
They won’t let you die;
Who will starve for you then?
It’s just one of those nights.": buff.ly/3S76zCP
#ChronicPain #MentalHealth #steroids #painsomnia #poem
But they’re waiting to feed you.
Don’t you understand?
They won’t let you die;
Who will starve for you then?
It’s just one of those nights.": buff.ly/3S76zCP
#ChronicPain #MentalHealth #steroids #painsomnia #poem
March 8, 2025 at 9:30 PM
"You don’t want to feed them,
But they’re waiting to feed you.
Don’t you understand?
They won’t let you die;
Who will starve for you then?
It’s just one of those nights.": buff.ly/3S76zCP
#ChronicPain #MentalHealth #steroids #painsomnia #poem
But they’re waiting to feed you.
Don’t you understand?
They won’t let you die;
Who will starve for you then?
It’s just one of those nights.": buff.ly/3S76zCP
#ChronicPain #MentalHealth #steroids #painsomnia #poem
Dr investigating recent seizures - "And how long have you had mental health problems?"
Me - "Always."
Dr - "Well it could be..."
Me giving the 'I dare you to say it's all in your head', death stare.
Dr looking scared - "er...um...let's refer you back to neurology."
Me - "yeah, let's.
#chronicillness
Me - "Always."
Dr - "Well it could be..."
Me giving the 'I dare you to say it's all in your head', death stare.
Dr looking scared - "er...um...let's refer you back to neurology."
Me - "yeah, let's.
#chronicillness
March 7, 2025 at 6:29 PM
Dr investigating recent seizures - "And how long have you had mental health problems?"
Me - "Always."
Dr - "Well it could be..."
Me giving the 'I dare you to say it's all in your head', death stare.
Dr looking scared - "er...um...let's refer you back to neurology."
Me - "yeah, let's.
#chronicillness
Me - "Always."
Dr - "Well it could be..."
Me giving the 'I dare you to say it's all in your head', death stare.
Dr looking scared - "er...um...let's refer you back to neurology."
Me - "yeah, let's.
#chronicillness
Proof how our symptoms are dismissed and downplayed. I called 111, who in turn called the emergency services about my seizures. And this is what was sent to my doctor, who by the way, retired almost 2 years ago.
#chronicillness
#spooniesky
#medicalgaslighting
#chronicillness
#spooniesky
#medicalgaslighting
March 6, 2025 at 5:10 PM
Proof how our symptoms are dismissed and downplayed. I called 111, who in turn called the emergency services about my seizures. And this is what was sent to my doctor, who by the way, retired almost 2 years ago.
#chronicillness
#spooniesky
#medicalgaslighting
#chronicillness
#spooniesky
#medicalgaslighting
Day 2 of tempers, tantrums & tremors. Told the EMT they were pissing me off because they kept talking over me & not TO me. Told the doctor to "not go there," when she tried to blame my pre-existing conditions & finally told them all to fuck off because they weren't being of any use. #chronicillness
March 6, 2025 at 2:17 PM
Day 2 of tempers, tantrums & tremors. Told the EMT they were pissing me off because they kept talking over me & not TO me. Told the doctor to "not go there," when she tried to blame my pre-existing conditions & finally told them all to fuck off because they weren't being of any use. #chronicillness