to have an allergic reaction. But it must be worrying for you that neither of your meds work for you. I don't think people understand the genuine fear of not knowing what is causing it.

I think as General Practitioners, GPs know about a little bit about most things but tend not to look further afield from what they've learned so things get missed or misdiagnosed.

Mcas or Idiopathic anaphylaxis are when the triggers are unknown or unprovoked. I don't have to eat or drink anything

Thank you. Unfortunately our GPs in the UK, are just not equipped to look at the broader picture. It's almost as though they've never even heard of MCAS as a possible explanation.

I don't think doctors understand the impact of the words "there is nothing that can be done." it's disheartening

capitals, that I should have been seen at an allergy clinic years ago. I was so grateful because I had often wondered what it would take for my own doc to take me seriously. Would I have to have suffer an anaphylaxtic shock in front of him to be believed? Anyway, it's now 1:30 am & I'm finally home.

I hadn't eaten or had anything to drink & yet I was in the middle of a very obvious allergic reaction. She got it immediately, as did the A&E Doc after waiting in "fast track" for almost 9 hours. And he was raging! He could not believe how dismissive my GP had been & promised that he would write in

It has taken me 3 years of trying to explain to various doctors that I have allergic reactions from out of nowhere and time and time again I have been told that no such thing exists...except it does. I explained this to the paramedic as she looked at my swollen face and swollen throat.

But I'm here to tell you that it does, because I spied this magnificent creature with my own eyes, heard his dulcet tones with my own ears. Who would have ever thought that in my lifetime, I would ever encounter...a doctor who listens! (gasp, shock, horror!) And one who was also angry on my behalf.

She IS bad juju. The nurse that finally took over got more done in 10 mins then Mrs 'I don't like people' had done in 2 hrs. Had a few silent ones brewing and percolating nicely and was about to share but then someone vomited Exorcist style and all was forgotten.

Remember the awful Willy Wonka Experience that went viral? That was the Majic room.

Thats awful! Doctors and their bloody God complex! I'm in A&E in a room called "Majic" but which should be renamed Doom & Gloom. If I keeled over right now, this nurse would just walk over my body. She is unapologetic in the fact that she doesn't give a shit.

It does feel futile and I'm tired of the whole chronic illness life but the alternative is an even worse place to be so I'll keep marching on. Thank you for those strong words and for your support.