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longcovidlabs.bsky.social
Long COVID Labs
@longcovidlabs.bsky.social
Non-profit accelerating a cure for 100M+ people with Long COVID.

Longcovidlabs.org
🚨We need ✨root cause✨ treatments for Long COVID, STAT!

NIH RECOVER-NEURO results demonstrate you can't treat brain fog if you don't understand what's causing it.

We believe that for many, it's SARS-CoV-2 persistence - we need ways to treat and clear it, now!🧠
RECOVER: 'RECOVER-NEURO clinical trial shares results of three non-drug treatments for cognitive symptoms of Long COVID'

'None of our rehabilitation approaches to treatment for cognitive Long COVID proved to be effective.'

recovercovid.org/news/recover...
RECOVER: Researching COVID to Enhance Recovery
The long-term effects of COVID are real. Join the NIH in the search for answers.
recovercovid.org
November 11, 2025 at 1:54 PM
Reposted by Long COVID Labs
Such an important topic, thank you Chloé, @lisamccorkell.bsky.social @julialmv.bsky.social @leticiasaurus.bsky.social and coauthors for drawing attention to it!

#LongCovid #MECFS
Many Long COVID trials have reported negative results in 2024 and 2025. In our Comment for @thelancetinfdis.bsky.social we argue that inadequate outcome measures might have played a role. (1/12)
November 8, 2025 at 12:13 AM
Reposted by Long COVID Labs
Thank you to the Irish Independent for this article and this is why so many folks are off sick. Sadly now six of my friends have long covid. This is a national crisis behind closed doors. www.independent.ie/life/health-...
Long-Covid is still here. I can’t walk, cook, work, socialise or live independently – and I am not alone
The country, and the rest of the world, was in the grip of a global pandemic, so when Lydia Fischer Dooley, developed a dry cough, fatigue, weakness and lack of appetite at the start of 2022, she righ...
www.independent.ie
November 10, 2025 at 12:29 PM
Thymosin Alpha 1 & Long COVID

Our team is curious if anyone out there has tried the peptide Thymosin Alpha 1 for Long COVID. We’re asking for research purposes (not endorsing a treatment ofc!).

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Thymosin alpha 1: A comprehensive review of the literature
Thymosin alpha 1 is a peptide naturally occurring in the thymus that has long been recognized for modifying, enhancing, and restoring immune function. Thymosin alpha 1 has been utilized in the treatment of immunocompromised states and malignancies, ...
pmc.ncbi.nlm.nih.gov
November 6, 2025 at 1:56 PM
🚨This is so important:

"After years of denial the international consensus is now shifting,” according to physicist @yaneerbaryam.bsky.social

COVID-19 is:

🛑creating a 12.9% increase in workplace absences compared to pre-pandemic

🛑causing a 2% increase in excess deaths vs. pre-pandemic

1/
November 4, 2025 at 1:44 PM
Reposted by Long COVID Labs
"This Physicist Says We Don’t Take COVID Seriously Enough"

"We downplay the virus at our peril, warns Yaneer Bar-Yam. And children are more at risk than we thought."

Source: archive.li/Op73F
November 1, 2025 at 11:25 PM
New review in The Nurse Practitioner Journal raises awareness of #SARS-Cov-2 persistence in Long COVID! ✨

LC patients are ALL too familiar with the experience of seeking out help from medical professionals - only to be met with confusion and doubt over what this disease is.

1/
November 1, 2025 at 5:29 PM
📢New study out of Mass General looks at microclots in kids with Long COVID 🩸

In this study, researchers examined blood samples from 59 children with Long COVID and 14 healthy controls.

They found that the rates of microclots were SIGNIFICANTLY higher in the Long COVID patients.

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October 28, 2025 at 2:28 PM
Highly recommend this review from Oba et al. on the current status of Long COVID research & treatment -- worth a read! ✨

Here, the authors outline the major hypotheses for the root causes of LC. The research community has largely been coalescing around these ideas in the last 1-2 years. 📊

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October 23, 2025 at 9:35 PM
📣 New Clinical Trial Compares Efficacy of Paxlovid vs. Ensitrelvir

Researchers in Thailand and Laos compared the rates of recovery from acute SARS-CoV-2 infection while patients were taking these two antiviral drugs:

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October 17, 2025 at 4:27 PM
🚨New case study provides compelling evidence for a shocking conclusion:

👉Not only can the SARS-CoV-2 virus persist in the GI tract, but these chronic infections may eventually give rise to new variants of concern.

1/
October 10, 2025 at 11:25 AM
Really enjoyed this insightful PBS News Hour with Long COVID advocate @meighanstone.bsky.social and leading researcher @michaelpelusomd.bsky.social! #LongCOVID

www.pbs.org/video/long-c...

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PBS News Hour | What to know about RFK Jr.’s efforts to address long COVID | Season 2025
What to know about RFK Jr.’s efforts to address long COVID research and treatments
www.pbs.org
October 7, 2025 at 4:13 PM
✨ New study confirms tenofovir efficacy against SARS-CoV-2! (This includes Truvada!). ✨

In this study, researchers looked at two forms of the anti-HIV antiviral: tenofovir alafenamide (TAF) and tenofovir disoproxil fumarate (TDF).

They found both drugs effective against the virus in-vitro!

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October 1, 2025 at 5:39 PM
🚨Fascinating new analysis from @ucirvine.bsky.social researchers on the possible role of SARS-CoV-2 persistence in Long COVID:

The authors outline several mechanisms by which the virus could remain in the human body and cause disease.

1/
September 30, 2025 at 1:58 PM
🚨 New UNLOCK LC Consortium paper finds circulating nucleocapsid protein in Long COVID Patients AND Healthy Controls

👉Researchers found circulating nucleocapsid protein in 10/39 Long COVID patients, and 6/21 healthy controls.

#longcovid #medsky #pedsky

1/

www.medrxiv.org/content/10.1...
controls.ing
September 23, 2025 at 7:26 PM
Today’s HHIS Long COVID Roundtable was absolutely incredible!

It was amazing to see Long COVID being discussed at the highest levels of government.

Watch the full Roundtale here: x.com/longcovidlab...

In this post, we'll go over some important takeways:

1/
Long COVID Labs on X: "Today’s @HHSGov Long COVID Roundtable was absolutely incredible! It was amazing to see Long COVID being discussed at the highest levels of government, with many promising leads for the future of Long COVID research: A 🧵on important takeaways: 1/ https://t.co/JZBbMEH9xj" / X
Today’s @HHSGov Long COVID Roundtable was absolutely incredible! It was amazing to see Long COVID being discussed at the highest levels of government, with many promising leads for the future of Long COVID research: A 🧵on important takeaways: 1/ https://t.co/JZBbMEH9xj
x.com
September 19, 2025 at 1:36 AM
Reposted by Long COVID Labs
I wrote how Long COVID isn’t a single problem to solve with a single pill

Like HIV, TB, cancer and acute COVID, it demands combination therapies that tackle many layers at once

It’s time to stop chasing silver bullets and start mixing the cocktail

thesicktimes.org/2025/09/12/s...
Stop looking for a silver bullet. Start mixing the Long COVID cocktail. - The Sick Times
Here’s what keeps me up at night: If some people are finding relief, why aren’t we scaling what might work? And why aren’t we trying multiple interventions at the same time?
thesicktimes.org
September 12, 2025 at 3:30 PM
The NIH met this week to launch Recover TLC- the next phase of its Long COVID research.

Treatments for the next round of trials include:

👉 glucagon-like peptide-1 receptor agonists (GLP-1)

👉 stellate ganglion blocks

👉 low-dose naltrexone

👉 ⬆️ funding for an existing trial on baricitinib

1/
September 12, 2025 at 1:19 AM
🚨The 3rd International Long COVID Conference is coming up in November!

Check it out - details here! 👇

academicmedicaleducation.com/programs/3rd...
September 8, 2025 at 4:28 PM
New #LongCOVID case study out!

In this study, subjects were given a new drug called IMC-2, which is a combination of the herpesvirus antiviral drug valcyclovir and celexoxib, an anti-inflammatory which is believed to also have antiviral properties.

1/
September 3, 2025 at 2:33 PM
💡Big news from Long COVID Labs!

Our new Patient Grant Fund will provide up to $100,000 in funding to help patients access #LongCOVID treatments.

We’re currently spreading the word to doctors and clinics, and want to make sure we don’t leave anyone out!

Who do you recommend? Comment or DM us! 🙏
August 26, 2025 at 9:23 PM
📢 How Can Real-World Evidence Be Used to Expedite Long COVID Treatments?

Traditional research moves slowly, but Long COVID patients can't wait any longer.

Learn how LONG COVID LABS is charting a new path to bring new treatments closer, faster! 👇

www.longcovidlabs.org/post/how-can...
How Can Real-World Evidence Be Used to Expedite Long COVID Treatments? | Long COVID Labs Blog
Traditional research moves slowly, but patients with Long COVID can’t wait. Learn how Long COVID Labs is charting a new path to bring treatments closer, faster.
www.longcovidlabs.org
August 21, 2025 at 12:22 PM
LONG COVID LABS is excited to announce that we’ve awarded funds for a Long COVID patient to receive a combination treatment of Pemgarda monoclonal antibodies and Paxlovid!

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August 19, 2025 at 11:24 PM
LONG COVID LABS governance proposals 004 and 005 are now live!

As our momentum increases and we prepare for the next TGE vote, we’re putting forward 2 new governance proposals to help accelerate our progress and long-term value.

Voting is live through 12 pm PT! discord.gg/wzDqF5xd

See you there!
Join the LONG COVID LABS Discord Server!
Let's cure Long COVID together! | 227 members
discord.gg
August 14, 2025 at 4:12 PM
📢 Calling All #LongCOVID Patients!

LONG COVID LABS is creating tools to make symptom tracking more useful, personalized, and patient-friendly.

📝 Take our quick survey to share your preferences:

Your feedback will help shape the responsive tools we’re building!

blocksurvey.io/symptom-trac...
Symptom Tracking Preferences
blocksurvey.io
August 13, 2025 at 4:10 PM