Long Covid Support Aotearoa
@lcsupportaotearoa.bsky.social
Bringing forward the lived experience of people with Long Covid in NZ to help and connect with the community
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We're new to Bluesky.
We are a New Zealand support group bringing forward the lived experience of our community with Long Covid and advocating for awareness, treatment, supports, and prevention.
We are a New Zealand support group bringing forward the lived experience of our community with Long Covid and advocating for awareness, treatment, supports, and prevention.
Reposted by Long Covid Support Aotearoa
“If we don’t invest in the health of children… we’re going to be seeing a carrying on of adults who are economically inactive.”
Prof Steve Turner @rcpch.bsky.social
www.thetimes.com/article/ed1d...
Prof Steve Turner @rcpch.bsky.social
www.thetimes.com/article/ed1d...
November 7, 2025 at 8:07 AM
“If we don’t invest in the health of children… we’re going to be seeing a carrying on of adults who are economically inactive.”
Prof Steve Turner @rcpch.bsky.social
www.thetimes.com/article/ed1d...
Prof Steve Turner @rcpch.bsky.social
www.thetimes.com/article/ed1d...
Recent research in New Zealand shows that Long Covid sufferers feel let down by the health system:
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
Researchers say healthcare system failing long Covid patients
A researcher is calling on the government to provide dedicated funding for long Covid.
www.rnz.co.nz
November 7, 2025 at 3:48 AM
Recent research in New Zealand shows that Long Covid sufferers feel let down by the health system:
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
Reposted by Long Covid Support Aotearoa
"Some are children who can no longer attend school. Others are young adults who were once thriving and are now bed-bound. Many are mothers and fathers who can no longer care for their own families.
They don’t just need a doctor.
They need multidisciplinary care." #longcovid #mecfs
They don’t just need a doctor.
They need multidisciplinary care." #longcovid #mecfs
“We Can’t Do This Alone”: A Doctor’s Plea for Support in Caring for Long COVID and ME/CFS Patients
danilobuonsenso.substack.com/p/we-cant-do...
danilobuonsenso.substack.com/p/we-cant-do...
“We Can’t Do This Alone”: A Doctor’s Plea for Support in Caring for Long COVID and ME/CFS Patients
As a pediatrician and infectious disease specialist, my days are full.
danilobuonsenso.substack.com
October 20, 2025 at 2:32 AM
"Some are children who can no longer attend school. Others are young adults who were once thriving and are now bed-bound. Many are mothers and fathers who can no longer care for their own families.
They don’t just need a doctor.
They need multidisciplinary care." #longcovid #mecfs
They don’t just need a doctor.
They need multidisciplinary care." #longcovid #mecfs
One of our members made it to a protest last week 💪
October 20, 2025 at 4:53 AM
One of our members made it to a protest last week 💪
Reposted by Long Covid Support Aotearoa
Timeline synchronicity. Give @lcsupportaotearoa.bsky.social a warm welcome Kikorangi 🇳🇿. Wish you didn’t have to exist, but glad you’re here. ❤️
October 9, 2025 at 10:43 PM
Timeline synchronicity. Give @lcsupportaotearoa.bsky.social a warm welcome Kikorangi 🇳🇿. Wish you didn’t have to exist, but glad you’re here. ❤️
We're new to Bluesky.
We are a New Zealand support group bringing forward the lived experience of our community with Long Covid and advocating for awareness, treatment, supports, and prevention.
We are a New Zealand support group bringing forward the lived experience of our community with Long Covid and advocating for awareness, treatment, supports, and prevention.
October 9, 2025 at 8:16 PM
We're new to Bluesky.
We are a New Zealand support group bringing forward the lived experience of our community with Long Covid and advocating for awareness, treatment, supports, and prevention.
We are a New Zealand support group bringing forward the lived experience of our community with Long Covid and advocating for awareness, treatment, supports, and prevention.
Heartfelt thanks to our young people with #longcovid who took part in this, sharing their stories #kiwi #nzpol
www.1news.co.nz/2025/10/10/o...
www.1news.co.nz/2025/10/10/o...
Offered rest home care at 24: the lonely plight of young Kiwis with long Covid
A group of young Kiwis prove what international studies show: that long Covid has a particularly debilitating effect on young people. But how much medical support is there for them?
www.1news.co.nz
October 9, 2025 at 7:09 PM
Heartfelt thanks to our young people with #longcovid who took part in this, sharing their stories #kiwi #nzpol
www.1news.co.nz/2025/10/10/o...
www.1news.co.nz/2025/10/10/o...
Remember that Herald article that said the economy has Long Covid? We had a few things to say about that.
longcovidsupport.co.nz/news/more-at...
longcovidsupport.co.nz/news/more-at...
Why Long Covid needs more attention – beyond cute headlines – Long Covid Support Aotearoa
longcovidsupport.co.nz
October 8, 2025 at 11:54 PM
Remember that Herald article that said the economy has Long Covid? We had a few things to say about that.
longcovidsupport.co.nz/news/more-at...
longcovidsupport.co.nz/news/more-at...
Reposted by Long Covid Support Aotearoa
We need to get serious about protecting our tamariki. Study finds Long Covid risk for children doubles after a second infection.
stillcoviding.ca/en/news/long...
stillcoviding.ca/en/news/long...
October 4, 2025 at 3:52 AM
We need to get serious about protecting our tamariki. Study finds Long Covid risk for children doubles after a second infection.
stillcoviding.ca/en/news/long...
stillcoviding.ca/en/news/long...
Latest episode: Physio Lauren Turner discusses calming the nervous system and Sarah Hoefhamer discusses her lived experience of MECFS www.mpr.nz/show/sickand...
Sick and Tired Aotearoa
A show that shines a light on chronic and invisible illnesses in Aotearoa.
www.mpr.nz
October 2, 2025 at 10:02 PM
Latest episode: Physio Lauren Turner discusses calming the nervous system and Sarah Hoefhamer discusses her lived experience of MECFS www.mpr.nz/show/sickand...
Reposted by Long Covid Support Aotearoa
Each day, we breathe more than 7,000 litres of air. Unsurprisingly, the quality of this air really matters. And given most of us spend a significant part of the day inside, clean indoor air is essential.
theconversation.com/why-investme...
theconversation.com/why-investme...
Why investment in clean indoor air is vital preparation for the pandemics and climate emergencies to come
Unchecked airborne infections cost billions in lost health and productivity each year – likely more than the cost of better ventilation to clean up indoor air.
theconversation.com
October 2, 2025 at 1:14 AM
Each day, we breathe more than 7,000 litres of air. Unsurprisingly, the quality of this air really matters. And given most of us spend a significant part of the day inside, clean indoor air is essential.
theconversation.com/why-investme...
theconversation.com/why-investme...
Wellington! Some of our Covid aware folks have set up a mask bloc.
This mask bloc can't run without the generosity of donors. Five dollars may mean that a checkout worker can take 5 masks that they can reuse for months.
chuffed.org/project/1510...
chuffed.org/project/1510...
This mask bloc can't run without the generosity of donors. Five dollars may mean that a checkout worker can take 5 masks that they can reuse for months.
chuffed.org/project/1510...
chuffed.org/project/1510...
Wellington Mask Bloc
We are Aotearoa Covid Action, a grassroots advocacy group that has risen up in the wake of Aotearoa New Zealand no longer having a credible plan to control the spread of Covid in our schools, workplac...
chuffed.org
October 2, 2025 at 9:58 PM
Reposted by Long Covid Support Aotearoa
We are so humbled to have met our donation goal of $500 after only two days after launching our ACA Wellington Mask Bloc donation page. Its so heartening that people believe in this cause so much that they are still willing to donate in a recession. We have set a new goal of $1000.
October 2, 2025 at 1:16 AM
We are so humbled to have met our donation goal of $500 after only two days after launching our ACA Wellington Mask Bloc donation page. Its so heartening that people believe in this cause so much that they are still willing to donate in a recession. We have set a new goal of $1000.
We support the call to focus on air quality. We need clean air in schools, hospitals, and workplaces to reduce the transmission of air borne viruses such as Covid-19.
#CleanAir #longcovid
www.rnz.co.nz/news/nationa...
#CleanAir #longcovid
www.rnz.co.nz/news/nationa...
Poor indoor air quality costing the country a billion dollars each year, researchers say
A public health expert says polluted air is costing the country about a billion dollars each year in healthcare costs and decreased productivity.
www.rnz.co.nz
September 11, 2025 at 7:31 AM
We support the call to focus on air quality. We need clean air in schools, hospitals, and workplaces to reduce the transmission of air borne viruses such as Covid-19.
#CleanAir #longcovid
www.rnz.co.nz/news/nationa...
#CleanAir #longcovid
www.rnz.co.nz/news/nationa...
Reposted by Long Covid Support Aotearoa
Studies show how common long COVID is globally and in teens.
Long COVID is highly prevalent in a new global analysis published in Open Forum Infectious Diseases.
A second study in the Journal of Infectious Diseases found many teens had lingering symptoms, though most resolved within 3 months.
Long COVID is highly prevalent in a new global analysis published in Open Forum Infectious Diseases.
A second study in the Journal of Infectious Diseases found many teens had lingering symptoms, though most resolved within 3 months.
Studies show how common long COVID is globally and in teens
www.cidrap.umn.edu
September 9, 2025 at 11:49 PM
Studies show how common long COVID is globally and in teens.
Long COVID is highly prevalent in a new global analysis published in Open Forum Infectious Diseases.
A second study in the Journal of Infectious Diseases found many teens had lingering symptoms, though most resolved within 3 months.
Long COVID is highly prevalent in a new global analysis published in Open Forum Infectious Diseases.
A second study in the Journal of Infectious Diseases found many teens had lingering symptoms, though most resolved within 3 months.
The latest episode of Sick and Tired Aotearoa podcast features Larisa Hockey talking about Long Covid Support Aotearoa www.mpr.nz/show/sickand...
Sick and Tired Aotearoa
A show that shines a light on chronic and invisible illnesses in Aotearoa.
www.mpr.nz
September 10, 2025 at 9:12 PM
The latest episode of Sick and Tired Aotearoa podcast features Larisa Hockey talking about Long Covid Support Aotearoa www.mpr.nz/show/sickand...
Reposted by Long Covid Support Aotearoa
Our board game social was a success yesterday! Thanks to the D*List for giving us 3 free hours in their office space in Auckland and to Cheeky Parrot Games which provided the games library. We hope to arrange more get togethers like this. We had about 25 people brave Auckland's weather to attend.
August 31, 2025 at 10:46 PM
Our board game social was a success yesterday! Thanks to the D*List for giving us 3 free hours in their office space in Auckland and to Cheeky Parrot Games which provided the games library. We hope to arrange more get togethers like this. We had about 25 people brave Auckland's weather to attend.
Sick and Tired Aotearoa
A show that shines a light on chronic and invisible illnesses in Aotearoa.
www.mpr.nz
September 1, 2025 at 10:40 PM
Reposted by Long Covid Support Aotearoa
I died my hair blue to raise Awareness for Covid and Long Covid.
If you’d like to help support my efforts to educate, and help pay for more billboards, please do so.
A share goes a long way as well.
gofund.me/7817f5f5
#backtoschool #covid19 #LongCovid #kids #news #friday #weekend
If you’d like to help support my efforts to educate, and help pay for more billboards, please do so.
A share goes a long way as well.
gofund.me/7817f5f5
#backtoschool #covid19 #LongCovid #kids #news #friday #weekend
August 31, 2025 at 12:07 AM
Reposted by Long Covid Support Aotearoa
This is a list of notable people reported as having died either from coronavirus disease 2019 (COVID-19) or post COVID-19 (long COVID), as a result of infection by the virus SARS-CoV-2 during the COVID-19 pandemic and post-COVID-19 pandemic.
en.wikipedia.org/wiki/List_of...
en.wikipedia.org/wiki/List_of...
List of deaths due to COVID-19 - Wikipedia
en.wikipedia.org
August 31, 2025 at 4:58 AM
This is a list of notable people reported as having died either from coronavirus disease 2019 (COVID-19) or post COVID-19 (long COVID), as a result of infection by the virus SARS-CoV-2 during the COVID-19 pandemic and post-COVID-19 pandemic.
en.wikipedia.org/wiki/List_of...
en.wikipedia.org/wiki/List_of...
People with long Covid reported worse disability than 98% of the general Australian population. A total of 86% of those with long Covid met the threshold for serious disability compared with 9% of Australians overall.
www.1news.co.nz/2025/08/26/l...
www.1news.co.nz/2025/08/26/l...
Long Covid impact 'similar to stroke or Parkinson's'
A new study shows long Covid isn’t just uncomfortable or inconvenient.
www.1news.co.nz
August 27, 2025 at 3:42 AM
People with long Covid reported worse disability than 98% of the general Australian population. A total of 86% of those with long Covid met the threshold for serious disability compared with 9% of Australians overall.
www.1news.co.nz/2025/08/26/l...
www.1news.co.nz/2025/08/26/l...
Prof Potter says the risks demand a prevention and management response from the Government.
www.phcc.org.nz/news/media-g...
www.phcc.org.nz/news/media-g...
In the media: Govt response to Long Covid inadequate: Report
Even a conservative estimate puts the number of New Zealanders suffering from Long Covid at more than 250,000 people, Massey University's John Potter tells RNZ's Morning Report.
www.phcc.org.nz
August 25, 2025 at 11:34 PM
Prof Potter says the risks demand a prevention and management response from the Government.
www.phcc.org.nz/news/media-g...
www.phcc.org.nz/news/media-g...
If you think you might have Long Covid, you're probably right. It's under-diagnosed in New Zealand. Estimates are upwards of 250k people with Long Covid.
August 25, 2025 at 11:31 PM
If you think you might have Long Covid, you're probably right. It's under-diagnosed in New Zealand. Estimates are upwards of 250k people with Long Covid.
Reposted by Long Covid Support Aotearoa
Why are kids and teachers sicker now? It’s not lockdowns. It’s COVID infections weakening immunity, over and over.
Thread by tern
threadreaderapp.com/thread/19596...
Thread by tern
threadreaderapp.com/thread/19596...
Thread by @1goodtern on Thread Reader App
@1goodtern: Chatting with a colleague who runs a large summer event... Her: "The behaviour of the kids this year was a nightmare, it's getting worse and worse, it's because this age group missed out o...
threadreaderapp.com
August 25, 2025 at 2:19 AM
Why are kids and teachers sicker now? It’s not lockdowns. It’s COVID infections weakening immunity, over and over.
Thread by tern
threadreaderapp.com/thread/19596...
Thread by tern
threadreaderapp.com/thread/19596...