JARDIN Joint Action
@jardinjointaction.bsky.social
To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)
📣📘 ERNs monitoring report is out!
The @ec.europa.eu has published the first Monitoring report of the 24 European Reference Networks (ERNs), highlighting their growing impact on #RareDiseases across Europe.
➡️ Access the full report: https://jardin-ern.eu/new/first-ern-monitoring-report
#EU4Health
The @ec.europa.eu has published the first Monitoring report of the 24 European Reference Networks (ERNs), highlighting their growing impact on #RareDiseases across Europe.
➡️ Access the full report: https://jardin-ern.eu/new/first-ern-monitoring-report
#EU4Health
November 26, 2025 at 11:20 AM
📣📘 ERNs monitoring report is out!
The @ec.europa.eu has published the first Monitoring report of the 24 European Reference Networks (ERNs), highlighting their growing impact on #RareDiseases across Europe.
➡️ Access the full report: https://jardin-ern.eu/new/first-ern-monitoring-report
#EU4Health
The @ec.europa.eu has published the first Monitoring report of the 24 European Reference Networks (ERNs), highlighting their growing impact on #RareDiseases across Europe.
➡️ Access the full report: https://jardin-ern.eu/new/first-ern-monitoring-report
#EU4Health
🩺 🥼 How does integrating the #ERNs into National Healthcare Systems support healthcare professionals?
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
November 25, 2025 at 2:02 PM
🩺 🥼 How does integrating the #ERNs into National Healthcare Systems support healthcare professionals?
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
📅 The #RareDiseaseDay 2026 countdown is on!
📺 Watch the official video below, explore the available materials, and join the global movement raising awareness for 300 million people living with a #RareDisease. 💜🌍 www.rarediseaseday.org
📩 Let us know your #JARDIN or national plans! jardin-ern.eu
📺 Watch the official video below, explore the available materials, and join the global movement raising awareness for 300 million people living with a #RareDisease. 💜🌍 www.rarediseaseday.org
📩 Let us know your #JARDIN or national plans! jardin-ern.eu
The 100-day countdown to #RareDiseaseDay begins!
Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease.
Full video 🎥 youtu.be/7J1oTfoIOGw
Let’s bring about equity in more ways than even we can imagine!
#ShareYourColours
Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease.
Full video 🎥 youtu.be/7J1oTfoIOGw
Let’s bring about equity in more ways than even we can imagine!
#ShareYourColours
November 20, 2025 at 1:08 PM
📅 The #RareDiseaseDay 2026 countdown is on!
📺 Watch the official video below, explore the available materials, and join the global movement raising awareness for 300 million people living with a #RareDisease. 💜🌍 www.rarediseaseday.org
📩 Let us know your #JARDIN or national plans! jardin-ern.eu
📺 Watch the official video below, explore the available materials, and join the global movement raising awareness for 300 million people living with a #RareDisease. 💜🌍 www.rarediseaseday.org
📩 Let us know your #JARDIN or national plans! jardin-ern.eu
🏥 Why integrate #ERNs into National Healthcare Systems?
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
November 20, 2025 at 8:37 AM
🏥 Why integrate #ERNs into National Healthcare Systems?
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
🏢 Last week, #JARDIN WP7 colleagues from Latvia, Romania and Austria visited the Center for Rare Diseases in Würzburg for a twinning exercise.
Hosted by Prof. Helge Hebestreit, the group learned about the centre’s work, including its Undiagnosed Disease Program, and exchanged insights.
#EU4Health
Hosted by Prof. Helge Hebestreit, the group learned about the centre’s work, including its Undiagnosed Disease Program, and exchanged insights.
#EU4Health
November 18, 2025 at 1:45 PM
🏢 Last week, #JARDIN WP7 colleagues from Latvia, Romania and Austria visited the Center for Rare Diseases in Würzburg for a twinning exercise.
Hosted by Prof. Helge Hebestreit, the group learned about the centre’s work, including its Undiagnosed Disease Program, and exchanged insights.
#EU4Health
Hosted by Prof. Helge Hebestreit, the group learned about the centre’s work, including its Undiagnosed Disease Program, and exchanged insights.
#EU4Health
📚💻 #JARDIN Online Workshop
WP8 invites anyone interested to an online workshop on the European Health Data Space (EHDS) and its implications for data sharing in the context of rare diseases. 📊🏥
📅 17/11
🕘 9:00 – 12:00 CET
👉 Register here: jardin-ern.eu/event/wp8-ra...
#RareDiseases #EU4Health
WP8 invites anyone interested to an online workshop on the European Health Data Space (EHDS) and its implications for data sharing in the context of rare diseases. 📊🏥
📅 17/11
🕘 9:00 – 12:00 CET
👉 Register here: jardin-ern.eu/event/wp8-ra...
#RareDiseases #EU4Health
November 14, 2025 at 1:32 PM
📚💻 #JARDIN Online Workshop
WP8 invites anyone interested to an online workshop on the European Health Data Space (EHDS) and its implications for data sharing in the context of rare diseases. 📊🏥
📅 17/11
🕘 9:00 – 12:00 CET
👉 Register here: jardin-ern.eu/event/wp8-ra...
#RareDiseases #EU4Health
WP8 invites anyone interested to an online workshop on the European Health Data Space (EHDS) and its implications for data sharing in the context of rare diseases. 📊🏥
📅 17/11
🕘 9:00 – 12:00 CET
👉 Register here: jardin-ern.eu/event/wp8-ra...
#RareDiseases #EU4Health
🧬 Around 6,000–8,000 rare diseases affect people across Europe.
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
November 13, 2025 at 8:35 AM
🧬 Around 6,000–8,000 rare diseases affect people across Europe.
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
The European Reference Networks (#ERNs) connect experts across Europe so people living with #RareDiseases can access the care they need.
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
November 6, 2025 at 11:25 AM
The European Reference Networks (#ERNs) connect experts across Europe so people living with #RareDiseases can access the care they need.
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
📬📰 JARDIN’s 3rd newsletter is out now!
Don't miss:
💼 Updates from JARDIN’s WPs
🌍 Highlights from MS
🌐 News, events, resources & training opportunities from the ERNs
👥 Insights for healthcare professionals and people living with #RareDiseases and complex conditions
📖 👉 mailchi.mp/b86f083afd4a...
Don't miss:
💼 Updates from JARDIN’s WPs
🌍 Highlights from MS
🌐 News, events, resources & training opportunities from the ERNs
👥 Insights for healthcare professionals and people living with #RareDiseases and complex conditions
📖 👉 mailchi.mp/b86f083afd4a...
November 5, 2025 at 11:23 AM
📬📰 JARDIN’s 3rd newsletter is out now!
Don't miss:
💼 Updates from JARDIN’s WPs
🌍 Highlights from MS
🌐 News, events, resources & training opportunities from the ERNs
👥 Insights for healthcare professionals and people living with #RareDiseases and complex conditions
📖 👉 mailchi.mp/b86f083afd4a...
Don't miss:
💼 Updates from JARDIN’s WPs
🌍 Highlights from MS
🌐 News, events, resources & training opportunities from the ERNs
👥 Insights for healthcare professionals and people living with #RareDiseases and complex conditions
📖 👉 mailchi.mp/b86f083afd4a...
📢 Upcoming JARDIN Webinar!
WP5 invites #JARDIN members and collaborators to join the webinar ‘Introduction to Discrete Choice Experiment (DCE) as a tool of evaluation for #RareDiseases activities’.
📲 Click here for information on how to join the event: jardin-ern.eu/event/wp5-we...
#HealthUnion
WP5 invites #JARDIN members and collaborators to join the webinar ‘Introduction to Discrete Choice Experiment (DCE) as a tool of evaluation for #RareDiseases activities’.
📲 Click here for information on how to join the event: jardin-ern.eu/event/wp5-we...
#HealthUnion
October 30, 2025 at 2:07 PM
📢 Upcoming JARDIN Webinar!
WP5 invites #JARDIN members and collaborators to join the webinar ‘Introduction to Discrete Choice Experiment (DCE) as a tool of evaluation for #RareDiseases activities’.
📲 Click here for information on how to join the event: jardin-ern.eu/event/wp5-we...
#HealthUnion
WP5 invites #JARDIN members and collaborators to join the webinar ‘Introduction to Discrete Choice Experiment (DCE) as a tool of evaluation for #RareDiseases activities’.
📲 Click here for information on how to join the event: jardin-ern.eu/event/wp5-we...
#HealthUnion
Reposted by JARDIN Joint Action
💻#webinar on “Guidelines on the Assessment and Treatment of Neurogenic Urinary and Sexual Symptoms”
📅25th November, 3 CET
🗣️A. Fanciulli and P. Guaraldi, Medical University Innsbruck and Azienda USL di Bologna
Sign up 👉 https://t1p.de/9cxi7
Joint with the @euronmd.bsky.social and @ean.org
📅25th November, 3 CET
🗣️A. Fanciulli and P. Guaraldi, Medical University Innsbruck and Azienda USL di Bologna
Sign up 👉 https://t1p.de/9cxi7
Joint with the @euronmd.bsky.social and @ean.org
October 28, 2025 at 12:03 PM
💻#webinar on “Guidelines on the Assessment and Treatment of Neurogenic Urinary and Sexual Symptoms”
📅25th November, 3 CET
🗣️A. Fanciulli and P. Guaraldi, Medical University Innsbruck and Azienda USL di Bologna
Sign up 👉 https://t1p.de/9cxi7
Joint with the @euronmd.bsky.social and @ean.org
📅25th November, 3 CET
🗣️A. Fanciulli and P. Guaraldi, Medical University Innsbruck and Azienda USL di Bologna
Sign up 👉 https://t1p.de/9cxi7
Joint with the @euronmd.bsky.social and @ean.org
📩✨ Don’t miss out! — JARDIN’s 3rd newsletter is coming soon with:
💼 Updates from JARDIN’s WPs
🌍 Highlights from participating MS
🌐 ERNs' news, events & opportunities
👥 Insights for healthcare professionals and people living with #RareDiseases
👉 jardin-ern.eu/newsletter
#EU4Health #HealthUnion
💼 Updates from JARDIN’s WPs
🌍 Highlights from participating MS
🌐 ERNs' news, events & opportunities
👥 Insights for healthcare professionals and people living with #RareDiseases
👉 jardin-ern.eu/newsletter
#EU4Health #HealthUnion
October 24, 2025 at 8:36 AM
📩✨ Don’t miss out! — JARDIN’s 3rd newsletter is coming soon with:
💼 Updates from JARDIN’s WPs
🌍 Highlights from participating MS
🌐 ERNs' news, events & opportunities
👥 Insights for healthcare professionals and people living with #RareDiseases
👉 jardin-ern.eu/newsletter
#EU4Health #HealthUnion
💼 Updates from JARDIN’s WPs
🌍 Highlights from participating MS
🌐 ERNs' news, events & opportunities
👥 Insights for healthcare professionals and people living with #RareDiseases
👉 jardin-ern.eu/newsletter
#EU4Health #HealthUnion
Reposted by JARDIN Joint Action
Curious about "Development and Implementation of ERN Care Pathways"? Join Birutė Tumienė at our Symposium "European Healthcare for RND Patients" Oct 28, 12:40 CET.
Registration : https://f.mtr.cool/gaopxhezhj
Program: https://f.mtr.cool/usfnrgxwhx
@ernmetabern.bsky.social
@euronmd.bsky.social
Registration : https://f.mtr.cool/gaopxhezhj
Program: https://f.mtr.cool/usfnrgxwhx
@ernmetabern.bsky.social
@euronmd.bsky.social
October 7, 2025 at 1:33 PM
Curious about "Development and Implementation of ERN Care Pathways"? Join Birutė Tumienė at our Symposium "European Healthcare for RND Patients" Oct 28, 12:40 CET.
Registration : https://f.mtr.cool/gaopxhezhj
Program: https://f.mtr.cool/usfnrgxwhx
@ernmetabern.bsky.social
@euronmd.bsky.social
Registration : https://f.mtr.cool/gaopxhezhj
Program: https://f.mtr.cool/usfnrgxwhx
@ernmetabern.bsky.social
@euronmd.bsky.social
Reposted by JARDIN Joint Action
🚨 TONIGHT! Join us for a joint webinar on prenatal & anatomical studies in ARM 💡
📅 Wed 15 Oct @ 18:00 CEST
👶 Featuring speakers from NL & Japan
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN15Oct25
#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
📅 Wed 15 Oct @ 18:00 CEST
👶 Featuring speakers from NL & Japan
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN15Oct25
#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
October 15, 2025 at 8:14 AM
🚨 TONIGHT! Join us for a joint webinar on prenatal & anatomical studies in ARM 💡
📅 Wed 15 Oct @ 18:00 CEST
👶 Featuring speakers from NL & Japan
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN15Oct25
#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
📅 Wed 15 Oct @ 18:00 CEST
👶 Featuring speakers from NL & Japan
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN15Oct25
#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
🔔 Our European Reference Networks (#ERNs) survey closes today!
Do you live in #Ireland, #Italy, or #Romania and are a person living with a rare disease or complex condition, member of a patient organisation, or a healthcare professional?
Your voice matters. Share your experience today 🔗👇
Do you live in #Ireland, #Italy, or #Romania and are a person living with a rare disease or complex condition, member of a patient organisation, or a healthcare professional?
Your voice matters. Share your experience today 🔗👇
October 13, 2025 at 11:05 AM
🔚✨ And that’s a wrap!
#JARDIN’s General Assembly has come to an end after four days of collaboration, fruitful exchange, and shared progress.
💙 A heartfelt thank you to all who joined in person and online — demonstrating the importance of broad participation and the power of collaboration.
#ERN
#JARDIN’s General Assembly has come to an end after four days of collaboration, fruitful exchange, and shared progress.
💙 A heartfelt thank you to all who joined in person and online — demonstrating the importance of broad participation and the power of collaboration.
#ERN
October 10, 2025 at 12:17 PM
👥💡 After four inspiring days of collaboration and exchange, we've reached the final day of our GA.
Yesterday, WPs 6, 7, 8 & 9 shared their progress updates, while Satellite Meetings explored undiagnosed disease programmes and national governance models.
Today’s sessions focus on data management.
Yesterday, WPs 6, 7, 8 & 9 shared their progress updates, while Satellite Meetings explored undiagnosed disease programmes and national governance models.
Today’s sessions focus on data management.
October 10, 2025 at 9:09 AM
👥💡 After four inspiring days of collaboration and exchange, we've reached the final day of our GA.
Yesterday, WPs 6, 7, 8 & 9 shared their progress updates, while Satellite Meetings explored undiagnosed disease programmes and national governance models.
Today’s sessions focus on data management.
Yesterday, WPs 6, 7, 8 & 9 shared their progress updates, while Satellite Meetings explored undiagnosed disease programmes and national governance models.
Today’s sessions focus on data management.
📍 We’re halfway through #JARDIN’s General Assembly 2025!
💬 Participants have received detailed progress updates from Work Packages 1-5 and 9, and joined sessions on communication campaigns, national care pathways and #ERNs referral systems, and sustainability.
#EU4Health #HealthUnion #Vilnius
💬 Participants have received detailed progress updates from Work Packages 1-5 and 9, and joined sessions on communication campaigns, national care pathways and #ERNs referral systems, and sustainability.
#EU4Health #HealthUnion #Vilnius
October 9, 2025 at 10:40 AM
📍 We’re halfway through #JARDIN’s General Assembly 2025!
💬 Participants have received detailed progress updates from Work Packages 1-5 and 9, and joined sessions on communication campaigns, national care pathways and #ERNs referral systems, and sustainability.
#EU4Health #HealthUnion #Vilnius
💬 Participants have received detailed progress updates from Work Packages 1-5 and 9, and joined sessions on communication campaigns, national care pathways and #ERNs referral systems, and sustainability.
#EU4Health #HealthUnion #Vilnius
👥🚀 JARDIN’s General Assembly starts today!
Welcome to all joining us in Vilnius and online for four days of collaboration, learning, and exchange — 7–10 Oct 2025.
A key meeting of our Joint Action to support integration of #ERNs into National Healthcare Systems, co-funded by the
@ec.europa.eu.
Welcome to all joining us in Vilnius and online for four days of collaboration, learning, and exchange — 7–10 Oct 2025.
A key meeting of our Joint Action to support integration of #ERNs into National Healthcare Systems, co-funded by the
@ec.europa.eu.
October 7, 2025 at 10:12 AM
👥🚀 JARDIN’s General Assembly starts today!
Welcome to all joining us in Vilnius and online for four days of collaboration, learning, and exchange — 7–10 Oct 2025.
A key meeting of our Joint Action to support integration of #ERNs into National Healthcare Systems, co-funded by the
@ec.europa.eu.
Welcome to all joining us in Vilnius and online for four days of collaboration, learning, and exchange — 7–10 Oct 2025.
A key meeting of our Joint Action to support integration of #ERNs into National Healthcare Systems, co-funded by the
@ec.europa.eu.
Reposted by JARDIN Joint Action
🚨 TONIGHT! Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours
👨⚕️Dr Arnout Alberts shares the latest in personalised, multidisciplinary care
📅 Wed 1 Oct @ 17:00 CEST
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN01Oct25
#EUfunded #EU4Health #RareDisease #ERNs #UroOnc #UroSoMe
👨⚕️Dr Arnout Alberts shares the latest in personalised, multidisciplinary care
📅 Wed 1 Oct @ 17:00 CEST
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN01Oct25
#EUfunded #EU4Health #RareDisease #ERNs #UroOnc #UroSoMe
October 1, 2025 at 8:14 AM
🚨 TONIGHT! Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours
👨⚕️Dr Arnout Alberts shares the latest in personalised, multidisciplinary care
📅 Wed 1 Oct @ 17:00 CEST
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN01Oct25
#EUfunded #EU4Health #RareDisease #ERNs #UroOnc #UroSoMe
👨⚕️Dr Arnout Alberts shares the latest in personalised, multidisciplinary care
📅 Wed 1 Oct @ 17:00 CEST
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN01Oct25
#EUfunded #EU4Health #RareDisease #ERNs #UroOnc #UroSoMe
Reposted by JARDIN Joint Action
📢 𝐔𝐩𝐜𝐨𝐦𝐢𝐧𝐠 𝐄𝐑𝐊𝐍𝐞𝐭 𝐖𝐞𝐛𝐢𝐧𝐚𝐫!
Our Webinar September is coming to an end with our last session!
Topic: 𝐏𝐡𝐨𝐬𝐩𝐡𝐚𝐭𝐞 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬
Date: 30 September
Speaker: Carsten Wagner
Moderator: Jens König
👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: https://register.gotowebinar.com/register/2567953835042611545
Our Webinar September is coming to an end with our last session!
Topic: 𝐏𝐡𝐨𝐬𝐩𝐡𝐚𝐭𝐞 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬
Date: 30 September
Speaker: Carsten Wagner
Moderator: Jens König
👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: https://register.gotowebinar.com/register/2567953835042611545
September 19, 2025 at 9:02 AM
📢 𝐔𝐩𝐜𝐨𝐦𝐢𝐧𝐠 𝐄𝐑𝐊𝐍𝐞𝐭 𝐖𝐞𝐛𝐢𝐧𝐚𝐫!
Our Webinar September is coming to an end with our last session!
Topic: 𝐏𝐡𝐨𝐬𝐩𝐡𝐚𝐭𝐞 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬
Date: 30 September
Speaker: Carsten Wagner
Moderator: Jens König
👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: https://register.gotowebinar.com/register/2567953835042611545
Our Webinar September is coming to an end with our last session!
Topic: 𝐏𝐡𝐨𝐬𝐩𝐡𝐚𝐭𝐞 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬
Date: 30 September
Speaker: Carsten Wagner
Moderator: Jens König
👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: https://register.gotowebinar.com/register/2567953835042611545
❓🤔 How familiar are you with European Reference Networks (#ERNs)?
If you live in #Ireland, #Italy, or #Romania and are a person living with a #RareDisease or complex condition, member of a patient organisation, or a healthcare professional, we want to hear from you!
Complete our short suryvey! 🔗👇
If you live in #Ireland, #Italy, or #Romania and are a person living with a #RareDisease or complex condition, member of a patient organisation, or a healthcare professional, we want to hear from you!
Complete our short suryvey! 🔗👇
September 22, 2025 at 1:47 PM
❓🤔 How familiar are you with European Reference Networks (#ERNs)?
If you live in #Ireland, #Italy, or #Romania and are a person living with a #RareDisease or complex condition, member of a patient organisation, or a healthcare professional, we want to hear from you!
Complete our short suryvey! 🔗👇
If you live in #Ireland, #Italy, or #Romania and are a person living with a #RareDisease or complex condition, member of a patient organisation, or a healthcare professional, we want to hear from you!
Complete our short suryvey! 🔗👇
Reposted by JARDIN Joint Action
📢Are you involved in the care of patients with rare diseases? Your insights are crucial to improving continuity of care and shaping future strategies for rare disease patients across Europe!
👉 bit.ly/46JYtGW
#ERNeu #ERNs @ec.europa.eu @jardinjointaction.bsky.social @euonehealth.bsky.social
👉 bit.ly/46JYtGW
#ERNeu #ERNs @ec.europa.eu @jardinjointaction.bsky.social @euonehealth.bsky.social
Europe-wide survey on transition and transfer procedures in rare diseases within the European Reference Networks (ERNs) | News | EuroBloodNet
The survey aims to understand how young patients with rare and complex conditions are transitioned from paediatric to adult care, and how care is transferred.
bit.ly
September 19, 2025 at 11:06 AM
📢Are you involved in the care of patients with rare diseases? Your insights are crucial to improving continuity of care and shaping future strategies for rare disease patients across Europe!
👉 bit.ly/46JYtGW
#ERNeu #ERNs @ec.europa.eu @jardinjointaction.bsky.social @euonehealth.bsky.social
👉 bit.ly/46JYtGW
#ERNeu #ERNs @ec.europa.eu @jardinjointaction.bsky.social @euonehealth.bsky.social
Reposted by JARDIN Joint Action
Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social
📅 Wed 17 Sept @ 18:00 CEST
🎓 EACCME accredited
🔗 Register: bit.ly/eUROGEN17Sep25
#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro
📅 Wed 17 Sept @ 18:00 CEST
🎓 EACCME accredited
🔗 Register: bit.ly/eUROGEN17Sep25
#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro
September 12, 2025 at 6:30 AM
Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social
📅 Wed 17 Sept @ 18:00 CEST
🎓 EACCME accredited
🔗 Register: bit.ly/eUROGEN17Sep25
#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro
📅 Wed 17 Sept @ 18:00 CEST
🎓 EACCME accredited
🔗 Register: bit.ly/eUROGEN17Sep25
#EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro
📢 Exciting news! The JARDIN General Assembly will take place in Vilnius, Lithuania on 7–10 Oct 2025.
A key meeting of our Joint Action to support integration of European Reference Networks (ERNs) into national healthcare systems, co-funded by the @ec.europa.eu.
Info 👉 jardin-ern.eu/event/jardin...
A key meeting of our Joint Action to support integration of European Reference Networks (ERNs) into national healthcare systems, co-funded by the @ec.europa.eu.
Info 👉 jardin-ern.eu/event/jardin...
September 10, 2025 at 8:03 AM
📢 Exciting news! The JARDIN General Assembly will take place in Vilnius, Lithuania on 7–10 Oct 2025.
A key meeting of our Joint Action to support integration of European Reference Networks (ERNs) into national healthcare systems, co-funded by the @ec.europa.eu.
Info 👉 jardin-ern.eu/event/jardin...
A key meeting of our Joint Action to support integration of European Reference Networks (ERNs) into national healthcare systems, co-funded by the @ec.europa.eu.
Info 👉 jardin-ern.eu/event/jardin...