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erneurogen.bsky.social
ERN eUROGEN
@erneurogen.bsky.social
170 followers 49 following 210 posts
The European Reference Network for Rare Urogenital Diseases and Complex Conditions - https://eurogen-ern.eu/
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erneurogen.bsky.social
🚨 TONIGHT! Join a webinar on laparoscopic ureteral reimplantation for VUR in children 🎥👶

🗣 Gander & Pérez-Bertólez
📅 Wed 19 Nov @ 18:00 CET
🎓 EACCME accredited & supported by @espu.bsky.social
🔗 bit.ly/eUROGEN19Nov25

@ec.europa.eu @jardinjointaction.bsky.social @eupsaofficial.bsky.social
November 19, 2025 at 9:14 AM
erneurogen.bsky.social
Join a webinar on laparoscopic ureteral reimplantation for VUR in children 🎥👶

🗣 Gander & Pérez-Bertólez
📅 Wed 19 Nov @ 18:00 CET
🎓 EACCME accredited & supported by @espu.bsky.social
🔗 bit.ly/eUROGEN19Nov25

@ec.europa.eu @jardinjointaction.bsky.social @eupsaofficial.bsky.social
November 17, 2025 at 9:14 AM
erneurogen.bsky.social
New, updated & existing resources for Anorectal Malformations!

🩺 Combined Guideline: eurogen-ern.eu/our-work/gui...
📘 Patient Journey (+ new audio version): eurogen-ern.eu/patient-info...
💙 Sexual Support Website: sexualsupport.eu

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
November 14, 2025 at 9:14 AM
erneurogen.bsky.social
👶 Join the Online Paediatric Colorectal Course, 5–6 Feb 2026! Hands-on training on ARM & Hirschsprung’s disease with interactive sessions, expert debates & model exercises 💻

🔗 pediatriccolorectalcourse.com

#EUfunded #EU4Health #RareDisease #PedUro #SoMe4PedSurg #ERNs
November 13, 2025 at 9:14 AM
erneurogen.bsky.social
👶 The 16th European Paediatric Colorectal & Pelvic Reconstruction Meeting brought 250+ delegates from 40 countries to Stockholm 🇸🇪.

🔗 www.karolinskahospital.com/news/world-l...

#EUfunded #EU4Health #HealthUnion #RareDisease #PedUro #ERNs
World-leading pediatric surgery meets at Karolinska
Karolinska University Hospital and Karolinska Institutet proudly hosted the internationally acclaimed European Pediatric Colorectal and Pelvic Reconstruction Meeting, where the world’s foremost…
www.karolinskahospital.com
November 12, 2025 at 9:14 AM
erneurogen.bsky.social
🧠 A new Orphanet Journal of Rare Diseases paper, led by Dr Rosanne Smits and supported by @erneurogen.bsky.social & funded by EJP RD, calls for stronger psychosocial care for people with rare conditions.

🔗 eurogen-ern.eu/addressing-p...

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs
Addressing Psychosocial Vulnerability in Rare Diseases: A European Call to Action - ERN eUROGEN
A new publication in the Orphanet Journal of Rare Diseases highlights the urgent need for improved psychosocial support for people living with rare diseases. The paper, “Addressing psychosocial…
eurogen-ern.eu
November 11, 2025 at 9:14 AM
erneurogen.bsky.social
A look back at the ESSIC–CONVPP Congress 2025 🇮🇹 including presentations on ERN eUROGEN’s collaboration with ESSIC and our Rare Bladder Inflammatory Disease guidelines.

🔗 eurogen-ern.eu/ern-eurogen-...

#EUfunded #EU4Health #RareDisease #ERNs #FPMRS @ec.europa.eu @jardinjointaction.bsky.social
ERN eUROGEN at the ESSIC – CONVPP Congress, 2025 - ERN eUROGEN
The International Society for the Study of Bladder Pain Syndrome (ESSIC) and the Convergences in Pelvi-Perineal Pain Society (CONVPP) proudly joined forces this year to host a combined Annual Meeting…
eurogen-ern.eu
November 10, 2025 at 9:14 AM
erneurogen.bsky.social
🗣️ Rare diseases & ERNs are missing from the EU’s draft 2028–2034 budget! Help keep them visible & funded.

Give feedback by 12 Nov 🕛
👉 eurogen-ern.eu/rare-disease...

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs
@ec.europa.eu @jardinjointaction.bsky.social
Rare Diseases and ERNs Must Remain Visible in the EU’s Future Budget - ERN eUROGEN
The European Commission has opened a consultation on the draft Multiannual Financial Framework (MFF) — the EU’s long-term budget plan. In the current proposal, rare diseases are not explicitly mention...
eurogen-ern.eu
November 7, 2025 at 1:34 PM
erneurogen.bsky.social
Now on YouTube! ERN eUROGEN Guidelines for Anorectal Malformations
With Jan Gosemann, Ramon Gorter & Willemijn Irvine:

🎥 Watch: youtu.be/KBHFZsYsJ3g
📝 ARM resources: eurogen-ern.eu/updated-ern-...
📰 Subscribe: bit.ly/4j7MaHU

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
ERN eUROGEN Webinar 136: eUROGEN guidelines for ARM: Overview and clinical impact
This webinar was presented on 5 November by Dr. Jan-Hendrik Gosemann, Dr. Ramon Gorter and Willemijn Irvine, MSc. Dr Gosemann works as a paediatric surgeon at the University of Leipzig in Germany. He…
youtu.be
November 6, 2025 at 9:30 AM
erneurogen.bsky.social
🚨 TONIGHT! Join @erneurogen.bsky.social & ERNICA for a deep dive into the ERN eUROGEN Guidelines for ARM 📘

📅 Wed 5 Nov @ 18:00 CET
🗣 Jan Gosemann, Ramon Gorter & Willemijn Irvine
🎓 EACCME accredited
🔗 bit.ly/eUROGEN05Nov25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
November 5, 2025 at 9:14 AM
erneurogen.bsky.social
Join @erneurogen.bsky.social & ERNICA for a deep dive into the ERN eUROGEN Guidelines for ARM 📘

📅 Wed 5 Nov @ 18:00 CET
🗣 Jan Gosemann, Ramon Gorter & Willemijn Irvine
🎓 EACCME accredited
🔗 bit.ly/eUROGEN05Nov25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
November 3, 2025 at 9:14 AM
erneurogen.bsky.social
Join @erneurogen.bsky.social & ERNICA for a deep dive into the ERN eUROGEN Guidelines for ARM 📘

📅 Wed 5 Nov @ 18:00 CET
🗣 Jan Gosemann, Ramon Gorter & Willemijn Irvine
🎓 EACCME accredited
🔗 bit.ly/eUROGEN05Nov25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
October 30, 2025 at 9:14 AM
Reposted by ERN eUROGEN
eurordis.bsky.social
Every #ECRD poster tells a story of research, collaboration & action for people living with a rare disease.

Share yours at #ECRD2026 and help shape the future of rare disease care in Europe.

📅 Deadline: 6 March 2026
👉 Submit: https://go.eurordis.org/ECRD2026Posters
"Submit a poster abstract!" A woman in a beige blazer and backpack attentively reads scientific posters displayed at a conference venue with large windows.
October 28, 2025 at 8:00 AM
erneurogen.bsky.social
Join a @erneurogen.bsky.social & ERNICA webinar supported by @eupsaofficial.bsky.social & ARM-Net

🖥️ Motility of the Rectum in ARMs
🗣️ Sebastian King 🇦🇺 & Marc Benninga 🇳🇱
📅 Wed 29 Oct @ 18:00 CET
🎓 EACCME accredited
🔗 bit.ly/eUROGEN29Oct25

#EUfunded #EU4Health #ERNs #RareDisease #PedUro #SoMe4PedSurg
All-in-one virtual event platform | Zoom Events
bit.ly
October 29, 2025 at 9:14 AM
erneurogen.bsky.social
🧠 Missed our webinar on Interstitial Cystitis & Complex Bladder Pain Syndrome? Dr. Lisa Moris shares a multidisciplinary approach.

📺 youtu.be/C9yFFx06I24
📰 bit.ly/4j7MaHU

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #FPMRS #UroSoMe
ERN eUROGEN Webinar 134: Interstitial Cystitis: Multidisciplinary management of complex BPS
This webinar was presented on 22 October by Dr. Lisa Moris, who is a urologist at the University Hospital in Leuven, Belgium. Her research interests are: ketamine induced uropathy, bladder pain…
youtu.be
October 28, 2025 at 11:51 AM
erneurogen.bsky.social
Join a @erneurogen.bsky.social & ERNICA webinar supported by @eupsaofficial.bsky.social & ARM-Net

🖥️ Motility of the Rectum in ARMs
🗣️ Sebastian King 🇦🇺 & Marc Benninga 🇳🇱
📅 Wed 29 Oct @ 18:00 CET
🎓 EACCME accredited
🔗 bit.ly/eUROGEN29Oct25

#EUfunded #EU4Health #ERNs #RareDisease #PedUro #SoMe4PedSurg
All-in-one virtual event platform | Zoom Events
bit.ly
October 27, 2025 at 9:14 AM
erneurogen.bsky.social
💙 On #WSBHD25 we stand with @ifsbh.bsky.social & partners to accelerate #Action4SBH. We developed guidelines on spinal dysraphism in children/adolescents with IFSBH, @uroweb.org, @espu.bsky.social, @erknet.bsky.social & ERN ITHACA

👉 bit.ly/4npuWZ3

#SpinaBifida #Hydrocephalus #EUfunded #ERNs
New Clinical Practice Guidelines for Spinal Dysraphism - ERN eUROGEN
ERN eUROGEN, the European Reference Network for Rare and Complex Uro-Recto-Genital Diseases and Conditions, is proud to highlight the release of new clinical practice guidelines for children and…
eurogen-ern.eu
October 25, 2025 at 6:01 AM
erneurogen.bsky.social
Join a @erneurogen.bsky.social & ERNICA webinar supported by @eupsaofficial.bsky.social & ARM-Net

🖥️ Motility of the Rectum in ARMs
🗣️ Sebastian King 🇦🇺 & Marc Benninga 🇳🇱
📅 Wed 29 Oct @ 18:00 CET
🎓 EACCME accredited
🔗 bit.ly/eUROGEN29Oct25

#EUfunded #EU4Health #ERNs #RareDisease #PedUro #SoMe4PedSurg
All-in-one virtual event platform | Zoom Events
bit.ly
October 23, 2025 at 8:18 AM
erneurogen.bsky.social
👶 Missed our webinar on anatomical & prenatal studies in anorectal malformations? Dr Sloots, Dr Peters, Dr Schepens-Franke & Dr Miyake present new insights.

📺 youtu.be/rlutK0fzUtE
📰 bit.ly/4j7MaHU

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
ERN eUROGEN Webinar 133: Anatomical and prenatal studies in anorectal malformations
This webinar was presented on 15 October and is part of the colorectal webinar series in collaboration of ERN eUROGEN and ERNICA. Speakers: Dr. Pim Sloots, pedatric surgeon at Erasmus MC in…
youtu.be
October 21, 2025 at 8:14 AM
erneurogen.bsky.social
Join us for a webinar on Interstitial Cystitis and the multidisciplinary management of complex BPS 💡
📅 Wed 22 Oct @ 18:00 CEST
👶 Speaker: Lisa Moris from Leuven University Hospitals
🎓 EACCME-accredited
🔗 bit.ly/ERNeUROGEN22...

#EUfunded #EU4Health #RareDisease #ERNs #FPMRS #InterstitialCystitis
October 15, 2025 at 4:15 PM
erneurogen.bsky.social
🚨 TONIGHT! Join us for a joint webinar on prenatal & anatomical studies in ARM 💡
📅 Wed 15 Oct @ 18:00 CEST
👶 Featuring speakers from NL & Japan
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN15Oct25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
October 15, 2025 at 8:14 AM
erneurogen.bsky.social
Join us for a joint webinar on prenatal & anatomical studies in ARM 💡
📅 Wed 15 Oct @ 18:00 CEST
👶 Featuring speakers from NL & Japan
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN15Oct25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
October 13, 2025 at 8:14 AM
erneurogen.bsky.social
💧 Missed Wednesday's webinar on urological aspects in paediatric kidney transplantation?

📺 Watch: youtu.be/z1R_jOSVGgk
📰 Subscribe: bit.ly/4j7MaHU

#EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
@espu.bsky.social
ERN eUROGEN Webinar 131: Urological aspects in pediatric kidney transplantation
This webinar was presented on the 8th of October by Prof. Alessandro Morlacco (pediatric urologist), Dr. Elisa Benetti (pediatric nephrologist), Dr. Maria Sangermano (pediatric nephrologist), Dr.…
youtu.be
October 10, 2025 at 8:14 AM
erneurogen.bsky.social
Join us for a joint webinar on prenatal & anatomical studies in ARM 💡
📅 Wed 15 Oct @ 18:00 CEST
👶 Featuring speakers from NL & Japan
🎓 EACCME-accredited
🔗 bit.ly/eUROGEN15Oct25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
October 9, 2025 at 8:14 AM
erneurogen.bsky.social
🚨 TONIGHT! Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation 🧒💧

📅 Wed 8 Oct @ 18:00 CEST
🎓 EACCME accredited
🔗 Register: bit.ly/eUROGEN08Oct25

#EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
October 8, 2025 at 8:14 AM