👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health
👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health
The @ec.europa.eu has published the first Monitoring report of the 24 European Reference Networks (ERNs), highlighting their growing impact on #RareDiseases across Europe.
➡️ Access the full report: https://jardin-ern.eu/new/first-ern-monitoring-report
#EU4Health
The @ec.europa.eu has published the first Monitoring report of the 24 European Reference Networks (ERNs), highlighting their growing impact on #RareDiseases across Europe.
➡️ Access the full report: https://jardin-ern.eu/new/first-ern-monitoring-report
#EU4Health
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
Hosted by Prof. Helge Hebestreit, the group learned about the centre’s work, including its Undiagnosed Disease Program, and exchanged insights.
#EU4Health
Hosted by Prof. Helge Hebestreit, the group learned about the centre’s work, including its Undiagnosed Disease Program, and exchanged insights.
#EU4Health
WP8 invites anyone interested to an online workshop on the European Health Data Space (EHDS) and its implications for data sharing in the context of rare diseases. 📊🏥
📅 17/11
🕘 9:00 – 12:00 CET
👉 Register here: jardin-ern.eu/event/wp8-ra...
#RareDiseases #EU4Health
WP8 invites anyone interested to an online workshop on the European Health Data Space (EHDS) and its implications for data sharing in the context of rare diseases. 📊🏥
📅 17/11
🕘 9:00 – 12:00 CET
👉 Register here: jardin-ern.eu/event/wp8-ra...
#RareDiseases #EU4Health
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
Don't miss:
💼 Updates from JARDIN’s WPs
🌍 Highlights from MS
🌐 News, events, resources & training opportunities from the ERNs
👥 Insights for healthcare professionals and people living with #RareDiseases and complex conditions
📖 👉 mailchi.mp/b86f083afd4a...
Don't miss:
💼 Updates from JARDIN’s WPs
🌍 Highlights from MS
🌐 News, events, resources & training opportunities from the ERNs
👥 Insights for healthcare professionals and people living with #RareDiseases and complex conditions
📖 👉 mailchi.mp/b86f083afd4a...
WP5 invites #JARDIN members and collaborators to join the webinar ‘Introduction to Discrete Choice Experiment (DCE) as a tool of evaluation for #RareDiseases activities’.
📲 Click here for information on how to join the event: jardin-ern.eu/event/wp5-we...
#HealthUnion
WP5 invites #JARDIN members and collaborators to join the webinar ‘Introduction to Discrete Choice Experiment (DCE) as a tool of evaluation for #RareDiseases activities’.
📲 Click here for information on how to join the event: jardin-ern.eu/event/wp5-we...
#HealthUnion
💼 Updates from JARDIN’s WPs
🌍 Highlights from participating MS
🌐 ERNs' news, events & opportunities
👥 Insights for healthcare professionals and people living with #RareDiseases
👉 jardin-ern.eu/newsletter
#EU4Health #HealthUnion
💼 Updates from JARDIN’s WPs
🌍 Highlights from participating MS
🌐 ERNs' news, events & opportunities
👥 Insights for healthcare professionals and people living with #RareDiseases
👉 jardin-ern.eu/newsletter
#EU4Health #HealthUnion
Do you live in #Ireland, #Italy, or #Romania and are a person living with a rare disease or complex condition, member of a patient organisation, or a healthcare professional?
Your voice matters. Share your experience today 🔗👇
#JARDIN’s General Assembly has come to an end after four days of collaboration, fruitful exchange, and shared progress.
💙 A heartfelt thank you to all who joined in person and online — demonstrating the importance of broad participation and the power of collaboration.
#ERN
Yesterday, WPs 6, 7, 8 & 9 shared their progress updates, while Satellite Meetings explored undiagnosed disease programmes and national governance models.
Today’s sessions focus on data management.
Yesterday, WPs 6, 7, 8 & 9 shared their progress updates, while Satellite Meetings explored undiagnosed disease programmes and national governance models.
Today’s sessions focus on data management.
💬 Participants have received detailed progress updates from Work Packages 1-5 and 9, and joined sessions on communication campaigns, national care pathways and #ERNs referral systems, and sustainability.
#EU4Health #HealthUnion #Vilnius
💬 Participants have received detailed progress updates from Work Packages 1-5 and 9, and joined sessions on communication campaigns, national care pathways and #ERNs referral systems, and sustainability.
#EU4Health #HealthUnion #Vilnius
Welcome to all joining us in Vilnius and online for four days of collaboration, learning, and exchange — 7–10 Oct 2025.
A key meeting of our Joint Action to support integration of #ERNs into National Healthcare Systems, co-funded by the
@ec.europa.eu.
Welcome to all joining us in Vilnius and online for four days of collaboration, learning, and exchange — 7–10 Oct 2025.
A key meeting of our Joint Action to support integration of #ERNs into National Healthcare Systems, co-funded by the
@ec.europa.eu.
If you live in #Ireland, #Italy, or #Romania and are a person living with a #RareDisease or complex condition, member of a patient organisation, or a healthcare professional, we want to hear from you!
Complete our short suryvey! 🔗👇
If you live in #Ireland, #Italy, or #Romania and are a person living with a #RareDisease or complex condition, member of a patient organisation, or a healthcare professional, we want to hear from you!
Complete our short suryvey! 🔗👇
A key meeting of our Joint Action to support integration of European Reference Networks (ERNs) into national healthcare systems, co-funded by the @ec.europa.eu.
Info 👉 jardin-ern.eu/event/jardin...
A key meeting of our Joint Action to support integration of European Reference Networks (ERNs) into national healthcare systems, co-funded by the @ec.europa.eu.
Info 👉 jardin-ern.eu/event/jardin...
Learn:
✅ What care pathways are
✅ JARDIN’s model
✅ The role of patient representatives at each stage of the process
🎥 Watch it here! ➡️ jardin-ern.eu/new/patient-...
#RareDiseases #EU4Health #JARDIN
Learn:
✅ What care pathways are
✅ JARDIN’s model
✅ The role of patient representatives at each stage of the process
🎥 Watch it here! ➡️ jardin-ern.eu/new/patient-...
#RareDiseases #EU4Health #JARDIN
💭 Or do you know someone who is?
🤝 The ERN Youth Panel is looking for new members!
Interested or know someone who might be?
📩 Get in touch at ern.youthpanel@uzgent.be
ℹ️ Learn more: download2.eurordis.org/ern/Youth_Pa...
#ERN #RareDiseases #Youth #EU4Health #Europe
💭 Or do you know someone who is?
🤝 The ERN Youth Panel is looking for new members!
Interested or know someone who might be?
📩 Get in touch at ern.youthpanel@uzgent.be
ℹ️ Learn more: download2.eurordis.org/ern/Youth_Pa...
#ERN #RareDiseases #Youth #EU4Health #Europe
🔍 Search info on the 24 #ERNs, their members by country, and diseases covered 👉 webgate.ec.europa.eu/ernsd/screen...
#RareDiseases #EU4Health
🔍 Search info on the 24 #ERNs, their members by country, and diseases covered 👉 webgate.ec.europa.eu/ernsd/screen...
#RareDiseases #EU4Health
The Clinical Patient Management System, used by European Reference Networks (#ERNs) to collaborate on rare and complex cases, is now available on iOS and Android.
🔍 New desktop features too: advanced search, audit logs & more.
📲 More info: jardin-ern.eu/new/cpms-2-0...
The Clinical Patient Management System, used by European Reference Networks (#ERNs) to collaborate on rare and complex cases, is now available on iOS and Android.
🔍 New desktop features too: advanced search, audit logs & more.
📲 More info: jardin-ern.eu/new/cpms-2-0...
🔎 Discover the 24 European Reference Networks and how they support people living with rare diseases or complex conditions across Europe.
🌍 Visit the JARDIN website to explore them all!
👉 jardin-ern.eu/european-ref...
#RareDiseases #PatientVoice #EU4Health
🔎 Discover the 24 European Reference Networks and how they support people living with rare diseases or complex conditions across Europe.
🌍 Visit the JARDIN website to explore them all!
👉 jardin-ern.eu/european-ref...
#RareDiseases #PatientVoice #EU4Health
🤝 Involving all Member States, plus Norway & Ukraine, #JARDIN promotes collaboration, innovation, and a patient-centred approach.
🔗 jardin-ern.eu
🤝 Involving all Member States, plus Norway & Ukraine, #JARDIN promotes collaboration, innovation, and a patient-centred approach.
🔗 jardin-ern.eu
Around 350 million people worldwide are living with an undiagnosed disease.
At #JARDIN, we are working to support European Reference Networks in their goal to facilitate diagnostic pathways
📢This isn't just a day. It's a movement!
#UndiagnosedDay2025 #ERNs
Around 350 million people worldwide are living with an undiagnosed disease.
At #JARDIN, we are working to support European Reference Networks in their goal to facilitate diagnostic pathways
📢This isn't just a day. It's a movement!
#UndiagnosedDay2025 #ERNs