🔬 Evidence-based guidelines | 🌍 Cross-border collaboration | 📚 Education
📌 Visit us: www.vascern.eu
We’re VASCERN, a European network of experts & patient advocates advancing care for rare multisystemic vascular diseases. Follow us for research updates, resources & more!
👉 www.vascern.eu
This new toolkit, co-created by patients, psychologist and clinicians in VASCERN, offers real tools for better, more human #healthcommunication.
Access the toolkit ➡️ vascern.eu/news/rare-di...
#rarediseases
This new toolkit, co-created by patients, psychologist and clinicians in VASCERN, offers real tools for better, more human #healthcommunication.
Access the toolkit ➡️ vascern.eu/news/rare-di...
#rarediseases
Applications for the VASCERN Summer School 2026 now close Nov 11.
Apply today → vascern.eu/training-and...
#VASCERNSummerSchool #RareDiseases
Applications for the VASCERN Summer School 2026 now close Nov 11.
Apply today → vascern.eu/training-and...
#VASCERNSummerSchool #RareDiseases
Applications are open until Oct 27 → vascern.eu/training-and...
#VASCERNSummerSchool #RareDiseases #marfan #ehlersdanlos #lymphoedema
Applications are open until Oct 27 → vascern.eu/training-and...
#VASCERNSummerSchool #RareDiseases #marfan #ehlersdanlos #lymphoedema
Morning sessions covered coordination, communication, CPMS 2.0, ERASMUS+ training, and new rules and extension.
Now on to the Transversal WG talks on Pregnancy, Registries, and Psychology.
#VASCERNDays2025
Morning sessions covered coordination, communication, CPMS 2.0, ERASMUS+ training, and new rules and extension.
Now on to the Transversal WG talks on Pregnancy, Registries, and Psychology.
#VASCERNDays2025
Looking forward to seeing so many of our clinicians, ePAGs, and partners as we keep pushing forward together. 🫶
#VASCERNDays2025 #RareDisease #ERNs #CrossBorderCare
Looking forward to seeing so many of our clinicians, ePAGs, and partners as we keep pushing forward together. 🫶
#VASCERNDays2025 #RareDisease #ERNs #CrossBorderCare
Raising awareness is not limited to rare disease day, it happens all year, especially within the healthcare system where patients are treated.
🤝L'objectif : mieux se faire connaître du personnel hospitalier qui travaille à proximité des équipes des filières
Raising awareness is not limited to rare disease day, it happens all year, especially within the healthcare system where patients are treated.
📢 Applications for the 2026 edition are open until October 27, 2025 👉 bit.ly/42MKOMT
📢 Applications for the 2026 edition are open until October 27, 2025 👉 bit.ly/42MKOMT
📢 Apply now for 2026 👉 vascern.eu/training-and...
📢 Apply now for 2026 👉 vascern.eu/training-and...
🔹 HTAD: genetics, diagnosis, treatment, daily life & patient perspectives
🔹 MSA: Vascular EDS & arterial dissection
Talks, case discussions, coffee breaks and a networking event to come 🌍
#RareDiseases #MedicalEducation
🔹 HTAD: genetics, diagnosis, treatment, daily life & patient perspectives
🔹 MSA: Vascular EDS & arterial dissection
Talks, case discussions, coffee breaks and a networking event to come 🌍
#RareDiseases #MedicalEducation
From packing goodies to welcoming a new cohort, the week ahead is all about rare vascular diseases, learning, and connection 💡
👉 Applications are now open for the 2026 cohort: vascern.eu/training-and...
From packing goodies to welcoming a new cohort, the week ahead is all about rare vascular diseases, learning, and connection 💡
👉 Applications are now open for the 2026 cohort: vascern.eu/training-and...
But what does that actually mean?
Here are 5 facts about who we are, why we exist & how we work.
Swipe through the images ⬇️
But what does that actually mean?
Here are 5 facts about who we are, why we exist & how we work.
Swipe through the images ⬇️
Take this time to catch up on our resources at vascern.eu/resources/
Wishing you a restful and healthy #summerbreak!
Take this time to catch up on our resources at vascern.eu/resources/
Wishing you a restful and healthy #summerbreak!
Key moments:
✅ Moyamoya e-learning module validated 🎉
✅ Scientific session + hands-on workshop
✅ Case discussions
Thanks to our hosts & all attendees!
#RareDiseases #CADASIL #Moyamoya #CrossBorderCare
Key moments:
✅ Moyamoya e-learning module validated 🎉
✅ Scientific session + hands-on workshop
✅ Case discussions
Thanks to our hosts & all attendees!
#RareDiseases #CADASIL #Moyamoya #CrossBorderCare
Our PPL group finalised
✔️ Clinical Outcome Measures Document (children & adults)
✔️ Do’s & Don’ts factsheets updated
✔️ Key issues discussed: compression in infants, surgery, transition, and more
📝 New resources coming soon!
#Lymphoedema #RareDisease
Our PPL group finalised
✔️ Clinical Outcome Measures Document (children & adults)
✔️ Do’s & Don’ts factsheets updated
✔️ Key issues discussed: compression in infants, surgery, transition, and more
📝 New resources coming soon!
#Lymphoedema #RareDisease
Join Prof. Hugues Chabriat for a live webinar on #CADASIL — a rare #neurological disease often misdiagnosed. Learn how to spot key clinical signs & improve #diagnosis.
🎯 For #Neurology & stroke HCPs
👉 Register: bit.ly/4dMtprX
Join Prof. Hugues Chabriat for a live webinar on #CADASIL — a rare #neurological disease often misdiagnosed. Learn how to spot key clinical signs & improve #diagnosis.
🎯 For #Neurology & stroke HCPs
👉 Register: bit.ly/4dMtprX
HHT is a rare disease that affects 1 in 5,000 people. It can cause nosebleeds, internal bleeding, and serious health issues if left undiagnosed.
We’ve created simple, helpful tools to download and share: bit.ly/4liqauL
#WorldHHTDay #RareDisease #SeeBeyond
HHT is a rare disease that affects 1 in 5,000 people. It can cause nosebleeds, internal bleeding, and serious health issues if left undiagnosed.
We’ve created simple, helpful tools to download and share: bit.ly/4liqauL
#WorldHHTDay #RareDisease #SeeBeyond
Join Prof. Chabriat to explore how MRI clues, progression, & family history can support accurate diagnosis.
🗓️ 23 June | 17:00 CEST
🔗 Register: ec.europa.eu/eusurvey/run...
#Neurology #RareDiseases #Webinar
Join Prof. Chabriat to explore how MRI clues, progression, & family history can support accurate diagnosis.
🗓️ 23 June | 17:00 CEST
🔗 Register: ec.europa.eu/eusurvey/run...
#Neurology #RareDiseases #Webinar
Join Prof. Hugues Chabriat for a webinar on its clinical spectrum.
📅 23 June | 🕔 17:00 CEST
Register here: bit.ly/4dMtprX
#CADASIL #RareDiseases #Stroke #Neurology
Join Prof. Hugues Chabriat for a webinar on its clinical spectrum.
📅 23 June | 🕔 17:00 CEST
Register here: bit.ly/4dMtprX
#CADASIL #RareDiseases #Stroke #Neurology
🔹 Practical tools
🔹 Real-world cases
🔹 Expert speakers
👉 Register: loom.ly/9TZyyX4
#ERDERA
🔹 Practical tools
🔹 Real-world cases
🔹 Expert speakers
👉 Register: loom.ly/9TZyyX4
#ERDERA
At the recent Based on Evidence #European meeting, experts came together to share evidence-based ways to improve #HHT care across #Europe.
Read more ➡️ bit.ly/3HmPMbr
At the recent Based on Evidence #European meeting, experts came together to share evidence-based ways to improve #HHT care across #Europe.
Read more ➡️ bit.ly/3HmPMbr
Key highlights from the day:
🔹 Clinical case discussions
🔹 Do’s & Don’ts for #pregnancy in HHT
🔹 Registry updates
🔹 #Ultrasound course in development
🔹 Preparation for next BEE Meeting
Thank you to all who participated!
Key highlights from the day:
🔹 Clinical case discussions
🔹 Do’s & Don’ts for #pregnancy in HHT
🔹 Registry updates
🔹 #Ultrasound course in development
🔹 Preparation for next BEE Meeting
Thank you to all who participated!
For #geneticists, #cardiologists, #researchers & more.
Explore it here ➡️ bit.ly/4kp2YL5
#RareDiseases #Genetics
For #geneticists, #cardiologists, #researchers & more.
Explore it here ➡️ bit.ly/4kp2YL5
#RareDiseases #Genetics
Many are still diagnosed only after a medical emergency. We’ve created tools to support vEDS care.
Watch: youtu.be/j6XQJIicJCU?...
More info: bit.ly/4kmcvlV
#REDS4VEDS #vEDS #EDS #RareDisease
Many are still diagnosed only after a medical emergency. We’ve created tools to support vEDS care.
Watch: youtu.be/j6XQJIicJCU?...
More info: bit.ly/4kmcvlV
#REDS4VEDS #vEDS #EDS #RareDisease
Our recent webinar on #headache in Moyamoya shares crucial insights on diagnosis & treatment.
🎥Watch here: bit.ly/3S0tCOo
#Moyamoya #RareDiseases
Our recent webinar on #headache in Moyamoya shares crucial insights on diagnosis & treatment.
🎥Watch here: bit.ly/3S0tCOo
#Moyamoya #RareDiseases
#issva #theralymph
#issva #theralymph