Lighting candles for all of the PwME lying in dark rooms today - including my James 💙🕯️

Please know that you’re not alone x

Please follow Mike! He is an incredible Human who has run over 9000 miles to raise money for @investinmeresearch.bsky.social over ten years raising over £50k to help #pwme #myalgicE 💙

This app has me remembering pre-Elon Twitter. The sheer dread and helplessness #pwME felt as COVID loomed. Knowing it would cause millions more people, including many children and young people, to develop ME. Then face the same neglect and mistreatment.

The number of #pwLC on here says it all.

Our Christmas cards are now available to order
10 cards per pack
£2 per pack (for UK delivery - email for outside of UK)
investinme.org/ccard2024.sh...
#mecfs #research #philanthropy #CofEforME

This no drafts thing is a problem

Thanks for following if you don't know me.

I've just passed the 10 year anniversary of when I began running marathons for ME research.

I'm aiming to raise funds for biomedical projects whilst connecting and highlighting the stories of people with ME that I meet

🇨🇿🇫🇮🇮🇪🇬🇷🇱🇺🇸🇪🇵🇱🇧🇪🇫🇷🇪🇸🇱🇹🇲🇹🇪🇪🇸🇰🇳🇱🇸🇮🇨🇾🇱🇻🇭🇺🇷🇴🇵🇹🇩🇪🇭🇷🇮🇹🇦🇹🇬🇷🇧🇬🇳🇴🇱🇮🇨🇭🇷🇸🇲🇪

One part of our upgraded infrastructure may affect your profile.

If you see your handle now says “Invalid handle,” please reverify it by navigating to Settings > Change my handle > Type in your current handle > Verify DNS Record > Update.

(Basically, update to the same handle.)

Hi

Looking to connect (and reconnect) with people who understand very severe ME, when health allows. Woman of few words (not by choice). Appreciate follows.

The International ME conference week events for 2025 are now spanning five days - 26-30 May
26-27/5 #YoungEMERG ECR workshop
27/5 European ME Research Group workshop
28-30/5 #BRMEC14 Research Colloquium
30/5 #IIMEC17 Clinicians' Conference
investinme.org/meconference...
#research #mecfs #EMERG

A decade-long effort to establish the UK/European Centre of Excellence for ME in @NorwichResearch

investinme.org/iimer-newsle...
#mecfs #research #CofEforME #alreadyhere

We have released the videos of presentations from our 16th International ME Conference #iimec16 investinme.org/iimec16.shtml
#IMECW2024 #mecfs #research #brmec13