Beth - Friend for the Long Haul
@friend4thelonghaul.bsky.social
I started a podcast for those with Long Covid, ME/CFS or chronic illness. "A Friend for the Long Haul" is a podcast about long covid that aims to be a supportive companion. On Spotify, Apple Pods, everywhere, really.
There’s a new episode of A Friend for the Long Haul- A Long Covid Podcast available now. Featuring my friend, @katrinadreamer.bsky.social! We talk about intuition, dreams, and Katrina’s sessions and workshops. Listen wherever you get your pods!
July 22, 2025 at 7:08 PM
There’s a new episode of A Friend for the Long Haul- A Long Covid Podcast available now. Featuring my friend, @katrinadreamer.bsky.social! We talk about intuition, dreams, and Katrina’s sessions and workshops. Listen wherever you get your pods!
It’s true! And I’m adding some new designs!
Umm does everyone know that until July 30th, half the proceeds from @friend4thelonghaul.bsky.social merch sales benefit @thesicktimes.bsky.social?? 👕💸🫡
A Friend for the Long Haul | Official Merchandise | Bonfire
Long covid advocacy and chronic illness humor based on the A Friend for the Long Haul podcast.
www.bonfire.com
July 20, 2025 at 12:36 AM
It’s true! And I’m adding some new designs!
The A Friend for the Long Haul podcast is coming out of hiatus, and tomorrow I am recording an episode with Nina Storey! If there's anything you'd like me to ask her, comment or DM me! #podcast #newepisode #newpodcastalert #ninastorey #musician #singer #chronicillness #spoonie #spoonielife
May 2, 2025 at 1:54 AM
The A Friend for the Long Haul podcast is coming out of hiatus, and tomorrow I am recording an episode with Nina Storey! If there's anything you'd like me to ask her, comment or DM me! #podcast #newepisode #newpodcastalert #ninastorey #musician #singer #chronicillness #spoonie #spoonielife
Reposted by Beth - Friend for the Long Haul
If you're chronically ill and unable to join the mass protests for #HandsOff, there are other ways you can get involved.
Support & elevate marginalized voices
Give to mutual aid
Support libraries & independent book stores
Wear a mask (if you aren't already)
Call & email elected officials
Support & elevate marginalized voices
Give to mutual aid
Support libraries & independent book stores
Wear a mask (if you aren't already)
Call & email elected officials
April 5, 2025 at 10:13 PM
If you're chronically ill and unable to join the mass protests for #HandsOff, there are other ways you can get involved.
Support & elevate marginalized voices
Give to mutual aid
Support libraries & independent book stores
Wear a mask (if you aren't already)
Call & email elected officials
Support & elevate marginalized voices
Give to mutual aid
Support libraries & independent book stores
Wear a mask (if you aren't already)
Call & email elected officials
Reposted by Beth - Friend for the Long Haul
Jealous Trump Boys Try To Convince Father That Barron A DEI
theonion.com/jealous...
theonion.com/jealous...
Jealous Trump Boys Try To Convince Father That Barron A DEI
WASHINGTON—Whining that they were being discriminated against even though they were the “bestest sons ever in the whole wide world,” the Trump Boys attempted Thursday to convince their father that Barron was getting unfair advantages because he was a DEI. “Daddy, Barron is ruining our lives because he’s different,” said a pouting Donald Jr., who […]
theonion.com
February 8, 2025 at 7:00 PM
Jealous Trump Boys Try To Convince Father That Barron A DEI
theonion.com/jealous...
theonion.com/jealous...
Important read
1. Today the NIH director issued a new directive slashing overhead rates to 15%.
I want to provide some context on what that means and why it matters.
grants.nih.gov/grants/guide...
I want to provide some context on what that means and why it matters.
grants.nih.gov/grants/guide...
NOT-OD-25-068: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates
NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates NOT-OD-25-068. OD
grants.nih.gov
February 8, 2025 at 1:36 AM
Important read
I’ve been on a GLP-1 to combat a whole host of qualifying diagnoses I got or developed over time as a result of my initial COVID infection in April 2020, and I’m providing updates on my Substack. #longcovid open.substack.com/pub/f4lh/p/o...
One Month into GLP-Fun
I REMAIN ALIVE still
open.substack.com
February 7, 2025 at 1:21 AM
I’ve been on a GLP-1 to combat a whole host of qualifying diagnoses I got or developed over time as a result of my initial COVID infection in April 2020, and I’m providing updates on my Substack. #longcovid open.substack.com/pub/f4lh/p/o...
Reposted by Beth - Friend for the Long Haul
Happy #BlackHistoryMonth!
Most of the Black farmers on this registry will ship their produce & products:
blackfarmersindex.com/the-index
Most of the Black farmers on this registry will ship their produce & products:
blackfarmersindex.com/the-index
Black Farmers Index
blackfarmersindex.com
February 2, 2025 at 5:03 AM
Happy #BlackHistoryMonth!
Most of the Black farmers on this registry will ship their produce & products:
blackfarmersindex.com/the-index
Most of the Black farmers on this registry will ship their produce & products:
blackfarmersindex.com/the-index
Reposted by Beth - Friend for the Long Haul
Given that there’s a pause on FDA comms right now, it may be useful for Americans to sign up for Canadian recalls, since many products are sold in both countries. Eg fellow celiacs, this may clue you into products to watch out for on the US side too: recalls-rappels.canada.ca/en/subscribe
January 25, 2025 at 9:17 PM
Given that there’s a pause on FDA comms right now, it may be useful for Americans to sign up for Canadian recalls, since many products are sold in both countries. Eg fellow celiacs, this may clue you into products to watch out for on the US side too: recalls-rappels.canada.ca/en/subscribe
Dianna stands for the first time in 2 years!
YouTube video by Physics Girl
youtube.com
January 25, 2025 at 9:24 PM
The Spoonie Business Network is a listing of spoonie-owned small businesses. The interest form is LIVE if you’d like to take part! Dm me with any questions. ❤️🩹🥄 Follow the link to fill it out. This is all free, it’s just important to me!! docs.google.com/forms/d/e/1F...
Spoonie Business Network Interest Form
I'm forming the Spoonie Business Network - a listing of spoonie-owned small businesses. The goal is to highlight and increase visibility of Spoonie business owners and provide an opportunity to networ...
docs.google.com
January 24, 2025 at 9:19 PM
The Spoonie Business Network is a listing of spoonie-owned small businesses. The interest form is LIVE if you’d like to take part! Dm me with any questions. ❤️🩹🥄 Follow the link to fill it out. This is all free, it’s just important to me!! docs.google.com/forms/d/e/1F...
Hi! I’ll be posting the Spoonie Business Network interest form sometime tomorrow! If you’d like to be listed, keep an eye out! For now it will just be a list of 🥄 business owners so we can all support each other and shop in alignment with our values. ❤️🩹
January 24, 2025 at 3:40 AM
Hi! I’ll be posting the Spoonie Business Network interest form sometime tomorrow! If you’d like to be listed, keep an eye out! For now it will just be a list of 🥄 business owners so we can all support each other and shop in alignment with our values. ❤️🩹
Reposted by Beth - Friend for the Long Haul
The antidote for despair is action ❤️
* Dial (202) 224-3121
* Enter zip code
* Leave voicemail
* Say “My name is ___, I’m a constituent in [town]. (If clinician/scientist, say so)
“The NIH freeze harms research and patients and must be lifted immediately.”
Be brief. Staffers tally all calls. Go! ✅
* Dial (202) 224-3121
* Enter zip code
* Leave voicemail
* Say “My name is ___, I’m a constituent in [town]. (If clinician/scientist, say so)
“The NIH freeze harms research and patients and must be lifted immediately.”
Be brief. Staffers tally all calls. Go! ✅
NIH funding supports the vast majority of all biomedical research in the United States. Virtually every advance in American medicine and biological science comes from NIH. This is a blow against American science.
Call Congress, 202-224-3121.
Call Congress, 202-224-3121.
All NIH study sections canceled indefinitely. This will halt science and devastate research budgets in universities.
January 23, 2025 at 3:21 AM
The antidote for despair is action ❤️
* Dial (202) 224-3121
* Enter zip code
* Leave voicemail
* Say “My name is ___, I’m a constituent in [town]. (If clinician/scientist, say so)
“The NIH freeze harms research and patients and must be lifted immediately.”
Be brief. Staffers tally all calls. Go! ✅
* Dial (202) 224-3121
* Enter zip code
* Leave voicemail
* Say “My name is ___, I’m a constituent in [town]. (If clinician/scientist, say so)
“The NIH freeze harms research and patients and must be lifted immediately.”
Be brief. Staffers tally all calls. Go! ✅
ARE YOU A DISABLED OR CHRONICALLY ILL BUSINESS OWNER? Or, is there a spoonie business you love? PLEASE CONTACT ME. I’m building the Spoonie Business Network to have an easily accessible listing of spoonie businesses to support, and use our money in alignment with our values. Thank you!
January 22, 2025 at 2:27 AM
ARE YOU A DISABLED OR CHRONICALLY ILL BUSINESS OWNER? Or, is there a spoonie business you love? PLEASE CONTACT ME. I’m building the Spoonie Business Network to have an easily accessible listing of spoonie businesses to support, and use our money in alignment with our values. Thank you!
I’ve had #pots since I was a kid and today I learned it can make you upchuck, so I thought I’d bring back an old reel I made. #chronicillness #longcovid #dysautonomia
January 21, 2025 at 3:46 AM
I’ve had #pots since I was a kid and today I learned it can make you upchuck, so I thought I’d bring back an old reel I made. #chronicillness #longcovid #dysautonomia
Reposted by Beth - Friend for the Long Haul
Word of the day is ‘catch-fart’ (17th century: an obsequious individual who will always follow the political wind.
January 20, 2025 at 12:14 PM
Word of the day is ‘catch-fart’ (17th century: an obsequious individual who will always follow the political wind.
I started #mounjaro a week and a half ago. I can’t wait to read this. Thank you, @zalaly.bsky.social
The latest from my team in Nature Medicine.
We comprehensively mapped the benefits and risks of GLP-1 receptor agonists (GLP-1) (Ozempic, Wegovy, Mounjaro, Zepbound).
By @Biostayan, Taeyoung Choi and me
A 🧵
www.nature.com/articles/s41...
We comprehensively mapped the benefits and risks of GLP-1 receptor agonists (GLP-1) (Ozempic, Wegovy, Mounjaro, Zepbound).
By @Biostayan, Taeyoung Choi and me
A 🧵
www.nature.com/articles/s41...
Mapping the effectiveness and risks of GLP-1 receptor agonists - Nature Medicine
An atlas of the associations between the use of GLP-1 receptor agonists (GLP-1RAs) and 175 health outcomes reports the effectiveness and risks of GLP-1RAs compared with other antihyperglycemic medicat...
www.nature.com
January 20, 2025 at 11:11 PM
I started #mounjaro a week and a half ago. I can’t wait to read this. Thank you, @zalaly.bsky.social
Reposted by Beth - Friend for the Long Haul
On the podcast Rescued by a Dog: When Janet’s house goes up in flames, family pitbull Blue stays behind with the youngest daughter. Can Blue save the child’s life? (listen HERE: podcasts.apple.com/us/podcast/r... #doglove #dogs #dogsarefamily #rescuedog #pitbulls #dog #uplifting #love #hope #pitbull
January 19, 2025 at 6:45 PM
On the podcast Rescued by a Dog: When Janet’s house goes up in flames, family pitbull Blue stays behind with the youngest daughter. Can Blue save the child’s life? (listen HERE: podcasts.apple.com/us/podcast/r... #doglove #dogs #dogsarefamily #rescuedog #pitbulls #dog #uplifting #love #hope #pitbull
Reposted by Beth - Friend for the Long Haul
I'm spending the rest of the day writing a fanfic about Vine and TikTok boinking each other in every single way.
January 19, 2025 at 8:32 PM
I'm spending the rest of the day writing a fanfic about Vine and TikTok boinking each other in every single way.
I just finished my first week on a #glp1 that I’ve been prescribed to hopefully help with a host of #longcovid hellscape remnants. Quick updates on IG @afriendforthelonghaul & long-form on Substack. Note: I will *not* be discussing weight. open.substack.com/pub/f4lh/p/a...
A GLP-Fun Adventure
CW: talk of GLP1 medication, lipedema, pain
open.substack.com
January 19, 2025 at 5:42 AM
I just finished my first week on a #glp1 that I’ve been prescribed to hopefully help with a host of #longcovid hellscape remnants. Quick updates on IG @afriendforthelonghaul & long-form on Substack. Note: I will *not* be discussing weight. open.substack.com/pub/f4lh/p/a...
Reposted by Beth - Friend for the Long Haul
NEW: Trump’s pick for Undersecretary of the Air Force is Matthew Lohmeier, who was relieved of command at Buckley AFB in Colorado in 2021. Lohmeier had published a book suggesting the military is infiltrated by Marxism. #copolitics www.9news.com/article/news...
www.9news.com
January 18, 2025 at 1:41 AM
NEW: Trump’s pick for Undersecretary of the Air Force is Matthew Lohmeier, who was relieved of command at Buckley AFB in Colorado in 2021. Lohmeier had published a book suggesting the military is infiltrated by Marxism. #copolitics www.9news.com/article/news...
Thought I’d bring back my old #longcovid haiku series.
January 13, 2025 at 7:38 PM
Thought I’d bring back my old #longcovid haiku series.
Reposted by Beth - Friend for the Long Haul
KFC Introduces New Bird-Flu Dipping Vaccine
January 3, 2025 at 10:04 PM
KFC Introduces New Bird-Flu Dipping Vaccine