Dana M. Lewis
danamlewis.bsky.social
Dana M. Lewis
@danamlewis.bsky.social
Researcher, developer, author.
-Created #OpenAPS, “PERT Pilot”, “Carb Pilot”.
-Moderated #hcsm.
-Wrote #APSBook (http://ArtificialPancreasBook.com) + others.
- Blog & research & more: DIYPS.org
Reposted by Dana M. Lewis
Sometimes when people ask me why I’m wearing a mask I say I’m traveling or have some important thing soon and can’t afford to get sick and miss it and that’s pretty much always true but I think it would be nice if it were more normalized to just say “I don’t want to get sick” and leave it at that
November 8, 2025 at 4:49 PM
Reposted by Dana M. Lewis
We've just launched the first large, site-less (home, direct to participant) randomized trial for treatment of #LongCovid, testing tirzepatide (a GLP-1 drug) vs placebo. Please help spread the word
www.scripps.edu/news-and-eve...
Scripps Research scientists launch new digital clinical trial to test repurposed drug for long COVID symptom relief
www.scripps.edu
October 31, 2025 at 5:07 PM
Reposted by Dana M. Lewis
If we want preprints to really catalyze faster, more open science, then leading infrastructure needs to reduce this friction. Authors should know when feedback exists — otherwise we’re shouting into the void.
September 8, 2025 at 3:59 PM
If the smoke in the air is bothering you:

Reminder that an n95 mask can help (and you can wear one outside to reduce exposure).

For inside, if you don’t have an air purifier, a furnace filter taped onto a box fan can help clean your indoor air.
September 4, 2025 at 5:16 PM
Reposted by Dana M. Lewis
Given the current wildfire growth across the PNW and the forecast winds over the next week, we could see a situation where smoke becomes persistent across much of the PNW by next week. Time to get those air filters / N95s / etc if you haven't already.
September 3, 2025 at 11:53 PM
Reposted by Dana M. Lewis
Traveling soon? Stay protected during the COVID-19 surge by wearing a high-quality mask in crowded or indoor spaces like an N95, KN95 or KF94. Learn more: www.cdph.ca.gov/Programs/CID...
August 28, 2025 at 10:37 PM
Reposted by Dana M. Lewis
If you are accommodating someone with dietary restrictions, please refrain from having feelings about whether/how much they eat. "I got them this special thing, why didn't they eat as much as I want them to?" Could be they're full, they don't like that food, they decided it's not actually safe.
August 23, 2025 at 11:46 PM
Reposted by Dana M. Lewis
As an interesting data point, 4 of 5 women I told about this on the same day also experience significant pain from IUD insertion / replacement procedures and have (also) never been offered pain management options. (The fifth didn’t comment.)

We need to change this. Pass it on 👆🏼 to your friends.
August 21, 2025 at 1:00 AM
This is one of the things we have to talk about (real world clinical practice is translating very slowly on the basis of new evidence).

If you have an IUD or are considering getting one, read about paracervical blocks & ask your provider about it.

diyps.org/2025/05/29/i...
IUD insertion or IUD replacement is more manageable with a paracervical block
If you’re someone who is considering an IUD (intrauterine device) or has an IUD and is considering a replacement or the removal process, this post is for you. You should know about this! Feel free to ...
diyps.org
August 21, 2025 at 12:59 AM
Reposted by Dana M. Lewis
You can read the full research paper here:

doi.org/10.3390/epid...

Or, read my summary and highlights from the paper here: bit.ly/3J8yBLL

Let me know what questions you have!

(6/6)
doi.org
August 13, 2025 at 6:20 PM
New open-access research on a new symptom score for exocrine pancreatic insufficiency - the EPI/PEI-SS.

An n=324 study analyzed this symptom score in people with EPI and in the general population (without EPI).

Read the open access paper here (doi.org/10.3390/epid...), or skim this summary below 👇🏼
doi.org
August 13, 2025 at 6:20 PM
Reposted by Dana M. Lewis
Lots of lingering surface smoke from the #BearGulchFire is moving through the Puget Sound area today, with air quality in the moderate to unhealthy for sensitive groups categories. AQI is currently worst near the fire, and in Pierce & S. King Counties. Be cautious! #wawx
August 4, 2025 at 9:19 PM
Reposted by Dana M. Lewis
Every question (more than 25!) that I’ve ever answered about exocrine pancreatic insufficiency (EPI/PEI):
bit.ly/EPI-FAQ

(But if you find a question I haven’t answered, please ask it! And I’ll answer it + update the post.)
Exocrine Pancreatic Insufficiency (EPI) FAQ – Symptoms, Testing, Enzyme Dosing & More
Here are the top questions I see about exocrine pancreatic insufficiency (EPI / PEI), especially when someone is newly diagnosed. Section 1 of 7: Symptoms What are the symptoms of exocrine pancreatic ...
bit.ly
June 26, 2025 at 12:03 AM
👀 a new feature in PERT Pilot is out today! 🎉

When you are choosing an enzyme dose for a new meal, you can see it in context of your past meals (and what you logged that work for you and didn’t work so well).

You can find PERT Pilot here, for free: bit.ly/PERT-Pilot-iOS
July 2, 2025 at 9:50 PM
Reposted by Dana M. Lewis
All the technical language around AI obscures the fact that there are two paths to being good with AI:
1) Deeply understanding LLMs
2) Deeply understanding how you give people instructions & information they can act on.

LLMs aren’t people but they operate enough like it so that the skills transfer.
June 28, 2025 at 8:52 PM
PERT Pilot users on iOS - I have a new feature to test if you want to get early access to it! ✨

(DM or email me for info on accessing the test version)
June 26, 2025 at 10:36 PM
Every question (more than 25!) that I’ve ever answered about exocrine pancreatic insufficiency (EPI/PEI):
bit.ly/EPI-FAQ

(But if you find a question I haven’t answered, please ask it! And I’ll answer it + update the post.)
Exocrine Pancreatic Insufficiency (EPI) FAQ – Symptoms, Testing, Enzyme Dosing & More
Here are the top questions I see about exocrine pancreatic insufficiency (EPI / PEI), especially when someone is newly diagnosed. Section 1 of 7: Symptoms What are the symptoms of exocrine pancreatic ...
bit.ly
June 26, 2025 at 12:03 AM
Reposted by Dana M. Lewis
Even if you don’t use it that way, AI is often used as an accessibility tool that helps many of us to accomplish tasks more efficiently & comfortably than otherwise would be possible.

(enabling us to complete tasks we might otherwise avoid or be unable to do at all.)

examples: bit.ly/43rQMSM
AI is often an accessibility tool, even if you don’t use it that way
Talking about AI (artificial intelligence) often veers conversations toward lofty, futuristic scenarios. But there’s a quieter, more fundamental way AI is making a big difference today: serving as an ...
bit.ly
May 29, 2025 at 6:43 PM
Reposted by Dana M. Lewis
Risky post!

(This is great, fun to read and the frustrated tone throughout really does capture how it feels sometimes to be an experienced programmer trying to argue that "LLMs are actually really useful" in many corners of the internet)
June 2, 2025 at 11:41 PM
Even if you don’t use it that way, AI is often used as an accessibility tool that helps many of us to accomplish tasks more efficiently & comfortably than otherwise would be possible.

(enabling us to complete tasks we might otherwise avoid or be unable to do at all.)

examples: bit.ly/43rQMSM
AI is often an accessibility tool, even if you don’t use it that way
Talking about AI (artificial intelligence) often veers conversations toward lofty, futuristic scenarios. But there’s a quieter, more fundamental way AI is making a big difference today: serving as an ...
bit.ly
May 29, 2025 at 6:43 PM
Reposted by Dana M. Lewis
Excellent explanation of why we need to improve/expand data retention and good #datamanagement practices by @danamlewis.bsky.social. Applying common data standards more broadly would add huge value, too. #lifesciences
We are leaving data behind in clinical trials…and shooting ourselves in the foot for the future.

There are going to be “haves” and “have nots” of diseases and conditions that get new breakthroughs powered by AI.

But there’s things you and I can do *today* to fix this: bit.ly/4mCfwRb
May 28, 2025 at 8:00 PM
We are leaving data behind in clinical trials…and shooting ourselves in the foot for the future.

There are going to be “haves” and “have nots” of diseases and conditions that get new breakthroughs powered by AI.

But there’s things you and I can do *today* to fix this: bit.ly/4mCfwRb
May 28, 2025 at 5:55 PM
Reposted by Dana M. Lewis
We have enough evidence to suggest doctors should probably be using AI themselves to get a second opinion on their diagnoses. They can choose whether to use that advice, but not using it seems increasingly like voluntarily ignoring an important tool that can help patients.
May 22, 2025 at 4:27 PM
Reposted by Dana M. Lewis
If AI didn’t nail it the first time, don't quit.

Rephrase. Retry. Revisit.

🧠 The people getting the most out of AI aren’t the ones who got it perfect the first time.

They’re the ones who kept experimenting.

Try, try again.

(More tips: bit.ly/3YrWJgQ)
Try, Try Again with AI
If you’ve scoffed at, dismissed, or tried using AI and felt disappointed in the past, you’re not alone. Maybe the result wasn’t quite right, or it missed the mark entirely. It’s easy to walk away thin...
bit.ly
April 13, 2025 at 12:16 AM
What if we talk more about passive impact, and not just passive income, when thinking about the opportunities to build new things?

bit.ly/4juoVrT
Passive Impact (You Can Optimize For That)
Some of the popular use cases of AI agents are to build custom software for other people, and sell it cheaper than big corporate software but still giving you a really good return on your time. A lot ...
bit.ly
April 30, 2025 at 12:21 AM