Dana M. Lewis
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danamlewis.bsky.social
Dana M. Lewis
@danamlewis.bsky.social
680 followers 100 following 190 posts
Researcher, developer, author.
-Created #OpenAPS, “PERT Pilot”, “Carb Pilot”.
-Moderated #hcsm.
-Wrote #APSBook (http://ArtificialPancreasBook.com) + others.
- Blog & research & more: DIYPS.org
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danamlewis.bsky.social
EPI/PEI-SS higher in those with EPI (98.11, min 1, max 213) and lower in those without EPI (38.86, min 0, max 163).

Statistically significant difference (p<.001), remained even when those without EPI were split into two groups based on other GI-related conditions or not.

(3/)
Figure 1 from the paper showing the sub-scores and total scores broken out by EPI and non-EPI groups, respectively.
August 13, 2025 at 6:20 PM
danamlewis.bsky.social
👀 a new feature in PERT Pilot is out today! 🎉

When you are choosing an enzyme dose for a new meal, you can see it in context of your past meals (and what you logged that work for you and didn’t work so well).

You can find PERT Pilot here, for free: bit.ly/PERT-Pilot-iOS
A gif showing screenshots from PERT Pilot and a new feature that puts a new meal and your chosen dose in context of your previous meals, to help you predict what might happen. This is now live in the iOS App Store!
July 2, 2025 at 9:50 PM
danamlewis.bsky.social
We are leaving data behind in clinical trials…and shooting ourselves in the foot for the future.

There are going to be “haves” and “have nots” of diseases and conditions that get new breakthroughs powered by AI.

But there’s things you and I can do *today* to fix this: bit.ly/4mCfwRb
The data we leave behind in clinical trials and why it matters for clinical care, healthcare research, and the future with AI. A blog post from Dana M. Lewis on DIYPS.org
May 28, 2025 at 5:55 PM
danamlewis.bsky.social
1/ 📢

Paid opportunity for community members in the U.S.!

We’re looking for 8 people with lived experience to help review how researchers plan to engage communities in health research.

(This is part of the CHEER Study, assessing engagement in research.)
A long description of the CRC opportunity that is more simply covered in this thread of posts.
April 22, 2025 at 2:29 AM
danamlewis.bsky.social
Tried using AI and didn’t get the result you wanted?

You’re not alone.

But that doesn’t mean AI “doesn’t work.”

🧵 How to get better at using AI

(Or blog post here: bit.ly/3YrWJgQ)
A flowchart diagram titled “Try a task with AI” illustrates how to approach AI usage with persistence and iteration. At the top is a purple box labeled “Try a task with AI.” Two arrows extend downward. The left arrow leads to a peach-colored box labeled “Result is not quite right,” which then leads to another box with three bullet points: “Reword your prompt,” “Give it more instructions,” and “Try this prompt with a different model/tool.” Below that is a smaller orange box labeled “Still didn’t work?” which connects to a final box that says: “Park this project: ‘try again later’ list” and “Try a different task or project.” From this box, an arrow loops back to the top box, showing that users should try again. The right arrow from the top goes to a green box labeled “Result is pretty good,” which then leads to another green box that says “Keep going & use AI for other tasks and projects.” This green path also loops back to the top.
April 13, 2025 at 12:16 AM
danamlewis.bsky.social
Vibe coding or otherwise developing apps for new platforms that you've never developed for before - what's it like to be a new developer of an iOS or Android app?

(It's a little bit of a "chicken or egg" question if you're planning to do both, for which one to try first.)

👇🏼
iOS or Android: which was easier? A newbie's perspective on iOS and Android development and app deployment, a blog by Dana M. Lewis: https://bit.ly/4lmfvQB
April 12, 2025 at 1:07 AM
danamlewis.bsky.social
With Carb Pilot, you have several ways to create and record your meals:

1) use AI meal estimation
2) manual meal entry (if you know the counts)
3) repeat an existing meal and edit that
4) use voice entry (microphone button on home screen or via the widget)

Change what nutrients you see any time!
April 9, 2025 at 5:53 PM
danamlewis.bsky.social
Oh yeah - Carb Pilot got a(n optional) new feature this week, too!

But like all features, it’s optional. Only want to see carbs? Or just protein? That’s what it’s designed for - see what you care about in your saved meals & nothing else.

bit.ly/Carb-Pilot-iOS
A screenshot of the iOS App Store with the Carb Pilot listing showing there is a new optional feature on 0.1.6 for those interested in overall energy tracking with protein. Free: https://bit.ly/Carb-Pilot-iOS A screenshot of the saved meals in Carb Pilot, where the only macronutrient showing is protein. You can choose to toggle carbs, fat, protein, or calories on and off at any time.
April 5, 2025 at 6:58 PM
danamlewis.bsky.social
New version of PERT Pilot for iOS is out!

People with exocrine pancreatic insufficiency can use PERT Pilot to record what they eat, what enzymes they take, and whether/not it worked for each meal.

🎉And now, also track EPI symptoms over time using the EPI/PEI-SS in the app!

bit.ly/PERT-Pilot-iOS
Screenshots from PERT Pilot, a free iOS app designed to make pancreatic enzyme replacement therapy easier for people with exocrine pancreatic insufficiency (known as EPI or PEI). PERT Pilot allows you to lo what you eat and what enzymes you took, so you can visualize and understand what dose works for you in relationship to what you eat. You can edit meals and update symptoms or outcomes any time. And now, in v0.2.5 and beyond, you can track your symptoms based on frequency & severity using the EPI/PEI-SS. The EPI/PEI-SS is a symptom survey that helps score symptoms based on frequency and severity, so you can see how things are changing over time. PERT Pilot is free and available now on the iOS app store: https://bit.ly/PERT-Pilot-iOS
April 4, 2025 at 4:55 PM
danamlewis.bsky.social
Not everyone (HCPs or pts) knows enzyme doses may need adjusting for different meals, depending on fat *or* protein content.

If you know someone with exocrine pancreatic insufficiency (EPI / PEI), they may be interested in PERT Pilot:

Android: bit.ly/PERT-Pilot-A...

iOS: bit.ly/PERT-Pilot-iOS
A comic showing a doctor saying take 2 pills, a patient questioning what to do with a different sized meal; a second panel showing two different sized meals; a third panel showing the patient thinking through how much to take; and a 4th panel showing the patient realizing that different meals need different doses. PERT Pilot is a free mobile app that enables people with EPI (PEI) to record what they eat, what enzymes they took, and whether the dose worked, so they can improve their dosing over time. Android: https://bit.ly/PERT-Pilot-Android iOS: https://bit.ly/PERT-Pilot-iOS
April 2, 2025 at 7:35 PM
danamlewis.bsky.social
Sometimes I blog about spoons, raccoons, and puzzle pieces:

bit.ly/4c9yVEs
Left are four 3x3 grids filled in different combinations of three sets of blocks. One is two blocks stacked on top of each other, green. Another is an L-shaped set of 4 blocks, purple. The other is a corner-shaped set of three blocks, blue. On the right side of the image are four more grid also completely filled, but underneath them are single blocks (green, purple, blue), illustrating how breaking up chunks into smaller components gives more flexibility and a better chance of filling the grid with more combination options.
March 25, 2025 at 7:12 PM
danamlewis.bsky.social
Frustrated?

Overwhelmed by uncertainty?

Feeling out of control of...::gestures at everything::?

Do something. ANYTHING. Right now. No matter how small.

Here's a trick to get started: 👇🏼
white text on blue background, says "Just do something (permission granted), a blog from @DanaMLewis on DIYPS.org"
March 7, 2025 at 7:24 PM
danamlewis.bsky.social
1/ 🧵How much does it cost to save the life of a person living with diabetes?

We (@scottleibrand.bsky.social & @danamlewis.bsky.social) did the math to re-assess how cost-effective Life For a Child is in supporting children with diabetes in low-income countries.

Here’s what we found:
Life for a Child: a cost-effective charity supporting people with diabetes that needs your help. A blog post from Dana M. Lewis at DIYPS.org
March 4, 2025 at 4:56 PM
danamlewis.bsky.social
Thinking about how medical research is similar to a game of telephone, in terms of understanding how different information can be presented at the same time in different papers.

(And helping patients understand how there might be conflicting information, and why)

More thoughts: bit.ly/4jWGx0z
An animated gif showing how citation strings happen in the literature, branching off over time but often still resulting in a repetition of a fact that is later considered to be incorrect, thus both the correct and incorrect fact occur in the literature at the same time. Written explanation with more detail in a blog post at https://bit.ly/4jWGx0z by @DanaMLewis
February 3, 2025 at 5:12 PM
danamlewis.bsky.social
More updates for PERT Pilot (an app for people with exocrine pancreatic insufficiency - EPI / PEI - to track enzyme intake), including the ability to track symptoms and edit symptoms for each meal:
Three screenshots showing how you can swipe to edit a meal in PERT Pilot, then add symptoms in the new free textbox, and saving it then displays the symptoms along with your meal in the previous meals screen. You don't have to add symptoms, but you can if you want to, in addition to your general assessment of whether or not the meal 'worked' with that dosing. This is part of PERT Pilot, a free iOS app available at https://bit.ly/PERT-Pilot-iOS
January 31, 2025 at 5:55 PM
danamlewis.bsky.social
A new feature in Carb Pilot - a widget!

(Available today in 0.1.4: bit.ly/Carb-Pilot-iOS)

Carb Pilot is an iOS app that allows you to custom track only the macronutrients you care about.

Track any of carbs, fat, protein, and/or calories. Change your mind any time, & integrates with HealthKit.
A screenshot of a small iOS widget that is a light purple background with 4 buttons, representing the 4 buttons on the home screen of Carb Pilot. These buttons more quickly enable you to start the AI estimation flow; dictate a meal verbally; add a manual meal entry; or jump to your saved meals. (The saved meals icon is especially cute: instead of three dots and lines of a 'list' icon it's a custom icon with an apple, cupcake, and banana for the dots).
January 31, 2025 at 5:50 PM
danamlewis.bsky.social
The ADA 2025 Standard of Care covers an accurate overview of OS AID systems; the fact that there are different algorithms and systems people can choose from; and that there is a variety of high-quality studies including RCTs on OS AID use in PWD.
A screenshot of the full section of "Open-Source Automated Insulin Delivery", which you can find under section 7 and insulin delivery in the 2025 ADA Standards of Care.
December 9, 2024 at 9:52 PM