Socialist & Human Rights Lover
Artist
Trans & Disabled Activist
EDS haver & Autistic
Free Palestine
Enjoyer of Warhammer, Star Wars and many other niche interests.
He/They
Transcript for 1-hour Myalgic Encephalomyelitis debate in Westminster Hall (UK Parliament) on Wednesday 19 November 2025 led by @tessamunt.bsky.social
hansard.parliament.uk/commons/2025...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Transcript for 1-hour Myalgic Encephalomyelitis debate in Westminster Hall (UK Parliament) on Wednesday 19 November 2025 led by @tessamunt.bsky.social
hansard.parliament.uk/commons/2025...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
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It is a solemn day where we remember those we have lost this year and years past.
An ever present reminder of the world we live in being unkind and inhospitable to trans people for a multitude of reasons.
It is a solemn day where we remember those we have lost this year and years past.
An ever present reminder of the world we live in being unkind and inhospitable to trans people for a multitude of reasons.
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Hats off to my GP surgery for being transparent about the situation, and getting me on with a GP this morning to sort it.
Hats off to my GP surgery for being transparent about the situation, and getting me on with a GP this morning to sort it.
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via Private Eye
"Farage faces questions over who funded £885,000 Clacton constituency home"
www.bbc.co.uk/news/article...
via Private Eye
"Farage faces questions over who funded £885,000 Clacton constituency home"
www.bbc.co.uk/news/article...
The 1.5°C target is slipping away as rich countries stall real action and finance. Climate colonialism lives on.
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The 1.5°C target is slipping away as rich countries stall real action and finance. Climate colonialism lives on.
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There are eejits driving on footpaths to avoid waiting in the car congaline to get through a waterlogged road safely and people flying through puddles!
There are eejits driving on footpaths to avoid waiting in the car congaline to get through a waterlogged road safely and people flying through puddles!
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1. They had to pay a considerable amount towards the cost. Like, more than the cost of a decent second hand car.
2. It's not a "blue three wheeler" because that wouldn't accommodate the wheelchair.
It is not easy to qualify for a Motability car. It is not free. People are not faking disability to get free cars.
www.motability.co.uk/how-it-works
REFUK are bigoted scum.
1. They had to pay a considerable amount towards the cost. Like, more than the cost of a decent second hand car.
2. It's not a "blue three wheeler" because that wouldn't accommodate the wheelchair.
Gastroparesis is a frequently observed gut issue in people with EDS/HSD, and can show up alongside different forms of dysmotility encompassed under 'Pan-enteric Dysmotility'.
Gastroparesis is a frequently observed gut issue in people with EDS/HSD, and can show up alongside different forms of dysmotility encompassed under 'Pan-enteric Dysmotility'.
It’s what drives people to act even when the world feels fixed against them. We don’t choose the times we live in - but we can choose what we do with them.
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It’s what drives people to act even when the world feels fixed against them. We don’t choose the times we live in - but we can choose what we do with them.
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I think I've started getting a bit of a hankering for carnivorous and fragile plants.
This pitcher definitely ticks both those boxes!
They have been banished to quarantine until I deem them safe enough to introduce to the rest.
I think I've started getting a bit of a hankering for carnivorous and fragile plants.
This pitcher definitely ticks both those boxes!
They have been banished to quarantine until I deem them safe enough to introduce to the rest.
🇮🇪 Ireland just elected Catherine Connolly - a fierce, independent voice backed by Greens and progressives. A victory for people over power.
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🇮🇪 Ireland just elected Catherine Connolly - a fierce, independent voice backed by Greens and progressives. A victory for people over power.
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youtube.com/shorts/be70KyeNrm...
youtube.com/shorts/be70KyeNrm...
m.independent.ie/irish-news/a...
m.independent.ie/irish-news/a...
Got talking to some wonderful people who wanted to learn more for their own benefit or their loved ones.
EDS is still a mystery to most, these stalls make a difference!
Got talking to some wonderful people who wanted to learn more for their own benefit or their loved ones.
EDS is still a mystery to most, these stalls make a difference!
It's still Dysautonomia awareness month, and there are still no standardised care pathways for many of these conditions!
It's also practically impossible to get a diagnosis of MCAS on the NHS as it is 'controversial'.
#Dysautonomia tinyurl.com/mry8bkty can often co-exist with other conditions such as mast cell activation syndrome, Ehlers-Danlos syndromes, and small fibre neuropathy. Several are also considered to be ME/CFS comorbidities, so we will explore further during October.
#MEcfs
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It's still Dysautonomia awareness month, and there are still no standardised care pathways for many of these conditions!
It's also practically impossible to get a diagnosis of MCAS on the NHS as it is 'controversial'.
This is a big step forward. While it may be just a snapshot, it’s clear our message is resonating with more and more people. Momentum is building because people know there’s a better way.
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This is a big step forward. While it may be just a snapshot, it’s clear our message is resonating with more and more people. Momentum is building because people know there’s a better way.
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