Anneke Vliegen - Author
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annekevliegen.bsky.social
Anneke Vliegen - Author
@annekevliegen.bsky.social
54 followers 95 following 72 posts
Author of Recognise Me, memoir about medical gaslighting. Advocating for more dignified approach to chronic, barely visible, fluctuating and/or rare conditions. Speaker and blogger. BHSc OT. Postgrad Cert Health Research.
Posts Replies Media Videos
annekevliegen.bsky.social
BLOG

Kort en eenvoudig, vanwege de pijn.
annekevliegen-auteur.weebly.com/blog/kort
Short and simple, because of the pain.
flyingthroughthewoods.weebly.com/flyingthroug...

#RecogniseME #HerkenME #RareDiseaseDay #ZeldzameZiektenDag
Short.
Extravaganza, book fair and crowdfunding in short.
flyingthroughthewoods.weebly.com
March 2, 2025 at 2:47 PM
Reposted by Anneke Vliegen - Author
chronicillness.bsky.social
Chronic Illness
#chronicillness #chronicillnessmemes #chronicillnesshumor
Neil deGrasse Tyson with the universe all around him Sick people are just healthy people but sick
January 10, 2025 at 2:39 PM
annekevliegen.bsky.social
Herkent er iemand wat ik aanhaal in mijn blogstuk van deze week? Ik zou het graag weten.

annekevliegen-auteur.weebly.com/blog/wakker

#Pijn #ChronischZiek #OnzichtbaarZiek #WisselendeAandoening #ZeldzameZiektes #MedischMistspuien
February 23, 2025 at 6:55 PM
annekevliegen.bsky.social
Does anyone recognise any of what I wrote in this week's blog? I would love to know.

flyingthroughthewoods.weebly.com/flyingthroug...

#Pain #ChronicIllness #InvisibleIllness #FluctuatingConditions #RareDiseases #MedicalGaslighting
February 23, 2025 at 6:55 PM
annekevliegen.bsky.social
#RecogniseME #MedicalGaslighting #BookReview
Picture of Recognise ME on blue background, with underneath on a greyish background the words: Nathalie Van Eynde I bought her book in English, and saw that a lot of the experiences us ME-patients live with, are well-described in this book. The often absurd truth, written in a way that encourages the reader to continue to read, and submerges them in a warm bath of understanding and recognition. Cognitive problems have kept me from getting very far in this book in the English language. However, I love the recognition, the feeling of not being alone. And it is also a beautiful book to lend to people who want to understand better what life is like with a severely disabling, chronic illness, which in addition is not taken seriously.
February 19, 2025 at 8:05 PM
annekevliegen.bsky.social
#RecogniseME #MedischMistpuien #Recensie
Foto van Recognise ME op een blauwe achtergrond, met daaronder op een witte achtergrond de woorden: Nathalie Van Eynde Ik kocht haar boek in het Engels, en zag dat heel veel van de ervaringen die wij als ME-patiënten hebben, in dit boek op een goede manier beschreven worden. De vaak absurde waarheid, geschreven op een manier die het verder lezen aanmoedigt, en die onderdompelt een warm bad van begrip en (h)erkenning. (blue heart) Door eigen cognitieve problemen raakte ik nog niet ver in het Engelstalige boek. Maar ik hou van de herkenning, het gevoel niet alleen te zijn. En het is ook een mooi boek om uit te lenen aan mensen die beter willen begrijpen hoe het leven is met een flink invaliderende, chronische ziekte, die bovendien niet serieus wordt genomen.
February 19, 2025 at 8:04 PM
Reposted by Anneke Vliegen - Author
lifeatthewindow.bsky.social
Having to fight for welfare just to survive whilst extremely unwell is one of the grave social injustices of our time.

The damage it does to people with M.E. can be irreversible.

My heart breaks for all of us going through this. Where the hell is the compassion?

#pwME #MECFS
nikosuvisto.com Niko Suvisto @nikosuvisto.com · Feb 17
In my post yesterday, I shared how the battle for sickness benefits was one of the factors that led to my ME/CFS progressing to a severe level—more precisely, to a very severe level in June 2022. (I have been unable to work since November 2019.) 1/11

#pwME #MECFS #Kela #Disability
nikosuvisto.com Niko Suvisto @nikosuvisto.com · Feb 16
ME/CFS patients have been neglected for decades. Our rights have been and continue to be violated. We are constantly gaslit by medical professionals and other institutions that should be helping us. 1/11

#Photography #pwME #MECFS
February 17, 2025 at 3:34 PM
annekevliegen.bsky.social
Nadat ik per abuus vorig weekend oversloeg, krijgen jullie vandaag een blogstuk met een aantal belangrijke aankondigingen.

Ik ben benieuwd naar jullie reacties.

annekevliegen-auteur.weebly.com/blog/win

#RecogniseME #BookPresentatie #(H)erkenME #Fondsenwerving
February 16, 2025 at 8:16 PM
annekevliegen.bsky.social
Having skipped a week by accident, tonight I bring you a blog piece with a few important announcements.
I am looking forward to seeing your reactions.

flyingthroughthewoods.weebly.com/flyingthroug...

#RecogniseME #BookPresentation #(H)erkenME #Crowdfunding
February 16, 2025 at 8:15 PM
annekevliegen.bsky.social
‘IK BEN FIER OP JOU! Ik weet dat dat niet aan mij is, maar...’ ‘OH, NEE, DOE MAAR. Wees maar fier op mij. Dan moet ik het niet doen. Ik ben daar niet zo goed in.’ Anneke Vliegen © 2024*
February 9, 2025 at 6:23 AM
annekevliegen.bsky.social
‘I am proud of you! I know it is not my place to, but...’ ‘Oh, no, please do. Please, do be proud of me. Then I don’t have to. I am not so good at it.’ Anneke Vliegen © 2024
February 9, 2025 at 6:22 AM
annekevliegen.bsky.social
A blog piece about a podcast interview, have a look:
flyingthroughthewoods.weebly.com/flyingthroug...

Een blogstuk over een podcastinterview, kijk zelf eens:
annekevliegen-auteur.weebly.com/blog/context

#RecogniseME #MakingTheInvisibleVisible #MySpoonieSisters
Context.
A podcast interview with some explanation.
flyingthroughthewoods.weebly.com
February 2, 2025 at 5:26 PM
annekevliegen.bsky.social
BLOG
English: flyingthroughthewoods.weebly.com/flyingthroug...
Nederlands:
annekevliegen-auteur.weebly.com/blog/vakantie
flyingthroughthewoods.weebly.com
January 26, 2025 at 10:49 PM
annekevliegen.bsky.social
BLOG
English: flyingthroughthewoods.weebly.com/flyingth.../...

Nederlands: annekevliegen-auteur.weebly.com/blog/pijndag

#ChronicPain
January 19, 2025 at 7:42 PM
Reposted by Anneke Vliegen - Author
chronicillness.bsky.social
Source: a_h_reaume on Twitter
Disability Memes
#disabilitymemes #disability #chronicillnessmemes
Source: a_h_reaume on Twitter Disabled fantasy: Being able to sit in the room with all the doctors who ever asked if you were maybe just making your symptoms up...while they experience your symptoms. And ask them if they're making them up
January 18, 2025 at 5:43 PM
Reposted by Anneke Vliegen - Author
misaonwheels.bsky.social
Cutting benefits does not make disabled people able to work.

Removing remote work does not make disabled people able to work.

Accommodating people’s needs does however allow more disabled people to work and thrive.
January 18, 2025 at 5:32 PM
Reposted by Anneke Vliegen - Author
lifeatthewindow.bsky.social
I spend 23.5 hours a day in bed.

I watch the light patterns dance across the wall and shapeshift as the hours go by.

7.30am is particularly perfect right now.

I’m finally getting window blinds tomorrow. Light is hard to bear these days.

M.E. doesn’t leave us with much.

#pwME #MECFS
The photo shows a perspective of a dark curtain.on the right hand side with a shard of light shining through in the calm winter morning light. On the wall in the centre of the photo, three striking shards of light fall, shaped like blades. The one to the right is white/blue then the one adjoining it in the middle is orange and the last one is a fractured piece of orange/red/blue light.
January 14, 2025 at 7:42 AM
annekevliegen.bsky.social
BLOG

English: flyingthroughthewoods.weebly.com/flyingthroug...

Nederlands:
annekevliegen-auteur.weebly.com/blog/wetensc...
Picture of a stall my husband and I held at a Christmas market, which has a petition for research on it.
January 12, 2025 at 7:32 PM
annekevliegen.bsky.social
Boekvoorstelling Recognise ME
Lokaal Dienstencentrum De Knoop in Ledeberg, Gent
11/2 om 14u
Medisch mistspuien ludiek belicht

ONLINE INSCHRIJVING
20 PLAATSEN BESCHIKBAAR

activiteitenldc.gent.be/Activities/O...

Inschrijven kan ook aan het onthaal.
Ik kijk ernaar uit jullie te ontmoeten!
Foto van een liggend open boek. "Boekvoorstelling Recognise me Locatie: LDC DE KNOOP Hundelgemsesteenweg 125 9050 Gent, België Begindatum 11-02-2025 Einddatum 11-02-2025 Online inschrijven vanaf 3-1-2025 09:00 Online inschrijven tot 7-2-2025 16:30 Max. online inschrijvingen 20 Boekvoorstelling: Wat is medisch mistspuien en wat heeft het met Helmut Lotti te maken? Maak op een ludieke manier kennis met een belangrijk onderwerp dat uw aandacht verdient en met het boek dat Anneke Vliegen erover schreef."
January 11, 2025 at 2:07 PM
Reposted by Anneke Vliegen - Author
chromatowski.bsky.social
I really especially appreciated this, knowing so many chronically ill people whose circumstances sharply limit how much they are able to build the relationships pods depend on.
Screenshot. Text reads: A strong web of support: There are many people who do not have any pod people. This is a very real reality for many people, especially oppressed and isolated communities/individuals because of how capitalism, oppression and violence shape our lives. For example, many disabled people are extremely isolated because of lack of accessibility and resources; many immigrant women of color are isolated because of language or documentation; adults and children who are surviving current abuse such as domestic violence may be isolated by their abusers. We hope that by beginning to build and grow our pods, we can help build the conditions to be able to support people who do not have a pod.
January 9, 2025 at 10:43 AM
annekevliegen.bsky.social
An excellent talk by Dr. David Tuller about the bad science on which the medical gaslighting of patients with ME/CFS, Long Covid, and other conditions of which the cause has yet to be identified is based.

virology.ws/2025/01/06/t...

#MedicalGaslighting #ME #CFS #LongCovid #RecogniseME
Trial By Error: Video of October Talk in Ireland on How "Biopsychosocial" Research on ME, Long Covid, and Related Illnesses Harms Patients | Virology Blog
By David Tuller, DrPH In October, I spent 10 days traveling around Ireland and giving a talk called "Bad Science, Bad Medicine: How Flawed Biopsychosoc ...
virology.ws
January 7, 2025 at 4:20 PM
Reposted by Anneke Vliegen - Author
tomkindlon.bsky.social
New:

Relationship between major depressive disorder & myalgic encephalomyelitis/chronic fatigue syndrome: a two-sample mendelian randomization study analysis

www.nature.com/articles/s41...

"The results of the MR analysis revealed no causal relationship between MDD & ME/CFS"

#MEcfs #CFS
Abstract Major depressive disorder (MDD) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) frequently occur together; yet their causal relationship remains unclear. To investigate the potential genetic causal link between these conditions, we conducted a two-sample Mendelian randomization (MR) analysis. Summary data from Genome-Wide Association Studies (GWAS) for MDD were sourced from the UK Biobank and the Psychiatric Genomics Consortium, while GWAS data for ME/CFS were retrieved from the UK Biobank. Inverse-variance weighting (IVW), the MR-Egger method, and weighted median, simple and weighted modes were used to perform the MR analysis. In addition, Cochrane’s Q-test was used to detect heterogeneity among the MR results. Horizontal pleiotropy was detected using the MR-Egger intercept and the MR pleiotropy residual sum and outlier (MR-PRESSO) tests. Leave-one-out analysis was performed to investigate the sensitivity of the association between MDD and ME/CFS. The results of the MR analysis revealed no causal relationship between MDD and ME/CFS. The pleiotropy test revealed that causality bias was improbable, and no evidence of heterogeneity was found among the genetic variants. Finally, the leave-one-out test confirmed the stability and robustness of our findings.
January 7, 2025 at 3:52 PM
annekevliegen.bsky.social
Photograph of my memoir about medical gaslighting, Recognise ME. Underneath a review by fellow-patient David Swindells, 'I've just finished reading Anneke's book Recognise ME. I have to say its the most powerful and compelling read I've had in many years. I would urge anyone with a chronic health situation, or anyone else who would like to find out what it's like, to read this. Thank you for this book Anneke. You have helped so many of us to have our voice heard.'
January 6, 2025 at 11:23 AM
annekevliegen.bsky.social
A colourful cup claims you should not wait for love, but go towards it. Is this true for respect too? Where does medical gaslighting fit in?
I was asked about my core message. I have a question in return. Read about it here:
flyingthroughthewoods.weebly.com/flyingthroug...

#MedicalGaslighting
January 5, 2025 at 5:59 PM
annekevliegen.bsky.social
Een kleurrijke koffietas laat zien dat je niet mag wachten op liefde, maar ze tegemoet moet gaan. Geldt dat ook voor respect? Hoe zit dat met medisch mistspuien?
De kern van mijn boodschap werd me gevraagd. Ik heb er een terug. Lees erover in mijn blog:
annekevliegen-auteur.weebly.com/blog/kern
January 5, 2025 at 5:56 PM