Abigail Johnston
banner
amjohnston.bsky.social
Abigail Johnston
@amjohnston.bsky.social
Daughter, sister, wife, mom, lawyer and shenanigator living out loud with MBC since 2017.
Finding Clinical Trials: A Patient’s Guide

During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the American…
Finding Clinical Trials: A Patient’s Guide
During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the American Association of Clinical Research (AACR) and the Advanced Breast Cancer Global Alliance (ABCGA). Dr Fatima Cordoso and Teri Pollastro were the moderators, Dr. Mariana Chavez MacGregor from MD Anderson was the keynote speaker, and in addition to myself, Kirstin Spencer from METUPUK was a panelist. The title of our discussion was, in part, Demystifying Clinical Trials.
nohalfmeasures.blog
January 26, 2026 at 12:01 PM
ReBlog: Weekly Round-Up from Journeying Beyond Breast Cancer
ReBlog: Weekly Round-Up from Journeying Beyond Breast Cancer
Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me … Weekly Round-Up
nohalfmeasures.blog
January 22, 2026 at 12:00 PM
Navigating Life’s Turmoil: A Call for Connection and Action

When we add up all of the chaos, only exacerbated by the perpetual news cycle, the burden of trying to find truth when no one gives us everything, it is entirely reasonable to feel paralyzed, to feel as though all hope is lost, to not…
Navigating Life’s Turmoil: A Call for Connection and Action
When we add up all of the chaos, only exacerbated by the perpetual news cycle, the burden of trying to find truth when no one gives us everything, it is entirely reasonable to feel paralyzed, to feel as though all hope is lost, to not know where to turn. Whenever I turn on the news, I am bombarded by the different events, by rhetoric and opinions, by shocking videos, by big changes to systems we rely upon. It feels so big, it feels so chaotic, it feels overwhelming. I find it hard to look away, I find it hard to keep looking.
nohalfmeasures.blog
January 19, 2026 at 7:54 PM
Reposted by Abigail Johnston
BIG NEWS! #gynca expert @kemidoll.bsky.social has written a book on Black #womenshealth, esp Black maternal health & the ONGOING systemic gyn health crisis killing Black women. #endo #cancer #blackwomb #CanSky @enddisparities.bsky.social

Pre-order here:👇
www.penguinrandomhouse.com/books/775526...
A Terrible Strength by Kemi Doll, MD, MSCR: 9780593977477 | PenguinRandomHouse.com: Books
Black women are facing a systemic gynecological health crisis. This book gives them the tools needed to unlearn the medical normalization of their suffering and offers a path forward to healing—by...
www.penguinrandomhouse.com
January 17, 2026 at 4:39 PM
Reposted by Abigail Johnston
#Cansky

I wrote something here. It was a bit too long to post so refer to the photos please 🫶🏻.
January 18, 2026 at 2:13 PM
Reposted by Abigail Johnston
No #cancer screening means those w/cancer will be diagnosed later when the disease is #metastatic, which means their options (and lives) will be limited. Lack of access 2 screening is often why underserved populations die from cancer at a higher rate than those w/access. #screeningsaveslives #CanSky
An analysis published in the Journal of the American Medical Association predicted that, due to losing Medicaid coverage, millions of people will lose access to cancer screenings.

Projected Cancer Screening Under the 2025 Medicaid Eligibility Restrictions jamanetwork.com/journals/jam...
Projected Cancer Screening Under the 2025 Medicaid Eligibility Restrictions
This decision analytical model evaluates projected changes in cancer screening and outcomes following changes to federal Medicaid funding and eligibility restrictions enacted with the 2025 Budget Reco...
jamanetwork.com
January 14, 2026 at 5:40 PM
Reposted by Abigail Johnston
For those in the back who didn't hear it the first 500K times: there's no link between vaccines and autism. #IDSky #CanSky

jamanetwork.com/journals/jam...
WHO Analysis Finds No Causal Link Between Vaccines and Autism
An analysis from the World Health Organization (WHO) Global Advisory Committee on Vaccine Safety (GACVS) concluded that there is no causal link between vaccines and autism spectrum disorder, according...
jamanetwork.com
January 9, 2026 at 7:10 PM
Happy New Year, 2026
Happy New Year, 2026
Entering 2026, the author reminisces about words selected previously and announces her word for 2026.
nohalfmeasures.blog
January 1, 2026 at 12:07 PM
Reposted by Abigail Johnston
Compliments can be just as dehumanising as insults if they are used to skate over the reality of the situation.

#cansky

1/5
November 28, 2025 at 11:53 AM
Reposted by Abigail Johnston
Happy to say that I will be on a panel for this event coming up this weekend on Saturday! Thrilled to be talking about all of the various issues that young adults with cancer face in today’s world!

There are many you might not think about!

#Cansky
November 10, 2025 at 10:48 PM
Reposted by Abigail Johnston
You gotta be kidding me
#bcsm
#oncosky
Citing a Trump executive order banning "gender ideology," the VA is withholding coverage and treatment for male veterans with breast cancer, an increasing condition among veterans exposed to toxic chemicals during service. 100 male veterans a year are diagnosed with breast cancer.
Citing Trump Order on “Biological Truth,” VA Makes It Harder for Male Veterans With Breast Cancer to Get Coverage
A Department of Veterans Affairs memo obtained by ProPublica erects new roadblocks to care for veterans with the rare but deadly cancer. The agency cites no new science but relies on an executive orde...
www.propublica.org
October 30, 2025 at 12:37 AM
Reposted by Abigail Johnston
“'I don’t care if it’s toenail #cancer,' said Kirby Lewis, Dx'd w/#breastcancer ~12 yrs ago & now Stage 4. 'If exposure occurs, they shld take care of those ppl.' Lewis said the 🍊 admin’s decision risks further stigmatizing men w/#BC. 'There’s this machinismo aspect, [men] ..." 1/2 #CanSky #bcsm
Citing Trump Order on “Biological Truth,” VA Makes It Harder for Male Veterans With Breast Cancer to Get Coverage
A Department of Veterans Affairs memo obtained by ProPublica erects new roadblocks to care for veterans with the rare but deadly cancer. The agency cites no new science but relies on an executive orde...
www.propublica.org
October 30, 2025 at 3:47 PM
🎉 New Episode Out Now! 🎉
Don’t miss out—tune in now and join the conversation!
👉 Listen here: www.livefromstage4.org or your favorite podcast streaming platform. #cansky #oncsky #oncosky
Live From Stage 4 | Join the Conversation – Empower Yourself
A podcast providing insights, stories, and support for metastatic breast cancer patients and advocates. Join us to stay informed and empowered.
www.livefromstage4.org
October 29, 2025 at 4:07 PM
Reposted by Abigail Johnston
I’ll be sharing my cancer-related thrombosis story at this webinar. If you are a cancer patient, or are caring for one, please register for free. Info 👇
Blood clots are a silent threat for people living with cancer.
Join Thrombosis Canada for a free online webinar for patients and the public. Hear from patient partners and learn more about cancer-associated thrombosis on October 28 | 7 PM ET. Free registration: thrombosiscanada.ca/Clots&Cancer
October 23, 2025 at 4:46 PM
Reposted by Abigail Johnston
I am happy to welcome 2️⃣ guests to discuss the role of podcasts to improve information sharing. They are both podcast hosts, making this @ascocancer.bsky.social 's 1st podcast about podcasts.
 
🎙️Drs Patel The Fellow on Call & @drteplinsky.bsky.social Interlude Podcast
A Podcast About Podcasts: Podcasts as Educational Tools for Providers (and Patients) | Podcast | ASCO Publications
Dr. Chino welcomes Dr. Vivek Patel and Dr. Eleonora Teplinsky to discuss a recent article in JCO OP that reported a podcast-based curriculum could improve knowledge and comfort with common education t...
ascopubs.org
October 23, 2025 at 2:19 PM
Today would have been Gwen’s birthday. She was stolen from us by MBC.
One year ago, on a sunny afternoon before the last session of #SABCS23, I stood on this balcony chatting with patient and advocate Gwen Manchion, who was stolen by MBC in the interim. This is why we do what we do.
October 20, 2025 at 12:16 PM
Reposted by Abigail Johnston
Start your Saturday with @metavivor.bsky.social at the @americancancersoc.bsky.social walk at Chicago’s Soldier Field! Come on down, rain or shine #cansky
October 18, 2025 at 11:00 AM
Interested in sharing about your experience of living with MBC? The Metastatic Breast Cancer Alliance has launched a new initiative designed to educate the public on the experience of living with MBC and I would like to invite anyone who is living with MBC or their person is living with MBC 1/3
October 18, 2025 at 10:27 AM
Reposted by Abigail Johnston
Just Dx'd w/#metastatic #breastcancer & looking 4 support, #clinicaltrials, new treatments? Check out this FREE pt event Sat, Nov 1, 8-3:15 PDT at @fredhutch.org. Topics include: financial health, sexual health, new #MBC treatmnts, nutrition, exercise, CTs & more! #CanSky @thankscancer.bsky.social
2025 Metastatic Breast Cancer: From Surviving to Thriving
This is a free, educational event for patients with metastatic breast cancer & their caregivers hosted by Fred Hutch.
www.eventbrite.com
October 17, 2025 at 5:12 PM
MBC BCAM awareness #2

Good morning! Picking up where I left off last week with Breast Cancer Awareness month educational tiles from Metavivor: In 2017, I was 38 and had never had a mammogram because I did not yet meet the criteria for screening. I received my first mammogram in the process of my…
MBC BCAM awareness #2
Good morning! Picking up where I left off last week with Breast Cancer Awareness month educational tiles from Metavivor: In 2017, I was 38 and had never had a mammogram because I did not yet meet the criteria for screening. I received my first mammogram in the process of my de novo diagnosis and if I had been getting mammograms, the density of my breast tissue and the fact I was breastfeeding would have affected the results. Every person needs to know their individual risk and which screening and diagnostic testing is the best for their body.
nohalfmeasures.blog
October 13, 2025 at 11:01 AM
Reposted by Abigail Johnston
Great 2C #lobular #breastcancer coverd by @cbsnews.com but it wld have been helpful 2 mention:

*Lobular #BC dsn't usually make lumps
*So it's often not felt or seen on mamms
*Esp in dense breast tissue
*It's abt changes, not lumps!
*More info @lobularbca.bsky.social
#CanSky #MedSky #CancerBS #bcsm
What you need to know about lobular breast cancer
Dr. Cassann Blake, a breast surgical oncologist at the Cleveland Clinic, on lobular breast cancer.
www.cbsnews.com
October 10, 2025 at 3:19 PM