#MS and the accompanying chronic fatigue are brutal.
Be good to those around you. You never know what they’re going thru.
It’s no laziness. 😩
#invisibleillness
#multiplesclerosis
#chronicillness
Be good to those around you. You never know what they’re going thru.
It’s no laziness. 😩
#invisibleillness
#multiplesclerosis
#chronicillness
Switched to the +K2 version of D3 and noticed a difference in labs.
Instead of increasing dose - is this typically recommend for better absorption? My neuro didn’t care to discuss when I brought it up.
Vit D levels do Zero for the crushing fatigue I experience. Nothing I’ve tried helps.
Instead of increasing dose - is this typically recommend for better absorption? My neuro didn’t care to discuss when I brought it up.
Vit D levels do Zero for the crushing fatigue I experience. Nothing I’ve tried helps.
December 19, 2025 at 8:28 PM
#MS and the accompanying chronic fatigue are brutal.
Be good to those around you. You never know what they’re going thru.
It’s no laziness. 😩
#invisibleillness
#multiplesclerosis
#chronicillness
Be good to those around you. You never know what they’re going thru.
It’s no laziness. 😩
#invisibleillness
#multiplesclerosis
#chronicillness
“Some days I just want to vanish. I watch my rescue dog sleep on the webcam and envy that calm so much it hurts. Everyone offers #clichés and #advice they’d never follow themselves. It’s exhausting.”: buff.ly/dsW9FFh
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #MS #NEisVoid
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #MS #NEisVoid
Multiple sclerosis is My Living Hell - The weird eccentric ramblings of a multiple sclerosis sufferer
The mishaps and weird stuff that just seem to happen in my own personal world of cognitive disfuction and other worldly weirdness throughout my life, a spiritual awakening staring multiple scelrosis and...
buff.ly
December 19, 2025 at 8:30 PM
“Some days I just want to vanish. I watch my rescue dog sleep on the webcam and envy that calm so much it hurts. Everyone offers #clichés and #advice they’d never follow themselves. It’s exhausting.”: buff.ly/dsW9FFh
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #MS #NEisVoid
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #MS #NEisVoid
msmartinecom.wordpress.com/2025/12/18/m...
#MultipleSclerosis #Remyelination #myelin #blog #disability #neurology
#MultipleSclerosis #Remyelination #myelin #blog #disability #neurology
More Hope for Re-myelination Therapy
An effective re-myelination drug is one of the holy grails of treatment for MS. That would mean less damage, and potential reversibility of some of the ongoing damage, before neurons have become be…
msmartinecom.wordpress.com
December 18, 2025 at 8:48 PM
“I’m not looking for pity. I want acknowledgement..I want less #suffering. I want some #dignity back on the lavvy. I want someone to take seriously that “not #cancer” isn’t the same as “not a problem.””: buff.ly/dsW9FFh
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #spoonie
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #spoonie
Multiple sclerosis is My Living Hell - The weird eccentric ramblings of a multiple sclerosis sufferer
The mishaps and weird stuff that just seem to happen in my own personal world of cognitive disfuction and other worldly weirdness throughout my life, a spiritual awakening staring multiple scelrosis and...
buff.ly
December 19, 2025 at 6:30 PM
“I’m not looking for pity. I want acknowledgement..I want less #suffering. I want some #dignity back on the lavvy. I want someone to take seriously that “not #cancer” isn’t the same as “not a problem.””: buff.ly/dsW9FFh
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #spoonie
by goblinbloggeruk
#ChronicPain #MultipleSclerosis #spoonie
2025 Garage Dayz, December 17 version. 100 miles in the lap of luxury!
#NeverStopNeverQuitForThem #MultipleSclerosis #ThisisMS #defeatmsoregon #nationalmssociety
#NeverStopNeverQuitForThem #MultipleSclerosis #ThisisMS #defeatmsoregon #nationalmssociety
December 16, 2025 at 10:43 PM
2025 Garage Dayz, December 17 version. 100 miles in the lap of luxury!
#NeverStopNeverQuitForThem #MultipleSclerosis #ThisisMS #defeatmsoregon #nationalmssociety
#NeverStopNeverQuitForThem #MultipleSclerosis #ThisisMS #defeatmsoregon #nationalmssociety
Second rest stop, at the 80 mile mark. Take a break, walk around, then come back in to finish. #NeverStopNeverQuitForThem #MultipleSclerosis #MS #ThisisMS #nationalmssociety
December 17, 2025 at 6:39 PM
Second rest stop, at the 80 mile mark. Take a break, walk around, then come back in to finish. #NeverStopNeverQuitForThem #MultipleSclerosis #MS #ThisisMS #nationalmssociety
A Rider is working on a #research project about #acupuncture and multiple sclerosis.
His Ride Pal helped capture photos during the #treatment session, waited for him to wrap up, and then finally drove him home.
#PalUpNow! #MS #MultipleSclerosis #Canada🇨🇦 #Mississauga
His Ride Pal helped capture photos during the #treatment session, waited for him to wrap up, and then finally drove him home.
#PalUpNow! #MS #MultipleSclerosis #Canada🇨🇦 #Mississauga
Ride Pal Helps Rider With Multiple Sclerosis Receive Acupuncture
About PalUpNow!
palupnow.com
December 18, 2025 at 6:00 PM
A Rider is working on a #research project about #acupuncture and multiple sclerosis.
His Ride Pal helped capture photos during the #treatment session, waited for him to wrap up, and then finally drove him home.
#PalUpNow! #MS #MultipleSclerosis #Canada🇨🇦 #Mississauga
His Ride Pal helped capture photos during the #treatment session, waited for him to wrap up, and then finally drove him home.
#PalUpNow! #MS #MultipleSclerosis #Canada🇨🇦 #Mississauga
Has anyone diagnosed with Multiple Sclerosis had the Octave MSDA Blood Test done?
My neurologist gave me paperwork on it showing how it measures disease activity for MS patients & I wanted to see if anyone has any experience with this they can share.
#MS #MultipleSclerosis
#OctaveMSDA
My neurologist gave me paperwork on it showing how it measures disease activity for MS patients & I wanted to see if anyone has any experience with this they can share.
#MS #MultipleSclerosis
#OctaveMSDA
December 15, 2025 at 9:56 PM
Has anyone diagnosed with Multiple Sclerosis had the Octave MSDA Blood Test done?
My neurologist gave me paperwork on it showing how it measures disease activity for MS patients & I wanted to see if anyone has any experience with this they can share.
#MS #MultipleSclerosis
#OctaveMSDA
My neurologist gave me paperwork on it showing how it measures disease activity for MS patients & I wanted to see if anyone has any experience with this they can share.
#MS #MultipleSclerosis
#OctaveMSDA
There is no approved therapy to neutralize autoantibodies selectively. Experimental autoimmune encephalomyelitis (EAE) could be a good model to develop such a therapy. The synthetic anti-MOG antibody 8-18C5 can prevent the binding of pat...
#MSchat #MS #Neurology #MultipleSclerosis #NeuroSky #MedSky
#MSchat #MS #Neurology #MultipleSclerosis #NeuroSky #MedSky
Turncoat antibodies unmasked in a model of autoimmune demyelination: From biology to therapy
There is no approved therapy to neutralize autoantibodies selectively. Experimental autoimmune encephalomyelitis (EAE) could be a good model to develop such a therapy. The synthetic anti-MOG antibody
gregory-ms.com
December 18, 2025 at 8:00 AM
There is no approved therapy to neutralize autoantibodies selectively. Experimental autoimmune encephalomyelitis (EAE) could be a good model to develop such a therapy. The synthetic anti-MOG antibody 8-18C5 can prevent the binding of pat...
#MSchat #MS #Neurology #MultipleSclerosis #NeuroSky #MedSky
#MSchat #MS #Neurology #MultipleSclerosis #NeuroSky #MedSky
✨ Unearthing the Gold Dust of Mechanistic Insight With Deep Tech✨
🧪 We show this in our recently published ACS
@JCIM_JCTC paper, elucidating the mechanistic basis by which Siponimod, a drug for #multiplesclerosis (MS), avoids off-target activation.
pubs.acs.org/doi/10.1021/...
🧪 We show this in our recently published ACS
@JCIM_JCTC paper, elucidating the mechanistic basis by which Siponimod, a drug for #multiplesclerosis (MS), avoids off-target activation.
pubs.acs.org/doi/10.1021/...
December 15, 2025 at 3:09 PM
✨ Unearthing the Gold Dust of Mechanistic Insight With Deep Tech✨
🧪 We show this in our recently published ACS
@JCIM_JCTC paper, elucidating the mechanistic basis by which Siponimod, a drug for #multiplesclerosis (MS), avoids off-target activation.
pubs.acs.org/doi/10.1021/...
🧪 We show this in our recently published ACS
@JCIM_JCTC paper, elucidating the mechanistic basis by which Siponimod, a drug for #multiplesclerosis (MS), avoids off-target activation.
pubs.acs.org/doi/10.1021/...
Why is wrapping presents one of the most exhausting things? Every year it's something I need a day to recover from.
#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
December 13, 2025 at 4:46 PM
Why is wrapping presents one of the most exhausting things? Every year it's something I need a day to recover from.
#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
December 9, 2025 at 10:34 PM
Couldn’t figure out why my arm hurt so much today and just realized that I lost my balance and smashed it into a shelf yesterday. I need to start writing these incidents down. Both my balance and memory suck.
#MultipleSclerosis
#MultipleSclerosis
December 10, 2025 at 7:06 PM
Couldn’t figure out why my arm hurt so much today and just realized that I lost my balance and smashed it into a shelf yesterday. I need to start writing these incidents down. Both my balance and memory suck.
#MultipleSclerosis
#MultipleSclerosis
notinksanymore.com/2025/12/08/h...
#ms, #multiplesclerosis, #hydration, #water, #health, #inflammation
#ms, #multiplesclerosis, #hydration, #water, #health, #inflammation
HYDRATION
Photograph of a Glass of Water by StockSnap from Pixabay Hydration is the ingestion of water, in the amounts needed, to replenish the water in the body. Water in the body affects almost everything,…
notinksanymore.com
December 8, 2025 at 9:21 PM
Look, no hands!
Here's me playing pinball for the first time in 40 yrs, thanks to @projectpinball.bsky.social & #HexaPinball
Read about the world of accessible pinball, & those making #pinballforall
A fun day at the office, for sure!
#NewMobility #disability #MultipleSclerosis #InclusiveGameWerks
Here's me playing pinball for the first time in 40 yrs, thanks to @projectpinball.bsky.social & #HexaPinball
Read about the world of accessible pinball, & those making #pinballforall
A fun day at the office, for sure!
#NewMobility #disability #MultipleSclerosis #InclusiveGameWerks
Flipping Accessible: The People and Devices Tilting Pinball Toward Access
When I was an arcade rat in the 1980s, my idea of heaven looked just like what I discovered when I attended the 41st Annual Pinball Expo this October in Schaumburg, Illinois, outside of Chicago: a…
newmobility.com
December 9, 2025 at 12:31 PM
Look, no hands!
Here's me playing pinball for the first time in 40 yrs, thanks to @projectpinball.bsky.social & #HexaPinball
Read about the world of accessible pinball, & those making #pinballforall
A fun day at the office, for sure!
#NewMobility #disability #MultipleSclerosis #InclusiveGameWerks
Here's me playing pinball for the first time in 40 yrs, thanks to @projectpinball.bsky.social & #HexaPinball
Read about the world of accessible pinball, & those making #pinballforall
A fun day at the office, for sure!
#NewMobility #disability #MultipleSclerosis #InclusiveGameWerks
Info on MS & symptoms, how to manage & live well with MS. Ask your questions, share your experiences with others.
Register at engage.nationalmssociety.org/new_to_ms_december_2025_virtual
#MultipleSclerosis #newlydiagnosed #disability #caregiving #autoimmune
Register at engage.nationalmssociety.org/new_to_ms_december_2025_virtual
#MultipleSclerosis #newlydiagnosed #disability #caregiving #autoimmune
December 8, 2025 at 8:35 PM
Info on MS & symptoms, how to manage & live well with MS. Ask your questions, share your experiences with others.
Register at engage.nationalmssociety.org/new_to_ms_december_2025_virtual
#MultipleSclerosis #newlydiagnosed #disability #caregiving #autoimmune
Register at engage.nationalmssociety.org/new_to_ms_december_2025_virtual
#MultipleSclerosis #newlydiagnosed #disability #caregiving #autoimmune
December 6, 2025 at 8:01 PM
Just did my yearly brain MRI for #MS, plus two of my spine aiming to diagnose me with my FIFTH #autoimmune disease. #UCHealth has become pretty intense about metal in the machine: EVERYTHING off, plus I got wanded like they thought I would sneak some in.
#multiplesclerosis #chronicillness
#multiplesclerosis #chronicillness
December 6, 2025 at 8:14 PM
Just did my yearly brain MRI for #MS, plus two of my spine aiming to diagnose me with my FIFTH #autoimmune disease. #UCHealth has become pretty intense about metal in the machine: EVERYTHING off, plus I got wanded like they thought I would sneak some in.
#multiplesclerosis #chronicillness
#multiplesclerosis #chronicillness
We are enormously proud of our very own Professor Bruce Taylor who received the 2025 MS Research Award at MS Australia's Progress in #MultipleSclerosis Research Conference last week in Brissy. MS Australia: "His work has shaped much of what we know about MS today." #MSresearchconf2025
📷MS Australia
📷MS Australia
December 8, 2025 at 6:27 AM
We are enormously proud of our very own Professor Bruce Taylor who received the 2025 MS Research Award at MS Australia's Progress in #MultipleSclerosis Research Conference last week in Brissy. MS Australia: "His work has shaped much of what we know about MS today." #MSresearchconf2025
📷MS Australia
📷MS Australia
Multiple Sclerosis is an inflammatory demyelinating disorder which affects the central nervous system. Treatment has traditionally focused on preventing inflammatory damage
#MSchat #MS #Neurology #MultipleSclerosis #NeuroSky #MedSky
#MSchat #MS #Neurology #MultipleSclerosis #NeuroSky #MedSky
The development of myelin repair agents for treatment of multiple sclerosis
Multiple Sclerosis is an inflammatory demyelinating disorder which affects the central nervous system. Treatment has traditionally focused on preventing inflammatory damage
gregory-ms.com
December 6, 2025 at 8:00 AM
Multiple Sclerosis is an inflammatory demyelinating disorder which affects the central nervous system. Treatment has traditionally focused on preventing inflammatory damage
#MSchat #MS #Neurology #MultipleSclerosis #NeuroSky #MedSky
#MSchat #MS #Neurology #MultipleSclerosis #NeuroSky #MedSky
Congrats to our PhD student Panteha Khaledi on her fantastic presentation at MS Australia’s #MSResearchConf2025! Her work, in collaboration with QIMR Berghofer, explores T cell immunity and Epstein-Barr virus in #MultipleSclerosis, and reveals exciting progress in understanding this complex disease.
December 3, 2025 at 5:11 AM
Congrats to our PhD student Panteha Khaledi on her fantastic presentation at MS Australia’s #MSResearchConf2025! Her work, in collaboration with QIMR Berghofer, explores T cell immunity and Epstein-Barr virus in #MultipleSclerosis, and reveals exciting progress in understanding this complex disease.
Dr Nicholas Blackburn (@nickomatics.bsky.social) of our MS Research Flagship, and session chair at #MSResearchConf2025, expertly sets the scene for a deep dive into genetics, neurobiology and the disease mechanisms of #multiplesclerosis on day two of MS Australia's conference in Brisbane.
December 4, 2025 at 1:51 AM
Dr Nicholas Blackburn (@nickomatics.bsky.social) of our MS Research Flagship, and session chair at #MSResearchConf2025, expertly sets the scene for a deep dive into genetics, neurobiology and the disease mechanisms of #multiplesclerosis on day two of MS Australia's conference in Brisbane.