#letstalkabouthd
Advocacy Matters! HD Reach, Help4HD, HDF, HDYO & HDSA together with the #huntingtonsdisease community!

Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯‍♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
November 21, 2025 at 4:07 PM
Huge welcome to our new Social Worker for the HDSA MA & RI Chapter!

#CureHD #LetsTalkAboutHD #HDSA
September 29, 2025 at 6:31 PM
The trial showed a
75% REDUCTION in the speed of disease progression! #HuntingtonsDisease #Huntingtons #HD #LetsTalkAboutHD
September 24, 2025 at 10:11 PM
Huntington’s disease is a lifelong challenge that impacts movement, cognition and mental health. Over time, symptoms worsen and full-time care is often needed. At Vico, we’re working to bring new hope to patients and their families. vicotx.com/patients-and... #HDSA #LetsTalkAboutHD
September 22, 2025 at 3:30 PM
Hi everyone 🙂 My study is now open to participants outside of the UK.

Please get in touch if you would like more information. My email is l.furr@lancaster.ac.uk

#huntingtonsdisease #huntingtonsresearch #huntingtonsdiseaseawareness #LetsTalkAboutHD
August 19, 2025 at 12:38 PM
Donate to HD research: hdsa.org/get-involved...

Learn more about HD: hdsa.org

Together, we can make a difference!
#LetsTalkAboutHD @hdsanational.bsky.social
Donation opportunities - Huntington's Disease Society of America
hdsa.org
May 31, 2025 at 8:16 PM
As we close our annual Huntington's Disease awareness month, we thank the soccer community for once again honoring our brother Terry Vaughn's legacy. We remain hopeful that a cure will one day be found.

#LetsTalkAboutHD @hdsanational.bsky.social
May 31, 2025 at 8:16 PM
Donate to HD research: hdsa.org/get-involved...

Get a wristband to show support: officialsports.com/1443hd-blue-...

Learn more about HD: hdsa.org

Together, we can make a difference!

#LetsTalkAboutHD
@hdsanational.bsky.social
Donation opportunities - Huntington's Disease Society of America
hdsa.org
May 15, 2025 at 5:53 PM
May is #HuntingtonsDisease Awareness Month, and PSRA refs are wearing blue HD wristbands in honor of #TerryVaughn. HD is a rare, inherited disease that causes the progressive breakdown of nerve cells in the brain, impacting movement, mood, and thinking. Here’s how you can help:
#LetsTalkAboutHD
May 15, 2025 at 5:53 PM
Referee crews wearing blue wristbands and blue polos this month in honor of Terry Vaughn and in support of HD awareness!

#LetsTalkAboutHD #HDAwareness #HuntingtonsDisease
May 14, 2025 at 11:39 PM
Thank you to Alnylam Pharmaceuticals for being a Bronze Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration information, please visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #FamilyIsEverything #HDSAConvention
May 2, 2025 at 12:54 PM
Thank you to Stewart Disability Law Firm, LLC for being a Friend Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration information visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #FamilyIsEverything #HDSAConvention
May 2, 2025 at 12:53 PM
Thank you to Prilenia for being a Friend Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration information, please visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #FamilyIsEverything #HDSAConvention
May 2, 2025 at 12:51 PM
Thank you to Skyhawk Therapeutics or being a Gold Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration info, please visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #FamilyIsEverything #HDSAConvention
May 2, 2025 at 12:49 PM
Thank you to Wave Life Sciences for being a Bronze Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration information, please visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #FamilyIsEverything #HDSAConvention
May 2, 2025 at 12:27 PM
Thank you to Latus for being a Friend Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration information, please visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #FamilyIsEverything #HDSAConvention
May 2, 2025 at 12:25 PM
Thank you to Aperion Care for being a Friend Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration information, please visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #FamilyIsEverything #HDSAConvention
May 2, 2025 at 12:22 PM
Thank you Teva Pharmaceuticals for being a Presenting Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration information, please visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily #FamilyIsEverything #HDSAConvention
May 2, 2025 at 12:20 PM
It's May, which again means we are doing our part to raise awareness for Huntington's Disease. This is, of course, in memory of our brother Terry Vaughn and the struggles that he and his family faced before succumbing to this horrible disease 2 years ago.

#LetsTalkAboutHD
May 2, 2025 at 1:03 AM
Thank you to Vico Therapeutics for being a Bronze Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration information, please visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HuntingtonsDisease #FamilyIsEverything #HDSAConvention #40thHDSAConvention
April 29, 2025 at 11:40 PM
Thank you to Spark Therapeutics for being a Bronze Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration information, please visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HuntingtonsDisease #FamilyIsEverything #HDSAConvention #
April 29, 2025 at 3:16 PM
Thank you to HD Genetics for being a Friend Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration information, please visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HuntingtonsDisease #FamilyIsEverything #HDSAConvention #40thHDSAConvention
April 29, 2025 at 10:24 AM
Thank you to Neurocrine Biosciences for being a Gold Sponsor at the 40th Annual #HDSAConvention!

To learn more about Sponsorship, Exhibitor and Registration info., please visit: hdsa.org/about-hdsa/a...

#LetsTalkAboutHD #HDSAFamily #FamilyIsEverything #HDSAConvention #40thHDSAConvention
March 4, 2025 at 8:39 PM