Huntington's Disease Foundation
@hdfcures.bsky.social
The mission of the Huntington's Disease Foundation is to fund transformative research to find treatments, and ultimately a cure, for Huntington's disease.
Learn more about us: HDFoundation.org
Learn more about us: HDFoundation.org
There’s still time to join the movement! Add your name to the Hope on Hold petition by THIS SUNDAY, 1/18 to ensure you are included, before HD Reach, HDF, HDSA, Help4HD and HDYO head to DC soon to formally submit this petition to the FDA.
✍️Sign today - bit.ly/Hope4HD
#curehd #huntingtondisease
✍️Sign today - bit.ly/Hope4HD
#curehd #huntingtondisease
January 15, 2026 at 4:00 PM
There’s still time to join the movement! Add your name to the Hope on Hold petition by THIS SUNDAY, 1/18 to ensure you are included, before HD Reach, HDF, HDSA, Help4HD and HDYO head to DC soon to formally submit this petition to the FDA.
✍️Sign today - bit.ly/Hope4HD
#curehd #huntingtondisease
✍️Sign today - bit.ly/Hope4HD
#curehd #huntingtondisease
2025 made meaningful progress in Huntington’s disease research. We celebrate these important milestones & look ahead with optimism to 2026. Wishing a happy & healthy New Year to our very special HD community.
Please consider donating today - www.hdfoundation.org/donate
#cureHD #HuntingtonsDisease
Please consider donating today - www.hdfoundation.org/donate
#cureHD #HuntingtonsDisease
December 26, 2025 at 7:33 PM
2025 made meaningful progress in Huntington’s disease research. We celebrate these important milestones & look ahead with optimism to 2026. Wishing a happy & healthy New Year to our very special HD community.
Please consider donating today - www.hdfoundation.org/donate
#cureHD #HuntingtonsDisease
Please consider donating today - www.hdfoundation.org/donate
#cureHD #HuntingtonsDisease
We need your support now more than ever. Please consider donating today - hdfoundation.org/donate #cureHD #HuntingtonsDisease
December 23, 2025 at 11:11 PM
We need your support now more than ever. Please consider donating today - hdfoundation.org/donate #cureHD #HuntingtonsDisease
As this year draws to a close, we want to express our gratitude for your support. Because of you, we could move the needle on important research to advance our mission of finding treatments, & ultimately a cure, for #Huntingtonsdisease. Warmest wishes for the holidays. #cureHD
December 19, 2025 at 5:15 PM
As this year draws to a close, we want to express our gratitude for your support. Because of you, we could move the needle on important research to advance our mission of finding treatments, & ultimately a cure, for #Huntingtonsdisease. Warmest wishes for the holidays. #cureHD
These people represent some of the many faces of the families impacted by #Huntingtonsdisease. The community's strength, courage, & resilience fuel our commitment to funding critical research. Now more than ever we need your support: hdfoundation.org/donate #cureHD
December 17, 2025 at 4:22 PM
These people represent some of the many faces of the families impacted by #Huntingtonsdisease. The community's strength, courage, & resilience fuel our commitment to funding critical research. Now more than ever we need your support: hdfoundation.org/donate #cureHD
We are so proud of Sarah Tabrizi, a member of our SAB, on being named one of Nature's 10: Ten people who helped shape science in 2025. Sarah is highlighted as a "Huntington’s hero" for "leading the clinical efforts to treat the devastating brain disease." Read it here: tinyurl.com/Nature-10-Ta...
December 12, 2025 at 9:49 PM
We are so proud of Sarah Tabrizi, a member of our SAB, on being named one of Nature's 10: Ten people who helped shape science in 2025. Sarah is highlighted as a "Huntington’s hero" for "leading the clinical efforts to treat the devastating brain disease." Read it here: tinyurl.com/Nature-10-Ta...
THANKS to all who signed & lent their voice to this petition. Reaching 35k signatures demonstrates the strength, determination, & heart of our #Huntingtonsdisease community. ⭐️⭐️⭐️Our new goal is 50,000k by 1/1/2026⭐️⭐️⭐️. To reach more families, please LIKE and SHARE this post. bit.ly/Hope4HD
#curehd
#curehd
December 11, 2025 at 4:00 PM
THANKS to all who signed & lent their voice to this petition. Reaching 35k signatures demonstrates the strength, determination, & heart of our #Huntingtonsdisease community. ⭐️⭐️⭐️Our new goal is 50,000k by 1/1/2026⭐️⭐️⭐️. To reach more families, please LIKE and SHARE this post. bit.ly/Hope4HD
#curehd
#curehd
Every donation brings us one step closer to a treatment, and ultimately a cure for Huntington’s disease. Please consider donating today - www.hdfoundation.org/donate
#cureHD #HuntingtonsDisease
#cureHD #HuntingtonsDisease
December 9, 2025 at 3:55 PM
Every donation brings us one step closer to a treatment, and ultimately a cure for Huntington’s disease. Please consider donating today - www.hdfoundation.org/donate
#cureHD #HuntingtonsDisease
#cureHD #HuntingtonsDisease
If you would like to share your perspective on how the FDA's decision about uniQure's AMT-140 impacts individuals and families affected by #HuntingtonsDisease, visit: bit.ly/Hope4HD
#curehd
#curehd
Sign the Petition
Bring Hope to Huntington's Disease Families: Urge the FDA to Uphold Accelerated Approval
bit.ly
December 4, 2025 at 9:06 PM
If you would like to share your perspective on how the FDA's decision about uniQure's AMT-140 impacts individuals and families affected by #HuntingtonsDisease, visit: bit.ly/Hope4HD
#curehd
#curehd
Minutes from uniQure’s AMT-130 application discussion with the FDA were released. This is a key step to understand the regulatory path forward for a therapy holding meaningful potential for the #HuntingtonsDisease community.
Read it here: www.uniqure.com/investors-me...
#cureHD
Read it here: www.uniqure.com/investors-me...
#cureHD
Press Releases | Investors & Media
Reimagining the future of healthcare through the power of gene therapy.
www.uniqure.com
December 4, 2025 at 9:02 PM
Minutes from uniQure’s AMT-130 application discussion with the FDA were released. This is a key step to understand the regulatory path forward for a therapy holding meaningful potential for the #HuntingtonsDisease community.
Read it here: www.uniqure.com/investors-me...
#cureHD
Read it here: www.uniqure.com/investors-me...
#cureHD
Congrats, Sarah Tabrizi, for being awarded the British Neuroscience Association Outstanding Contribution to Neuroscience Award for 2025!
Dr. Tabrizi said, "This recognition is a testament...to the unwavering support of our collaborators, patients, & families...”
www.ucl.ac.uk/news/2025/no...
Dr. Tabrizi said, "This recognition is a testament...to the unwavering support of our collaborators, patients, & families...”
www.ucl.ac.uk/news/2025/no...
Pioneering UCL Huntington’s researcher wins major neuroscience award
Professor Sarah Tabrizi, Director of the UCL Huntington’s Disease Centre, has been awarded the British Neuroscience Association (BNA) Outstanding Contribution to Neuroscience Award for 2025, the association’s top annual prize.
www.ucl.ac.uk
December 3, 2025 at 2:52 PM
Congrats, Sarah Tabrizi, for being awarded the British Neuroscience Association Outstanding Contribution to Neuroscience Award for 2025!
Dr. Tabrizi said, "This recognition is a testament...to the unwavering support of our collaborators, patients, & families...”
www.ucl.ac.uk/news/2025/no...
Dr. Tabrizi said, "This recognition is a testament...to the unwavering support of our collaborators, patients, & families...”
www.ucl.ac.uk/news/2025/no...
There have been remarkable breakthroughs in science & clinical trials recently. For the first time, we can envision potential treatments for #Huntingtonsdisease. There's still work to be done. Your gift ensures critical research continues for HD. hdfoundation.org/donate
#cureHD
#cureHD
December 2, 2025 at 4:29 PM
There have been remarkable breakthroughs in science & clinical trials recently. For the first time, we can envision potential treatments for #Huntingtonsdisease. There's still work to be done. Your gift ensures critical research continues for HD. hdfoundation.org/donate
#cureHD
#cureHD
November 25, 2025 at 4:09 PM
Our latest webinar featuring HDF-funded Young Investigators is available to watch anytime - on our website or YouTube channel. hdfoundation.org/2025-webinar... #cureHD #HuntingtonsDisease
November 24, 2025 at 11:06 PM
Our latest webinar featuring HDF-funded Young Investigators is available to watch anytime - on our website or YouTube channel. hdfoundation.org/2025-webinar... #cureHD #HuntingtonsDisease
Advocacy Matters! HD Reach, Help4HD, HDF, HDYO & HDSA together with the #huntingtonsdisease community!
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
November 21, 2025 at 4:07 PM
Advocacy Matters! HD Reach, Help4HD, HDF, HDYO & HDSA together with the #huntingtonsdisease community!
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda
Bright, young stars of Huntington's disease research are joining us TOMORROW, Tuesday, 11/18, 12-1pm ET, to discuss their work on strategies that could lead to therapeutics for HD. REGISTER NOW to hear more: tinyurl.com/Nov-2025-web...
November 17, 2025 at 7:33 PM
Bright, young stars of Huntington's disease research are joining us TOMORROW, Tuesday, 11/18, 12-1pm ET, to discuss their work on strategies that could lead to therapeutics for HD. REGISTER NOW to hear more: tinyurl.com/Nov-2025-web...
The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
November 14, 2025 at 4:31 PM
The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.
bit.ly/Hope4HD
📝Sign Today! Don’t forget to confirm your email to make it count.
Three promising Young Investigators are in the spotlight
for their HDF-funded projects. Could this lead to answers for future treatments? Join them in an exciting exploration of their science! REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
for their HDF-funded projects. Could this lead to answers for future treatments? Join them in an exciting exploration of their science! REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
November 10, 2025 at 5:02 PM
Three promising Young Investigators are in the spotlight
for their HDF-funded projects. Could this lead to answers for future treatments? Join them in an exciting exploration of their science! REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
for their HDF-funded projects. Could this lead to answers for future treatments? Join them in an exciting exploration of their science! REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
HDF-funded Young Investigators are diving into therapeutic delivery strategies, targeting disease modifiers, & researching protein clumping. Results may lead to new breakthroughs in HD science. REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
November 4, 2025 at 4:47 PM
HDF-funded Young Investigators are diving into therapeutic delivery strategies, targeting disease modifiers, & researching protein clumping. Results may lead to new breakthroughs in HD science. REGISTER NOW to learn more on Tuesday, 11/18, 12-1pm ET: us06web.zoom.us/webinar/regi...
HD research is moving faster than ever. Each step we’ve taken...is taking us to the top of the mountain...it will still take time, teamwork, & persistence...every step forward brings us one step closer to treatments that change lives.
en.hdbuzz.net/additional-c...
en.hdbuzz.net/additional-c...
Additional Clarity: What We Know 4 Weeks After the uniQure News – HDBuzz
en.hdbuzz.net
October 24, 2025 at 4:30 PM
HD research is moving faster than ever. Each step we’ve taken...is taking us to the top of the mountain...it will still take time, teamwork, & persistence...every step forward brings us one step closer to treatments that change lives.
en.hdbuzz.net/additional-c...
en.hdbuzz.net/additional-c...
Great news! Leslie Thompson, UC Irvine neuroscientist & HDF Scientific Advisory Board Chair, was awarded over $2m by CA’s stem cell agency to probe one of medicine’s most baffling mysteries: why HD devastates some brain cells while sparing others. @ucirvine.bsky.social
news.uci.edu/2025/10/08/c...
news.uci.edu/2025/10/08/c...
CIRM awards UC Irvine neuroscientist another $2 million for Huntington's disease research
Goal is to determine why the fatal condition destroys some brain cells but spares others
news.uci.edu
October 22, 2025 at 5:45 PM
Great news! Leslie Thompson, UC Irvine neuroscientist & HDF Scientific Advisory Board Chair, was awarded over $2m by CA’s stem cell agency to probe one of medicine’s most baffling mysteries: why HD devastates some brain cells while sparing others. @ucirvine.bsky.social
news.uci.edu/2025/10/08/c...
news.uci.edu/2025/10/08/c...
Researchers Ai Yamamoto & Katherine Croce examine in HD mice the ALFY gene that slows HD's onset by up to 23 years, making it one of the most potent disease onset modifiers & an attractive therapeutic target. Congrats to the team!
Read the full article here: www.sciencedirect.com/science/arti...
Read the full article here: www.sciencedirect.com/science/arti...
A rare genetic variant confers resistance to neurodegeneration across multiple neurological disorders by augmenting selective autophagy
The study of disease modifiers is a powerful way to identify patho-mechanisms associated with disease. Using the strong genetic traits of Huntington’s…
www.sciencedirect.com
October 10, 2025 at 3:44 PM
Researchers Ai Yamamoto & Katherine Croce examine in HD mice the ALFY gene that slows HD's onset by up to 23 years, making it one of the most potent disease onset modifiers & an attractive therapeutic target. Congrats to the team!
Read the full article here: www.sciencedirect.com/science/arti...
Read the full article here: www.sciencedirect.com/science/arti...