#dyautonomia
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scrapplebottom.bsky.social
I still have long covid, I guess, since I’ve had minor dyautonomia flares that resolved on their own. But I’ve recovered enough overall to work, bike, socialize like I did before I had cancer in 2013. A lot of my progress came from a weird reaction to Cymbalta and getting better treatment for RLS
December 9, 2025 at 6:57 PM
sickhumorsupplyco.bsky.social
Gear up for the 2025 Dysautonomia Games with our newest tees.

See them all here:
sickhumorsupplyco.com/search?q=dys...

#pots #potsie #dyautonomia #chronicillness #spoonies #spoonie
July 30, 2025 at 5:35 AM
sickhumorsupplyco.bsky.social
Who can relate?

#chronicillness #longcovid #mecfs #pots #fibromyalgia #migraine #lupus #dyautonomia #multiplesclerosis #mcas #spoonie #spoonielife
Too Sick to Get Help: When Chronic Illness Cancels You
Chronic illness doesn’t follow a schedule. A firsthand look at what it’s like to cancel a long-awaited medical test because your body had other plans.
sickhumorsupplyco.com
July 22, 2025 at 7:58 PM
jeczaja.bsky.social
Recovering from #dyautonomia.
Yesterday lost my phone in an Uber & scammer was caught by bank-blocked my card. No money, no phone. Good opportunity 4 relapse. Told my nerves we were going 4 fun walk and it was going 2B OK. Got my phone and new card B4 noon! #health #stressreduction #recovery
June 4, 2025 at 3:28 PM
lollibeepop.bsky.social
I had no idea dyautonomia conditions liked to hang out together 😧
March 12, 2025 at 6:37 PM
omtoast.bsky.social
Ah delight. Seems I’ll be dealing with the post-Covid dyautonomia again this time, as well. It took me 6 months to claw back my cardio last time. At this rate I’ll just spend half of every year trying to get back to where I was the previous year. Forever. Until I die.
February 27, 2025 at 8:16 PM
wearlumia.bsky.social
Calling all Lumia / STAT friends: I need your Ear Scan!! Our goal is to ship ALL outstanding Pre-Orders before new ones. If you ordered STAT Health #wearable and haven’t done ear scan, contact support@lumiahealth.com or search email inboxes for “Lumia”. #wearlumia #stathealth #pots #dyautonomia
February 12, 2025 at 6:54 PM
me-cfs.bsky.social
It seems the “dyautonomia” subreddit moderators will remove anyone commenting that FND is not an appropriate diagnosis for dysautonomia patients.
December 31, 2024 at 7:50 PM
thesicktimes.org
We are so excited to announce Long COVID Essentials, a new collaboration with Long COVID Justice. Over the next several months, we’ll be publishing 30+ Long COVID resource sheets that provide foundational information about navigating #LongCOVID. bit.ly/47qckkt
A purple and teal ombre image announces, "Long COVID Essentials, a series by The Sick Times x Long COVID Justice." Additional text reads, '30+ Resource Sheets. Designed by and for people living with Long COVID and associated diseases." A purple and teal ombre image shows examples of Long COVID Essentials printed resources. Sheets include: "Here's what you need to know about Long COVID," "Having trouble sleeping after COVID-19?," "Why you should be careful about activity and exercise after COVID-19," "Dizziness, lightheadedness, and racing heart after COVID-19? It could be Dyautonomia," and "Brain fog, memory problems, and other neurological issues after COVID-19." The footer reads, "Long COVID Essentials, a series by The Sick Times x Long COVID Justice." A purple and teal ombre image reads, "This series provides foundational information about navigating Long COVID. Whether you’re newly experiencing confusing symptoms, have had this disease for years, or are helping others in your community, these sheets will direct you to info & resources to support you along the way. All resource sheets have been reviewed by people living with Long COVID and/or caregivers, and by medical experts who provide LC care. We are based in the US, so some of this info is specific to that context. We are currently able to produce them in English and Spanish. We invite you to contact us if you have resources and capacity for translation into other languages! connect@s4hi.org. Long COVID Essentials, a series by The Sick Times x Long COVID Justice." A purple and teal ombre image reads, "In the absence of public health support and guidance from our government & healthcare systems, we hope these resources will support you in taking care of yourself and your community. We’ve seen the attention of the media and leaders wane, funding disappear, and misinformation spread — even as the overlooked impacts of the COVID pandemic and Long COVID crisis remain widespread. And these impacts are hitting hardest in already marginalized communities. Our work remains as urgent as ever, and we’ll keep fighting for pandemic justice and care for all. Our Long COVID stories and experiences must be told, believed, and prioritized. Long COVID Essentials, a series by The Sick Times x Long COVID Justice."
September 16, 2024 at 5:24 PM
kateviolette.com
riffing off what Seren said, yeah I think for me the big emotions are more dyautonomia-aggravating than the crying itself

(and is that dysautonomia caused by mast cells? maybe!)

I haven't ever gotten quite pre-syncope from crying, but I have gotten so physically drained I've had PEM the next day
artistaudh.bsky.social Seren Sterling @artistaudh.bsky.social · Jul 28
In terms of emotions panic + other big emotions seems to be my biggest MCAS trigger. It's why I had so much more trouble when I was scared of having emotions.
July 28, 2024 at 5:31 PM