Lumia
@wearlumia.bsky.social
What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
Replay of Lumia Lab LIVE, featuring guest experts Dr. Satish Raj & Dr. Amanda Miller, hosted by Lumia inventor Daniel Lee. #Dysautonomia #wearables #cardiology #pots #pwme #pwlc #medsky #citizenscience #bloodflow #neuroscience #posturalorthostatictachycardiasyndrome
www.youtube.com/live/KnUiP_v...
www.youtube.com/live/KnUiP_v...
What is Preload? The Key to Boosting Your Blood Flow | Lumia Lab LIVE with Dr. Satish Raj
YouTube video by Lumia
www.youtube.com
June 12, 2025 at 8:04 PM
Replay of Lumia Lab LIVE, featuring guest experts Dr. Satish Raj & Dr. Amanda Miller, hosted by Lumia inventor Daniel Lee. #Dysautonomia #wearables #cardiology #pots #pwme #pwlc #medsky #citizenscience #bloodflow #neuroscience #posturalorthostatictachycardiasyndrome
www.youtube.com/live/KnUiP_v...
www.youtube.com/live/KnUiP_v...
We're LIVE
Introducing Lumia Lab LIVE – our new livestream series! Watch a 5-minute science lesson & try a guided experiment with your Lumia wearable.
✨RSVP for June 11 at 7:30 PM ET with Dr. Satish Raj: evt.to/eidigoeiw
#LumiaLabLIVE #wearlumia #pots #pwme #pwlc #dysautonomia #wearables #syncope #fainting
✨RSVP for June 11 at 7:30 PM ET with Dr. Satish Raj: evt.to/eidigoeiw
#LumiaLabLIVE #wearlumia #pots #pwme #pwlc #dysautonomia #wearables #syncope #fainting
June 11, 2025 at 11:33 PM
We're LIVE
Lumia is now on Reddit! Check out our #wearlumia subreddit: reddit.com/r/wearlumia/
#wearables #pots #dysautonomia #longcovid #bloodflow #pwme #mecfs #spoonies #posturalorthostatictachycardiasyndrome
#wearables #pots #dysautonomia #longcovid #bloodflow #pwme #mecfs #spoonies #posturalorthostatictachycardiasyndrome
June 9, 2025 at 10:59 PM
Lumia is now on Reddit! Check out our #wearlumia subreddit: reddit.com/r/wearlumia/
#wearables #pots #dysautonomia #longcovid #bloodflow #pwme #mecfs #spoonies #posturalorthostatictachycardiasyndrome
#wearables #pots #dysautonomia #longcovid #bloodflow #pwme #mecfs #spoonies #posturalorthostatictachycardiasyndrome
Introducing Lumia Lab LIVE – our new livestream series! Watch a 5-minute science lesson & try a guided experiment with your Lumia wearable.
✨RSVP for June 11 at 7:30 PM ET with Dr. Satish Raj: evt.to/eidigoeiw
#LumiaLabLIVE #wearlumia #pots #pwme #pwlc #dysautonomia #wearables #syncope #fainting
✨RSVP for June 11 at 7:30 PM ET with Dr. Satish Raj: evt.to/eidigoeiw
#LumiaLabLIVE #wearlumia #pots #pwme #pwlc #dysautonomia #wearables #syncope #fainting
June 9, 2025 at 4:40 PM
Introducing Lumia Lab LIVE – our new livestream series! Watch a 5-minute science lesson & try a guided experiment with your Lumia wearable.
✨RSVP for June 11 at 7:30 PM ET with Dr. Satish Raj: evt.to/eidigoeiw
#LumiaLabLIVE #wearlumia #pots #pwme #pwlc #dysautonomia #wearables #syncope #fainting
✨RSVP for June 11 at 7:30 PM ET with Dr. Satish Raj: evt.to/eidigoeiw
#LumiaLabLIVE #wearlumia #pots #pwme #pwlc #dysautonomia #wearables #syncope #fainting
Our June newsletter is now available! Check your inbox or simple take a look here: In this one, we share Maya's story & announce the debut of Lumia Lab LIVE: mailchi.mp/lumiahealth....
You can subscribe for our monthly email at the www.lumiahealth.com site. #pots #wearables #dysautonomia #wearlumia
You can subscribe for our monthly email at the www.lumiahealth.com site. #pots #wearables #dysautonomia #wearlumia
Lumia Health Newsletter
What you feel is real. Track blood flow to your head with Lumia.
mailchi.mp
June 6, 2025 at 6:12 PM
Our June newsletter is now available! Check your inbox or simple take a look here: In this one, we share Maya's story & announce the debut of Lumia Lab LIVE: mailchi.mp/lumiahealth....
You can subscribe for our monthly email at the www.lumiahealth.com site. #pots #wearables #dysautonomia #wearlumia
You can subscribe for our monthly email at the www.lumiahealth.com site. #pots #wearables #dysautonomia #wearlumia
Jill Brook, MA, host of the POTScast, is speaking at #dyscourse2025 right now on nutrition for people with Dysautonomia, #POTS and other chronic illnesses. Low blood volume, or hypovolemia, plays a big role! #Dyscourse #dysautonomia
Register and attend this free event today: t.co/LKKfrcKiqL
Register and attend this free event today: t.co/LKKfrcKiqL
June 6, 2025 at 5:20 PM
Jill Brook, MA, host of the POTScast, is speaking at #dyscourse2025 right now on nutrition for people with Dysautonomia, #POTS and other chronic illnesses. Low blood volume, or hypovolemia, plays a big role! #Dyscourse #dysautonomia
Register and attend this free event today: t.co/LKKfrcKiqL
Register and attend this free event today: t.co/LKKfrcKiqL
Excellent talks today at #dyscourse.
Registration will be open during the event, and replays will post to their website. Good info for healthcare providers as well as patients with Dysautonomia.
t.co/LKKfrcKiqL
#DysCourse2025 #Dysautonomia #POTS #pwme #pwlc #LongCovid #chronicillness #medsky
Registration will be open during the event, and replays will post to their website. Good info for healthcare providers as well as patients with Dysautonomia.
t.co/LKKfrcKiqL
#DysCourse2025 #Dysautonomia #POTS #pwme #pwlc #LongCovid #chronicillness #medsky
![Image is a text graphic with today's agenda at DysCourse by The Dysautonomia Project.
🕒 Here’s what’s coming up TODAY (all times in EST):
12–1PM – The Struggle is Real with Dr. Frye
1:05–2:05PM– Practical Nutrition Tips with Jill Brook, MA
2:10–3:10PM – Managing Medications with Dr. Snapper
3:15–4:15PM– Keynote: Practical Tips for POTS Patients with Dr. Raj
4:15–5:15PM – Resource Hall– Explore tools, products & partner orgs!
Let’s make today a powerful day of learning, community, and hope — all in honor of Christina Tournant. [Photo of Christina at bottom.]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:waogitvjshctp3ncxnshkxta/bafkreiaujhogjgw34v2mslvaf7x62ldoqle6p6t5td62vzk7tdrzybke3q@jpeg)
June 6, 2025 at 4:54 PM
Excellent talks today at #dyscourse.
Registration will be open during the event, and replays will post to their website. Good info for healthcare providers as well as patients with Dysautonomia.
t.co/LKKfrcKiqL
#DysCourse2025 #Dysautonomia #POTS #pwme #pwlc #LongCovid #chronicillness #medsky
Registration will be open during the event, and replays will post to their website. Good info for healthcare providers as well as patients with Dysautonomia.
t.co/LKKfrcKiqL
#DysCourse2025 #Dysautonomia #POTS #pwme #pwlc #LongCovid #chronicillness #medsky
RSVP for Lumia Lab LIVE! Science isn’t just for labs. Become the experiment!
✨ Short expert talk
✨ Live experiment w/ Lumia
Add event: evt.to/eidigoeiw
June 11 at 7:30 PM ET with Dr. Satish Raj.
#LumiaLabLIVE #wearlumia #citizenscience #pots #pwme #longcovid #longcovid #wearables #dysautonomia
✨ Short expert talk
✨ Live experiment w/ Lumia
Add event: evt.to/eidigoeiw
June 11 at 7:30 PM ET with Dr. Satish Raj.
#LumiaLabLIVE #wearlumia #citizenscience #pots #pwme #longcovid #longcovid #wearables #dysautonomia
June 4, 2025 at 9:07 PM
RSVP for Lumia Lab LIVE! Science isn’t just for labs. Become the experiment!
✨ Short expert talk
✨ Live experiment w/ Lumia
Add event: evt.to/eidigoeiw
June 11 at 7:30 PM ET with Dr. Satish Raj.
#LumiaLabLIVE #wearlumia #citizenscience #pots #pwme #longcovid #longcovid #wearables #dysautonomia
✨ Short expert talk
✨ Live experiment w/ Lumia
Add event: evt.to/eidigoeiw
June 11 at 7:30 PM ET with Dr. Satish Raj.
#LumiaLabLIVE #wearlumia #citizenscience #pots #pwme #longcovid #longcovid #wearables #dysautonomia
Here's a replay of the webinar with Lumia inventor Daniel Ewok Lee, Direct Sync & the Power of Live Mode. Direct to iPhone Sync is available for all Lumia Members. youtu.be/7_0AJyTq8io?... #wearlumia #lumiahealth #wearables #medsky #dysautonomia #chronicillness #longcovid #pwme #pots #neisvoid
Lumia Member Update: Direct Sync & the Power of Live Mode | Lumia Wearable Earpiece Tracker
YouTube video by Lumia
youtu.be
June 4, 2025 at 4:38 PM
Here's a replay of the webinar with Lumia inventor Daniel Ewok Lee, Direct Sync & the Power of Live Mode. Direct to iPhone Sync is available for all Lumia Members. youtu.be/7_0AJyTq8io?... #wearlumia #lumiahealth #wearables #medsky #dysautonomia #chronicillness #longcovid #pwme #pots #neisvoid
Reposted by Lumia
Such an honor & privilege to represent the chronic illness community ❤️🌺
Meet Maya: After a 2020 COVID infection, @mayalongcovid.bsky.social went from diver & school nurse to bed-bound with ME/CFS, POTS & MCAS.
Now, she serves on Lumia’s PAC, bringing the chronic illness community’s voice forward. Read her story: tinyurl.com/wearlumia #longcovid #pots #wearlumia #pwME
Now, she serves on Lumia’s PAC, bringing the chronic illness community’s voice forward. Read her story: tinyurl.com/wearlumia #longcovid #pots #wearlumia #pwME
June 3, 2025 at 10:50 PM
Such an honor & privilege to represent the chronic illness community ❤️🌺
Meet Maya: After a 2020 COVID infection, @mayalongcovid.bsky.social went from diver & school nurse to bed-bound with ME/CFS, POTS & MCAS.
Now, she serves on Lumia’s PAC, bringing the chronic illness community’s voice forward. Read her story: tinyurl.com/wearlumia #longcovid #pots #wearlumia #pwME
Now, she serves on Lumia’s PAC, bringing the chronic illness community’s voice forward. Read her story: tinyurl.com/wearlumia #longcovid #pots #wearlumia #pwME
June 3, 2025 at 10:47 PM
Meet Maya: After a 2020 COVID infection, @mayalongcovid.bsky.social went from diver & school nurse to bed-bound with ME/CFS, POTS & MCAS.
Now, she serves on Lumia’s PAC, bringing the chronic illness community’s voice forward. Read her story: tinyurl.com/wearlumia #longcovid #pots #wearlumia #pwME
Now, she serves on Lumia’s PAC, bringing the chronic illness community’s voice forward. Read her story: tinyurl.com/wearlumia #longcovid #pots #wearlumia #pwME
Visit to NASA to share Lumia wearable tech and test #bloodflowrestriction with Hydro BFR bands. Full blog post: lumiahealth.com/blogs/news/v... #dysautonomia #wearable #medtech #health #medsky #bfr #wearlumia #lumiahealth
May 30, 2025 at 12:28 AM
Visit to NASA to share Lumia wearable tech and test #bloodflowrestriction with Hydro BFR bands. Full blog post: lumiahealth.com/blogs/news/v... #dysautonomia #wearable #medtech #health #medsky #bfr #wearlumia #lumiahealth
Just updated our handle -- @wearlumia.bsky.social from lumiahealth.bsky.social to match our other social media handles! We have also completed the legal name update from STAT Health to Lumia Health. What you feel is real. #wearlumia #wearable #lumia #pots #pwme #longcovid #pwlc #dysautononmia.
Bluesky
lumiahealth.bsky.social
May 29, 2025 at 8:46 PM
Just updated our handle -- @wearlumia.bsky.social from lumiahealth.bsky.social to match our other social media handles! We have also completed the legal name update from STAT Health to Lumia Health. What you feel is real. #wearlumia #wearable #lumia #pots #pwme #longcovid #pwlc #dysautononmia.
✨DIRECT SYNC!✨ The feature you’ve been waiting for is here!
Download the update. This lets Lumia sync directly from earpiece to iPhone. You can see you data and start a Live Mode while out. apps.apple.com/us/app/lumia... #wearlumia #pots #dysautonomia #pwme #pwlc #longcovid #syncope #lumiahealth
Download the update. This lets Lumia sync directly from earpiece to iPhone. You can see you data and start a Live Mode while out. apps.apple.com/us/app/lumia... #wearlumia #pots #dysautonomia #pwme #pwlc #longcovid #syncope #lumiahealth
May 28, 2025 at 1:54 AM
✨DIRECT SYNC!✨ The feature you’ve been waiting for is here!
Download the update. This lets Lumia sync directly from earpiece to iPhone. You can see you data and start a Live Mode while out. apps.apple.com/us/app/lumia... #wearlumia #pots #dysautonomia #pwme #pwlc #longcovid #syncope #lumiahealth
Download the update. This lets Lumia sync directly from earpiece to iPhone. You can see you data and start a Live Mode while out. apps.apple.com/us/app/lumia... #wearlumia #pots #dysautonomia #pwme #pwlc #longcovid #syncope #lumiahealth
Register for a zoom May 21 for #wearlumia Members & the curious public! Direct Sync & the Power of Live Mode! lumiahealth.com/blogs/news/s... Find out upcoming features & ideas for self discovery w/ Lumia Live Mode. The Lumia wearable earpiece and app are designed for #pwme #pots #pwlc #dysautonomia
May 18, 2025 at 11:01 PM
Register for a zoom May 21 for #wearlumia Members & the curious public! Direct Sync & the Power of Live Mode! lumiahealth.com/blogs/news/s... Find out upcoming features & ideas for self discovery w/ Lumia Live Mode. The Lumia wearable earpiece and app are designed for #pwme #pots #pwlc #dysautonomia
Our May Newsletter is out with news about NASA, Direct Sync for Lumia, DysCourse, & more!
mailchi.mp/lumiahealth....
#wearlumia #lumiawearable #bloodflow #NASA #bloodflowrestrictionbands #Hytro #lumia #pots #orthostaticintolerance #LongCOVID #pwme #mecfsawareness #dysautonomia
mailchi.mp/lumiahealth....
#wearlumia #lumiawearable #bloodflow #NASA #bloodflowrestrictionbands #Hytro #lumia #pots #orthostaticintolerance #LongCOVID #pwme #mecfsawareness #dysautonomia
May 7, 2025 at 10:55 PM
Our May Newsletter is out with news about NASA, Direct Sync for Lumia, DysCourse, & more!
mailchi.mp/lumiahealth....
#wearlumia #lumiawearable #bloodflow #NASA #bloodflowrestrictionbands #Hytro #lumia #pots #orthostaticintolerance #LongCOVID #pwme #mecfsawareness #dysautonomia
mailchi.mp/lumiahealth....
#wearlumia #lumiawearable #bloodflow #NASA #bloodflowrestrictionbands #Hytro #lumia #pots #orthostaticintolerance #LongCOVID #pwme #mecfsawareness #dysautonomia
Reposted by Lumia
MCAS - When You’re Allergic to Everything and Nothing All at Once
An introduction to mast cell disease that examines what these cells do, why they misbehave and common symptoms, treatments and steps to diagnosis.
It also explains the unique type of idiopathic anaphylaxis we often deal with: /8
An introduction to mast cell disease that examines what these cells do, why they misbehave and common symptoms, treatments and steps to diagnosis.
It also explains the unique type of idiopathic anaphylaxis we often deal with: /8
When You're Allergic to Everything and Nothing... That's MCAS
An intro guide to Mast Cell Activation Syndrome and how it has fundamentally changed my life. Living under the constant threat of anaphylaxis is hard - but there are ways to make it easier.
www.disabledginger.com
December 7, 2024 at 3:29 AM
MCAS - When You’re Allergic to Everything and Nothing All at Once
An introduction to mast cell disease that examines what these cells do, why they misbehave and common symptoms, treatments and steps to diagnosis.
It also explains the unique type of idiopathic anaphylaxis we often deal with: /8
An introduction to mast cell disease that examines what these cells do, why they misbehave and common symptoms, treatments and steps to diagnosis.
It also explains the unique type of idiopathic anaphylaxis we often deal with: /8
Recipients selected by the Patient Advisor Council for the Lumia Health Financial Assistance Program are onboarding. We emailed all other applicants. To hear about future opportunities, subscribe:
mailchi.mp/lumiahealth....
#longcovid #wearables #wearlumia #pots #pwme #chronicillness #dysautonomia
mailchi.mp/lumiahealth....
#longcovid #wearables #wearlumia #pots #pwme #chronicillness #dysautonomia
April 15, 2025 at 5:33 PM
Recipients selected by the Patient Advisor Council for the Lumia Health Financial Assistance Program are onboarding. We emailed all other applicants. To hear about future opportunities, subscribe:
mailchi.mp/lumiahealth....
#longcovid #wearables #wearlumia #pots #pwme #chronicillness #dysautonomia
mailchi.mp/lumiahealth....
#longcovid #wearables #wearlumia #pots #pwme #chronicillness #dysautonomia
Reposted by Lumia
If you’re dealing with Long Covid - there’s a chance you’re also dealing with MCAS and/or POTS/Dysautonomia.
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
December 7, 2024 at 3:28 AM
If you’re dealing with Long Covid - there’s a chance you’re also dealing with MCAS and/or POTS/Dysautonomia.
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
Reposted by Lumia
My first post has to be about #LongCOVID
🔹 400 million individuals affected worldwide
🔹 $1 trillion in annual economic costs
🔹 Countless lives & communities shattered
The time for a comprehensive policy and research response is now!
Details in our review here www.nature.com/articles/s41...
🔹 400 million individuals affected worldwide
🔹 $1 trillion in annual economic costs
🔹 Countless lives & communities shattered
The time for a comprehensive policy and research response is now!
Details in our review here www.nature.com/articles/s41...
Long COVID science, research and policy - Nature Medicine
This Review outlines the current state of scientific evidence on long COVID, discusses its impacts on patients, health systems, economies and global health metrics, and proposes a forward-looking rese...
www.nature.com
October 19, 2024 at 5:49 PM
My first post has to be about #LongCOVID
🔹 400 million individuals affected worldwide
🔹 $1 trillion in annual economic costs
🔹 Countless lives & communities shattered
The time for a comprehensive policy and research response is now!
Details in our review here www.nature.com/articles/s41...
🔹 400 million individuals affected worldwide
🔹 $1 trillion in annual economic costs
🔹 Countless lives & communities shattered
The time for a comprehensive policy and research response is now!
Details in our review here www.nature.com/articles/s41...
Reposted by Lumia
Long COVID can include many health issues. Ask doctors about:
- #Dysautonomia (including postural orthostatic tachycardia syndrome, #POTS)
- Myalgic encephalomyelitis (ME), which overlaps with chronic fatigue syndrome. Together, they’re often called ‘#ME/CFS.’
- #Hypermobility
- #Dysautonomia (including postural orthostatic tachycardia syndrome, #POTS)
- Myalgic encephalomyelitis (ME), which overlaps with chronic fatigue syndrome. Together, they’re often called ‘#ME/CFS.’
- #Hypermobility
April 3, 2025 at 4:28 PM
Long COVID can include many health issues. Ask doctors about:
- #Dysautonomia (including postural orthostatic tachycardia syndrome, #POTS)
- Myalgic encephalomyelitis (ME), which overlaps with chronic fatigue syndrome. Together, they’re often called ‘#ME/CFS.’
- #Hypermobility
- #Dysautonomia (including postural orthostatic tachycardia syndrome, #POTS)
- Myalgic encephalomyelitis (ME), which overlaps with chronic fatigue syndrome. Together, they’re often called ‘#ME/CFS.’
- #Hypermobility
Reposted by Lumia
We need your EAR!
If you ordered a Lumia wearable back during 2023 or 2024, you should have received your order. If you haven't, we don't have your Ear Scan and have been trying to reach you.
Email support@lumiahealth.com so we can ship your order! #wearlumia #lumiahealth #stathealth #dysautonomia
If you ordered a Lumia wearable back during 2023 or 2024, you should have received your order. If you haven't, we don't have your Ear Scan and have been trying to reach you.
Email support@lumiahealth.com so we can ship your order! #wearlumia #lumiahealth #stathealth #dysautonomia
March 17, 2025 at 11:43 PM
We need your EAR!
If you ordered a Lumia wearable back during 2023 or 2024, you should have received your order. If you haven't, we don't have your Ear Scan and have been trying to reach you.
Email support@lumiahealth.com so we can ship your order! #wearlumia #lumiahealth #stathealth #dysautonomia
If you ordered a Lumia wearable back during 2023 or 2024, you should have received your order. If you haven't, we don't have your Ear Scan and have been trying to reach you.
Email support@lumiahealth.com so we can ship your order! #wearlumia #lumiahealth #stathealth #dysautonomia
✨The latest edition of our email newsletter is out! ✨ mailchi.mp/lumiahealth....
Lumia Health Newsletter
Track blood flow to your head with Lumia.
mailchi.mp
April 3, 2025 at 12:02 AM
✨The latest edition of our email newsletter is out! ✨ mailchi.mp/lumiahealth....
Reposted by Lumia
Exciting news! Dr. Stefan Carp & Dr. Mari Franceschini just received their LBNP chamber with automated pressure control at @mghmartinos.bsky.social! They’re teaming up with Selina Zhu and Daniel Lee from @lumiahealth.bsky.social (formerly STAT Health) to push the boundaries of research using LBNP🔬💡
April 2, 2025 at 4:11 PM
Exciting news! Dr. Stefan Carp & Dr. Mari Franceschini just received their LBNP chamber with automated pressure control at @mghmartinos.bsky.social! They’re teaming up with Selina Zhu and Daniel Lee from @lumiahealth.bsky.social (formerly STAT Health) to push the boundaries of research using LBNP🔬💡
Reposted by Lumia
April 11, 2025 - Orthostatic Flow Syndromes
Renegade Research #Clinician's Roundtable - Steven J. Smith, MD, retired interventional radiologist, will discuss his hypotheses and research results about how venous disorders may underlie some cases of POTS and more!
us06web.zoom.us/webinar/regi...
Renegade Research #Clinician's Roundtable - Steven J. Smith, MD, retired interventional radiologist, will discuss his hypotheses and research results about how venous disorders may underlie some cases of POTS and more!
us06web.zoom.us/webinar/regi...
March 19, 2025 at 8:51 PM
April 11, 2025 - Orthostatic Flow Syndromes
Renegade Research #Clinician's Roundtable - Steven J. Smith, MD, retired interventional radiologist, will discuss his hypotheses and research results about how venous disorders may underlie some cases of POTS and more!
us06web.zoom.us/webinar/regi...
Renegade Research #Clinician's Roundtable - Steven J. Smith, MD, retired interventional radiologist, will discuss his hypotheses and research results about how venous disorders may underlie some cases of POTS and more!
us06web.zoom.us/webinar/regi...