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wearlumia.bsky.social
Lumia
@wearlumia.bsky.social
300 followers 1.2K following 56 posts
What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
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wearlumia.bsky.social
Introducing Lumia Lab LIVE – our new livestream series! Watch a 5-minute science lesson & try a guided experiment with your Lumia wearable.
✨RSVP for June 11 at 7:30 PM ET with Dr. Satish Raj: evt.to/eidigoeiw

#LumiaLabLIVE #wearlumia #pots #pwme #pwlc #dysautonomia #wearables #syncope #fainting
Text reads Lumia Lab Live. A caucasian female with hypermobile EDS, POTS and Long Covid Dysautonomia rests on a white bed with her eyes closed, a Lumia wearable device is visible in her ear on close inspection. An iPhone is lying next to her running Live Mode data collection on the blood flow to her head as well as heart rate.
June 9, 2025 at 4:40 PM
wearlumia.bsky.social
Jill Brook, MA, host of the POTScast, is speaking at #dyscourse2025 right now on nutrition for people with Dysautonomia, #POTS and other chronic illnesses. Low blood volume, or hypovolemia, plays a big role! #Dyscourse #dysautonomia

Register and attend this free event today: t.co/LKKfrcKiqL
Image is a biography card for Jill Brook, MA, and has a small photo of her with the following bio: Jill Brook, MA Jill is a long-time patient and nutritionist in California. She earned degrees from Princeton University and UCLA, then worked as a nutrition researcher before opening private practice and later serving as Nutrition Consultant to Dysautonomia Clinic. After her own 17-year diagnostic delay, Jill is passionate about improving awareness and research. She recently retired to focus on founding PatientsCount.org with her data scientist husband, so far resulting in over a dozen peer-reviewed research publications. She also serves as Research Liaison to Standing Up to POTS, host of The POTScast and aspiring comic via DoodleThru cartoons. She lives in northern California with her husband and 3 dogs.
June 6, 2025 at 5:20 PM
wearlumia.bsky.social
Excellent talks today at #dyscourse.
Registration will be open during the event, and replays will post to their website. Good info for healthcare providers as well as patients with Dysautonomia.
t.co/LKKfrcKiqL
#DysCourse2025 #Dysautonomia #POTS #pwme #pwlc #LongCovid #chronicillness #medsky
Image is a text graphic with today's agenda at DysCourse by The Dysautonomia Project. 🕒 Here’s what’s coming up TODAY (all times in EST): 12–1PM – The Struggle is Real with Dr. Frye 1:05–2:05PM– Practical Nutrition Tips with Jill Brook, MA 2:10–3:10PM – Managing Medications with Dr. Snapper 3:15–4:15PM– Keynote: Practical Tips for POTS Patients with Dr. Raj 4:15–5:15PM – Resource Hall– Explore tools, products & partner orgs! Let’s make today a powerful day of learning, community, and hope — all in honor of Christina Tournant. [Photo of Christina at bottom.]
June 6, 2025 at 4:54 PM
wearlumia.bsky.social
RSVP for Lumia Lab LIVE! Science isn’t just for labs. Become the experiment!
✨ Short expert talk
✨ Live experiment w/ Lumia
Add event: evt.to/eidigoeiw
June 11 at 7:30 PM ET with Dr. Satish Raj.
#LumiaLabLIVE #wearlumia #citizenscience #pots #pwme #longcovid #longcovid #wearables #dysautonomia
A female presenting person with POTS, Dysautonomia and Long Covid explores orthostatic changes in blood flow using a Lumia wearable tracker. She has brown hair and is lying flat on a white bed wearing a white long sleeve shirt and teal pants. Next to her, there is an iPhone running Lumia Live Mode for high frequency data recording. A text treatment shows the logo for Lumia Health and a Lab LIVE tag. Lumia Lab LIVE debuts on June 11 at 7:30 ET and is a 30 minute session with expert education and a live group experiment for those wearing Lumia wearable trackers. The public is welcome to attend and observe. Future Lumia Lab LIVE events will offer the chance to contribute your data for research.
June 4, 2025 at 9:07 PM
wearlumia.bsky.social
Meet Maya: After a 2020 COVID infection, @mayalongcovid.bsky.social went from diver & school nurse to bed-bound with ME/CFS, POTS & MCAS.
Now, she serves on Lumia’s PAC, bringing the chronic illness community’s voice forward. Read her story: tinyurl.com/wearlumia #longcovid #pots #wearlumia #pwME
June 3, 2025 at 10:47 PM
wearlumia.bsky.social
Visit to NASA to share Lumia wearable tech and test #bloodflowrestriction with Hydro BFR bands. Full blog post: lumiahealth.com/blogs/news/v... #dysautonomia #wearable #medtech #health #medsky #bfr #wearlumia #lumiahealth
May 30, 2025 at 12:28 AM
wearlumia.bsky.social
✨DIRECT SYNC!✨ The feature you’ve been waiting for is here!
Download the update. This lets Lumia sync directly from earpiece to iPhone. You can see you data and start a Live Mode while out. apps.apple.com/us/app/lumia... #wearlumia #pots #dysautonomia #pwme #pwlc #longcovid #syncope #lumiahealth
A female presenting person with hypermobility, syncope and orthostatic intolerace lies down reading a book while a kitten walks by. The person is wearing a Lumia ear wearable tracker that tracks blood flow to the head. Text reads: Lumia: Direct to iPhone Sync Now Available. Download app version 1.16.1 to get your Lumia data on the go.
May 28, 2025 at 1:54 AM
wearlumia.bsky.social
Register for a zoom May 21 for #wearlumia Members & the curious public! Direct Sync & the Power of Live Mode! lumiahealth.com/blogs/news/s... Find out upcoming features & ideas for self discovery w/ Lumia Live Mode. The Lumia wearable earpiece and app are designed for #pwme #pots #pwlc #dysautonomia
May 18, 2025 at 11:01 PM
wearlumia.bsky.social
Our May Newsletter is out with news about NASA, Direct Sync for Lumia, DysCourse, & more!
mailchi.mp/lumiahealth....
#wearlumia #lumiawearable #bloodflow #NASA #bloodflowrestrictionbands #Hytro #lumia #pots #orthostaticintolerance #LongCOVID #pwme #mecfsawareness #dysautonomia
A female presenting person reclines in bed with the legs raised, and is checking the Lumia app to explore blood flow changes in this posture. Lumia tracks blood flow to the head with an in-ear wearable.
May 7, 2025 at 10:55 PM
wearlumia.bsky.social
Recipients selected by the Patient Advisor Council for the Lumia Health Financial Assistance Program are onboarding. We emailed all other applicants. To hear about future opportunities, subscribe:
mailchi.mp/lumiahealth....
#longcovid #wearables #wearlumia #pots #pwme #chronicillness #dysautonomia
April 15, 2025 at 5:33 PM
wearlumia.bsky.social
Meet Lumia Clip, a whole new way to #wearlumia! Our easy new adapter allows an alternate ear position for the Lumia Health #wearable. Lumia tracks changes in blood flow to the head for people with orthostatic intolerance from chronic illnesses #pots #dysautonomia #syncope #longcovid #mecfs #medsky
March 13, 2025 at 11:23 PM
wearlumia.bsky.social
The new edition of our Lumia Health newsletter is here! mailchi.mp/lumiahealth.... We feature our March 11 event with Lumia inventor Daniel Ewok Lee on the future of fitting the world's smallest wearable and how Lumia Flow Index compares to Cerebral Blood Flow. #cbf #wearlumia #pots #pwme #longcovid
A screenshot from the Lumia Health (formerly STAT Health) email newsletter showing a Lumia earpiece wearable held in a person's hands. In the background there's an iPhone showing the Lumia app and a graph of Lumia Flow Index -- representing blood flow to the head -- and movement tracking. The text in the image show that Lumia is in stock and orders are open at the website.
March 7, 2025 at 2:58 AM
wearlumia.bsky.social
Rare is beautiful, and we see you. This #RareDiseaseDay we are honored to serve those in our community with rare diagnoses. Through research as well as the Lumia wearable, our mission is to improve lives and illuminate #invisibleillness.
#dysautonomia #msa #aag #PAF #veds #marfan & more! #wearlumia
Image of Lumia Health ear wearable logo on a navy zebra background. Rare is beautiful, and we see you. On this Rare Disease Day, we are honored to serve those in our community living with rarer diagnoses. Through our research efforts as well as the Lumia wearable, our mission is to improve your lives and illuminate complex conditions. In particular, we honor our Members with rare genetic connective tissue diseases, rare #synucleinopathy, #rarecancers with chemo-induced #neuropathy and #autonomicdysfunction, rare congenital differences like certain vascular #compressionsyndromes, and rarer forms of #dysautonomia. #multiplesystematrophy #msa #aag #PAF #pureautonomicfailure #autoimmuneautonomicganglionopathy #marfan #vasculareds #veds #ehlersdanlossyndrome #loeysdietz #turnersyndrome #fd #dbhd #eaglesyndrome #raredisease #medicalzebra #spooniesupport #invisibleillness
February 28, 2025 at 9:47 PM
wearlumia.bsky.social
Happy Valentine’s Day from all of us at Lumia Health. You light up our life!
#wearlumia
#wearable #stat #pots #longcovid #pwme #orthostaticintolerance #lumia #fainting #medsky #chronicillness #brainfog #posturalorthoststictachycardiasyndome #dysautonomia #neuropathy #synuclein
February 15, 2025 at 2:32 AM
wearlumia.bsky.social
Orders are open for the world's smallest #wearable device at www.lumiahealth.com. HSA / FSA eligible, for #POTS, #LongCovid, #MECFS, #Fainting. Lumia tracks blood flow to head, a close proxy for Cerebral Blood Flow. USA only, ages 18+, iPhone & Membership required. Not a medical device #dysautonomia
A Lumia Health wearable ear device is held in the hands. Also shown are the iPhone Lumia app, carry case and Light Station. Lumia tracks drops in blood flow to the head in people with Postural Orthostatic Tachycardia Syndrome, Dysautonomia, Long Covid, ME/CFS and more.
February 4, 2025 at 8:13 PM
wearlumia.bsky.social
Orders open 10am ET tomorrow for Lumia wearable devices. We'll ship remaining pre-orders in February, and begin shipping new ones in March. Currently, Lumia is for US residents, adults 18+, requires iPhone & Membership. HSA/FSA eligible. Not for medical use. #pots #longcovid #mecfs #fainting
Image of person with #POTS #LongCovid #ME/CFS with a @lumiahealth wearable device that tracks blood flow to the head, a proxy for #CBF.
February 3, 2025 at 8:16 PM