#chronicillnessthings
Just got mail today that said my insurance is denying my physical therapy as not medically necessary but I'm doing physical therapy for three different things and am starting another in two weeks because of yesterday's surgery and it doesn't say WHICH physical therapy??? 🤷 #ChronicIllnessThings
October 9, 2025 at 11:07 PM
I'm totally fine, just a #ChronicIllnessThings
October 3, 2025 at 11:21 PM
The irony of having to do a sleep study and not getting any sleep because of all the equipment monitoring me.

I. Am. Exhauuusssted!! 💤💤

#spoonie #chronicillnessthings #spoonietherapist #therapist #sleep #sleepstudy
September 26, 2025 at 12:57 PM
Just #ChronicIllnessThings - getting sick of seeing doctors

Not wanting to go see any doctor for any new reason

Getting injured & not wanting to see a doctor because your whole life is already doctors & you're just sick of it

Brought to you by my injured knee and ankle (dif legs 🙄) #disabilitysky
September 22, 2025 at 2:59 PM
Just tried out a new EMS/TENS unit and forgot the weird satisfaction of frankenstein-ing my muscles to life. #ChronicIllnessThings
August 24, 2025 at 11:25 PM
FML i'm starting to drop weight again.

I lost 30 lbs from feb 16-the end of march.

i've lost another 5 this week...
Sept.'s appt cannot come soon enough.

#musculardystrophy #myotonicdystrophytype1 #chronicallyill #chronicillnessthings
August 21, 2025 at 2:10 PM
As a neurodivergent writer and an individual who has struggled with chronic illness, I want you to know I don’t want to be pitied or saved. I merely want understanding, and more accessible ways to navigate and manage pain along with mental illness.

#chronicillnessthings #mentalillnessthings
June 29, 2025 at 2:26 PM
My disability stuff has perks for my old man dog. He's been enjoying the soft beds and personal fans I have laying around. #chronicillnessthings
June 24, 2025 at 11:35 PM
Theo does this thing where he sits in my lap and wraps his back legs around my arm. He has certainly enjoyed me working from my recliner while I recover from kidney surgery. #catnap #lynxpointsiamese #catsofbluesky #disabledartist #chronicillnessthings
May 14, 2025 at 8:11 PM
#chronicillnessthings is getting hella nauseous cos you're standing in the middle of the room trying to make sure your heart symptoms keep going while your damn loop recorder app tries to find the loop record that's less than a foot from it inside your chest.
March 9, 2025 at 3:29 AM
I got up, showered, and that was really all my spoons for the day. #chronicillnessthings
February 16, 2025 at 3:38 PM
My body is not vibing with climate change. Today’s high is 32, tomorrow’s is 63, and then it’s back down in the low 30s on Monday… and my joints are screaming at me w/ a likely chance the rapid pressure change is gonna kick off a migraine if I’m not super careful.

#ChronicIllnessThings
a man wearing a crown and a red coat says awe some wow
Alt: Gif clip from the 2019 stage production of Hamilton on broadway. The clip is of King George (white man with a powder white wig, royal crown with gold, jewels, and red velvet, wearing a high collared red suit with lace and gold trim) from the shoulders up saying “Awesome. wow.” Very sarcastically on a black background. There is also a caption of “Awe-some” and “wow.” in bold white letters either side of him.
media.tenor.com
February 15, 2025 at 7:05 AM
I’m definitely on an upswing right now coming out of a flare right now. I feel like I have boundless energy and can just get so much done. Makes me a little worried for how bad the next flare will be 🫠🙃 #chronicillness #chronicillnessthings #chronicillnessflare #invisibleillness
February 6, 2025 at 11:04 PM
When MyChart says that my care team as looked at the #petscan results and you’re just waiting (im)patiently to hear back #chronicillness #chronicillnessthings
kermit the frog is sitting on a railing wearing sneakers
ALT: kermit the frog is sitting on a railing wearing sneakers
media.tenor.com
February 4, 2025 at 11:56 AM
Sometimes even when I'm mentally happy it's just so hard because if my body is breaking down there's really just not that much I can do about it and it'll just make me stuck in bed and drag my mood down with it 😣 #rant #chronicillnessthings
January 8, 2025 at 11:58 AM
Me: why do I feel weird and suddenly really tired
*fitbit shows my heart rate is in the 50s*
Me: Oh that’s why

Guess I’ll be skipping my (1st dose of) sleep medicine 🥲

#chronicillnessthings
December 24, 2024 at 4:15 AM
Ahg God I wish my brain and body would work properly!!! So tired of feeling weird, heavy , disoriented and unsteady. #chronicillnessthings #chronicillness
December 5, 2024 at 10:30 AM
Had a spinal tap and bloodwork today…

4 vials of CSF and 8 vials of blood.

My brain and body feel like mush…

#chronicillnessthings
December 2, 2024 at 7:04 PM
Had a lady compliment how good I smell when I went to the mailbox. I loved the cinnamon and nutmeg earthy scent of my body spray.

I just thanked her and went on my way. I didn't have the heart to tell her it was Tiger Balm's extra strength ointment.

#chronicillnessthings
June 16, 2023 at 11:13 PM