#antiphospholipidsyndrome
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apssupportuk.bsky.social
#AntiphospholipidSyndrome (APS) in orthopaedic foot & ankle surgery. Findings suggest higher post-op clot risk for #APS vs matched controls, including higher #DVT at 90 days even with prophylaxis, and higher PE at 90 days without prophylaxis: journals.sagepub.com/doi/10.1177/...
APS Support UK ‘Latest Research’ graphic. A stylised webpage window reads, ‘What does the latest research say about APS and surgery risk?’ with small text above saying ‘Full study link in post’. On the right is a photo of a surgical team in masks and caps in an operating theatre. Pale pink background with soft blood cell shapes. APS Support UK logo in the bottom left.
February 17, 2026 at 3:57 PM
carriekellenberger.bsky.social
A light bump, pinch or punch can add a new bruise to the endless collection. I’m often surprised to find a new one hidden somewhere on my body"
🔗
www.achronicvoice.com/2021/07/14/b...

Via @achronicvoice.com

#AntiphospholipidSyndrome #PulmonaryEmbolism #ChronicPain #APS #MedTwitter
12 Visible Evidence of a Body Gone Rogue (Is Invisible Illness Truly Invisible?)
Here is some visible evidence of invisible illness — photos, signs and symptoms from my personal life with chronic illness.
www.achronicvoice.com
February 13, 2026 at 5:48 PM
apssupportuk.bsky.social
Maja was just 16 when she developed blood clots (DVT & PE). After tests, she was diagnosed with May-Thurner syndrome and triple-positive #AntiphospholipidSyndrome. She’s sharing her story to help others. Read more: www.stoptheclot.org/patient-stor... @stoptheclot.bsky.social #APS #PatientStory
Graphic titled “Patient Story” featuring a quote from Maja: “It remained a mystery why an otherwise healthy and active teenager would develop blood clots. After further testing, I was diagnosed with May-Thurner syndrome and triple-positive antiphospholipid syndrome.” On the right is a circular photo of Maja smiling outdoors. APS Support UK logo appears bottom left, and National Blood Clot Alliance “Stop The Clot” logo appears bottom right, over a soft background of red blood cell imagery.
February 13, 2026 at 2:08 PM
achronicvoice.com
"This is a common conundrum for those with #AntiphospholipidSyndrome, as so many beneficial foods need to be moderated due to #warfarin intake.": buff.ly/7Z0bOOn

#ChronicallyIll #spoonies #ChronicIllness
G is for Genes and Green, Leafy Vegetables - Antiphospholipid Syndrome Guidebook. www. a chronic voice .com
February 11, 2026 at 9:30 PM
apssupportuk.bsky.social
New 2025 review highlights why early recognition of #AntiphospholipidSyndrome matters—incl. appropriate antibody testing (and repeat testing) and risks of delayed diagnosis. Encouraging to see wider clinician training: cutt.ly/RtnlpBl2 #APSresearch #Awareness #APS
Branded APS Support UK “Latest Research” graphic. A stylised browser window shows the headline “APS increasingly discussed in healthcare training, new review suggests” with “Full study link in post” in the search bar. Alongside is a close-up photo of a gloved hand holding three blood sample tubes labelled “Anticardiolipin IgG”, “Lupus Anticoagulant”, and “Anti-beta2-glycoprotein-1”. APS Support UK logo at the bottom left, with a soft background of red blood cells.
February 10, 2026 at 6:56 PM
achronicvoice.com
"The #emergency doctors at #TanTockSengHospital tried for more than 4 hours to transfer me to #SingaporeGeneralHospital for proper care, but they refused to accept me, citing that I was ‘unstable’.": buff.ly/zegXbCO

#healthcare #AntiphospholipidSyndrome #MondayBlogs #NEisVoid #singapore
Read about my experience on the blog. Ovarian Cyst Ruptures — What That Feels Likes. www. a chronic voice .com
February 9, 2026 at 7:30 AM
apssupportuk.bsky.social
New review on obstetric APS (OAPS): why it happens, how risk may be better predicted, and therapies being explored for refractory cases (beyond aspirin + heparin), including HCQ, IVIG, statins & biologics. Read: cutt.ly/ztbgDgHY #AntiphospholipidSyndrome #APS #OAPS #PregnancyResearch #MaternalHealth
APS Support UK “Latest Research” graphic featuring a stylised web page window with the headline “Hope on the horizon: new approaches being explored for refractory OAPS” and the note “Full study link in post.” The background shows soft red blood-cell shapes, plus a photo of a stethoscope lying over an ultrasound image. APS Support UK logo appears at the bottom left.
February 5, 2026 at 7:10 PM
achronicvoice.com
“From there, the patient was definitively diagnosed with #AntiphospholipidSyndrome, a rare cause of #hypercoagulability, and even more so when occurring in men.”: buff.ly/V80jDvd

#MensHealth #RareDisease #BloodClot #PulmonaryEmbolism #awareness
Ho Chi Minh City: Young man suddenly in critical condition after playing sports due to rare syndrome.
(Dan Tri Newspaper) - After playing sports, the young man experienced shortness of breath and was diagnosed by emergency doctors with a life-threatening condition caused by a rare hypercoagulability syndrome.
buff.ly
February 3, 2026 at 11:31 AM
achronicvoice.com
"We invite u to attend this symposium, featuring leading #Hemostasis experts—Dr. Steven Pipe & Prof Katrien Devreese, along with 2 patient #advocates." — I am excited to be a speaker for #Werfen! Sign up to watch 🙂 buff.ly/vtjPjQI

#AntiphospholipidSyndrome #MedSky #ChronicIllness #rheumatology
Webinar: Shared Journeys in Hemostasis: Connecting Patient Voices with Hot Topics in the Hemostasis Laboratory | Werfen North America
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buff.ly
February 2, 2026 at 8:30 PM
apssupportuk.bsky.social
Jagoda’s APS story is live 💛 Postpartum clots, loss, hope, and her rainbow baby. “It’s important to be proactive—if you see/feel something, don’t hesitate to get checked!” Read: cutt.ly/patient-stories #APS #AntiphospholipidSyndrome #PatientStory
Graphic for APS Support UK titled “Patient Story”. On a magenta background with pale blood cell imagery, a quote reads: “My anxiety spikes frequently when I have a weird feeling in my calf or a warm sensation in my arm, or a random sharp pain in my chest… It’s very important to be proactive, and when you see or feel something, don’t hesitate to get checked!” Signed “– Jagoda”. A circular portrait photo of Jagoda smiling, wearing glasses, appears at the bottom right. APS Support UK logo at the bottom left.
February 2, 2026 at 6:35 PM
achronicvoice.com
"I truly wish that I were seeing a #gynecologist for pregnancy reasons, but unfortunately, it’s because I’ve had two deadly #OvarianCyst ruptures, no thanks to the #medications I take for #AntiphospholipidSyndrome.": buff.ly/XCRWjd7

#MondayBlogs
Why I need to see so many different types of doctors
February 1, 2026 at 9:30 PM
allie-c2.bsky.social
#rarediseaseawarenessmonth #antiphospholipidsyndrome
February 1, 2026 at 8:08 PM
achronicvoice.com
"People do get surgeries done immediately to remove such massive #BloodClots, but because I was on #warfarin & have #AntiphospholipidSyndrome, no #surgery is ever straightforward..they put me in the high dependency ward..to 'see how it goes'.": buff.ly/Sqd3BIC

#MondayBlogs #BloodDisorder #spoonie
Surgical Complications With Antiphospholipid Syndrome
January 26, 2026 at 9:30 PM
apssupportuk.bsky.social
Last week we shared Louise Rogers’ fundraiser — and Louise has now kindly shared her patient story too. 💙
“Unfortunately, the ‘highly unlikely’ was reality.”
Read Lou’s story: cutt.ly/patient-stories
#APS #AntiphospholipidSyndrome #PatientStory #RareDiseaseAwareness #BloodClotAwareness
APS Support UK “Patient Story” graphic featuring a quote about waiting 12 weeks for repeat blood tests and the “highly unlikely” result being reality, alongside a smiling photo of Louise Rogers on a beach, with the APS Support UK logo at the bottom left.
January 26, 2026 at 7:17 PM
achronicvoice.com
" #Researchers are still trying to understand the full role of β2GPI as well as #AntiphospholipidSyndrome. So whilst these #therapeutics sound exciting, it will probably still be many years before we see them in practice.": buff.ly/r5TlLCA

#MedSky #ChronicIllness
Check out the 2024 edition on the latest research into Antiphospholipid Syndrome (APS), a rare autoimmune disease that causes the blood to clot.
January 23, 2026 at 9:30 PM
apssupportuk.bsky.social
#CaseReport: ischaemic stroke in a 34-year-old with no conventional vascular risk factors. Work-up found persistent antiphospholipid antibodies and a new HIV diagnosis. Authors highlight the value of broad aetiology work-up in young #Stroke patients: cutt.ly/EtzPWWrH #AntiphospholipidSyndrome #APS
APS Support UK “Latest Research” graphic in burgundy and pink. A stylised browser window shows the headline: “Single case report underscores the importance of investigating clotting causes in young stroke.” A CT brain scan appears on the right with a red circle highlighting an area. APS Support UK logo sits at the bottom left.
January 22, 2026 at 9:14 PM
apssupportuk.bsky.social
🏃‍♀️🏃‍♂️ Saucony LDN 10K 2026 (12 July) — we’ve got 7 charity places left for #TeamAPS Support UK!
Run/jog/walk, get fundraising support + an APS running vest 💙

Email: info@aps-support.org.uk

#London10k #LDN10K #CharityRun #APSSupportUK #APS #AntiphospholipidSyndrome #RunForCharity
Promotional graphic for the Saucony LDN 10K reading “Run for APS Support UK” and “Charity places available now!” with a button-style link “cutt.ly/run-for-us”. Three photos show runners in red APS vests during the event. Background features the Houses of Parliament and Big Ben. Text at the bottom: “Interested? Email us: info@aps-support.org.uk ” and APS Support UK logo at top left.
January 20, 2026 at 6:31 PM
apssupportuk.bsky.social
New research on non-criteria obstetric #APS suggests higher-risk aPL antibody profiles (type/level/combinations) are associated with a higher likelihood of pregnancy complications. Worth a read for clinicians & the APS community: link.springer.com/article/10.1... #AntiphospholipidSyndrome
Graphic titled “Latest Research” showing a browser-style headline: “Not meeting ‘criteria’ doesn’t always mean low risk in pregnancy – aPL profile matters,” alongside a photo of a pregnant person injecting medication into their abdomen. APS Support UK logo at the bottom.
January 20, 2026 at 6:28 PM
achronicvoice.com
"As with any #AutoimmuneDisease, #genetics have a complex interplay in #AntiphospholipidSyndrome, where factors such as environment, trauma and comorbidities also need to be accounted for.": buff.ly/7Z0bOOn

#ChronicIllness #MondayBlogs
G is for Genes and Green, Leafy Vegetables - Antiphospholipid Syndrome Guidebook.
January 19, 2026 at 9:30 PM
achronicvoice.com
“The Rise of “Tetra-Positivity”: #Patients positive for LAC, aCL, anti-β2GPI, and aPS/PT (anti-phosphatidylserine/ #prothrombin) represent a distinct, high-risk phenotype with persistent #antibody profiles.”: buff.ly/QkaHQA7

from hemostasistoday #AntiphospholipidSyndrome #MedSky
Danny Hsu and Nicola Pozzi on "Tetra-Positive" APS - Hemostasis Today
Danny Hsu and Nicola Pozzi on "Tetra-Positive" APS
buff.ly
January 18, 2026 at 4:30 PM
achronicvoice.com
"I suffer from a number of #ChronicIllnesses whose names sound like tongue twisters. #AntiphospholipidSyndrome. Systemic #Lupus Erythomatosus. #SjögrensDisease. Paroxysmal Supraventricular Tachycardia... #epilepsy is the easiest, except that it isn’t.": buff.ly/yw0HHFX
Life with Chronic Illness - Happiness and Pain Can Co-Exist
January 17, 2026 at 9:30 PM
apssupportuk.bsky.social
Cheering on Louise Rogers as she takes on #DogJog for APS Support UK 🐾💙 After her DVT diagnosis, she’s fundraising to support people affected by #AntiphospholipidSyndrome. Please donate/share: www.justgiving.com/page/louise-... #APS #TeamAPS #APSSupportUK
January 16, 2026 at 1:48 PM
achronicvoice.com
"Soon, #clinical, #biochemical & structural evidence could provide a rationale for measuring #antiprothrombin #antibodies with the aPS/PT test or other tests we are developing for all suspected [ #AntiphospholipidSyndrome ] patients & other disorders.": buff.ly/cly1nuu

via @jthjournal.bsky.social
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buff.ly
January 14, 2026 at 9:30 AM
achronicvoice.com
" #Hematoma [due to #AntiphospholipidSyndrome & #warfarin ] didn’t only make my #knees look more distorted physically, but all that internal pressure was painful..felt like my knees were oranges about to burst with their juices, but not in an appetising way.": buff.ly/lpavCiX

#ChronicPain
Lupus and Steroid Therapy, Broken Knees and the Subsequent Spontaneous Bilateral Patellar Tendon Rupture
January 14, 2026 at 7:30 AM
carriekellenberger.bsky.social
"A light bump, pinch or punch can add a new bruise to the endless collection. I’m often surprised to find a new one hidden somewhere on my body"
🔗
www.achronicvoice.com/2021/07/14/b...

#AntiphospholipidSyndrome #PulmonaryEmbolism #ChronicPain #APS

Via @AChronicVoice
12 Visible Evidence of a Body Gone Rogue (Is Invisible Illness Truly Invisible?)
Here is some visible evidence of invisible illness — photos, signs and symptoms from my personal life with chronic illness.
www.achronicvoice.com
January 13, 2026 at 3:25 AM