APS Support UK
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apssupportuk.bsky.social
APS Support UK
@apssupportuk.bsky.social
APS Support UK is dedicated to raising awareness of antiphospholipid syndrome (APS), supporting anyone affected by the condition and furthering research.
#CaseReport: ischaemic stroke in a 34-year-old with no conventional vascular risk factors. Work-up found persistent antiphospholipid antibodies and a new HIV diagnosis. Authors highlight the value of broad aetiology work-up in young #Stroke patients: cutt.ly/EtzPWWrH #AntiphospholipidSyndrome #APS
January 22, 2026 at 9:14 PM
Did you know? In #APS, oestrogen-containing contraception isn’t usually recommended due to clot risk. Progestogen-only methods, barrier methods & the Mirena coil are options. In menopause, oral #HRT isn’t recommended, while patch HRT may be an option to discuss with your specialist: cutt.ly/ctzx18CP
January 21, 2026 at 7:41 PM
🏃‍♀️🏃‍♂️ Saucony LDN 10K 2026 (12 July) — we’ve got 7 charity places left for #TeamAPS Support UK!
Run/jog/walk, get fundraising support + an APS running vest 💙

Email: info@aps-support.org.uk

#London10k #LDN10K #CharityRun #APSSupportUK #APS #AntiphospholipidSyndrome #RunForCharity
January 20, 2026 at 6:31 PM
New research on non-criteria obstetric #APS suggests higher-risk aPL antibody profiles (type/level/combinations) are associated with a higher likelihood of pregnancy complications. Worth a read for clinicians & the APS community: link.springer.com/article/10.1... #AntiphospholipidSyndrome
January 20, 2026 at 6:28 PM
APS Support UK + the Royal College of GPs created a FREE 30-minute eLearning module to help GPs recognise APS (0.5 CPD + certificate).
Community ask: please share the flyer with your GP practice/practice manager: cutt.ly/wtlBaip5
cutt.ly/gp-training-course @rcgp.bsky.social #GPTraining #APSawareness
January 19, 2026 at 3:06 PM
Cheering on Louise Rogers as she takes on #DogJog for APS Support UK 🐾💙 After her DVT diagnosis, she’s fundraising to support people affected by #AntiphospholipidSyndrome. Please donate/share: www.justgiving.com/page/louise-... #APS #TeamAPS #APSSupportUK
January 16, 2026 at 1:48 PM
New study used SPECT to assess brain blood flow in primary #APS. MRIs looked normal, but SPECT found reduced flow in some areas—suggesting “hidden” changes: www.jns-journal.com/article/S002... #ClinicalResearch #RareDisease
January 16, 2026 at 1:46 PM
Did you know? #APS and APLS usually mean the same thing, just different labels. In medical notes, “aPL” often means #AntiphospholipidAntibodies, so “aPL syndrome” → APLS. If you’ve been told APLS, it generally means APS. Learn more: aps-support.org.uk
#APSSupportUK
January 16, 2026 at 1:41 PM
Hannah was 24 when she had a PE after brushing off symptoms as muscle pain. Diagnosed with DVT + PE, needed an emergency thrombectomy, and later diagnosed with APS. Thanks to Hannah + @stoptheclot.bsky.social. Full story: stoptheclot.org/patient-stories/hannahs-story-4 (UK) #APS #DVT #PE #BloodClots
January 16, 2026 at 1:34 PM
We’ve awarded two further grants from our 2025 APS Research Fund round: projects led by Dr Muhammad Shipa (UCL) and Dr Maria Efthymiou/Dr Ibrahim Tohidi-Esfahani/Prof Hannah Cohen (UCL), focused on biomarkers and risk stratification in APS. More in replies.
January 15, 2026 at 8:55 PM
A recent review summarises how aPL may affect the kidneys. Involvement can vary (not one pattern) and may be subtle early (e.g., raised BP or mild protein in urine). Diagnosis can be complex; biopsy may help in some cases: pmc.ncbi.nlm.nih.gov/articles/PMC12754509/ #APS #KidneyHealth #RareDisease
January 15, 2026 at 8:47 PM
#Raynauds can occur alongside #APS & affects circulation (often fingers/toes), causing colour changes with pain, numbness or pins/needles. Keep warm (layers, gloves/socks, hand warmers). New/worsening symptoms: speak to your GP: cutt.ly/related_conditions #WinterTips @wearesruk.bsky.social
January 15, 2026 at 8:43 PM
#Antiphospholipid antibodies (aPL) & IVF/ICSI. Review suggests some studies associate aPL with lower implantation/live birth; proposed mechanisms include inflammation, altered endometrial receptivity, and clotting pathways. Evidence remains inconclusive: journals.lww.com/npmj/fulltex... #APS #IVF
January 15, 2026 at 8:37 PM