Cheering on Louise Rogers as she takes on #DogJog for APS Support UK 🐾💙 After her DVT diagnosis, she’s fundraising to support people affected by #AntiphospholipidSyndrome. Please donate/share: www.justgiving.com/page/louise-... #APS #TeamAPS #APSSupportUK

New study used SPECT to assess brain blood flow in primary #APS. MRIs looked normal, but SPECT found reduced flow in some areas—suggesting “hidden” changes: www.jns-journal.com/article/S002... #ClinicalResearch #RareDisease

Did you know? #APS and APLS usually mean the same thing, just different labels. In medical notes, “aPL” often means #AntiphospholipidAntibodies, so “aPL syndrome” → APLS. If you’ve been told APLS, it generally means APS. Learn more: aps-support.org.uk
#APSSupportUK

Hannah was 24 when she had a PE after brushing off symptoms as muscle pain. Diagnosed with DVT + PE, needed an emergency thrombectomy, and later diagnosed with APS. Thanks to Hannah + @stoptheclot.bsky.social. Full story: stoptheclot.org/patient-stories/hannahs-story-4 (UK) #APS #DVT #PE #BloodClots

We’ve awarded two further grants from our 2025 APS Research Fund round: projects led by Dr Muhammad Shipa (UCL) and Dr Maria Efthymiou/Dr Ibrahim Tohidi-Esfahani/Prof Hannah Cohen (UCL), focused on biomarkers and risk stratification in APS. More in replies.

A recent review summarises how aPL may affect the kidneys. Involvement can vary (not one pattern) and may be subtle early (e.g., raised BP or mild protein in urine). Diagnosis can be complex; biopsy may help in some cases: pmc.ncbi.nlm.nih.gov/articles/PMC12754509/ #APS #KidneyHealth #RareDisease

#Raynauds can occur alongside #APS & affects circulation (often fingers/toes), causing colour changes with pain, numbness or pins/needles. Keep warm (layers, gloves/socks, hand warmers). New/worsening symptoms: speak to your GP: cutt.ly/related_conditions #WinterTips @wearesruk.bsky.social

#Antiphospholipid antibodies (aPL) & IVF/ICSI. Review suggests some studies associate aPL with lower implantation/live birth; proposed mechanisms include inflammation, altered endometrial receptivity, and clotting pathways. Evidence remains inconclusive: journals.lww.com/npmj/fulltex... #APS #IVF