@voiceyourchoices.bsky.social
Pediatric Palliative Care APN & Pediatric Nursing Professional Development Practitioner, RepBx, NewYorkForever, 💙, DM = block
I have a solution for anyone wanting to stop mindless eating who also has teeth which have shifted out of alignment: get clear aligners at your orthodontist. I literally just ate solid food for the first time today at nearly 3pm
August 13, 2025 at 6:59 PM
I have a solution for anyone wanting to stop mindless eating who also has teeth which have shifted out of alignment: get clear aligners at your orthodontist. I literally just ate solid food for the first time today at nearly 3pm
Reposted
This post is the epitome of “how a picture tells a story.”
🤑 HUNDREDS of MILLIONS of DOLLARS to be SPENT on a GAUDY BALLROOM at the White House…
…BUT NO MONEY 💸 for CHILDREN DYING of CANCER. 🤯
…BUT NO MONEY 💸 for CHILDREN DYING of CANCER. 🤯
August 7, 2025 at 7:06 PM
This post is the epitome of “how a picture tells a story.”
Reposted
#PalliativeCare is a powerful layer of support that honors the whole person — not just the illness.
Let’s reframe the conversation and ensure more people benefit from this essential component of care 💜🧡!
@pallonccop.bsky.social
Let’s reframe the conversation and ensure more people benefit from this essential component of care 💜🧡!
@pallonccop.bsky.social
June 17, 2025 at 12:37 PM
#PalliativeCare is a powerful layer of support that honors the whole person — not just the illness.
Let’s reframe the conversation and ensure more people benefit from this essential component of care 💜🧡!
@pallonccop.bsky.social
Let’s reframe the conversation and ensure more people benefit from this essential component of care 💜🧡!
@pallonccop.bsky.social
Reposted
RFK Jr’s ACIP pick, Martin Kulldorff, said one of the most disturbing images from the pandemic was a toddler crying about having to wear a mask. I see toddlers cry about everything all the time, and I found it far more disturbing to see refrigerator trucks full of body bags outside of the hospitals…
June 12, 2025 at 12:15 AM
RFK Jr’s ACIP pick, Martin Kulldorff, said one of the most disturbing images from the pandemic was a toddler crying about having to wear a mask. I see toddlers cry about everything all the time, and I found it far more disturbing to see refrigerator trucks full of body bags outside of the hospitals…
Reposted
New! Symptom Management Courses ow.ly/eu9i50V6wuu
CAPC has updated our Symptom Management courses with the latest clinical techniques for assessing and managing common sources of distress such as nausea, constipation, dyspnea, depression, and anxiety. #hpm #hapc
CAPC has updated our Symptom Management courses with the latest clinical techniques for assessing and managing common sources of distress such as nausea, constipation, dyspnea, depression, and anxiety. #hpm #hapc
March 27, 2025 at 2:14 PM
New! Symptom Management Courses ow.ly/eu9i50V6wuu
CAPC has updated our Symptom Management courses with the latest clinical techniques for assessing and managing common sources of distress such as nausea, constipation, dyspnea, depression, and anxiety. #hpm #hapc
CAPC has updated our Symptom Management courses with the latest clinical techniques for assessing and managing common sources of distress such as nausea, constipation, dyspnea, depression, and anxiety. #hpm #hapc
@thanhneville.medsky.social I am on a group unrelated to healthcare where a question was asked about giving memories to family of patient’s dying in the hospital and multiple people responded about 3 wishes!
March 9, 2025 at 8:35 PM
@thanhneville.medsky.social I am on a group unrelated to healthcare where a question was asked about giving memories to family of patient’s dying in the hospital and multiple people responded about 3 wishes!
Nothing like holding it together for your patient and their mom and then losing it all the way home in the car #cancersucks
March 5, 2025 at 2:04 AM
Nothing like holding it together for your patient and their mom and then losing it all the way home in the car #cancersucks
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Financial concerns of cancer treatment have been well documented in adults & AYA living w/cancer; researchers have found pediatric pts are also experiencing financial distress @ascocancer.bsky.social
ascopubs.org/doi/abs/10.1...
ascopubs.org/doi/abs/10.1...
Financial Distress Screening and Navigation in Pediatric Oncology Within the National Cancer Institute Community Oncology Research Program | JCO Oncology Practice
PURPOSECancer-related financial hardship is associated with poor quality of life, risk of
household material hardship, and psychological distress for families affected by pediatric
cancer. Current pro...
ascopubs.org
February 12, 2025 at 7:12 PM
Financial concerns of cancer treatment have been well documented in adults & AYA living w/cancer; researchers have found pediatric pts are also experiencing financial distress @ascocancer.bsky.social
ascopubs.org/doi/abs/10.1...
ascopubs.org/doi/abs/10.1...
Sharing this photo from St Lucia just because it’s beautiful
February 12, 2025 at 12:46 AM
Sharing this photo from St Lucia just because it’s beautiful
Reposted
Benefits of Early Outpatient #PalliativeCare
Enhances QOL
Increases adaptive coping strategies
Reduces symptoms of depression
Fosters prognostic awareness
Improves communication about EOL care preferences
Leads to earlier initiation of #hospice services
Decreases caregiver distress
#hapc25
Enhances QOL
Increases adaptive coping strategies
Reduces symptoms of depression
Fosters prognostic awareness
Improves communication about EOL care preferences
Leads to earlier initiation of #hospice services
Decreases caregiver distress
#hapc25
February 7, 2025 at 4:05 PM
Benefits of Early Outpatient #PalliativeCare
Enhances QOL
Increases adaptive coping strategies
Reduces symptoms of depression
Fosters prognostic awareness
Improves communication about EOL care preferences
Leads to earlier initiation of #hospice services
Decreases caregiver distress
#hapc25
Enhances QOL
Increases adaptive coping strategies
Reduces symptoms of depression
Fosters prognostic awareness
Improves communication about EOL care preferences
Leads to earlier initiation of #hospice services
Decreases caregiver distress
#hapc25
Girl dinner: cheese, blueberries, olives, protein chips and a little wine
January 24, 2025 at 11:09 PM
Girl dinner: cheese, blueberries, olives, protein chips and a little wine
So happy for CC and Ichiro ⚾️
a man in a new york yankees jersey stands on a baseball field
ALT: a man in a new york yankees jersey stands on a baseball field
media.tenor.com
January 21, 2025 at 11:50 PM
So happy for CC and Ichiro ⚾️
Reposted
President Biden signed legislation in his last weeks in office allowing a monument dedicated to American women to be built on the National Mall. The Women’s Suffrage National Monument will be the Mall's first honoring women's history.
How a Monument to Women Finally Won a Place on the National Mall
The Women’s Suffrage National Monument, which will be the Mall’s first dedicated to women’s history, overcame congressional and other roadblocks.
www.nytimes.com
January 20, 2025 at 4:02 PM
President Biden signed legislation in his last weeks in office allowing a monument dedicated to American women to be built on the National Mall. The Women’s Suffrage National Monument will be the Mall's first honoring women's history.
Reposted
What is pediatric hospice? Who is it for? Who pays for it? WATCH this short video for answers to your top questions after your child receives a terminal diagnosis.
#hospice #hapc #caregivers #caregivertips #caregiversupport #endoflife #pediatrichospice
#hospice #hapc #caregivers #caregivertips #caregiversupport #endoflife #pediatrichospice
Answering Top Caregiver Questions About Pediatric Hospice
YouTube video by MJHS Health System
www.youtube.com
January 19, 2025 at 7:03 PM
What is pediatric hospice? Who is it for? Who pays for it? WATCH this short video for answers to your top questions after your child receives a terminal diagnosis.
#hospice #hapc #caregivers #caregivertips #caregiversupport #endoflife #pediatrichospice
#hospice #hapc #caregivers #caregivertips #caregiversupport #endoflife #pediatrichospice
I tell you this. If H5N1 becomes human to human I will walk out the door and retire. Idc if I don’t get paid out PTO, get put onto a do not rehire list if I change my mind, need to purchase health insurance. I am NOT living through that as a hospital employee again.
January 1, 2025 at 6:06 PM
I tell you this. If H5N1 becomes human to human I will walk out the door and retire. Idc if I don’t get paid out PTO, get put onto a do not rehire list if I change my mind, need to purchase health insurance. I am NOT living through that as a hospital employee again.
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I'm featured in this Sky News article today about the many different types of doula support available in the UK #EndofLifeDoulas #DeathDoula @eoldoulauk.bsky.social
How doulas are shaking off hippy stereotypes - in areas other than just birth
How doulas are shaking off hippy stereotypes - in areas other than just birth
Women are paying for doula services in increasing numbers. And not just for birth.
news.sky.com
January 1, 2025 at 5:19 PM
I'm featured in this Sky News article today about the many different types of doula support available in the UK #EndofLifeDoulas #DeathDoula @eoldoulauk.bsky.social
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Couldn't agree more...
December 28, 2024 at 12:55 PM
Couldn't agree more...
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🧵 1/5 Important new research from @mjtatterton.bsky.social and colleagues reveals how nurse prescribers are transforming children's hospice care in the UK. As a #spiritualcare provider, I was struck by how this exemplifies truly holistic, family-centered care. #medsky #chaplaincy #evidencebased
Pleased to share our most recent #research, exploring the impact of independent #nurse #prescribers & #AdvancedPractitioners on children’s #HospiceCare.
@cbethell.bsky.social
You can read here: journals.sagepub.com/doi/abs/10.1... #HospiceCare #OpenAccess
@cbethell.bsky.social
You can read here: journals.sagepub.com/doi/abs/10.1... #HospiceCare #OpenAccess
December 20, 2024 at 8:36 PM
🧵 1/5 Important new research from @mjtatterton.bsky.social and colleagues reveals how nurse prescribers are transforming children's hospice care in the UK. As a #spiritualcare provider, I was struck by how this exemplifies truly holistic, family-centered care. #medsky #chaplaincy #evidencebased
Reposted
jamanetwork.com/journals/jam...
Appreciate this important work in @jama.com addressing AYA ages 12-39 and their EOL goals. We need more research here - this population (while broad!) has unique considerations at EOL. #hapc #MedPeds #medsky
Appreciate this important work in @jama.com addressing AYA ages 12-39 and their EOL goals. We need more research here - this population (while broad!) has unique considerations at EOL. #hapc #MedPeds #medsky
Goals of Care at End of Life for Adolescents and Younger Adults With Cancer
This cross-sectional study assesses the frequency, timing, and evolution of discussions and documented goals of care in the last 90 days of life among adolescents and young adults with cancer.
jamanetwork.com
December 21, 2024 at 12:23 PM
jamanetwork.com/journals/jam...
Appreciate this important work in @jama.com addressing AYA ages 12-39 and their EOL goals. We need more research here - this population (while broad!) has unique considerations at EOL. #hapc #MedPeds #medsky
Appreciate this important work in @jama.com addressing AYA ages 12-39 and their EOL goals. We need more research here - this population (while broad!) has unique considerations at EOL. #hapc #MedPeds #medsky
December 15, 2024 at 1:57 AM
Funny moment today, went out to breakfast with two SE Asian friends. I ordered avocado toast USA style ;topped with egg and bacon. Wait staff asks am I ok with the bacon. They laughed and said I was Indian by association
December 15, 2024 at 1:55 AM
Funny moment today, went out to breakfast with two SE Asian friends. I ordered avocado toast USA style ;topped with egg and bacon. Wait staff asks am I ok with the bacon. They laughed and said I was Indian by association
Reposted
I have not found Dr. Emily Drake here yet, but here is her X post.
@EK_Drake
🚨 New paper 🚨How Advocates Can Support Young Adults Living With Cancer & Their Transition to #PalliativeCare
⭐Pleased to share the 3rd paper from my #PhD!
journals.sagepub.com/doi/10.1177/...
#AYACancer
@EK_Drake
🚨 New paper 🚨How Advocates Can Support Young Adults Living With Cancer & Their Transition to #PalliativeCare
⭐Pleased to share the 3rd paper from my #PhD!
journals.sagepub.com/doi/10.1177/...
#AYACancer
How Advocates Can Support Young Adults Living With Cancer and Their Transition to Palliative Care - Emily K. Drake, Lori E. Weeks, Michael van Manen, Dani Taylor, Ian Ricci, Janet Curran, 2024
While the cancer advocacy community has been pivotal in progressing oncology care, supporting young adults with advanced cancer transitioning to palliative care...
journals.sagepub.com
December 13, 2024 at 6:53 PM
I have not found Dr. Emily Drake here yet, but here is her X post.
@EK_Drake
🚨 New paper 🚨How Advocates Can Support Young Adults Living With Cancer & Their Transition to #PalliativeCare
⭐Pleased to share the 3rd paper from my #PhD!
journals.sagepub.com/doi/10.1177/...
#AYACancer
@EK_Drake
🚨 New paper 🚨How Advocates Can Support Young Adults Living With Cancer & Their Transition to #PalliativeCare
⭐Pleased to share the 3rd paper from my #PhD!
journals.sagepub.com/doi/10.1177/...
#AYACancer