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vogelfrei.bsky.social
I.T.
@vogelfrei.bsky.social
autoimmune SFN, Long Covid, chronic migraines, POTS, antibiotic toxicity, chronically reactivated EBV
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Signal is testing username feature. This would mean that you would not have to provide your phone number to people you want to contact. You will be able to set your phone number as private and not share it.
November 8, 2023 at 8:23 PM
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NIH ME/CFS RESEARCH ROADMAP WEBINAR SERIES.
Vortragsreihe zu Immunologie, Nervensystem, Infektionen u.w. Themen.
Registrierung zur online Teilnahme und Aufzeichnungen der Vorträge.
event.roseliassociates.com/me-cfs-resea...
Home - ME/CFS Research Roadmap Webinar Series
ME/CFS RESEARCH ROADMAP WEBINAR SERIES Background In 2022, a working group of the National Advisory Neurological Disorders and Stroke (NANDS) Council was convened to develop a Research Roadmap for ME/...
event.roseliassociates.com
November 1, 2023 at 11:57 AM
Reposted by I.T.
Let’s start a thread of awesome follows on here that relate to #MyalgicEncephalomyelitis #MECFS #LongCovid or #InfectionAssociatedChronicIllnesses.

Because it is hard to rebuild community on a new platform…but doing it as a #PwME…nearly impossible.

Let’s help each other with safe suggestions.
October 25, 2023 at 8:18 PM
Reposted by I.T.
Such a cool twist on an old design: Roosters warn each other when a hawk is circling overhead. But when they’re alone and a predator is near, they stay silent to avoid attracting attention. Importantly, they don’t warn their own reflection.
www.nytimes.com/2023/10/25/s...
A Mirror Reveals a Surprise About Bird Brains
A modified version of the classic mirror test suggested that roosters recognize their reflections.
www.nytimes.com
October 29, 2023 at 9:32 AM
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Emily Johnson has been a fantastic contributor to the chronic illness community for a long time, and it's heartbreaking that she can't access essential neurosurgeries. If you have a few spare bucks to push her closer to her goal, it'd be a good investment.
🚨 Please donate and share! I need neurosurgeries for untreated issues I’ve had since I was a baby, kid, young adult

It’s taken years to be taken seriously and get to the global expert surgeon who is ready to help! Medicare covers 80% but Medicaid covers nothing as it’s out-of-state t.co/E5MRE5ixeX
We've got your back! Help Emily get spinal care, organized by Jessica Smolinski
*PLEASE SHARE even if you can't donate* Hello everyone! This f… Jessica Smolinski needs your support for We've got your back! Help Emily get spinal care
t.co
October 23, 2023 at 6:32 PM
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🚨 Please donate and share! I need neurosurgeries for untreated issues I’ve had since I was a baby, kid, young adult

It’s taken years to be taken seriously and get to the global expert surgeon who is ready to help! Medicare covers 80% but Medicaid covers nothing as it’s out-of-state t.co/E5MRE5ixeX
We've got your back! Help Emily get spinal care, organized by Jessica Smolinski
*PLEASE SHARE even if you can't donate* Hello everyone! This f… Jessica Smolinski needs your support for We've got your back! Help Emily get spinal care
t.co
October 2, 2023 at 6:35 AM
Reposted by I.T.
"Ask yourself this: is it really acceptable that we only bothered to test sex differences for general anesthesia in 1999? Turns out women wake up faster than men, regardless of their age, weight or the dosage they've been given."
October 18, 2023 at 1:10 PM
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October 10, 2023 at 10:45 AM
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A friend in Warsaw desperately needs help. He's very severely ill with ME, mostly blind, and has limited family support. His condition has worsened and he needs IRL support (emotional and ideally light caregiving, could be paid). Retweets appreciated.
October 14, 2023 at 5:19 PM
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🚨 Science Resources for BlueSky 🚨

Scientist? Just joined BlueSky? Here’s four resources you might find useful.

#AcademicSky 🧪 🧵

(1) A list of over 130 subject-specific feeds. Find posts by others in your area and use the right tags in your posts to get them seen.
BlueSky Science-Related Feeds
Sheet1 Likes,Name (Click to visit feed),Tags,Contact to ask to be added to contributor list 11,<a href="https://bsky.app/profile/did:plc:ftnzzw4cnon2pzpw7i5m2xu7/feed/aaaiqnkwsgsz6">#AI&HCI</a>,#HCI,...
docs.google.com
September 28, 2023 at 7:18 AM
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I'm excited to be speaking at UCLA's conference "Canary Knowledge: Chronic Fatigue, Chemical Sensitivities and the Limits of Medicine" on Nov 17. It's free and hybrid.
Jen Brea will be the keynote speaker. Check it out! t.co/ODdjwBaLNi
October 2, 2023 at 11:04 PM
Reposted by I.T.
Feeds that may interest the ♿️ community include:

#Disability Feed
bsky.app/profile/did:...

#ChronicIllness
bsky.app/profile/did:...

#MECFS
bsky.app/profile/did:...

LongCovid
bsky.app/profile/did:...

Covid Cautious
bsky.app/profile/did:...

Disability Justice
bsky.app/profile/did:...
October 2, 2023 at 4:52 AM