The Rare Disease Data Repository
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Berit Lange
Berit Lange
@ideberitlange.bsky.social
Prof Anne-Marie Russell💜💚🎗
Prof Anne-Marie Russell💜💚🎗
@anne-marie-russell.bsky.social
Neckel Lab
Neckel Lab
@neckellab.bsky.social
Dare to be Rare
Dare to be Rare
@daretoberare.org
Deutsche Gesellschaft für Neurogastroenterologie & Motilität
Deutsche Gesellschaft für Neurogastroenterologie & Motilität
@dgnm.bsky.social
ARRE Foundation
ARRE Foundation
@arrefoundation.bsky.social
VP & Patient Lead at CURE GABA-A
VP & Patient Lead at CURE GABA-A
@agustinafernandez.bsky.social
Annet Kirabo D.V.M., M.Sc., Ph.D., F.A.H.A.
Annet Kirabo D.V.M., M.Sc., Ph.D., F.A.H.A.
@annetkiraboc1.bsky.social
R-Synapse
R-Synapse
@ruhrsynapse.bsky.social
Bart-Jan.Schuman.de
Bart-Jan.Schuman.de
@schuman.de
NSSD Sunnaas (Center for Rare Disorders in Norway)
NSSD Sunnaas (Center for Rare Disorders in Norway)
@nssd-sunnaas.bsky.social
KCNQ2 Cure Alliance
KCNQ2 Cure Alliance
@kcnq2.bsky.social
Albert Vilella, PhD.
Albert Vilella, PhD.
@albertvilella.bsky.social
RASopathies Network
RASopathies Network
@rasnet.bsky.social
Maddie Gillentine, PhD
Maddie Gillentine, PhD
@maddiegillentine.bsky.social
Gabriel Archanjo
Gabriel Archanjo
@garchanjo.com
Kathryn Idol Xixis, MD
Kathryn Idol Xixis, MD
@abcmd2010.bsky.social
Anna Esteve Codina
Anna Esteve Codina
@annaesteveco.bsky.social
kfsf.bsky.social
kfsf.bsky.social
@kfsf.bsky.social
J. Chris Pires
J. Chris Pires
@jchrispires.bsky.social
SKY Explore
SKY Explore
@docworldexplore.bsky.social
Lara Muffley
Lara Muffley
@muffley.bsky.social
The Independent Panel for Pandemic Preparedness and Response
The Independent Panel for Pandemic Preparedness and Response
@theindpanel.bsky.social
Sarah Brodsky
Sarah Brodsky
@sarahbrodsky.bsky.social
The Guardian
The Guardian
@theguardian.com
TheDesk.net
TheDesk.net
@thedesk.net
Channel 4 News
Channel 4 News
@channel4news.bsky.social
The New York Times
The New York Times
@nytimes.com
TechCrunch
TechCrunch
@techcrunch.com
The Verge
The Verge
@theverge.com
Matthew Keys
Matthew Keys
@matthewkeys.net
Doug Nathanson
Doug Nathanson
@dr-dcn.bsky.social
Hsiao-Tuan Chao (赵孝端), MD PhD
Hsiao-Tuan Chao (赵孝端), MD PhD
@htchaolab.bsky.social
drmababyneuro.bsky.social
drmababyneuro.bsky.social
@drmababyneuro.bsky.social
Betsy Pilon
Betsy Pilon
@betsypilon.bsky.social
Javier Martin
Javier Martin
@fjvrmrtn.bsky.social
Rahema
Rahema
@rahema-ucl.bsky.social
GNB5-Related Neurodevelopmental Disorders
GNB5-Related Neurodevelopmental Disorders
@gnb5-ndd.bsky.social
The KATT Dazzle
The KATT Dazzle
@thekattdazzle.bsky.social
mayankverma.bsky.social
mayankverma.bsky.social
@mayankverma.bsky.social
Mingbo Cai
Mingbo Cai
@mcai.bsky.social
Lee Millard
Lee Millard
@onein300.bsky.social
Rikke S. Møller
Rikke S. Møller
@rikkesmoller.bsky.social
Kati Hoier
Kati Hoier
@katihoier.bsky.social
SarkoidoseH
SarkoidoseH
@sarkoidosesh.bsky.social
FamilieSCN2A Foundation
FamilieSCN2A Foundation
@scn2a.bsky.social
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