@mayankverma.bsky.social
MD/PhD, Child Neurologist, Physician Scientist
Reposted
Epilepsy Awareness Month Facts: Children with ULD (EPM1) can play sports, excel at school, run, jump and swim, UNTIL ONE DAY, usually between the ages of 6 and 15, the seizures begin...
www.hopeforuld.org/our-stories #unverrichtlundborgdisease #RareEpilepsy #GeneTherapy #epm1 #PME #epilepsyawareness
www.hopeforuld.org/our-stories #unverrichtlundborgdisease #RareEpilepsy #GeneTherapy #epm1 #PME #epilepsyawareness
November 23, 2025 at 9:41 PM
Epilepsy Awareness Month Facts: Children with ULD (EPM1) can play sports, excel at school, run, jump and swim, UNTIL ONE DAY, usually between the ages of 6 and 15, the seizures begin...
www.hopeforuld.org/our-stories #unverrichtlundborgdisease #RareEpilepsy #GeneTherapy #epm1 #PME #epilepsyawareness
www.hopeforuld.org/our-stories #unverrichtlundborgdisease #RareEpilepsy #GeneTherapy #epm1 #PME #epilepsyawareness
Reposted
When an attending calls another attending to review a case, direct extensions/cell numbers should be provided. No one (actually, no one ever) should be calling a central number, choosing options, then getting put on hold 🫠
November 24, 2025 at 4:36 PM
When an attending calls another attending to review a case, direct extensions/cell numbers should be provided. No one (actually, no one ever) should be calling a central number, choosing options, then getting put on hold 🫠
Reposted
The loss of dreams. The loss of abilities. The loss of freedom. The loss of a pain-free life. And because the disease is progressive, things get worse. This is why Hope for ULD exists.
November 23, 2025 at 10:00 PM
The loss of dreams. The loss of abilities. The loss of freedom. The loss of a pain-free life. And because the disease is progressive, things get worse. This is why Hope for ULD exists.
Reposted
Why do neurologists come up with different ideas about prognosis and treatment - at the same institution - for super-refractory status epilepticus?
It was fascinating to talk to Matt Woodward about clinical variability on the AAN Neurology podcast! directory.libsyn.com/episode/inde...
It was fascinating to talk to Matt Woodward about clinical variability on the AAN Neurology podcast! directory.libsyn.com/episode/inde...
Super Refractory Status Epilepticus Diagnosis, Management, and Prognostication
Dr. Alison Christy talks with Dr. Matthew Ryan Woodward about the complexities of status epilepticus, focusing on its definitions, the transition to refractory and super-refractory states, and the imp...
https://directory.libsyn.com/episode/index/id/38986205]
November 11, 2025 at 9:21 PM
Why do neurologists come up with different ideas about prognosis and treatment - at the same institution - for super-refractory status epilepticus?
It was fascinating to talk to Matt Woodward about clinical variability on the AAN Neurology podcast! directory.libsyn.com/episode/inde...
It was fascinating to talk to Matt Woodward about clinical variability on the AAN Neurology podcast! directory.libsyn.com/episode/inde...
Reposted
"As a federal worker, I am here to tell you that every awful thing that would happen in a shutdown—shuttering programs that Americans rely on, damaging our economy, firing federal workers—all of this is already happening."
youtu.be/jw93RKKreqY?...
youtu.be/jw93RKKreqY?...
Jenna Norton, PhD - (NIH, Bethesda Declaration organizer, mom) *speaking in her personal capacity
YouTube video by Civil Servants Coalition
youtu.be
October 2, 2025 at 2:46 AM
"As a federal worker, I am here to tell you that every awful thing that would happen in a shutdown—shuttering programs that Americans rely on, damaging our economy, firing federal workers—all of this is already happening."
youtu.be/jw93RKKreqY?...
youtu.be/jw93RKKreqY?...
Reposted
Federal workers are speaking out on how the Trump regime is harming Americans:
"We stand here today at a moment of the greatest assault of our lifetimes on our freedoms. The US Constitution is being shredded... We are here to call on Congress to stand up and stop it."
youtu.be/uw1KwIBgrCw?...
"We stand here today at a moment of the greatest assault of our lifetimes on our freedoms. The US Constitution is being shredded... We are here to call on Congress to stand up and stop it."
youtu.be/uw1KwIBgrCw?...
Mark Histed, NIH Scientist *speaking in personal capacity
YouTube video by Civil Servants Coalition
youtu.be
October 2, 2025 at 2:46 AM
Federal workers are speaking out on how the Trump regime is harming Americans:
"We stand here today at a moment of the greatest assault of our lifetimes on our freedoms. The US Constitution is being shredded... We are here to call on Congress to stand up and stop it."
youtu.be/uw1KwIBgrCw?...
"We stand here today at a moment of the greatest assault of our lifetimes on our freedoms. The US Constitution is being shredded... We are here to call on Congress to stand up and stop it."
youtu.be/uw1KwIBgrCw?...
Reposted
Y'all who don't know how academic research works:
FYI, I'm giving up 1/4 of my salary (so-called summer salary) so I can buy reagents for my research lab since my main NIH grant is suspended and may never be released back to me.
Needless to say, I'm still working my usual 60+ hr/wk, regardless.
FYI, I'm giving up 1/4 of my salary (so-called summer salary) so I can buy reagents for my research lab since my main NIH grant is suspended and may never be released back to me.
Needless to say, I'm still working my usual 60+ hr/wk, regardless.
July 1, 2025 at 5:29 PM
Y'all who don't know how academic research works:
FYI, I'm giving up 1/4 of my salary (so-called summer salary) so I can buy reagents for my research lab since my main NIH grant is suspended and may never be released back to me.
Needless to say, I'm still working my usual 60+ hr/wk, regardless.
FYI, I'm giving up 1/4 of my salary (so-called summer salary) so I can buy reagents for my research lab since my main NIH grant is suspended and may never be released back to me.
Needless to say, I'm still working my usual 60+ hr/wk, regardless.
Reposted
GOOD NEWS re: GRANT FUNDING:
The Pediatric Epilepsy Research Foundation (PERF) has a new grant program designed to support early-stage investigators, helping bridge the gap between 1st K award submission and resubmission.
Deadline Aug 7!
www.pediatricepilepsyresearchfoundation.org/perf-announc...
The Pediatric Epilepsy Research Foundation (PERF) has a new grant program designed to support early-stage investigators, helping bridge the gap between 1st K award submission and resubmission.
Deadline Aug 7!
www.pediatricepilepsyresearchfoundation.org/perf-announc...
June 18, 2025 at 10:55 PM
GOOD NEWS re: GRANT FUNDING:
The Pediatric Epilepsy Research Foundation (PERF) has a new grant program designed to support early-stage investigators, helping bridge the gap between 1st K award submission and resubmission.
Deadline Aug 7!
www.pediatricepilepsyresearchfoundation.org/perf-announc...
The Pediatric Epilepsy Research Foundation (PERF) has a new grant program designed to support early-stage investigators, helping bridge the gap between 1st K award submission and resubmission.
Deadline Aug 7!
www.pediatricepilepsyresearchfoundation.org/perf-announc...
The AI that we really need is one that changes your CV from 1 highly specific format to another.
May 30, 2025 at 3:38 PM
The AI that we really need is one that changes your CV from 1 highly specific format to another.
Reposted
All of NIH funding to Northwestern University is frozen. This pause includes noncompeting approved funding, new and competing grants with fundable scores. No reimbursements for money already spent have been received since March. This situation is rarely reported so please Please get the word out!
May 23, 2025 at 5:56 PM
All of NIH funding to Northwestern University is frozen. This pause includes noncompeting approved funding, new and competing grants with fundable scores. No reimbursements for money already spent have been received since March. This situation is rarely reported so please Please get the word out!
Reposted
Reposted
Six masked agents in street clothes disappearing a Tufts Ph.D. student in broad daylight on the streets of Somerville. There is video footage out there every person should watch.
March 26, 2025 at 7:04 PM
Six masked agents in street clothes disappearing a Tufts Ph.D. student in broad daylight on the streets of Somerville. There is video footage out there every person should watch.
Reposted
Musk’s status as a “special government employee” limits him to 130 days in the executive branch. However, despite working daily—documented by his own X posts—they claim he only works one day a week, effectively stretching his limit to 130 weeks. This needs to be brought to Congress—please share.
March 2, 2025 at 3:18 PM
Musk’s status as a “special government employee” limits him to 130 days in the executive branch. However, despite working daily—documented by his own X posts—they claim he only works one day a week, effectively stretching his limit to 130 weeks. This needs to be brought to Congress—please share.
Reposted
This is Marco Rubio explaining how the USA promised to defend Ukraine forever if they got rid of their nuclear arsenal left after the Soviet Union fell.
This is why lil marco was sinking into the couch. He was hoping we wouldn’t find it…so don’t RT right now this very second.
This is why lil marco was sinking into the couch. He was hoping we wouldn’t find it…so don’t RT right now this very second.
March 2, 2025 at 4:55 PM
This is Marco Rubio explaining how the USA promised to defend Ukraine forever if they got rid of their nuclear arsenal left after the Soviet Union fell.
This is why lil marco was sinking into the couch. He was hoping we wouldn’t find it…so don’t RT right now this very second.
This is why lil marco was sinking into the couch. He was hoping we wouldn’t find it…so don’t RT right now this very second.
Reposted
Important words from an organization that is funding ULD/EPM1 research! # unverrichtlundborgdisease #epm1 #RareEpilepsy #genetherapy epilepsynewengland.org/news/my-stor...
My Story: How Funding Cuts Will Change This Researcher’s Life with Epilepsy | Epilepsy Foundation New England
Draconian cuts in NIH funding will have a lasting impact on clinical care. The National Institutes of Health (NIH), has announced dramatic cuts to all research funding that will dismantle biomedical r...
epilepsynewengland.org
February 25, 2025 at 2:21 AM
Important words from an organization that is funding ULD/EPM1 research! # unverrichtlundborgdisease #epm1 #RareEpilepsy #genetherapy epilepsynewengland.org/news/my-stor...
Reposted
Want the latest research news? Sign up to get our occasional email updates. You can subscribe at the bottom of any page on our website! Check it out! www.hopeforuld.org #epm1 #uld #unverrichtlundborgdisease #genetherapy #RareEpilepsy #hopeforuld
Unverricht-Lundborg Disease | Hope for ULD | 501(c)(3) nonprofit
Hope for ULD is a nonprofit that raises funds for gene therapy research to treat Unverricht-Lundborg Disease (ULD), a heritable, degenerative myoclonus epilepsy.
www.hopeforuld.org
February 22, 2025 at 3:25 AM
Want the latest research news? Sign up to get our occasional email updates. You can subscribe at the bottom of any page on our website! Check it out! www.hopeforuld.org #epm1 #uld #unverrichtlundborgdisease #genetherapy #RareEpilepsy #hopeforuld
Reposted
Adams must be removed. The city cannot sustain being governed for nearly a year by a Mayor who is being coerced by Trump admin in order to escape charges.
This corruption poses a real threat to the people of the city. He should have resigned a while ago, but will not. So it’s time for him to go.
This corruption poses a real threat to the people of the city. He should have resigned a while ago, but will not. So it’s time for him to go.
February 13, 2025 at 11:40 PM
Adams must be removed. The city cannot sustain being governed for nearly a year by a Mayor who is being coerced by Trump admin in order to escape charges.
This corruption poses a real threat to the people of the city. He should have resigned a while ago, but will not. So it’s time for him to go.
This corruption poses a real threat to the people of the city. He should have resigned a while ago, but will not. So it’s time for him to go.
Reposted
She's not alone.. The silence from biotech and pharma CEOs — $AMGN $LLY $REGN $GILD — is (to use a cliché) deafening.
Read the story here:
www.statnews.com/2025/02/11/n...
Read the story here:
www.statnews.com/2025/02/11/n...
As outcry builds over Trump cuts to NIH payments, drugmakers are MIA
Drugmakers — major beneficiaries of NIH-backed university research — have been largely silence on the Trump administration's cuts to agency research payments.
www.statnews.com
February 11, 2025 at 7:49 PM
She's not alone.. The silence from biotech and pharma CEOs — $AMGN $LLY $REGN $GILD — is (to use a cliché) deafening.
Read the story here:
www.statnews.com/2025/02/11/n...
Read the story here:
www.statnews.com/2025/02/11/n...
Reposted
- CRID facilitates collaboration/data sharing in rare disease research by providing a unique, universal identifier.
- It reduces patient burden, such as "survey fatigue".
- Adoption of CRID globally could accelerate research progress by overcoming geographical and institutional barriers.
- It reduces patient burden, such as "survey fatigue".
- Adoption of CRID globally could accelerate research progress by overcoming geographical and institutional barriers.
January 23, 2025 at 8:38 PM
- CRID facilitates collaboration/data sharing in rare disease research by providing a unique, universal identifier.
- It reduces patient burden, such as "survey fatigue".
- Adoption of CRID globally could accelerate research progress by overcoming geographical and institutional barriers.
- It reduces patient burden, such as "survey fatigue".
- Adoption of CRID globally could accelerate research progress by overcoming geographical and institutional barriers.
Reposted
1/Have you been cutting corners when it comes to coronal anatomy?
Do you just say a lesion is in the inferior frontal region & hope no one asks for details?
It’s time to turn the corner on coronal anatomy
Open this thread for an easy way to remember this frontal anatomy you need to know!
Do you just say a lesion is in the inferior frontal region & hope no one asks for details?
It’s time to turn the corner on coronal anatomy
Open this thread for an easy way to remember this frontal anatomy you need to know!
January 21, 2025 at 4:38 PM
1/Have you been cutting corners when it comes to coronal anatomy?
Do you just say a lesion is in the inferior frontal region & hope no one asks for details?
It’s time to turn the corner on coronal anatomy
Open this thread for an easy way to remember this frontal anatomy you need to know!
Do you just say a lesion is in the inferior frontal region & hope no one asks for details?
It’s time to turn the corner on coronal anatomy
Open this thread for an easy way to remember this frontal anatomy you need to know!
Reposted
CRID could benefit greatly from additional funding, but it seems unlikely to receive support from the EC Horizon Europe Framework Programme (HORIZON). Sometimes, particularly with rare diseases, commercial sustainability should not be a determining criterion. #EndDataSilos #Horizon #EC
November 27, 2024 at 10:55 AM
CRID could benefit greatly from additional funding, but it seems unlikely to receive support from the EC Horizon Europe Framework Programme (HORIZON). Sometimes, particularly with rare diseases, commercial sustainability should not be a determining criterion. #EndDataSilos #Horizon #EC