When that #CTOS2025 email hits 🎉🎉🎉🎉🎉 Very excited to represent TGCT Support at CTOS and present on #TGCT.

I’d like to thank my co-authors 👏🏻👏🏻

July is Sarcoma Awareness Month — and we’re claiming space for #TGCT!
TGCT is a connective tissue tumor that, like so many living with it, doesn’t quite fit neatly into a box. Join us in spreading awareness one story at a time!
#TGCTStrong #sarcomaawareness

Learn more at TGCTSupport.org

When your first summer research fellow publishes 🥰 new level of pride in a project. Check it out below 📖 👇🏻

The Evaluation of Interactions Between Multiple Intrinsic and Extrinsic Factors Reported in Labeling for FDA‐Approved Drugs - Bailey - accp1.onlinelibrary.wiley.com/doi/full/10....

So proud, for my first #ASCO25, to present work on pediatric #TGCT on behalf of TGCT Support ☺️ grateful for the opportunity to raise awareness

Attending #ASCO25? Be sure to visit poster board 📋27 at 9:00 AM ⏰

Did you know that pediatric pts w/ diffuse #TGCT undergo an average of 3.4 surgeries? These young pts need coordinated, MD care to manage the long-term physical + emotional impact of this disease. Learn more !

Snagged a selfie with the famous @herbloongmd.bsky.social before #ASCO25! Thank you for all you do Dr Loong!

Check out more findings from our pediatric #TGCT real-world evidence at #ASCO25 in T-Minus 2 days !

Don’t miss our poster
📍 Hall A, sarcoma session
📆 Saturday, May 31st, 9:00 - 12:00 pm
📋 27

#RWE #pediatric #oncology

As you make your #ASCO25 schedules, visit our poster on Pediatric #TGCT, an ultra-rare, under-recognized neoplasm in desperate need of progress. Pediatric TGCT mimics the adult form but lack the therapeutic advancement.

Sarcoma poster @ 9:00-12:00pm CDT on May 31st, 2025

@ascocancer.bsky.social

Excited to be attending @ASCO for the first time ever AND presenting about #TGCT in pediatric patients #ASCO25

Can’t wait to see everyone in ☀️ Chicago at the end of the month!

We can cross Dr Bill Tap presenting our TGCT registry publication off our bucket list!!

Read it here: www.tandfonline.com/doi/full/10....

Today, I received the plaque for my award back in November. It was a nice reminder that my efforts are appreciated.

Here’s to advancing rare disease research and to the FDA’s mission of protecting & promoting public health by ensuring the safety + efficacy of the medicines we all depend on. 🫶🏻

See you in 😎 ☀️ Chicago for some #TGCT at #ASCO25

@ascocancer.bsky.social

🤞🏻🤞🏻#ASCO25 here we come!!! Hopefully bringing #TGCT patient powered research to ☀️ Chicago!

Thank you so much @ascptclinpharm.bsky.social for raising awareness for both #RareDiseaseDay and our paper! Check it out below:

#RareDiseaseDay: 7,000+ rare diseases, ~95% lack treatments, 30% children never see their 5th birthday. GM1 & GM2 gangliosidosis are fatal with no approved therapy. Read our analysis on biomarker challenges & opportunities: ⬇️
🔗 ascpt.onlinelibrary.wiley.com/doi/full/10.11… #LightUpForRarere

Rare diseases may not always be visible. #TGCT is a good example of this! Many symptoms are only noticeable to the pt experiencing them.

For this #RareDiseaseDay, there are many deserving diseases to learn about. Take a moment to learn about TGCT at TGCTSupport.org 🫶🏻

Science and medicine must reflect the people they serve. Representation matters. Happy International Women and Girls in Science Day and Happy Rare Disease Awareness Month 🧬🔬🥼 #internationalwomeninscienceday

Hoping to bring more #TGCT on behalf of TGCT Support to @ASCO #ASCO2025 🧫🧬🔬🥼 The future is science.

It was a dream come true getting to present the #TGCT registry data (n=497) demonstrating a high pt burden of TGCT. Education efforts among clinicians is needed to facilitate early diagnosis, effective treatment, better treatment algorithms to reduce the impact of TGCT on patient lives. #CTOS2024