Sydney Stern, PhD
@stern-sydney.bsky.social
Scientist-Patient-Advocate👩🏻🔬 improving rare disease treatments 🦓🦓🦓 | check out http://TGCTSupport.org | views and opinions are entirely my own. #MedSky #ScienceSky
Though the names Tenosynovial Giant Cell Tumor (#TGCT) & Giant Cell Tumor of the Bone (GCTB) sound similar, these are distinct diseases!
Anne’s story underscores a critical need for education. about the differences between GCTB & TGCT 📣Check it out:
youtu.be/VDmNQwUNFjo?...
Anne’s story underscores a critical need for education. about the differences between GCTB & TGCT 📣Check it out:
youtu.be/VDmNQwUNFjo?...
Anne Kable's Journey from GCT to TGCT
YouTube video by TGCT Support
youtu.be
August 18, 2025 at 2:16 AM
Though the names Tenosynovial Giant Cell Tumor (#TGCT) & Giant Cell Tumor of the Bone (GCTB) sound similar, these are distinct diseases!
Anne’s story underscores a critical need for education. about the differences between GCTB & TGCT 📣Check it out:
youtu.be/VDmNQwUNFjo?...
Anne’s story underscores a critical need for education. about the differences between GCTB & TGCT 📣Check it out:
youtu.be/VDmNQwUNFjo?...
July is Sarcoma Awareness Month — and we’re claiming space for #TGCT!
TGCT is a connective tissue tumor that, like so many living with it, doesn’t quite fit neatly into a box. Join us in spreading awareness one story at a time!
#TGCTStrong #sarcomaawareness
Learn more at TGCTSupport.org
TGCT is a connective tissue tumor that, like so many living with it, doesn’t quite fit neatly into a box. Join us in spreading awareness one story at a time!
#TGCTStrong #sarcomaawareness
Learn more at TGCTSupport.org
July 3, 2025 at 2:13 AM
July is Sarcoma Awareness Month — and we’re claiming space for #TGCT!
TGCT is a connective tissue tumor that, like so many living with it, doesn’t quite fit neatly into a box. Join us in spreading awareness one story at a time!
#TGCTStrong #sarcomaawareness
Learn more at TGCTSupport.org
TGCT is a connective tissue tumor that, like so many living with it, doesn’t quite fit neatly into a box. Join us in spreading awareness one story at a time!
#TGCTStrong #sarcomaawareness
Learn more at TGCTSupport.org
When your first summer research fellow publishes 🥰 new level of pride in a project. Check it out below 📖 👇🏻
The Evaluation of Interactions Between Multiple Intrinsic and Extrinsic Factors Reported in Labeling for FDA‐Approved Drugs - Bailey - accp1.onlinelibrary.wiley.com/doi/full/10....
The Evaluation of Interactions Between Multiple Intrinsic and Extrinsic Factors Reported in Labeling for FDA‐Approved Drugs - Bailey - accp1.onlinelibrary.wiley.com/doi/full/10....
June 27, 2025 at 2:48 AM
When your first summer research fellow publishes 🥰 new level of pride in a project. Check it out below 📖 👇🏻
The Evaluation of Interactions Between Multiple Intrinsic and Extrinsic Factors Reported in Labeling for FDA‐Approved Drugs - Bailey - accp1.onlinelibrary.wiley.com/doi/full/10....
The Evaluation of Interactions Between Multiple Intrinsic and Extrinsic Factors Reported in Labeling for FDA‐Approved Drugs - Bailey - accp1.onlinelibrary.wiley.com/doi/full/10....
Reposted by Sydney Stern, PhD
Thanks @stern-sydney.bsky.social! I am humbled and credits should go to you for all that you are doing for the #TGCT community and beyond! Looking forward to seeing your presentation! 😀 #CTOSTweeTOS #Sarcoma
May 30, 2025 at 11:00 PM
Thanks @stern-sydney.bsky.social! I am humbled and credits should go to you for all that you are doing for the #TGCT community and beyond! Looking forward to seeing your presentation! 😀 #CTOSTweeTOS #Sarcoma
Snagged a selfie with the famous @herbloongmd.bsky.social before #ASCO25! Thank you for all you do Dr Loong!
May 30, 2025 at 4:08 PM
Snagged a selfie with the famous @herbloongmd.bsky.social before #ASCO25! Thank you for all you do Dr Loong!
Check out more findings from our pediatric #TGCT real-world evidence at #ASCO25 in T-Minus 2 days !
Don’t miss our poster
📍 Hall A, sarcoma session
📆 Saturday, May 31st, 9:00 - 12:00 pm
📋 27
#RWE #pediatric #oncology
Don’t miss our poster
📍 Hall A, sarcoma session
📆 Saturday, May 31st, 9:00 - 12:00 pm
📋 27
#RWE #pediatric #oncology
May 29, 2025 at 10:54 AM
Check out more findings from our pediatric #TGCT real-world evidence at #ASCO25 in T-Minus 2 days !
Don’t miss our poster
📍 Hall A, sarcoma session
📆 Saturday, May 31st, 9:00 - 12:00 pm
📋 27
#RWE #pediatric #oncology
Don’t miss our poster
📍 Hall A, sarcoma session
📆 Saturday, May 31st, 9:00 - 12:00 pm
📋 27
#RWE #pediatric #oncology
As you make your #ASCO25 schedules, visit our poster on Pediatric #TGCT, an ultra-rare, under-recognized neoplasm in desperate need of progress. Pediatric TGCT mimics the adult form but lack the therapeutic advancement.
Sarcoma poster @ 9:00-12:00pm CDT on May 31st, 2025
@ascocancer.bsky.social
Sarcoma poster @ 9:00-12:00pm CDT on May 31st, 2025
@ascocancer.bsky.social
May 26, 2025 at 12:34 AM
As you make your #ASCO25 schedules, visit our poster on Pediatric #TGCT, an ultra-rare, under-recognized neoplasm in desperate need of progress. Pediatric TGCT mimics the adult form but lack the therapeutic advancement.
Sarcoma poster @ 9:00-12:00pm CDT on May 31st, 2025
@ascocancer.bsky.social
Sarcoma poster @ 9:00-12:00pm CDT on May 31st, 2025
@ascocancer.bsky.social
Check out Abstract #11544 👀 IKYKYK 👏🏻👏🏻 @ascocancer.bsky.social
The most clinically relevant science in oncology will be presented at #ASCO25, and you can now view the full 5,000 abstracts & their presentation date, time & location info: brnw.ch/21wSRrH
May 23, 2025 at 12:25 AM
Check out Abstract #11544 👀 IKYKYK 👏🏻👏🏻 @ascocancer.bsky.social
Sit back. Relax. And celebrate Cinco de Mayo by learning about our #TGCT registry:
youtu.be/flaM6eRCgd4?...
Read the paper here: www.tandfonline.com/doi/full/10....
youtu.be/flaM6eRCgd4?...
Read the paper here: www.tandfonline.com/doi/full/10....
TGCT Support's Patient Registry Overview
YouTube video by TGCT Support
youtu.be
May 6, 2025 at 12:14 AM
Sit back. Relax. And celebrate Cinco de Mayo by learning about our #TGCT registry:
youtu.be/flaM6eRCgd4?...
Read the paper here: www.tandfonline.com/doi/full/10....
youtu.be/flaM6eRCgd4?...
Read the paper here: www.tandfonline.com/doi/full/10....
We can cross Dr Bill Tap presenting our TGCT registry publication off our bucket list!!
Read it here: www.tandfonline.com/doi/full/10....
Read it here: www.tandfonline.com/doi/full/10....
April 11, 2025 at 6:00 PM
We can cross Dr Bill Tap presenting our TGCT registry publication off our bucket list!!
Read it here: www.tandfonline.com/doi/full/10....
Read it here: www.tandfonline.com/doi/full/10....
Reposted by Sydney Stern, PhD
SO SO excited to share some new collaborative work - a departure from the usual and especially close to my heart. As a patient it’s hugely empowering+rewarding to help inform treatment this awful rare disease www.tandfonline.com/doi/full/10....
Localized and diffuse tenosynovial giant cell tumor: real-world results from a patient observational registry
Tenosynovial Giant Cell Tumor (TGCT) is a rare, locally aggressive neoplasm that adversely impact patients’ physical function and quality of life (QoL). This cross-sectional analysis leverages real...
www.tandfonline.com
April 8, 2025 at 2:09 PM
SO SO excited to share some new collaborative work - a departure from the usual and especially close to my heart. As a patient it’s hugely empowering+rewarding to help inform treatment this awful rare disease www.tandfonline.com/doi/full/10....
Reposted by Sydney Stern, PhD
So amazing to be part of a patient community that’s so eager to contribute to research, and cool to work with coauthors who are care providers and deeply invested in patient outcomes. And of course grateful for our leader + advocate + fellow patient @stern-sydney.bsky.social and TGCT Support 🙌🙌
April 8, 2025 at 2:18 PM
So amazing to be part of a patient community that’s so eager to contribute to research, and cool to work with coauthors who are care providers and deeply invested in patient outcomes. And of course grateful for our leader + advocate + fellow patient @stern-sydney.bsky.social and TGCT Support 🙌🙌
I was asked what accomplishment I was most proud of recently 🥹 this. Learn more about the lived experience of #TGCT - from symptom onset, diagnosis, treatment, & thereafter. TGCT is a debilitating and impactful disease from the voice of patients. Read:
www.tandfonline.com/doi/full/10....
www.tandfonline.com/doi/full/10....
Localized and diffuse tenosynovial giant cell tumor: real-world results from a patient observational registry
Tenosynovial Giant Cell Tumor (TGCT) is a rare, locally aggressive neoplasm that adversely impact patients’ physical function and quality of life (QoL). This cross-sectional analysis leverages real...
www.tandfonline.com
April 8, 2025 at 12:39 PM
I was asked what accomplishment I was most proud of recently 🥹 this. Learn more about the lived experience of #TGCT - from symptom onset, diagnosis, treatment, & thereafter. TGCT is a debilitating and impactful disease from the voice of patients. Read:
www.tandfonline.com/doi/full/10....
www.tandfonline.com/doi/full/10....
Today, I received the plaque for my award back in November. It was a nice reminder that my efforts are appreciated.
Here’s to advancing rare disease research and to the FDA’s mission of protecting & promoting public health by ensuring the safety + efficacy of the medicines we all depend on. 🫶🏻
Here’s to advancing rare disease research and to the FDA’s mission of protecting & promoting public health by ensuring the safety + efficacy of the medicines we all depend on. 🫶🏻
March 27, 2025 at 8:26 PM
Today, I received the plaque for my award back in November. It was a nice reminder that my efforts are appreciated.
Here’s to advancing rare disease research and to the FDA’s mission of protecting & promoting public health by ensuring the safety + efficacy of the medicines we all depend on. 🫶🏻
Here’s to advancing rare disease research and to the FDA’s mission of protecting & promoting public health by ensuring the safety + efficacy of the medicines we all depend on. 🫶🏻
March 25, 2025 at 10:17 PM
To all the strong, resilient, and brilliant patients, caretakers, scientists, doctors, nurses who paved the way - happy #InternationalWomenDay
“I raise my voice - not so I can shout, but so that those without a voice can be heard” - Malala Youzafzai
“I raise my voice - not so I can shout, but so that those without a voice can be heard” - Malala Youzafzai
Science and medicine must reflect the people they serve. Representation matters. Happy International Women and Girls in Science Day and Happy Rare Disease Awareness Month 🧬🔬🥼 #internationalwomeninscienceday
March 8, 2025 at 9:38 PM
To all the strong, resilient, and brilliant patients, caretakers, scientists, doctors, nurses who paved the way - happy #InternationalWomenDay
“I raise my voice - not so I can shout, but so that those without a voice can be heard” - Malala Youzafzai
“I raise my voice - not so I can shout, but so that those without a voice can be heard” - Malala Youzafzai
Thank you so much @ascptclinpharm.bsky.social for raising awareness for both #RareDiseaseDay and our paper! Check it out below:
March 2, 2025 at 9:12 PM
Thank you so much @ascptclinpharm.bsky.social for raising awareness for both #RareDiseaseDay and our paper! Check it out below:
#RareDiseaseDay: 7,000+ rare diseases, ~95% lack treatments, 30% children never see their 5th birthday. GM1 & GM2 gangliosidosis are fatal with no approved therapy. Read our analysis on biomarker challenges & opportunities: ⬇️
🔗 ascpt.onlinelibrary.wiley.com/doi/full/10.11… #LightUpForRarere
🔗 ascpt.onlinelibrary.wiley.com/doi/full/10.11… #LightUpForRarere
February 28, 2025 at 12:50 PM
#RareDiseaseDay: 7,000+ rare diseases, ~95% lack treatments, 30% children never see their 5th birthday. GM1 & GM2 gangliosidosis are fatal with no approved therapy. Read our analysis on biomarker challenges & opportunities: ⬇️
🔗 ascpt.onlinelibrary.wiley.com/doi/full/10.11… #LightUpForRarere
🔗 ascpt.onlinelibrary.wiley.com/doi/full/10.11… #LightUpForRarere
Rare diseases may not always be visible. #TGCT is a good example of this! Many symptoms are only noticeable to the pt experiencing them.
For this #RareDiseaseDay, there are many deserving diseases to learn about. Take a moment to learn about TGCT at TGCTSupport.org 🫶🏻
For this #RareDiseaseDay, there are many deserving diseases to learn about. Take a moment to learn about TGCT at TGCTSupport.org 🫶🏻
February 14, 2025 at 3:09 PM
Rare diseases may not always be visible. #TGCT is a good example of this! Many symptoms are only noticeable to the pt experiencing them.
For this #RareDiseaseDay, there are many deserving diseases to learn about. Take a moment to learn about TGCT at TGCTSupport.org 🫶🏻
For this #RareDiseaseDay, there are many deserving diseases to learn about. Take a moment to learn about TGCT at TGCTSupport.org 🫶🏻
Science and medicine must reflect the people they serve. Representation matters. Happy International Women and Girls in Science Day and Happy Rare Disease Awareness Month 🧬🔬🥼 #internationalwomeninscienceday
February 11, 2025 at 9:35 PM
Science and medicine must reflect the people they serve. Representation matters. Happy International Women and Girls in Science Day and Happy Rare Disease Awareness Month 🧬🔬🥼 #internationalwomeninscienceday