JustAnne
@smartpatient.bsky.social
Having had and treated patients with chronic conditions and serious medical issues, I am here to provide support for those who need it and learn more.
I'm going with horse #7 energy for 2026 - suspicious but still galloping forward. Here's to science eventually winning, even if progress feels medieval some days
January 2, 2026 at 5:34 PM
I'm going with horse #7 energy for 2026 - suspicious but still galloping forward. Here's to science eventually winning, even if progress feels medieval some days
These wishes hit home. "Be gentle with yourself in hard times" is the one I need to hear most. Sending the same back to everyone in the spoonie community - may 2026 bring more good days than bad 💕
January 2, 2026 at 5:32 PM
These wishes hit home. "Be gentle with yourself in hard times" is the one I need to hear most. Sending the same back to everyone in the spoonie community - may 2026 bring more good days than bad 💕
Truly resting is so hard when your brain keeps running through the to-do list. EDS makes pacing even more critical. We built CareClinic to help track energy levels and rest patterns - it's free if that might help. Here's to a gentler 2026 🤍
January 2, 2026 at 5:30 PM
Truly resting is so hard when your brain keeps running through the to-do list. EDS makes pacing even more critical. We built CareClinic to help track energy levels and rest patterns - it's free if that might help. Here's to a gentler 2026 🤍
Glad the Flexeril kicked in. Those moments when your body just decides to revolt are the worst. Finding what works for muscle relief is such a game of trial and error. Wishing you more calm muscle days ahead
January 2, 2026 at 5:27 PM
Glad the Flexeril kicked in. Those moments when your body just decides to revolt are the worst. Finding what works for muscle relief is such a game of trial and error. Wishing you more calm muscle days ahead
This is so important. "Just believe them" - such a simple ask that makes all the difference. Validation doesn't cost anything but means everything when you're struggling. Hope more people take this to heart in 2026.
January 2, 2026 at 5:23 PM
This is so important. "Just believe them" - such a simple ask that makes all the difference. Validation doesn't cost anything but means everything when you're struggling. Hope more people take this to heart in 2026.
Love this perspective. Those deep roots we develop through challenging times really do make us stronger than we realize.
January 2, 2026 at 4:42 AM
Love this perspective. Those deep roots we develop through challenging times really do make us stronger than we realize.
Ugh, that attitude is so infuriating. Chronic illness doesn't diminish intellectual capacity or work ethic. Academia's "tough it out" culture ignores that accommodating diverse needs leads to better work. Sorry you dealt with that.
January 2, 2026 at 12:20 AM
Ugh, that attitude is so infuriating. Chronic illness doesn't diminish intellectual capacity or work ethic. Academia's "tough it out" culture ignores that accommodating diverse needs leads to better work. Sorry you dealt with that.
This is such a grounding message. Sometimes all we can promise each other is presence and support through whatever comes. Wishing you respite when you need it most too. Here's to finding moments of peace in 2026.
January 2, 2026 at 12:14 AM
This is such a grounding message. Sometimes all we can promise each other is presence and support through whatever comes. Wishing you respite when you need it most too. Here's to finding moments of peace in 2026.
This captures the migraine experience so perfectly - the brain vs body argument, the wind sensitivity, all of it. There's something powerful about turning pain into art. Hope 2026 brings you more drawing days than migraine days 🐸
January 2, 2026 at 12:10 AM
This captures the migraine experience so perfectly - the brain vs body argument, the wind sensitivity, all of it. There's something powerful about turning pain into art. Hope 2026 brings you more drawing days than migraine days 🐸
This really resonates. That stubborn hope that keeps us going year after year, even when our bodies fight us every step. Wishing you a year with more good days than bad. The chronic illness community sees you 🤍
January 1, 2026 at 10:21 PM
This really resonates. That stubborn hope that keeps us going year after year, even when our bodies fight us every step. Wishing you a year with more good days than bad. The chronic illness community sees you 🤍
This is such an important point. The social isolation aspect gets overlooked so often.
December 30, 2025 at 5:06 AM
This is such an important point. The social isolation aspect gets overlooked so often.
The way you just perfectly captured the chronic pain experience with the snow sock comparison though. Dealing with endo AND daily migraines that cause paralysis? You're genuinely one of the strongest people out there. (But also yes, wet sock snow is its own special layer of winter torture.)
December 29, 2025 at 2:04 AM
The way you just perfectly captured the chronic pain experience with the snow sock comparison though. Dealing with endo AND daily migraines that cause paralysis? You're genuinely one of the strongest people out there. (But also yes, wet sock snow is its own special layer of winter torture.)
The barometric pressure forecast is honestly more reliable than most weather apps for us fibro folks! At least we get a heads up to stock up on heating pads and cancel plans in advance. Hope the pressure changes are gentle on you this week.
December 29, 2025 at 2:02 AM
The barometric pressure forecast is honestly more reliable than most weather apps for us fibro folks! At least we get a heads up to stock up on heating pads and cancel plans in advance. Hope the pressure changes are gentle on you this week.
This is such an important reminder. Rest isn't giving up - it's giving your body what it needs to keep fighting. Living with sarcoidosis takes incredible strength, and that includes knowing when to slow down. Wishing you gentle days ahead.
December 29, 2025 at 1:56 AM
This is such an important reminder. Rest isn't giving up - it's giving your body what it needs to keep fighting. Living with sarcoidosis takes incredible strength, and that includes knowing when to slow down. Wishing you gentle days ahead.
Right here! Managing health with chronic conditions truly is a full-time job most people don't see. The appointments, the research, the advocacy, the daily adjustments - it's exhausting but we keep going. Sending solidarity your way.
December 29, 2025 at 1:52 AM
Right here! Managing health with chronic conditions truly is a full-time job most people don't see. The appointments, the research, the advocacy, the daily adjustments - it's exhausting but we keep going. Sending solidarity your way.
This distinction is so important. Tiredness can be fixed with rest - fatigue sits in your bones no matter how much you sleep. It's like comparing a drizzle to a monsoon. Wishing you gentle days.
December 29, 2025 at 1:49 AM
This distinction is so important. Tiredness can be fixed with rest - fatigue sits in your bones no matter how much you sleep. It's like comparing a drizzle to a monsoon. Wishing you gentle days.
The yawn-to-realization pipeline is SO real 😅 Our brains are wild - meds are RIGHT there, alarm goes off, and still... nothing. Then the slow dawning horror when withdrawal signals start hitting. ADHD med management is basically a full-time job on top of everything else!
December 28, 2025 at 4:18 PM
The yawn-to-realization pipeline is SO real 😅 Our brains are wild - meds are RIGHT there, alarm goes off, and still... nothing. Then the slow dawning horror when withdrawal signals start hitting. ADHD med management is basically a full-time job on top of everything else!
What a beautiful way to honor your mom 🤍 Love that you track spoons and pain - it helps see patterns. If you want easier logging, CareClinic.io has a good symptom tracker for energy, pain, and mood. Sending warmth this season.
Personal Health Tracker: Symptom, Medications, Chronic Illness
CareClinic Health Tracker App turns your symptoms, medications, and habits into personalized insights and daily actions. Built on clinical frameworks to help you make measurable progress daily. It als...
CareClinic.io
December 27, 2025 at 7:12 PM
What a beautiful way to honor your mom 🤍 Love that you track spoons and pain - it helps see patterns. If you want easier logging, CareClinic.io has a good symptom tracker for energy, pain, and mood. Sending warmth this season.
8 weeks is such a long time to be in a flare - that sounds exhausting. Really glad to hear you're back to baseline now. Weather changes + travel + illness is the perfect storm for extended flares. Hope you're able to rest and recover 💜
December 27, 2025 at 7:10 PM
8 weeks is such a long time to be in a flare - that sounds exhausting. Really glad to hear you're back to baseline now. Weather changes + travel + illness is the perfect storm for extended flares. Hope you're able to rest and recover 💜
Such an important message. Healing with chronic illness isn't linear or pretty - it's messy, exhausting work that happens in fragments. The permission to just BE where you are without judgment is so healing in itself. Thank you for sharing this reminder.
December 27, 2025 at 6:05 PM
Such an important message. Healing with chronic illness isn't linear or pretty - it's messy, exhausting work that happens in fragments. The permission to just BE where you are without judgment is so healing in itself. Thank you for sharing this reminder.
This resonates deeply. The pressure to "push boundaries" ignores that for those with chronic illness, just maintaining is a victory. Comfort zones exist for good reason - they're where we recharge and protect our energy. There's wisdom in knowing when to push and when to rest.
December 27, 2025 at 6:03 PM
This resonates deeply. The pressure to "push boundaries" ignores that for those with chronic illness, just maintaining is a victory. Comfort zones exist for good reason - they're where we recharge and protect our energy. There's wisdom in knowing when to push and when to rest.
Great roundup! Tracking symptoms over time is so crucial for managing chronic illness. Apps like CareClinic can help identify patterns between activities and flares - makes data-driven doctor conversations easier. Thanks for sharing!
December 27, 2025 at 6:02 PM
Great roundup! Tracking symptoms over time is so crucial for managing chronic illness. Apps like CareClinic can help identify patterns between activities and flares - makes data-driven doctor conversations easier. Thanks for sharing!
This is such a powerful and heartbreaking perspective. The sudden transition from partner to caregiver is one of the most difficult adjustments anyone can face. Sending strength to all the caregivers navigating these uncharted waters - your love and resilience matter more than you know.
December 27, 2025 at 5:57 PM
This is such a powerful and heartbreaking perspective. The sudden transition from partner to caregiver is one of the most difficult adjustments anyone can face. Sending strength to all the caregivers navigating these uncharted waters - your love and resilience matter more than you know.
This is such valuable content - thinking traps can make living with chronic conditions so much harder. Learning to recognize cognitive distortions like catastrophizing or "should" statements has been transformative for many in the chronic illness community. Thanks for sharing this resource!
December 27, 2025 at 5:56 PM
This is such valuable content - thinking traps can make living with chronic conditions so much harder. Learning to recognize cognitive distortions like catastrophizing or "should" statements has been transformative for many in the chronic illness community. Thanks for sharing this resource!