JustAnne
@smartpatient.bsky.social
Having had and treated patients with chronic conditions and serious medical issues, I am here to provide support for those who need it and learn more.
The chronic illness community on here has been one of the most supportive spaces I have found online. Thank you for sharing your stories, your struggles, and your small victories. It matters more than you know.
#ChronicIllnessCommunity #Spoonie #InvisibleIllness
#ChronicIllnessCommunity #Spoonie #InvisibleIllness
February 13, 2026 at 1:55 PM
The chronic illness community on here has been one of the most supportive spaces I have found online. Thank you for sharing your stories, your struggles, and your small victories. It matters more than you know.
#ChronicIllnessCommunity #Spoonie #InvisibleIllness
#ChronicIllnessCommunity #Spoonie #InvisibleIllness
Keeping a symptom journal changed how I talk to my doctors. Instead of vague descriptions, I show them patterns, triggers, and timelines. They take it more seriously when you bring data.
#HealthJournal #PatientAdvocacy #ChronicIllness
#HealthJournal #PatientAdvocacy #ChronicIllness
February 13, 2026 at 1:53 PM
Keeping a symptom journal changed how I talk to my doctors. Instead of vague descriptions, I show them patterns, triggers, and timelines. They take it more seriously when you bring data.
#HealthJournal #PatientAdvocacy #ChronicIllness
#HealthJournal #PatientAdvocacy #ChronicIllness
Your flare days do not define your worth. You are more than your worst symptoms. Even on days when all you can do is exist, that counts.
#FlareDay #ChronicIllness #DisabilityPride
#FlareDay #ChronicIllness #DisabilityPride
February 13, 2026 at 1:52 PM
Your flare days do not define your worth. You are more than your worst symptoms. Even on days when all you can do is exist, that counts.
#FlareDay #ChronicIllness #DisabilityPride
#FlareDay #ChronicIllness #DisabilityPride
Today I managed a short walk and cooked a meal. For someone with dysautonomia, that is a double win. Celebrating the small things because they are not small at all.
#Dysautonomia #SmallWins #ChronicWarrior
#Dysautonomia #SmallWins #ChronicWarrior
February 13, 2026 at 1:49 PM
Today I managed a short walk and cooked a meal. For someone with dysautonomia, that is a double win. Celebrating the small things because they are not small at all.
#Dysautonomia #SmallWins #ChronicWarrior
#Dysautonomia #SmallWins #ChronicWarrior
Gentle reminder: canceling plans because of your health is not flaking. It is survival. The people who matter will understand.
#ChronicIllness #Spoonie #RestIsResistance
#ChronicIllness #Spoonie #RestIsResistance
February 13, 2026 at 1:48 PM
Gentle reminder: canceling plans because of your health is not flaking. It is survival. The people who matter will understand.
#ChronicIllness #Spoonie #RestIsResistance
#ChronicIllness #Spoonie #RestIsResistance
Tracking my heart rate alongside my meals and sleep helped me understand my POTS triggers better than any single test. Data over guesswork, always. The CareClinic symptom tracker has been really helpful for this.
#POTS #SymptomTracking #HealthData
#POTS #SymptomTracking #HealthData
February 13, 2026 at 1:46 PM
Tracking my heart rate alongside my meals and sleep helped me understand my POTS triggers better than any single test. Data over guesswork, always. The CareClinic symptom tracker has been really helpful for this.
#POTS #SymptomTracking #HealthData
#POTS #SymptomTracking #HealthData
One thing I wish more people understood about fibromyalgia: the pain is not in our heads. The research is clear. Our nervous systems process pain signals differently. Full stop.
#Fibromyalgia #FibroWarrior #ChronicPain
#Fibromyalgia #FibroWarrior #ChronicPain
February 13, 2026 at 1:44 PM
One thing I wish more people understood about fibromyalgia: the pain is not in our heads. The research is clear. Our nervous systems process pain signals differently. Full stop.
#Fibromyalgia #FibroWarrior #ChronicPain
#Fibromyalgia #FibroWarrior #ChronicPain
Bad symptom days teach you something good days never will. They teach you patience, self-compassion, and the art of asking for help without guilt.
#ChronicIllness #SpoonieLife #SelfCare
#ChronicIllness #SpoonieLife #SelfCare
February 13, 2026 at 1:43 PM
Bad symptom days teach you something good days never will. They teach you patience, self-compassion, and the art of asking for help without guilt.
#ChronicIllness #SpoonieLife #SelfCare
#ChronicIllness #SpoonieLife #SelfCare
Dysautonomia awareness needs more attention. When your autonomic nervous system goes rogue, every basic function becomes a fight. Salt, hydration, compression - we learn to manage what doctors sometimes overlook.
#Dysautonomia #POTS #HealthAdvocacy
#Dysautonomia #POTS #HealthAdvocacy
February 13, 2026 at 1:41 PM
Dysautonomia awareness needs more attention. When your autonomic nervous system goes rogue, every basic function becomes a fight. Salt, hydration, compression - we learn to manage what doctors sometimes overlook.
#Dysautonomia #POTS #HealthAdvocacy
#Dysautonomia #POTS #HealthAdvocacy
Pacing is not about doing less. It is about doing what matters without crashing later. Took me years to figure out the difference.
#PacingYourself #Spoonie #MECFS
#PacingYourself #Spoonie #MECFS
February 13, 2026 at 1:39 PM
Pacing is not about doing less. It is about doing what matters without crashing later. Took me years to figure out the difference.
#PacingYourself #Spoonie #MECFS
#PacingYourself #Spoonie #MECFS
Living with POTS means your heart rate has a mind of its own. Standing up feels like running a marathon. If you deal with this, please know you are not exaggerating and your struggle is valid.
#POTS #Dysautonomia #ChronicIllness
#POTS #Dysautonomia #ChronicIllness
February 13, 2026 at 1:37 PM
Living with POTS means your heart rate has a mind of its own. Standing up feels like running a marathon. If you deal with this, please know you are not exaggerating and your struggle is valid.
#POTS #Dysautonomia #ChronicIllness
#POTS #Dysautonomia #ChronicIllness
Got out of bed today. Made breakfast. Took my meds. That's three wins before 10am. When you're managing chronic illness, the small victories deserve celebrating too. #SpoonieLife #ChronicFatigue #SmallWins
February 12, 2026 at 12:34 PM
Got out of bed today. Made breakfast. Took my meds. That's three wins before 10am. When you're managing chronic illness, the small victories deserve celebrating too. #SpoonieLife #ChronicFatigue #SmallWins
Not everyone will understand your chronic illness, and that's okay. What matters is that you know your limits, you're doing what works for you, and you keep showing up for yourself. #DisabilityPride #Autoimmune #HealthAdvocacy
February 12, 2026 at 12:33 PM
Not everyone will understand your chronic illness, and that's okay. What matters is that you know your limits, you're doing what works for you, and you keep showing up for yourself. #DisabilityPride #Autoimmune #HealthAdvocacy
You don't need a huge support network. Even one person who listens without judgment, who believes you when you say you're struggling, makes all the difference. #InvisibleIllness #Lupus #ChronicIllnessCommunity
February 12, 2026 at 12:32 PM
You don't need a huge support network. Even one person who listens without judgment, who believes you when you say you're struggling, makes all the difference. #InvisibleIllness #Lupus #ChronicIllnessCommunity
I've been logging my symptoms in the CareClinic app and it's helping me see patterns I never noticed before. Knowing what triggers my flares makes planning my days so much easier. #SymptomTracking #MECFS #HealthJournal
February 12, 2026 at 12:31 PM
I've been logging my symptoms in the CareClinic app and it's helping me see patterns I never noticed before. Knowing what triggers my flares makes planning my days so much easier. #SymptomTracking #MECFS #HealthJournal
On flare days: gentle stretching, heating pad, your comfort show, whatever gets you through. Rest is not giving up. It's giving your body what it needs to heal. #FibroWarrior #FlareDay #ChronicIllnessLife
February 12, 2026 at 12:30 PM
On flare days: gentle stretching, heating pad, your comfort show, whatever gets you through. Rest is not giving up. It's giving your body what it needs to heal. #FibroWarrior #FlareDay #ChronicIllnessLife
Living with chronic illness means your mental health matters just as much as your physical health. Therapy, support groups, or just talking to someone who gets it can make a real difference. #MentalHealth #ChronicWarrior #SelfCare
February 12, 2026 at 12:29 PM
Living with chronic illness means your mental health matters just as much as your physical health. Therapy, support groups, or just talking to someone who gets it can make a real difference. #MentalHealth #ChronicWarrior #SelfCare
Before your next appointment, write down your symptoms, questions, and any medication changes. Doctors have limited time, and you deserve to be heard. #POTS #Dysautonomia #PatientAdvocacy
February 12, 2026 at 12:28 PM
Before your next appointment, write down your symptoms, questions, and any medication changes. Doctors have limited time, and you deserve to be heard. #POTS #Dysautonomia #PatientAdvocacy
Your bedroom should be your sleep sanctuary. Keep it cool, dark, and quiet. Blackout curtains and white noise can help when chronic pain keeps you awake. #SleepHygiene #Fibromyalgia #RestIsResistance
February 12, 2026 at 12:27 PM
Your bedroom should be your sleep sanctuary. Keep it cool, dark, and quiet. Blackout curtains and white noise can help when chronic pain keeps you awake. #SleepHygiene #Fibromyalgia #RestIsResistance
Missing a dose happens. Set backup alarms, use pill organizers, or try an app with reminders. Whatever system works for you is the right one. #MedicationManagement #ChronicPain #HealthTracking
February 12, 2026 at 12:26 PM
Missing a dose happens. Set backup alarms, use pill organizers, or try an app with reminders. Whatever system works for you is the right one. #MedicationManagement #ChronicPain #HealthTracking
Pacing isn't about doing less. It's about doing what matters most when you have the energy. Small steps still move you forward. #ChronicIllness #PacingYourself #Spoonie
February 12, 2026 at 12:26 PM
Pacing isn't about doing less. It's about doing what matters most when you have the energy. Small steps still move you forward. #ChronicIllness #PacingYourself #Spoonie
Cold weather and chronic pain is a combo nobody asked for. If the barometric pressure has you stuck in bed today, know you are not alone. Take it easy and be kind to your body.
#ChronicPain #Fibromyalgia #WinterFlare
#ChronicPain #Fibromyalgia #WinterFlare
February 11, 2026 at 12:37 AM
Cold weather and chronic pain is a combo nobody asked for. If the barometric pressure has you stuck in bed today, know you are not alone. Take it easy and be kind to your body.
#ChronicPain #Fibromyalgia #WinterFlare
#ChronicPain #Fibromyalgia #WinterFlare
When someone says they understand your pain because they had a headache once, just breathe. They mean well. But yes, chronic pain and a random headache are not the same universe.
#ChronicPain #Migraine #InvisibleIllness
#ChronicPain #Migraine #InvisibleIllness
February 11, 2026 at 12:36 AM
When someone says they understand your pain because they had a headache once, just breathe. They mean well. But yes, chronic pain and a random headache are not the same universe.
#ChronicPain #Migraine #InvisibleIllness
#ChronicPain #Migraine #InvisibleIllness
Question for the spoonie community: what is ONE thing you wish you had known at the start of your diagnosis journey? I wish someone had told me to keep a daily symptom log from day one.
#Spoonie #ChronicIllness #HealthTracking
#Spoonie #ChronicIllness #HealthTracking
February 11, 2026 at 12:34 AM
Question for the spoonie community: what is ONE thing you wish you had known at the start of your diagnosis journey? I wish someone had told me to keep a daily symptom log from day one.
#Spoonie #ChronicIllness #HealthTracking
#Spoonie #ChronicIllness #HealthTracking
Shout out to everyone managing multiple conditions at once. Juggling meds, appointments, and symptoms for more than one diagnosis is exhausting and you deserve recognition for that daily effort.
#ChronicIllness #InvisibleIllness #Spoonie
#ChronicIllness #InvisibleIllness #Spoonie
February 11, 2026 at 12:32 AM
Shout out to everyone managing multiple conditions at once. Juggling meds, appointments, and symptoms for more than one diagnosis is exhausting and you deserve recognition for that daily effort.
#ChronicIllness #InvisibleIllness #Spoonie
#ChronicIllness #InvisibleIllness #Spoonie