@skmasters.bsky.social
Reposted
Because of our community, 2025 moved the field forward. Since 2012: $60M+ raised, 76 projects, 53 publications.
With just a few days left in 2025, will you consider making a gift? A year-end gift keeps research moving. Donate hope today👉 www.omf.ngo?form=donatenow
With just a few days left in 2025, will you consider making a gift? A year-end gift keeps research moving. Donate hope today👉 www.omf.ngo?form=donatenow
December 27, 2025 at 4:39 PM
Because of our community, 2025 moved the field forward. Since 2012: $60M+ raised, 76 projects, 53 publications.
With just a few days left in 2025, will you consider making a gift? A year-end gift keeps research moving. Donate hope today👉 www.omf.ngo?form=donatenow
With just a few days left in 2025, will you consider making a gift? A year-end gift keeps research moving. Donate hope today👉 www.omf.ngo?form=donatenow
Reposted
Devastating. Trump admin selling off historic public art to the highest bidder. "It is a tragic irony that murals meant to represent the contract between the government and its citizens would be sold to the highest bidder rather than preserved for posterity." www.alternet.org/trump-destro...
Trump admin selling off historic public art to the highest bidder
Painted figures haunt an empty building. A boy leaning on a pair of crutches. A father and son wandering a barren railroad track. A nuclear family at a picnic table. These poignant scenes were painted...
www.alternet.org
December 2, 2025 at 5:39 AM
Devastating. Trump admin selling off historic public art to the highest bidder. "It is a tragic irony that murals meant to represent the contract between the government and its citizens would be sold to the highest bidder rather than preserved for posterity." www.alternet.org/trump-destro...
Reposted
✨Last Chance to Triple Your Impact! In this interview, all of OMF’s Directors talk about how their overarching hypotheses of #MECFS might explain how symptoms look different in different people.
🔗 Watch now and support OMF's research: www.omf.ngo/interview-wi...
#GivingTuesday
🔗 Watch now and support OMF's research: www.omf.ngo/interview-wi...
#GivingTuesday
December 2, 2025 at 4:35 PM
✨Last Chance to Triple Your Impact! In this interview, all of OMF’s Directors talk about how their overarching hypotheses of #MECFS might explain how symptoms look different in different people.
🔗 Watch now and support OMF's research: www.omf.ngo/interview-wi...
#GivingTuesday
🔗 Watch now and support OMF's research: www.omf.ngo/interview-wi...
#GivingTuesday
Reposted
Giving Tuesday is coming up soon. 💙
This year, we’re rallying our community to help expand access to informed, compassionate care for people with ME/CFS and Long COVID.
More details coming soon, stay tuned.
This year, we’re rallying our community to help expand access to informed, compassionate care for people with ME/CFS and Long COVID.
More details coming soon, stay tuned.
November 30, 2025 at 7:18 PM
Giving Tuesday is coming up soon. 💙
This year, we’re rallying our community to help expand access to informed, compassionate care for people with ME/CFS and Long COVID.
More details coming soon, stay tuned.
This year, we’re rallying our community to help expand access to informed, compassionate care for people with ME/CFS and Long COVID.
More details coming soon, stay tuned.
Reposted
Only 48 hours left to make your gift count 3x ⏳✨
Triple Giving November is your chance to help accelerate research into #MECFS and #LongCOVID. Every donation is tripled through December 2 (up to $1M). There’s still time!
💙 Donate today: ow.ly/kUgC50XA0Mb
Triple Giving November is your chance to help accelerate research into #MECFS and #LongCOVID. Every donation is tripled through December 2 (up to $1M). There’s still time!
💙 Donate today: ow.ly/kUgC50XA0Mb
December 1, 2025 at 2:31 PM
Only 48 hours left to make your gift count 3x ⏳✨
Triple Giving November is your chance to help accelerate research into #MECFS and #LongCOVID. Every donation is tripled through December 2 (up to $1M). There’s still time!
💙 Donate today: ow.ly/kUgC50XA0Mb
Triple Giving November is your chance to help accelerate research into #MECFS and #LongCOVID. Every donation is tripled through December 2 (up to $1M). There’s still time!
💙 Donate today: ow.ly/kUgC50XA0Mb
Reposted
CHIPPING AWAY AT THE MYSTERIES OF #ME/CFS
Renowned geneticist has spent the past 12 years focused on the disease that has taken so much from his son
By Rachel Tompa
In @stanfordmedicine.bsky.social
@whitneydafoe.bsky.social
@janetdafoe.bsky.social
Renowned geneticist has spent the past 12 years focused on the disease that has taken so much from his son
By Rachel Tompa
In @stanfordmedicine.bsky.social
@whitneydafoe.bsky.social
@janetdafoe.bsky.social
Discover how Stanford Medicine is breaking the cycle of chronic diseases with innovative prevention, diagnostic and treatment approaches that empower people to thrive despite their chronic illnesses.
stan.md/46QRjAH
stan.md/46QRjAH
Innovations to help chronically ill people thrive
Stanford Medicine experts are developing innovative approaches to preventing, diagnosing and treating chronic diseases so people can live healthier lives.
stan.md
October 15, 2025 at 3:19 PM
CHIPPING AWAY AT THE MYSTERIES OF #ME/CFS
Renowned geneticist has spent the past 12 years focused on the disease that has taken so much from his son
By Rachel Tompa
In @stanfordmedicine.bsky.social
@whitneydafoe.bsky.social
@janetdafoe.bsky.social
Renowned geneticist has spent the past 12 years focused on the disease that has taken so much from his son
By Rachel Tompa
In @stanfordmedicine.bsky.social
@whitneydafoe.bsky.social
@janetdafoe.bsky.social
Reposted
Destruction of the White House East Wing began today. Here it is in better times with better residents.
October 20, 2025 at 8:09 PM
Destruction of the White House East Wing began today. Here it is in better times with better residents.
Reposted
This is precisely the kind of government coercion that the First Amendment was designed to prevent — and media companies need to start standing up rather than capitulating to it.
Washington Post Columnist Says She Was Fired for Posts After Charlie Kirk Shooting
www.nytimes.com
September 18, 2025 at 2:10 PM
This is precisely the kind of government coercion that the First Amendment was designed to prevent — and media companies need to start standing up rather than capitulating to it.
Reposted
Current and former federal workers: We understand you may be taking a risk in contacting us, and we take your confidentiality extremely seriously.
To collect tips, we use encrypted forms and apps, so messages cannot be read by anybody other than you and ProPublica.
Here's how to get in touch.
To collect tips, we use encrypted forms and apps, so messages cannot be read by anybody other than you and ProPublica.
Here's how to get in touch.
Do You Work For the Federal Government? ProPublica Wants To Hear From You.
We’re doubling down on our coverage of government agencies and federal policy. With your help, we can dig deeper.
www.propublica.org
September 1, 2025 at 1:01 PM
Current and former federal workers: We understand you may be taking a risk in contacting us, and we take your confidentiality extremely seriously.
To collect tips, we use encrypted forms and apps, so messages cannot be read by anybody other than you and ProPublica.
Here's how to get in touch.
To collect tips, we use encrypted forms and apps, so messages cannot be read by anybody other than you and ProPublica.
Here's how to get in touch.
Reposted
9 CDC Directors going back to 1977 speak out. What RFK Jr has done to our nation’s public health system "should alarm every American."
It "is unlike anything we have ever seen at the agency, and unlike anything our country has ever experienced." www.nytimes.com/2025/09/01/o...
It "is unlike anything we have ever seen at the agency, and unlike anything our country has ever experienced." www.nytimes.com/2025/09/01/o...
Opinion | We Ran the C.D.C.: Kennedy Is Endangering Every American’s Health
www.nytimes.com
September 1, 2025 at 11:23 AM
9 CDC Directors going back to 1977 speak out. What RFK Jr has done to our nation’s public health system "should alarm every American."
It "is unlike anything we have ever seen at the agency, and unlike anything our country has ever experienced." www.nytimes.com/2025/09/01/o...
It "is unlike anything we have ever seen at the agency, and unlike anything our country has ever experienced." www.nytimes.com/2025/09/01/o...
Reposted
Some Republicans have already publicly admitted they regret voting for massive health care cuts in the “Big, Ugly Bill.” On Health Care Day of Action, I’m asking you join me in urging GOP elected officials to reverse these cuts before it’s too late.
August 27, 2025 at 2:28 PM
Some Republicans have already publicly admitted they regret voting for massive health care cuts in the “Big, Ugly Bill.” On Health Care Day of Action, I’m asking you join me in urging GOP elected officials to reverse these cuts before it’s too late.
Reposted
From a Mother’s Love to a Global Movement: A Conversation with Linda Tannenbaum, OMF's Founder & CEO.
Led by Catarina Santos, co-produced by Joana Ferraz of Millions Missing Aliança—both mothers impacted by #MECFS & #LongCOVID.
Watch now👉 ow.ly/L1GL50WJxHW.
Led by Catarina Santos, co-produced by Joana Ferraz of Millions Missing Aliança—both mothers impacted by #MECFS & #LongCOVID.
Watch now👉 ow.ly/L1GL50WJxHW.
August 21, 2025 at 2:07 PM
From a Mother’s Love to a Global Movement: A Conversation with Linda Tannenbaum, OMF's Founder & CEO.
Led by Catarina Santos, co-produced by Joana Ferraz of Millions Missing Aliança—both mothers impacted by #MECFS & #LongCOVID.
Watch now👉 ow.ly/L1GL50WJxHW.
Led by Catarina Santos, co-produced by Joana Ferraz of Millions Missing Aliança—both mothers impacted by #MECFS & #LongCOVID.
Watch now👉 ow.ly/L1GL50WJxHW.
Reposted
From Brent's mom:
Brent worked with OMF. He is now severely ill and house-bound. He can’t read or write. He can barely communicate but wanted to share this message with other patients.
Brent worked with OMF. He is now severely ill and house-bound. He can’t read or write. He can barely communicate but wanted to share this message with other patients.
August 8, 2025 at 5:12 PM
From Brent's mom:
Brent worked with OMF. He is now severely ill and house-bound. He can’t read or write. He can barely communicate but wanted to share this message with other patients.
Brent worked with OMF. He is now severely ill and house-bound. He can’t read or write. He can barely communicate but wanted to share this message with other patients.
Yesterday, Aug. 8, was Severe ME/CFS Awareness day. This message from a young woman in Norway was posted on the Open Medicine Foundation site, and it echoes so beautifully the thoughts of my severely ill 38 yo son. His message to other patients is, "Don't give up."
www.omf.ngo/severe-me-cf...
www.omf.ngo/severe-me-cf...
Honoring Severe ME/CFS Awareness Day - Open Medicine Foundation
Honoring Severe ME/CFS Awareness Day: Recognizing the resilience of those with severe ME/CFS and raising awareness to support urgent research and care.
www.omf.ngo
August 9, 2025 at 11:16 AM
Yesterday, Aug. 8, was Severe ME/CFS Awareness day. This message from a young woman in Norway was posted on the Open Medicine Foundation site, and it echoes so beautifully the thoughts of my severely ill 38 yo son. His message to other patients is, "Don't give up."
www.omf.ngo/severe-me-cf...
www.omf.ngo/severe-me-cf...
Reposted
Holocaust Survivor Bernard Marks, 87 survivor of Auschwitz & Dachau confronting elected sheriff & I.C.E. Director
July 12, 2025 at 1:38 AM
Holocaust Survivor Bernard Marks, 87 survivor of Auschwitz & Dachau confronting elected sheriff & I.C.E. Director
Reposted
BREAKING: Scientists are staging a “science fair” in the lobby of a Congressional building to tell elected officials about the critical knowledge the US will lose because their research grants have been canceled.
July 8, 2025 at 3:31 PM
BREAKING: Scientists are staging a “science fair” in the lobby of a Congressional building to tell elected officials about the critical knowledge the US will lose because their research grants have been canceled.
Reposted
Mike's number is 202.224.5444. Tell him what YOU think.
Here's the whole list of senators. You have a right to call any senator not just your own.
Be vocal.
Be visible.
Be disruptive.
202.224.####
Use the last 4 digits in PHONE column
Here's the whole list of senators. You have a right to call any senator not just your own.
Be vocal.
Be visible.
Be disruptive.
202.224.####
Use the last 4 digits in PHONE column
June 17, 2025 at 1:38 AM
Mike's number is 202.224.5444. Tell him what YOU think.
Here's the whole list of senators. You have a right to call any senator not just your own.
Be vocal.
Be visible.
Be disruptive.
202.224.####
Use the last 4 digits in PHONE column
Here's the whole list of senators. You have a right to call any senator not just your own.
Be vocal.
Be visible.
Be disruptive.
202.224.####
Use the last 4 digits in PHONE column
Reposted
What happened to @padilla.senate.gov is an attempt to intimidate anyone with a dissenting view of this Administration and stop them from exercising their First Amendment rights. We will not be silenced.
youtu.be/7dNpkFlP0BQ
youtu.be/7dNpkFlP0BQ
DHS Assault of Senator Padilla is Unacceptable
YouTube video by Senator Kaine
youtu.be
June 12, 2025 at 8:56 PM
What happened to @padilla.senate.gov is an attempt to intimidate anyone with a dissenting view of this Administration and stop them from exercising their First Amendment rights. We will not be silenced.
youtu.be/7dNpkFlP0BQ
youtu.be/7dNpkFlP0BQ
Reposted
Not all resistance wears a bullhorn.
Some write letters.
Some carry water.
Some raise their voices.
Some raise the spirits.
Some paint banners, others hold them.
Every role matters.
This is a chorus, not a solo.
Show up how you can.
We need you all.
#Resist
Some write letters.
Some carry water.
Some raise their voices.
Some raise the spirits.
Some paint banners, others hold them.
Every role matters.
This is a chorus, not a solo.
Show up how you can.
We need you all.
#Resist
June 11, 2025 at 11:57 PM
Not all resistance wears a bullhorn.
Some write letters.
Some carry water.
Some raise their voices.
Some raise the spirits.
Some paint banners, others hold them.
Every role matters.
This is a chorus, not a solo.
Show up how you can.
We need you all.
#Resist
Some write letters.
Some carry water.
Some raise their voices.
Some raise the spirits.
Some paint banners, others hold them.
Every role matters.
This is a chorus, not a solo.
Show up how you can.
We need you all.
#Resist
This came up on a feed today. Thank you Ed Yong for this thorough and well-written article on ME/CFS and long COVID. Important to help people -especially medical professionals - understand about these very real and devastating conditions. www.theatlantic.com/health/archi...
Fatigue Can Shatter a Person
Everyday tiredness is nothing like the depleting symptom that people with long COVID and ME/CFS experience.
www.theatlantic.com
June 11, 2025 at 7:27 PM
This came up on a feed today. Thank you Ed Yong for this thorough and well-written article on ME/CFS and long COVID. Important to help people -especially medical professionals - understand about these very real and devastating conditions. www.theatlantic.com/health/archi...
Reposted
“No children are dying on my watch,” said Rubio. It's blatantly false. Credible estimates count 190K deaths so far.
In Kenya, I am seeing devastating impact, incl this child's starvation & many deaths directly caused by Rubio’s actions. More in my @msnbc.com clip. www.instagram.com/atul.gawande...
In Kenya, I am seeing devastating impact, incl this child's starvation & many deaths directly caused by Rubio’s actions. More in my @msnbc.com clip. www.instagram.com/atul.gawande...
Atul Gawande on Instagram: "“No children are dying on my watch,” said Rubio. It's blatantly false.
So far, 190,000 children and 90,000 adults have died due to the dismantling of USAID (even assuming...
9 likes, 0 comments - atul.gawande on May 24, 2025: "“No children are dying on my watch,” said Rubio. It's blatantly false.
So far, 190,000 children and 90,000 adults have died due to the dismantlin...
www.instagram.com
May 24, 2025 at 9:28 PM
“No children are dying on my watch,” said Rubio. It's blatantly false. Credible estimates count 190K deaths so far.
In Kenya, I am seeing devastating impact, incl this child's starvation & many deaths directly caused by Rubio’s actions. More in my @msnbc.com clip. www.instagram.com/atul.gawande...
In Kenya, I am seeing devastating impact, incl this child's starvation & many deaths directly caused by Rubio’s actions. More in my @msnbc.com clip. www.instagram.com/atul.gawande...
Reposted
At a time when it's easy to lose hope, we want to remind people that our dreams are still attainable. We are still united in the pursuit of good. And each of us is just one of a million others who also refuse to give up. So stay strong. You are not alone.
~Janis Ian
~Janis Ian
One In A Million (Live) - Janis Ian with Joan Baez
YouTube video by Janis Ian
youtu.be
May 18, 2025 at 4:55 PM
At a time when it's easy to lose hope, we want to remind people that our dreams are still attainable. We are still united in the pursuit of good. And each of us is just one of a million others who also refuse to give up. So stay strong. You are not alone.
~Janis Ian
~Janis Ian
Reposted
ER visits can be tough with ME/CFS & Long COVID. This popular MERC’s guide helps providers manage OI, MCAS, sensory concerns & more.
Download & share bit.ly/3AEsKoW
💙 Share to improve emergency care!
@openmedf.bsky.social #MERC #MECFS #LongCOVID #UrgentCare
Download & share bit.ly/3AEsKoW
💙 Share to improve emergency care!
@openmedf.bsky.social #MERC #MECFS #LongCOVID #UrgentCare
May 13, 2025 at 5:42 PM
ER visits can be tough with ME/CFS & Long COVID. This popular MERC’s guide helps providers manage OI, MCAS, sensory concerns & more.
Download & share bit.ly/3AEsKoW
💙 Share to improve emergency care!
@openmedf.bsky.social #MERC #MECFS #LongCOVID #UrgentCare
Download & share bit.ly/3AEsKoW
💙 Share to improve emergency care!
@openmedf.bsky.social #MERC #MECFS #LongCOVID #UrgentCare
Today is the #MillionsMissing protest in DC for ME/CFS. As caretaker for my grown son I witness daily how severe ME/CFS has stolen years of his life and taken him from those who love him . He would be thrilled to walk outside for 5 minutes, read a book, listen to music, cook, see friends again....
May 12, 2025 at 1:01 PM
Today is the #MillionsMissing protest in DC for ME/CFS. As caretaker for my grown son I witness daily how severe ME/CFS has stolen years of his life and taken him from those who love him . He would be thrilled to walk outside for 5 minutes, read a book, listen to music, cook, see friends again....
Reposted
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social
Invisible Illness - Stories of Chronic Fatigue Syndrome
YouTube video by Palo Alto Online
www.youtube.com
May 11, 2025 at 12:36 PM
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social