SHARE CTD
@sharectd.bsky.social
A European research network on "Sharing and Re-using clinical trial data to maximise impact."
#PeerOnSky Article 2! "Meta-analysis of individual participant data: rationale, conduct, and reporting" by Riley et al. (2010). IPD boosts power for subgroups and adjusts for confounders. Read: doi.org/10.1136/bmj.... What challenges do you face in IPD meta-analyses? #OpenScience #MetaAnalysis
Meta-analysis of individual participant data: rationale, conduct, and reporting
The use of individual participant data instead of aggregate data in meta-analyses has many potential advantages, both statistically and clinically. Richard D Riley and colleagues describe the rational...
doi.org
September 30, 2025 at 2:08 PM
#PeerOnSky Article 2! "Meta-analysis of individual participant data: rationale, conduct, and reporting" by Riley et al. (2010). IPD boosts power for subgroups and adjusts for confounders. Read: doi.org/10.1136/bmj.... What challenges do you face in IPD meta-analyses? #OpenScience #MetaAnalysis
A must read work from our network. 👍
"A New Hope: SHARE-CTD trilogy concludes with data reuse"
The @sharectd.bsky.social project concludes its "trilogy" with a guide to clinical trial data reuse. In this chapter, @giulia-varvar.bsky.social introduces principles to support effective data reuse.
restores.univ-rennes.fr/highlights/n...
The @sharectd.bsky.social project concludes its "trilogy" with a guide to clinical trial data reuse. In this chapter, @giulia-varvar.bsky.social introduces principles to support effective data reuse.
restores.univ-rennes.fr/highlights/n...
September 30, 2025 at 2:04 PM
A must read work from our network. 👍
🔬 #PeerOnSky starts! “Clinical Trial Participants’ Views of the Risks and Benefits of Data Sharing” by Mello et al. (2018). They found participants value data sharing for science, but worry about privacy breaches. A 2018 perspective still relevant today! Does this reflect current views? #DataEthics
August 18, 2025 at 11:03 AM
🔬 #PeerOnSky starts! “Clinical Trial Participants’ Views of the Risks and Benefits of Data Sharing” by Mello et al. (2018). They found participants value data sharing for science, but worry about privacy breaches. A 2018 perspective still relevant today! Does this reflect current views? #DataEthics
🎉 Hello all! Welcome to #PeerOnSky! It stands as 'Peer discussion on the Sky'. We will dive into cutting-edge research, sparking discussion on BlueSky using the articles discussed within our network. We’ll kick off with a 2018 gem on clinical trial data sharing. #OpenScience #Research #JournalClub
August 18, 2025 at 10:57 AM
🎉 Hello all! Welcome to #PeerOnSky! It stands as 'Peer discussion on the Sky'. We will dive into cutting-edge research, sparking discussion on BlueSky using the articles discussed within our network. We’ll kick off with a 2018 gem on clinical trial data sharing. #OpenScience #Research #JournalClub
a must read article for the week!
New paper in @jclinepi.bsky.social led by my super cool PhD student @kahin-tai.bsky.social with the SHARE-CTD (@sharectd.bsky.social) crew. It is the 2nd paper in a “JCE trilogy” on data sharing by SHARE-CTD: the 1st one addressed the topic in broad terms, and the third will focus on data reuse.
Key Concepts in Clinical Epidemiology: FAIRification of Biomedical Research Data
The FAIR guiding principles promote Findability, Accessibility, Interoperability,
and Reuse of data to enhance data management and stewardship. In biomedicine, particular
ethical, legal, and technical...
www.jclinepi.com
August 18, 2025 at 10:51 AM
a must read article for the week!
🌧️ Just wrapped Datathon1 at UMC Göttingen, from 07 to 11 July! Part of SHARE-CTD, this in-person event brought doctoral students, PIs, and lecturers together for clinical trials, biostats, and data mgmt. Check the Vibes! #SHARECTD #Datathon #Research #biostatistics
July 18, 2025 at 10:18 AM
🌧️ Just wrapped Datathon1 at UMC Göttingen, from 07 to 11 July! Part of SHARE-CTD, this in-person event brought doctoral students, PIs, and lecturers together for clinical trials, biostats, and data mgmt. Check the Vibes! #SHARECTD #Datathon #Research #biostatistics
💬 Participants deserve to know! This Trials paper (doi.org/10.1186/s130...) pushes for sharing clinical trial results with participants—because their contributions matter. From a patient’s view, it’s about respect & transparency. Let’s dive in! #ClinicalTrials #Transparency #ShareCTD
Sharing clinical trial results with participants: important, expected and possible - Trials
Participants in clinical trials should be pro-actively offered the results of trials in which they have participated. This should be done in a way that is accessible and understandable for all partici...
doi.org
June 2, 2025 at 11:16 AM
💬 Participants deserve to know! This Trials paper (doi.org/10.1186/s130...) pushes for sharing clinical trial results with participants—because their contributions matter. From a patient’s view, it’s about respect & transparency. Let’s dive in! #ClinicalTrials #Transparency #ShareCTD
🔬 New paper alert! BMC study (doi.org/10.1186/s128...) proposes 6 solutions target ethics, registries, & governance to tackles Germany’s clinical data sharing crisis. Only 2% of medical research shares data—time for change! Read on! #OpenScience #DataSharing #ShareCTD
May 30, 2025 at 2:52 PM
🔬 New paper alert! BMC study (doi.org/10.1186/s128...) proposes 6 solutions target ethics, registries, & governance to tackles Germany’s clinical data sharing crisis. Only 2% of medical research shares data—time for change! Read on! #OpenScience #DataSharing #ShareCTD
🔍 Fascinating read! This PLOS Biology paper uncovers misuse of the NHANES dataset by potential paper mills—raising red flags on shared data integrity. Not about trials, but a must-discuss for research ethics. Check it: journals.plos.org/plosbiology/... #ResearchEthics #DataIntegrity #OpenScience
Explosion of formulaic research articles, including inappropriate study designs and false discoveries, based on the NHANES US national health database
The combination of AI and national health databases offers opportunities, but may also be exploited by unethical agents. This study shows that there has been an explosion of formulaic research article...
journals.plos.org
May 21, 2025 at 12:09 PM
🔍 Fascinating read! This PLOS Biology paper uncovers misuse of the NHANES dataset by potential paper mills—raising red flags on shared data integrity. Not about trials, but a must-discuss for research ethics. Check it: journals.plos.org/plosbiology/... #ResearchEthics #DataIntegrity #OpenScience
🎉 Today’s the day! ICTD 2025 - Rethinking Clinical Trials: Inclusivity in Practice, co-hosted by ECRIN @ecrin.bsky.social & SCReN in Madrid. How do we turn talk into action for inclusive study design? Tune in online—registration & waitlist are full! ecrin.org/ictd-2025 #ICTD2025 #ClinicalTrials
May 20, 2025 at 9:09 AM
🎉 Today’s the day! ICTD 2025 - Rethinking Clinical Trials: Inclusivity in Practice, co-hosted by ECRIN @ecrin.bsky.social & SCReN in Madrid. How do we turn talk into action for inclusive study design? Tune in online—registration & waitlist are full! ecrin.org/ictd-2025 #ICTD2025 #ClinicalTrials
🎉 Big news for clinical research! SPIRIT2025 just dropped, adding an Open Science section & a new Item No. 6 on data sharing. This pushes transparency in trials—where & how de-identified data, code, & materials will be accessible. Check it: www.consort-spirit.org #OpenScience #ClinicalTrials
Home | consort-spirit.org
www.consort-spirit.org
May 19, 2025 at 2:58 PM
🎉 Big news for clinical research! SPIRIT2025 just dropped, adding an Open Science section & a new Item No. 6 on data sharing. This pushes transparency in trials—where & how de-identified data, code, & materials will be accessible. Check it: www.consort-spirit.org #OpenScience #ClinicalTrials
🎉 Kudos to Giulia @giulia-varvar.bsky.social for her speed talk at "Printemps de la Recherche" last Tuesday! She presented about SHARE-CTD, and her project on re-analysis of pivotal trials in Oncology, to Irset’s 350+ pros. A great moment to showcase open science in medicine!🔬
#SHARECTD #OpenScience
#SHARECTD #OpenScience
May 16, 2025 at 2:13 PM
🎉 Kudos to Giulia @giulia-varvar.bsky.social for her speed talk at "Printemps de la Recherche" last Tuesday! She presented about SHARE-CTD, and her project on re-analysis of pivotal trials in Oncology, to Irset’s 350+ pros. A great moment to showcase open science in medicine!🔬
#SHARECTD #OpenScience
#SHARECTD #OpenScience
🙌 Big props to our SHARE-CTD scientist featured in STAT News! His insights on boosting clinical trial transparency in France (only 57% results shared, 2012-2022) are key to open science. 🔬 #SHARECTD #OpenScience #ClinicalTrials #DataSharing
"French trial sponsors are urged to bolster clinical trial transparency": STAT News covers the recent French report urging that study results be published in a registry. I was very happy to be interviewed and provide some context.
French trial sponsors are urged to bolster clinical trial transparency
A French government working group recommended a sweeping plan to publicize study data and issue guidelines for reporting results on a timely basis.
www.statnews.com
May 16, 2025 at 1:42 PM
🙌 Big props to our SHARE-CTD scientist featured in STAT News! His insights on boosting clinical trial transparency in France (only 57% results shared, 2012-2022) are key to open science. 🔬 #SHARECTD #OpenScience #ClinicalTrials #DataSharing
For those of you who are interesed, please join and register
In partnership with RestoRes and Embrace, LORIER’s monthly webinars address key issues for reproducible health research, including data sharing, reproducibility, and meta-research. This series, starting in June 2025, features international experts.
restores.univ-rennes.fr/highlights/l...
restores.univ-rennes.fr/highlights/l...
May 14, 2025 at 1:09 PM
For those of you who are interesed, please join and register
💬 We want to hear from YOU.
Are you a:
👨🔬 Researcher?
👩⚕️ Clinician?
🧑💼 Policymaker?
🤔 Just curious?
This space is for discussing how data sharing can shape better healthcare.
We’ll keep you posted right here on Bluesky.
Follow us to stay involved. Let’s share!
#ScienceCommunication #DataSharing
Are you a:
👨🔬 Researcher?
👩⚕️ Clinician?
🧑💼 Policymaker?
🤔 Just curious?
This space is for discussing how data sharing can shape better healthcare.
We’ll keep you posted right here on Bluesky.
Follow us to stay involved. Let’s share!
#ScienceCommunication #DataSharing
May 5, 2025 at 10:59 AM
💬 We want to hear from YOU.
Are you a:
👨🔬 Researcher?
👩⚕️ Clinician?
🧑💼 Policymaker?
🤔 Just curious?
This space is for discussing how data sharing can shape better healthcare.
We’ll keep you posted right here on Bluesky.
Follow us to stay involved. Let’s share!
#ScienceCommunication #DataSharing
Are you a:
👨🔬 Researcher?
👩⚕️ Clinician?
🧑💼 Policymaker?
🤔 Just curious?
This space is for discussing how data sharing can shape better healthcare.
We’ll keep you posted right here on Bluesky.
Follow us to stay involved. Let’s share!
#ScienceCommunication #DataSharing
🔍 What is SHARE-CTD?
We’re a Marie Skłodowska-Curie Action (MSCA) doctoral network funded by the EU.
Our mission?
To train future experts in clinical trial data sharing, from regulation to ethics to advanced data science.
#ClinicalTrials #ResearchTraining #DoctoralNetwork
We’re a Marie Skłodowska-Curie Action (MSCA) doctoral network funded by the EU.
Our mission?
To train future experts in clinical trial data sharing, from regulation to ethics to advanced data science.
#ClinicalTrials #ResearchTraining #DoctoralNetwork
May 2, 2025 at 10:30 AM
🔍 What is SHARE-CTD?
We’re a Marie Skłodowska-Curie Action (MSCA) doctoral network funded by the EU.
Our mission?
To train future experts in clinical trial data sharing, from regulation to ethics to advanced data science.
#ClinicalTrials #ResearchTraining #DoctoralNetwork
We’re a Marie Skłodowska-Curie Action (MSCA) doctoral network funded by the EU.
Our mission?
To train future experts in clinical trial data sharing, from regulation to ethics to advanced data science.
#ClinicalTrials #ResearchTraining #DoctoralNetwork
Welcome to the official Bluesky account of SHARE-CTD!
We're a European research network dedicated to enhancing clinical trial data sharing to advance medical research and the betterment of society.
Learn more: share-ctd.eu
#SHARECTD #OpenScience #DataSharing
We're a European research network dedicated to enhancing clinical trial data sharing to advance medical research and the betterment of society.
Learn more: share-ctd.eu
#SHARECTD #OpenScience #DataSharing
NEWS
New article "The validation of prediction models deserves more recognition" published in BMC Medicine
2025.03.24
Begüm Irmak Ön and Ulrich M…
share-ctd.eu
May 2, 2025 at 10:16 AM
Welcome to the official Bluesky account of SHARE-CTD!
We're a European research network dedicated to enhancing clinical trial data sharing to advance medical research and the betterment of society.
Learn more: share-ctd.eu
#SHARECTD #OpenScience #DataSharing
We're a European research network dedicated to enhancing clinical trial data sharing to advance medical research and the betterment of society.
Learn more: share-ctd.eu
#SHARECTD #OpenScience #DataSharing