SHARE CTD
@sharectd.bsky.social
A European research network on "Sharing and Re-using clinical trial data to maximise impact."
We worked heavily on coding and biostats exercises, and balanced it out with 'rainy' BBQ evening, City tours, and German/Italian feasts. Datathon1 had it all! 😍Big thanks to the organisers and all participants! #hackathon #OpenScience #ClinicalResearch #biostatistics
July 18, 2025 at 10:26 AM
We worked heavily on coding and biostats exercises, and balanced it out with 'rainy' BBQ evening, City tours, and German/Italian feasts. Datathon1 had it all! 😍Big thanks to the organisers and all participants! #hackathon #OpenScience #ClinicalResearch #biostatistics
The paper @mrcctu.bsky.social offers 8 principles: proactively share results, give participants a choice, make it timely & accessible, involve patients in planning, and more. It’s a call to honor participants’ roles in research. So important for trust! #PatientVoice #OpenScience What do you think?
June 2, 2025 at 11:17 AM
The paper @mrcctu.bsky.social offers 8 principles: proactively share results, give participants a choice, make it timely & accessible, involve patients in planning, and more. It’s a call to honor participants’ roles in research. So important for trust! #PatientVoice #OpenScience What do you think?
We are optimistic about this momentum! What do you think—can these 6 steps transform data sharing in Germany or globally? Share your views or tag a colleague. @sharectd.bsky.social is here to discuss! #ResearchEthics #OpenAccess #ShareCTD #DataSharing
May 30, 2025 at 2:54 PM
We are optimistic about this momentum! What do you think—can these 6 steps transform data sharing in Germany or globally? Share your views or tag a colleague. @sharectd.bsky.social is here to discuss! #ResearchEthics #OpenAccess #ShareCTD #DataSharing
The paper highlights barriers: low sharing rates, GDPR uncertainty, & researcher liability. Solutions include integrating data sharing in ethics applications, mainstreaming consent, & creating data clearing offices. A step toward patient benefit! #ClinicalResearch #Transparency
May 30, 2025 at 2:52 PM
The paper highlights barriers: low sharing rates, GDPR uncertainty, & researcher liability. Solutions include integrating data sharing in ethics applications, mainstreaming consent, & creating data clearing offices. A step toward patient benefit! #ClinicalResearch #Transparency
What's your take on this, guys? @cburgwinkel.bsky.social @giulia-varvar.bsky.social @minoo-matbouriahi.bsky.social @obinwanne.bsky.social @gregpapapostolou.bsky.social
May 21, 2025 at 1:02 PM
What's your take on this, guys? @cburgwinkel.bsky.social @giulia-varvar.bsky.social @minoo-matbouriahi.bsky.social @obinwanne.bsky.social @gregpapapostolou.bsky.social
Huge thanks for the shoutout, @floriannaudet.bsky.social ! 📊 This Nature paper on anonymization in biomedical research is spot-on for our mission at SHARE-CTD. Balancing data sharing with privacy is key—any thoughts on best practices? @kahin-tai.bsky.social @jifanw.bsky.social @yazidoxx.bsky.social
May 21, 2025 at 12:56 PM
Huge thanks for the shoutout, @floriannaudet.bsky.social ! 📊 This Nature paper on anonymization in biomedical research is spot-on for our mission at SHARE-CTD. Balancing data sharing with privacy is key—any thoughts on best practices? @kahin-tai.bsky.social @jifanw.bsky.social @yazidoxx.bsky.social
We enjoyed it too, participating online though. Kudos to the committe and all participants!
May 21, 2025 at 12:52 PM
We enjoyed it too, participating online though. Kudos to the committe and all participants!
The study highlights how widely shared datasets like NHANES can be exploited. It is urging better oversight and that trust in data-sharing is key! What safeguards do you think we need? Drop your thoughts below or tag a colleague @plosbiology.org keen to hear your take! #SHARECTD #OpenData #Integrity
May 21, 2025 at 12:21 PM
The study highlights how widely shared datasets like NHANES can be exploited. It is urging better oversight and that trust in data-sharing is key! What safeguards do you think we need? Drop your thoughts below or tag a colleague @plosbiology.org keen to hear your take! #SHARECTD #OpenData #Integrity
What does this mean for researchers? Share your take! Will this checklist item (e.g., Item No. 6) change how you handle trial data? Let’s discuss—tag a colleague or drop your insights below. #ResearchCommunity #OpenAccess #ShareCTD #DataSharing #ClinicalResearch
May 19, 2025 at 3:01 PM
What does this mean for researchers? Share your take! Will this checklist item (e.g., Item No. 6) change how you handle trial data? Let’s discuss—tag a colleague or drop your insights below. #ResearchCommunity #OpenAccess #ShareCTD #DataSharing #ClinicalResearch
Why it matters: Only 57% of French trial results were shared (2012-2022, per STAT News). SPIRIT2025 & CONSORT2025 aim to fix this, aligning with SHARE-CTD’s mission. Better data sharing = reproducible science & public trust. What are your thoughts? #SHARECTD #DataSharing #OpenScience
May 19, 2025 at 2:59 PM
Why it matters: Only 57% of French trial results were shared (2012-2022, per STAT News). SPIRIT2025 & CONSORT2025 aim to fix this, aligning with SHARE-CTD’s mission. Better data sharing = reproducible science & public trust. What are your thoughts? #SHARECTD #DataSharing #OpenScience