Sarai Deese
@saraideese.bsky.social
UofSC alum Autistic autism researcher, hEDS advocate 🧚♀️ science communication, imp sci, & health literacy. A lover of information 🦋 ama: asylums, stained glass, southern history
Reposted by Sarai Deese
Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +) www.sedsconnective.org/post/connect...
Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +)
Emerging research is revealing strong links between neurodivergent conditions such as Autism, ADHD, Dyspraxia, Tourette's dyslexia and physical traits like joint hypermobility, Ehlers–Danlos syndromes...
www.sedsconnective.org
August 9, 2025 at 6:49 PM
Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +) www.sedsconnective.org/post/connect...
Reposted by Sarai Deese
Don’t let RFK Jr. reverse the progress we’ve worked so hard to achieve. Let’s keep up the momentum towards a world where autistic people can fully belong. From @mosaicofminds.bsky.social:
mosaicofmindss.substack.com/p/americans-... #autism #neurodiversity #autismAcceptance
mosaicofmindss.substack.com/p/americans-... #autism #neurodiversity #autismAcceptance
Public Responses to RFK Jr. Show How Americans’ Attitudes Toward Autism Have Transformed Since 2009
Americans now see autistic humans as people. Don’t let RFK Jr turn back the clock.
mosaicofmindss.substack.com
July 21, 2025 at 5:22 PM
Don’t let RFK Jr. reverse the progress we’ve worked so hard to achieve. Let’s keep up the momentum towards a world where autistic people can fully belong. From @mosaicofminds.bsky.social:
mosaicofmindss.substack.com/p/americans-... #autism #neurodiversity #autismAcceptance
mosaicofmindss.substack.com/p/americans-... #autism #neurodiversity #autismAcceptance
Reposted by Sarai Deese
Also, this badly threatens neurodivergent liberation.
Doubtless not the intent of these specific authors but this whole line of enquiry amounts to divide & conquer
Make autistic activists separate from those with co-occuring learning disability so that they cannot advocate for them.
Doubtless not the intent of these specific authors but this whole line of enquiry amounts to divide & conquer
Make autistic activists separate from those with co-occuring learning disability so that they cannot advocate for them.
www.nature.com/articles/s41... A big, well funded team tries to sort autistic people into four invented categories, based on 7 other invented categories. Based e.g. on past research that doesn't say what they allege it says. No inclusion of autistic people, discussion of ethics, human rights, etc.
Decomposition of phenotypic heterogeneity in autism reveals underlying genetic programs - Nature Genetics
Classes of autism are uncovered with a generative mixture modeling approach leveraging matched phenotypic and genetic data from a large cohort, revealing different genetic programs underlying their ph...
www.nature.com
July 17, 2025 at 8:19 AM
Also, this badly threatens neurodivergent liberation.
Doubtless not the intent of these specific authors but this whole line of enquiry amounts to divide & conquer
Make autistic activists separate from those with co-occuring learning disability so that they cannot advocate for them.
Doubtless not the intent of these specific authors but this whole line of enquiry amounts to divide & conquer
Make autistic activists separate from those with co-occuring learning disability so that they cannot advocate for them.
Reposted by Sarai Deese
July 11, 2025 at 8:33 PM
Reposted by Sarai Deese
Ethical autism representation "centres autistic voices, not just autistic stories. It avoids fear, pity, or inspiration tropes, and instead asks: What does support look like? What does respect look like? What barriers can we remove?" By Chelsea Verrette:
thebigsmoke.com.au/2025/07/07/a... #autism
thebigsmoke.com.au/2025/07/07/a... #autism
thebigsmoke.com.au
July 8, 2025 at 10:28 PM
Ethical autism representation "centres autistic voices, not just autistic stories. It avoids fear, pity, or inspiration tropes, and instead asks: What does support look like? What does respect look like? What barriers can we remove?" By Chelsea Verrette:
thebigsmoke.com.au/2025/07/07/a... #autism
thebigsmoke.com.au/2025/07/07/a... #autism
Reposted by Sarai Deese
Dads are spending 3-4x as much time with their kids as their dads did with them.
When father figures are engaged, kids show better cognitive development, boys have fewer behavioral problems, and girls have fewer emotional problems.
Every child deserves strong parental bonds.
When father figures are engaged, kids show better cognitive development, boys have fewer behavioral problems, and girls have fewer emotional problems.
Every child deserves strong parental bonds.
June 15, 2025 at 4:51 PM
Dads are spending 3-4x as much time with their kids as their dads did with them.
When father figures are engaged, kids show better cognitive development, boys have fewer behavioral problems, and girls have fewer emotional problems.
Every child deserves strong parental bonds.
When father figures are engaged, kids show better cognitive development, boys have fewer behavioral problems, and girls have fewer emotional problems.
Every child deserves strong parental bonds.
Reposted by Sarai Deese
Rescissions package passed by a single vote. Devastating but we fight on in the Senate. This cannot become law. Millions will die.
The House is voting on the rescissions package THIS THURSDAY.
Congress is considering devastating cuts to global health funding, including to PEPFAR and @unicef.org
More from @johngreensbluesky.bsky.social: www.youtube.com/watch?v=oJW2...
Check the thread on how you can take action today 👇
Congress is considering devastating cuts to global health funding, including to PEPFAR and @unicef.org
More from @johngreensbluesky.bsky.social: www.youtube.com/watch?v=oJW2...
Check the thread on how you can take action today 👇
90,000,000 Lives for $20
YouTube video by vlogbrothers
www.youtube.com
June 12, 2025 at 9:00 PM
Rescissions package passed by a single vote. Devastating but we fight on in the Senate. This cannot become law. Millions will die.
Reposted by Sarai Deese
From a colleague. Keep calling! It’s working!!!
“We’re hearing that because enough moderate Republicans in the House are telling Speaker Johnson they’re against PEPFAR cuts, the White House is going to amend the package. The pressure is working!!“
“We’re hearing that because enough moderate Republicans in the House are telling Speaker Johnson they’re against PEPFAR cuts, the White House is going to amend the package. The pressure is working!!“
The House is voting on the rescissions package THIS THURSDAY.
Congress is considering devastating cuts to global health funding, including to PEPFAR and @unicef.org
More from @johngreensbluesky.bsky.social: www.youtube.com/watch?v=oJW2...
Check the thread on how you can take action today 👇
Congress is considering devastating cuts to global health funding, including to PEPFAR and @unicef.org
More from @johngreensbluesky.bsky.social: www.youtube.com/watch?v=oJW2...
Check the thread on how you can take action today 👇
90,000,000 Lives for $20
YouTube video by vlogbrothers
www.youtube.com
June 10, 2025 at 10:53 PM
From a colleague. Keep calling! It’s working!!!
“We’re hearing that because enough moderate Republicans in the House are telling Speaker Johnson they’re against PEPFAR cuts, the White House is going to amend the package. The pressure is working!!“
“We’re hearing that because enough moderate Republicans in the House are telling Speaker Johnson they’re against PEPFAR cuts, the White House is going to amend the package. The pressure is working!!“
Reposted by Sarai Deese
On being a disabled parent: "When you care with an acceptance of limited capacity, it leaves us open for so much more joy, but also just so much honesty about the experiences we're actually having." -Jessica Slice, who has POTS:
www.npr.org/2025/05/31/n... #disabilty #parenting
www.npr.org/2025/05/31/n... #disabilty #parenting
A disabled mom's message to parents: We all need help, and it's OK to ask for it
Raising two kids while living with an autonomic nervous system disorder taught Jessica Slice to embrace interdependence. Her story is a reminder to parents of the power of asking for help.
www.npr.org
June 8, 2025 at 9:29 PM
On being a disabled parent: "When you care with an acceptance of limited capacity, it leaves us open for so much more joy, but also just so much honesty about the experiences we're actually having." -Jessica Slice, who has POTS:
www.npr.org/2025/05/31/n... #disabilty #parenting
www.npr.org/2025/05/31/n... #disabilty #parenting
Reposted by Sarai Deese
Very cool. This mirrors my anecdotal experiences too. Welcoming to our community really helps folks.
The welcome pack used is available here; reframingautism.org.au/service/welc...
Just having a browse of it myself. See what it covers & if it’s worth sharing with folks I know.
The welcome pack used is available here; reframingautism.org.au/service/welc...
Just having a browse of it myself. See what it covers & if it’s worth sharing with folks I know.
May 13, 2025 at 5:18 AM
Very cool. This mirrors my anecdotal experiences too. Welcoming to our community really helps folks.
The welcome pack used is available here; reframingautism.org.au/service/welc...
Just having a browse of it myself. See what it covers & if it’s worth sharing with folks I know.
The welcome pack used is available here; reframingautism.org.au/service/welc...
Just having a browse of it myself. See what it covers & if it’s worth sharing with folks I know.
Reposted by Sarai Deese
The highest compliment from someone who disagrees with you is not “You were right.” It’s “You made me think.”
Good arguments help us recognize complexity where we once saw simplicity.
The ultimate purpose of debate is not to produce consensus. It’s to promote critical thinking.
Good arguments help us recognize complexity where we once saw simplicity.
The ultimate purpose of debate is not to produce consensus. It’s to promote critical thinking.
January 29, 2025 at 1:58 PM
The highest compliment from someone who disagrees with you is not “You were right.” It’s “You made me think.”
Good arguments help us recognize complexity where we once saw simplicity.
The ultimate purpose of debate is not to produce consensus. It’s to promote critical thinking.
Good arguments help us recognize complexity where we once saw simplicity.
The ultimate purpose of debate is not to produce consensus. It’s to promote critical thinking.
Reposted by Sarai Deese
It’s not so soft tbh.
Maga’s era of ‘soft eugenics’: let the weak get sick, help the clever breed
Maga’s era of ‘soft eugenics’: let the weak get sick, help the clever breed
At the heart of all Trump administration policies is ‘soft eugenics’ thinking – the idea that if you take away life-saving services, then only the strong will survive
www.theguardian.com
May 5, 2025 at 2:15 AM
It’s not so soft tbh.