🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺
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sahara88uk.bsky.social
🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺
@sahara88uk.bsky.social
#HealthAdvocacy; #IBD #Ostomy #MentalHealth #ChronicPain #Fibro.
Healthcare Pt. Consultant.
IBDSuperHeroes Founder.
Find me: https://advocatinghealth.com/
🐝Pursuing calm ~ #Nature #Gardening #Plants #Yoga🧘
which until last week I thought was bird food only! This is hulled, whereas bird feed is not...

If you've any suggestions, I'm all ears 👂

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible ##InflammatoryBowelDisease
July 23, 2025 at 5:45 PM
Quite difficult to do when you have to avoid foods with insoluble fibre due to intestinal blockages!

Anyway, during the last few weeks I've been exploring different wholegrains and pulses - quinoa, red lentils, mung dal, and today, we have millet,
July 23, 2025 at 5:45 PM
Some of them have become like family to me, and I honestly don’t know what I’d do without them.

This is why I share. To raise awareness. To connect. To make the invisible a little more visible 💜

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness
June 29, 2025 at 8:36 AM
or manage complex health issues behind the scenes every single day.

But invisibility doesn’t mean insignificance.

And not all invisible things are difficult. There's a whole community of people who truly get it, who offer support, strength, humour, and compassion.
June 29, 2025 at 8:36 AM
how we socialise, sleep, and even how we show up in the world.

You can’t see #ChronicFatigue, pain, #BrainFog, nausea, or the daily disruptions that come with life after bowel disease. You probably wouldn’t guess I’ve had seven major abdominal surgeries, live with a #stoma,
June 29, 2025 at 8:36 AM
🫖 Herbal tea selection
💧 Oral rehydration solution tabs
🕯 Scented candle set
💎 Chakra aromatherapy bracelet

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate
June 26, 2025 at 1:20 PM
This is not a complaint, just a reminder that “everyday activities” often take extra everything when you live with #ChronicIllness.

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #IBDWarrior #CutTheCrap
June 25, 2025 at 2:13 PM
🧼 I have to thoroughly wash all the chlorine off my skin and scalp to avoid a #psoriasis flare and ensure quick hydration of the skin. Plus, I have to completely dry my #OstomyBag - because nobody wants a damp crotch situation.
June 25, 2025 at 2:13 PM
We sleep on an earthing sheet every night now, and honestly – we’d never go back.

If you’re curious, check out @getgrounded.bsky.social – they’ve got loads of great info and products to get started.

You can use code SAHARA10 at checkout for 10% off too 💜

#PatientAdvocate #IBDSuperHeroes
June 19, 2025 at 9:12 PM
The earth has a natural negative charge, and when we connect directly with it, our bodies can absorb those negative ions. Research has shown this can help reduce inflammation, support better sleep, ease pain, and even regulate cortisol levels (our stress hormone!).
June 19, 2025 at 9:10 PM
Reposted by 🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺
Totally see you too Sahara, it's hard not to think worse case scenario at the first twinge. I've had many blockages over the years, I drink lots to try to make things easier to pass (if only it was that simple). I've added new foods to my 'avoid' list lately too that have not been an issue before 😕
June 16, 2025 at 11:45 AM
💕 I'm sorry to hear that x
June 18, 2025 at 7:49 PM