🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺
@sahara88uk.bsky.social
#HealthAdvocacy; #IBD #Ostomy #MentalHealth #ChronicPain #Fibro.
Healthcare Pt. Consultant.
IBDSuperHeroes Founder.
Find me: https://advocatinghealth.com/
🐝Pursuing calm ~ #Nature #Gardening #Plants #Yoga🧘
Healthcare Pt. Consultant.
IBDSuperHeroes Founder.
Find me: https://advocatinghealth.com/
🐝Pursuing calm ~ #Nature #Gardening #Plants #Yoga🧘
Pinned
🔗 You can find me on other platforms linktr.ee/sahara88uk_ 🔗
Find all of my #PatientAdvocate articles about topics such as #InflammatoryBowelDisease, #Ostomy life, #ChronicPain, #MentalHealth etc on my website advocatinghealth.com 🌐
#IBDSuperHeroes #IBD #GI #CrohnsDisease #UlcerativeColitis
Find all of my #PatientAdvocate articles about topics such as #InflammatoryBowelDisease, #Ostomy life, #ChronicPain, #MentalHealth etc on my website advocatinghealth.com 🌐
#IBDSuperHeroes #IBD #GI #CrohnsDisease #UlcerativeColitis
Reposted by 🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺
#CrohnsAndColitisAwarenessWeek 💜
Ill for more than half her life, Lowri shows incredible resilience. She focuses on what she can control and makes the most of her good days.
#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
Ill for more than half her life, Lowri shows incredible resilience. She focuses on what she can control and makes the most of her good days.
#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
December 7, 2025 at 11:30 AM
#CrohnsAndColitisAwarenessWeek 💜
Ill for more than half her life, Lowri shows incredible resilience. She focuses on what she can control and makes the most of her good days.
#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
Ill for more than half her life, Lowri shows incredible resilience. She focuses on what she can control and makes the most of her good days.
#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
No Qs to answer today, so I’m going to tell you a story instead. One I imagine many of you will resonate with.
🎄 Christmas shopping in Liverpool the other day, I popped to the toilets to empty my bag. I empty my bag sat on the toilet.
🎄 Christmas shopping in Liverpool the other day, I popped to the toilets to empty my bag. I empty my bag sat on the toilet.
December 3, 2025 at 3:43 PM
No Qs to answer today, so I’m going to tell you a story instead. One I imagine many of you will resonate with.
🎄 Christmas shopping in Liverpool the other day, I popped to the toilets to empty my bag. I empty my bag sat on the toilet.
🎄 Christmas shopping in Liverpool the other day, I popped to the toilets to empty my bag. I empty my bag sat on the toilet.
This #CrohnsAndColitisAwarenessWeek, I am inviting questions from the #IBD community and beyond. I've always tried to be an open book, and that will never change. #AskMeAnything you want to know, in comments or via DM, and I'll answer them publicly 💜
December 1, 2025 at 11:25 AM
This #CrohnsAndColitisAwarenessWeek, I am inviting questions from the #IBD community and beyond. I've always tried to be an open book, and that will never change. #AskMeAnything you want to know, in comments or via DM, and I'll answer them publicly 💜
Reposted by 🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺
#IBDSuperHeroesMovement is on YouTube! 🧘♀️💪
Gentle, accessible classes created for the #IBD community. Join us: buff.ly/QCOrXEQ
#IBDSuperHeroes #YogaForIBD #ChronicIllnessYoga #OstomyYoga #AccessibleMovement #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
Gentle, accessible classes created for the #IBD community. Join us: buff.ly/QCOrXEQ
#IBDSuperHeroes #YogaForIBD #ChronicIllnessYoga #OstomyYoga #AccessibleMovement #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
October 18, 2025 at 3:13 PM
#IBDSuperHeroesMovement is on YouTube! 🧘♀️💪
Gentle, accessible classes created for the #IBD community. Join us: buff.ly/QCOrXEQ
#IBDSuperHeroes #YogaForIBD #ChronicIllnessYoga #OstomyYoga #AccessibleMovement #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
Gentle, accessible classes created for the #IBD community. Join us: buff.ly/QCOrXEQ
#IBDSuperHeroes #YogaForIBD #ChronicIllnessYoga #OstomyYoga #AccessibleMovement #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
Reposted by 🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺
🌍 Today on #WorldOstomyDay, we’re raising awareness of the diverse realities of living with a #stoma.
For some in our #IBD community, it’s life-saving, liberating, and brings relief. For others, it can feel overwhelming, isolating, or a reminder of what’s been lost. 💜
For some in our #IBD community, it’s life-saving, liberating, and brings relief. For others, it can feel overwhelming, isolating, or a reminder of what’s been lost. 💜
October 4, 2025 at 8:52 AM
🌍 Today on #WorldOstomyDay, we’re raising awareness of the diverse realities of living with a #stoma.
For some in our #IBD community, it’s life-saving, liberating, and brings relief. For others, it can feel overwhelming, isolating, or a reminder of what’s been lost. 💜
For some in our #IBD community, it’s life-saving, liberating, and brings relief. For others, it can feel overwhelming, isolating, or a reminder of what’s been lost. 💜
Reposted by 🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺
📣 NEW from #IBDSuperHeroes 💫
We’ve launched movement classes designed for people with #Crohns, #Colitis & #ChronicIllness.
These free videos are made to meet you where you are — no pressure, no expectations.
🎥 Available now on YouTube: tinyurl.com/IBDSHMove
#YogaForIBD #OstomyYoga #IBD
We’ve launched movement classes designed for people with #Crohns, #Colitis & #ChronicIllness.
These free videos are made to meet you where you are — no pressure, no expectations.
🎥 Available now on YouTube: tinyurl.com/IBDSHMove
#YogaForIBD #OstomyYoga #IBD
August 21, 2025 at 9:59 AM
📣 NEW from #IBDSuperHeroes 💫
We’ve launched movement classes designed for people with #Crohns, #Colitis & #ChronicIllness.
These free videos are made to meet you where you are — no pressure, no expectations.
🎥 Available now on YouTube: tinyurl.com/IBDSHMove
#YogaForIBD #OstomyYoga #IBD
We’ve launched movement classes designed for people with #Crohns, #Colitis & #ChronicIllness.
These free videos are made to meet you where you are — no pressure, no expectations.
🎥 Available now on YouTube: tinyurl.com/IBDSHMove
#YogaForIBD #OstomyYoga #IBD
4 months ago, I received a message alerting me that one of my old images had been "lifted" to create a meme... and then posted in "sick f*cks" Facebook group. Don't even get me started on why a group like that would exist 🙈
Anyway, h...https://www.instagram.com/p/DNdMIvdMieU/?igsh=YjJhOWxxNjEzcTJx
Anyway, h...https://www.instagram.com/p/DNdMIvdMieU/?igsh=YjJhOWxxNjEzcTJx
August 17, 2025 at 12:50 PM
4 months ago, I received a message alerting me that one of my old images had been "lifted" to create a meme... and then posted in "sick f*cks" Facebook group. Don't even get me started on why a group like that would exist 🙈
Anyway, h...https://www.instagram.com/p/DNdMIvdMieU/?igsh=YjJhOWxxNjEzcTJx
Anyway, h...https://www.instagram.com/p/DNdMIvdMieU/?igsh=YjJhOWxxNjEzcTJx
I realise I've been AWOL for a while. It's just life. It's been busy (by my standards). To most people, my life probably doesn't look busy, but #ChronicIllness means not having the same in the stores as "normal, healthy people." Every day, I weigh up... instagram.com/p/DNaxTihMSqQ/
August 16, 2025 at 2:14 PM
I realise I've been AWOL for a while. It's just life. It's been busy (by my standards). To most people, my life probably doesn't look busy, but #ChronicIllness means not having the same in the stores as "normal, healthy people." Every day, I weigh up... instagram.com/p/DNaxTihMSqQ/
Always learning 📖
Just last week, I learnt that cous cous is not a grain ❌️ It's actually durum wheat 🙈
I've been making some dietary changes. I mentioned my mission to increase my fibre intake in a previous post, due to the multitude of health benefits.
Just last week, I learnt that cous cous is not a grain ❌️ It's actually durum wheat 🙈
I've been making some dietary changes. I mentioned my mission to increase my fibre intake in a previous post, due to the multitude of health benefits.
July 23, 2025 at 5:45 PM
Always learning 📖
Just last week, I learnt that cous cous is not a grain ❌️ It's actually durum wheat 🙈
I've been making some dietary changes. I mentioned my mission to increase my fibre intake in a previous post, due to the multitude of health benefits.
Just last week, I learnt that cous cous is not a grain ❌️ It's actually durum wheat 🙈
I've been making some dietary changes. I mentioned my mission to increase my fibre intake in a previous post, due to the multitude of health benefits.
Happy #GuruPurnima to my friends and community who are always teaching me about resilience, strength, dignity, and survival.
Forever grateful for the wisdom we share 💜🙏
#IBD #IBDjourney #Crohns #Colitis
Forever grateful for the wisdom we share 💜🙏
#IBD #IBDjourney #Crohns #Colitis
💜 Today is #GuruPurnima - a day to thank those who guide us.
Living with #IBD often means leaning on others: doctors, friends, carers, or fellow patients. Their support matters.
Tag someone who’s helped you on your #IBDjourney and show some love today. 🙏💜
#Crohns #Colitis
Living with #IBD often means leaning on others: doctors, friends, carers, or fellow patients. Their support matters.
Tag someone who’s helped you on your #IBDjourney and show some love today. 🙏💜
#Crohns #Colitis
July 10, 2025 at 4:26 PM
Happy #GuruPurnima to my friends and community who are always teaching me about resilience, strength, dignity, and survival.
Forever grateful for the wisdom we share 💜🙏
#IBD #IBDjourney #Crohns #Colitis
Forever grateful for the wisdom we share 💜🙏
#IBD #IBDjourney #Crohns #Colitis
📸 It’s #GutSelfie time again with @gutscharityuk.bsky.social – and this year’s theme really hits home: #MakingTheInvisibleVisible.
So many of us live with invisible conditions that shape many different areas of our lives; how we eat, move, plan our days (or can’t plan them at all),
So many of us live with invisible conditions that shape many different areas of our lives; how we eat, move, plan our days (or can’t plan them at all),
June 29, 2025 at 8:36 AM
📸 It’s #GutSelfie time again with @gutscharityuk.bsky.social – and this year’s theme really hits home: #MakingTheInvisibleVisible.
So many of us live with invisible conditions that shape many different areas of our lives; how we eat, move, plan our days (or can’t plan them at all),
So many of us live with invisible conditions that shape many different areas of our lives; how we eat, move, plan our days (or can’t plan them at all),
A quickie of my latest #BotanicalSleeve 🌸💮🏵🌺🌻🌼🌷🪻 Not a rose or Lily in sight 😂
#Tattoo #TattooGirl #InkedLife #SleeveTattoo #TattooSleeve
#Tattoo #TattooGirl #InkedLife #SleeveTattoo #TattooSleeve
June 28, 2025 at 4:33 PM
A quickie of my latest #BotanicalSleeve 🌸💮🏵🌺🌻🌼🌷🪻 Not a rose or Lily in sight 😂
#Tattoo #TattooGirl #InkedLife #SleeveTattoo #TattooSleeve
#Tattoo #TattooGirl #InkedLife #SleeveTattoo #TattooSleeve
Final call to take part in my Instagram giveaway! Ends at midnight on June 30th!
Head to my Insta profile & the pinned post to take part www.instagram.com/sahara88uk_
Includes:
🧖♂️ 3 collagen face masks
🛌 Hyaluronic acid night cream/mask
📒 1 adult activity book
📖 1 things to do while you poo book
Head to my Insta profile & the pinned post to take part www.instagram.com/sahara88uk_
Includes:
🧖♂️ 3 collagen face masks
🛌 Hyaluronic acid night cream/mask
📒 1 adult activity book
📖 1 things to do while you poo book
June 26, 2025 at 1:20 PM
Final call to take part in my Instagram giveaway! Ends at midnight on June 30th!
Head to my Insta profile & the pinned post to take part www.instagram.com/sahara88uk_
Includes:
🧖♂️ 3 collagen face masks
🛌 Hyaluronic acid night cream/mask
📒 1 adult activity book
📖 1 things to do while you poo book
Head to my Insta profile & the pinned post to take part www.instagram.com/sahara88uk_
Includes:
🧖♂️ 3 collagen face masks
🛌 Hyaluronic acid night cream/mask
📒 1 adult activity book
📖 1 things to do while you poo book
Went to aquacise this morning and came away thinking about the fact that when you live with health challenges, everything seems to take that bit more time and effort. There’s no quick rinse after the pool for me.
June 25, 2025 at 2:13 PM
Went to aquacise this morning and came away thinking about the fact that when you live with health challenges, everything seems to take that bit more time and effort. There’s no quick rinse after the pool for me.
Saturday morning chores 💊
The joy, and reality, of #ChronicIllness life.
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate #Stoma #Ileostomy #Ostomy
The joy, and reality, of #ChronicIllness life.
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate #Stoma #Ileostomy #Ostomy
June 21, 2025 at 10:46 AM
Saturday morning chores 💊
The joy, and reality, of #ChronicIllness life.
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate #Stoma #Ileostomy #Ostomy
The joy, and reality, of #ChronicIllness life.
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate #Stoma #Ileostomy #Ostomy
#Grounding, also called #earthing, might look simple – just me with my bare feet on the earth – but there’s real science behind it 🌿⚡
Modern life tends to leave us positively charged – thanks to things like electronics and synthetic materials. Grounding helps rebalance that.
Modern life tends to leave us positively charged – thanks to things like electronics and synthetic materials. Grounding helps rebalance that.
June 19, 2025 at 9:10 PM
#Grounding, also called #earthing, might look simple – just me with my bare feet on the earth – but there’s real science behind it 🌿⚡
Modern life tends to leave us positively charged – thanks to things like electronics and synthetic materials. Grounding helps rebalance that.
Modern life tends to leave us positively charged – thanks to things like electronics and synthetic materials. Grounding helps rebalance that.
Reposted by 🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺
Totally see you too Sahara, it's hard not to think worse case scenario at the first twinge. I've had many blockages over the years, I drink lots to try to make things easier to pass (if only it was that simple). I've added new foods to my 'avoid' list lately too that have not been an issue before 😕
June 16, 2025 at 11:45 AM
Totally see you too Sahara, it's hard not to think worse case scenario at the first twinge. I've had many blockages over the years, I drink lots to try to make things easier to pass (if only it was that simple). I've added new foods to my 'avoid' list lately too that have not been an issue before 😕
🎁 GIVEAWAY REMINDER 🎁
In case you missed it, I’m running a #giveaway until 30 June to help rebuild my account after it was hacked.💜
📌 Check the pinned post on my profile to enter!
It takes 30 seconds and would really help spread the word as I try to rebuild this space 💬
In case you missed it, I’m running a #giveaway until 30 June to help rebuild my account after it was hacked.💜
📌 Check the pinned post on my profile to enter!
It takes 30 seconds and would really help spread the word as I try to rebuild this space 💬
June 18, 2025 at 7:44 PM
🎁 GIVEAWAY REMINDER 🎁
In case you missed it, I’m running a #giveaway until 30 June to help rebuild my account after it was hacked.💜
📌 Check the pinned post on my profile to enter!
It takes 30 seconds and would really help spread the word as I try to rebuild this space 💬
In case you missed it, I’m running a #giveaway until 30 June to help rebuild my account after it was hacked.💜
📌 Check the pinned post on my profile to enter!
It takes 30 seconds and would really help spread the word as I try to rebuild this space 💬
I’ve had more bowel obstructions than I can count.
They’re scary, painful, exhausting, and they’ve shaped how I eat, move, rest, and live 👎
I chew more thoroughly. I avoid certain foods. I’m constantly thinking about hydration, fibre, medication, and movement.
They’re scary, painful, exhausting, and they’ve shaped how I eat, move, rest, and live 👎
I chew more thoroughly. I avoid certain foods. I’m constantly thinking about hydration, fibre, medication, and movement.
June 16, 2025 at 9:58 AM
I’ve had more bowel obstructions than I can count.
They’re scary, painful, exhausting, and they’ve shaped how I eat, move, rest, and live 👎
I chew more thoroughly. I avoid certain foods. I’m constantly thinking about hydration, fibre, medication, and movement.
They’re scary, painful, exhausting, and they’ve shaped how I eat, move, rest, and live 👎
I chew more thoroughly. I avoid certain foods. I’m constantly thinking about hydration, fibre, medication, and movement.
I followed up on my gastro referral this morning and was told there’s an 11-month wait.
I’ve been referred back because my bowel obstructions have been getting more frequent and more severe.
The frustrating part? I didn’t even want to be discharged last year...
I’ve been referred back because my bowel obstructions have been getting more frequent and more severe.
The frustrating part? I didn’t even want to be discharged last year...
June 9, 2025 at 4:50 PM
I followed up on my gastro referral this morning and was told there’s an 11-month wait.
I’ve been referred back because my bowel obstructions have been getting more frequent and more severe.
The frustrating part? I didn’t even want to be discharged last year...
I’ve been referred back because my bowel obstructions have been getting more frequent and more severe.
The frustrating part? I didn’t even want to be discharged last year...
I used to think recovery was a straight line. You had the surgery, got through the flare, healed the wound — done. ✅️
But I’ve learned (the long way) that recovery is something I keep doing over and over again.
Every new complication. Every flare.
But I’ve learned (the long way) that recovery is something I keep doing over and over again.
Every new complication. Every flare.
June 9, 2025 at 9:24 AM
I used to think recovery was a straight line. You had the surgery, got through the flare, healed the wound — done. ✅️
But I’ve learned (the long way) that recovery is something I keep doing over and over again.
Every new complication. Every flare.
But I’ve learned (the long way) that recovery is something I keep doing over and over again.
Every new complication. Every flare.
When I first got diagnosed with #fibromyalgia, I thought I knew what pain was.
What I didn’t know was how much fear, stress, and past trauma can ramp everything up.
Learning about the #biopsychosocial model of pain changed everything.
I stopped blaming my body.
What I didn’t know was how much fear, stress, and past trauma can ramp everything up.
Learning about the #biopsychosocial model of pain changed everything.
I stopped blaming my body.
June 7, 2025 at 9:47 AM
When I first got diagnosed with #fibromyalgia, I thought I knew what pain was.
What I didn’t know was how much fear, stress, and past trauma can ramp everything up.
Learning about the #biopsychosocial model of pain changed everything.
I stopped blaming my body.
What I didn’t know was how much fear, stress, and past trauma can ramp everything up.
Learning about the #biopsychosocial model of pain changed everything.
I stopped blaming my body.
Reposted by 🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺
We're looking for ppl with a #stoma due to #IBD, aged 16-35, from Black, Asian, African or Caribbean backgrounds to help with our @nihrspcr.bsky.social Stoma Support Study 2
Please get in touch if interested, or pass this on 👇👇👇
@colostomyuk.bsky.social @sahara88uk.bsky.social
Please get in touch if interested, or pass this on 👇👇👇
@colostomyuk.bsky.social @sahara88uk.bsky.social
May 28, 2025 at 12:02 PM
We're looking for ppl with a #stoma due to #IBD, aged 16-35, from Black, Asian, African or Caribbean backgrounds to help with our @nihrspcr.bsky.social Stoma Support Study 2
Please get in touch if interested, or pass this on 👇👇👇
@colostomyuk.bsky.social @sahara88uk.bsky.social
Please get in touch if interested, or pass this on 👇👇👇
@colostomyuk.bsky.social @sahara88uk.bsky.social
I'm running an instagram GIVEAWAY to say thank you for all your love and support while I rebuild my account after being hacked last year! 💜 Head over to enter www.instagram.com/sahara88uk_
June 6, 2025 at 3:06 PM
I'm running an instagram GIVEAWAY to say thank you for all your love and support while I rebuild my account after being hacked last year! 💜 Head over to enter www.instagram.com/sahara88uk_
I don't think I ever got around to sharing my new insta after the hacking drama last year! If you haven't followed my new account yet, please do www.instagram.com/sahara88uk_ 🙏🏻 @sahara88uk_ ✨️
See you soon 💜
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis
See you soon 💜
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis
June 1, 2025 at 6:31 PM
I don't think I ever got around to sharing my new insta after the hacking drama last year! If you haven't followed my new account yet, please do www.instagram.com/sahara88uk_ 🙏🏻 @sahara88uk_ ✨️
See you soon 💜
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis
See you soon 💜
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis