Ros
@ros1704.bsky.social
💜 #Fibromyalgia #MECFS #Costochondritis #Endometriosis #Osteoathritis #Diverticulitis
#ChronicPain #InvisibleIllness
PRIOR TO DIAGNOSIS 🇬🇧
BDM @ XEROX 🟣 HMSO 🟣 CANON 🟣WHITBREAD
🐶 Daxie Mom 🐶
#ChronicPain #InvisibleIllness
PRIOR TO DIAGNOSIS 🇬🇧
BDM @ XEROX 🟣 HMSO 🟣 CANON 🟣WHITBREAD
🐶 Daxie Mom 🐶
Pinned
Reposted by Ros
Please sign and share if you can.
Emaciated Puppy Reportedly Trapped in Filthy Crates With 79 Others Deserves Swift Justice animalpetitions.org/1360813/emac...
Emaciated Puppy Reportedly Trapped in Filthy Crates With 79 Others Deserves Swift Justice animalpetitions.org/1360813/emac...
Emaciated Puppy Reportedly Trapped in Filthy Crates With 79 Others Deserves Swift Justice - Animal Petitions
Eighty dogs were reportedly crammed into stacked, waste-soaked crates. One puppy, Snowcone, reportedly left so emaciated she now needs lifesaving heart surgery. Demand full justice for these innocent ...
animalpetitions.org
July 22, 2025 at 8:19 AM
Please sign and share if you can.
Emaciated Puppy Reportedly Trapped in Filthy Crates With 79 Others Deserves Swift Justice animalpetitions.org/1360813/emac...
Emaciated Puppy Reportedly Trapped in Filthy Crates With 79 Others Deserves Swift Justice animalpetitions.org/1360813/emac...
Reposted by Ros
The poorest households in Slovenia and Malta are better off than the poorest in the UK.
UK has some of the least generous welfare across the OECD
Yet govts still push failed trickle-down policies, real cuts to wages and benefits, unchecked profiteering, oppose higher taxes on the rich.
UK has some of the least generous welfare across the OECD
Yet govts still push failed trickle-down policies, real cuts to wages and benefits, unchecked profiteering, oppose higher taxes on the rich.
UK Living Standards Review 2025 - NIESR
While some enjoy living standards comparable to the most prosperous regions of Europe, the poorest in the UK are now poorer than Slovenia and Malta.
niesr.ac.uk
July 22, 2025 at 9:08 AM
The poorest households in Slovenia and Malta are better off than the poorest in the UK.
UK has some of the least generous welfare across the OECD
Yet govts still push failed trickle-down policies, real cuts to wages and benefits, unchecked profiteering, oppose higher taxes on the rich.
UK has some of the least generous welfare across the OECD
Yet govts still push failed trickle-down policies, real cuts to wages and benefits, unchecked profiteering, oppose higher taxes on the rich.
Reposted by Ros
"I push myself to be normal & half an hour later I’m in bed wondering what the hell I was thinking. Pushing through & doubting what my own body was telling me is what made me so very ill in the 1st place.": buff.ly/6k6gD4J
by LauraChamberlain
#ChronicPain #ChronicIllness #doubt #NEisVoid #pacing
by LauraChamberlain
#ChronicPain #ChronicIllness #doubt #NEisVoid #pacing
When self-doubt makes you question your own illness - Laura's Pen
This is my story of how self-doubt of my illness nearly left my severe endometriosis undiagnosed and my chronic pain untreated
buff.ly
July 22, 2025 at 9:32 AM
"I push myself to be normal & half an hour later I’m in bed wondering what the hell I was thinking. Pushing through & doubting what my own body was telling me is what made me so very ill in the 1st place.": buff.ly/6k6gD4J
by LauraChamberlain
#ChronicPain #ChronicIllness #doubt #NEisVoid #pacing
by LauraChamberlain
#ChronicPain #ChronicIllness #doubt #NEisVoid #pacing
Reposted by Ros
How are they going to help?
By increasing the State Pension Age, which of course doesn't help at all.
Who will they blame, YOU.
By increasing the State Pension Age, which of course doesn't help at all.
Who will they blame, YOU.
July 22, 2025 at 11:04 AM
How are they going to help?
By increasing the State Pension Age, which of course doesn't help at all.
Who will they blame, YOU.
By increasing the State Pension Age, which of course doesn't help at all.
Who will they blame, YOU.
Reposted by Ros
If we stop paying the billionaires we will have enough to pay the Doctors, Disabled People, Pensioners, Disabled Children...
All their money comes from you, the Government could take all their profits if they wanted to.
I suggest we just stop them getting richer.
All their money comes from you, the Government could take all their profits if they wanted to.
I suggest we just stop them getting richer.
July 9, 2025 at 9:42 PM
If we stop paying the billionaires we will have enough to pay the Doctors, Disabled People, Pensioners, Disabled Children...
All their money comes from you, the Government could take all their profits if they wanted to.
I suggest we just stop them getting richer.
All their money comes from you, the Government could take all their profits if they wanted to.
I suggest we just stop them getting richer.
Reposted by Ros
US President Trump to Liberia President: "Such good English ... Where did you learn to speak so beautifully?"
Reply: "in Liberia".
English is the national language of Liberia. Its capital Monrovia is named after James Monroe, 5th US president.
What did Trump flunk at school/university?
Reply: "in Liberia".
English is the national language of Liberia. Its capital Monrovia is named after James Monroe, 5th US president.
What did Trump flunk at school/university?
Trump says the president of Liberia, where English is the official language, speaks 'such good English'
Trump made the remarks at a White House meeting with the leaders of several African nations. Many Liberians are the descendants of freed American slaves.
www.nbcnews.com
July 9, 2025 at 9:52 PM
US President Trump to Liberia President: "Such good English ... Where did you learn to speak so beautifully?"
Reply: "in Liberia".
English is the national language of Liberia. Its capital Monrovia is named after James Monroe, 5th US president.
What did Trump flunk at school/university?
Reply: "in Liberia".
English is the national language of Liberia. Its capital Monrovia is named after James Monroe, 5th US president.
What did Trump flunk at school/university?
Reposted by Ros
My latest story for @bylinetimes.bsky.social on how the government could use data analysis and AI to combat fraud and recoup the £6 billion lost on restoring cuts without having to raise taxes
🔴Fraud-Spotting Data Analytics and AI Could Close £6 Billion Black Hole In Government Finances
The technology has already recouped hundreds of millions of pounds and could be extended right across Government, according to a new report by the National Audit Office
bylinetimes.com/2025/07/09/f...
The technology has already recouped hundreds of millions of pounds and could be extended right across Government, according to a new report by the National Audit Office
bylinetimes.com/2025/07/09/f...
Fraud-Spotting Data Analytics and AI Could Close £6 Billion Black Hole In Government Finances
The technology has already recouped hundreds of millions of pounds and could be extended right across Government, according to a new report by the National Audit Office
bylinetimes.com
July 9, 2025 at 9:32 AM
My latest story for @bylinetimes.bsky.social on how the government could use data analysis and AI to combat fraud and recoup the £6 billion lost on restoring cuts without having to raise taxes
Reposted by Ros
Caroline Lucas criticises Labour's 1-in-1-out solution for small boat asylum seekers
She points out that before Brexit we could return asylum seekers to the EU, after Brexit we lost that agreement
She adds that we need a Europe wide solution, especially as the impact of climate change worsens
She points out that before Brexit we could return asylum seekers to the EU, after Brexit we lost that agreement
She adds that we need a Europe wide solution, especially as the impact of climate change worsens
July 9, 2025 at 10:15 PM
Caroline Lucas criticises Labour's 1-in-1-out solution for small boat asylum seekers
She points out that before Brexit we could return asylum seekers to the EU, after Brexit we lost that agreement
She adds that we need a Europe wide solution, especially as the impact of climate change worsens
She points out that before Brexit we could return asylum seekers to the EU, after Brexit we lost that agreement
She adds that we need a Europe wide solution, especially as the impact of climate change worsens
Reposted by Ros
"UK Welfare spending is too high."
UK Welfare Spending.
UK Welfare Spending.
July 7, 2025 at 2:45 PM
"UK Welfare spending is too high."
UK Welfare Spending.
UK Welfare Spending.
Reposted by Ros
I know many people are feeling suicidal tonight because the government has failed to hear us. It is a gut punch—but also not the time to do anything you can’t reverse. Nothing will change for you if you are on disability benefits from this Bill. You matter and we care about you. #BinUCBill
If you’re suicidal about benefits changes, please reach out to these numbers:
📞 Samaritans – 116 123 (24/7)
📞 CALM - 0800 58 58 58 (5pm-12)
📞 Mind – 0300 123 3393 (Mon-Fri, 9am-6pm)
📞 Papyrus – 0800 068 4141 (9am-midnight)
📞 Citizens Advice – 0800 144 8848
Text SHOUT to 85258 (24/7)
Jay 💜
📞 Samaritans – 116 123 (24/7)
📞 CALM - 0800 58 58 58 (5pm-12)
📞 Mind – 0300 123 3393 (Mon-Fri, 9am-6pm)
📞 Papyrus – 0800 068 4141 (9am-midnight)
📞 Citizens Advice – 0800 144 8848
Text SHOUT to 85258 (24/7)
Jay 💜
July 9, 2025 at 8:28 PM
I know many people are feeling suicidal tonight because the government has failed to hear us. It is a gut punch—but also not the time to do anything you can’t reverse. Nothing will change for you if you are on disability benefits from this Bill. You matter and we care about you. #BinUCBill
Reposted by Ros
I’m ashamed to live in a country that just passed a welfare bill condemning hundreds of thousands to deeper poverty and despair.
I’m ashamed of a Labour government that refused to work WITH disabled people to build a benefits system based on dignity, not punishment.
#BinUCBill
I’m ashamed of a Labour government that refused to work WITH disabled people to build a benefits system based on dignity, not punishment.
#BinUCBill
July 9, 2025 at 8:19 PM
I’m ashamed to live in a country that just passed a welfare bill condemning hundreds of thousands to deeper poverty and despair.
I’m ashamed of a Labour government that refused to work WITH disabled people to build a benefits system based on dignity, not punishment.
#BinUCBill
I’m ashamed of a Labour government that refused to work WITH disabled people to build a benefits system based on dignity, not punishment.
#BinUCBill
Reposted by Ros
EXCELLENT news! Government says no to Virgin Trains
Public ownership =
🛤️planning to benefit passengers
💰reinvesting profits for better services
Richard Branson had to be bailed out on the East Coast line in 2018!
Well done ORR + @transportgovuk.bsky.social 🎉🚄
www.telegraph.co.uk/business/202...
Public ownership =
🛤️planning to benefit passengers
💰reinvesting profits for better services
Richard Branson had to be bailed out on the East Coast line in 2018!
Well done ORR + @transportgovuk.bsky.social 🎉🚄
www.telegraph.co.uk/business/202...
Branson’s Virgin Trains revival blocked after government opposition
Application for relaunch rejected amid doubts about capacity and value to passengers and taxpayers
www.telegraph.co.uk
July 7, 2025 at 11:14 AM
EXCELLENT news! Government says no to Virgin Trains
Public ownership =
🛤️planning to benefit passengers
💰reinvesting profits for better services
Richard Branson had to be bailed out on the East Coast line in 2018!
Well done ORR + @transportgovuk.bsky.social 🎉🚄
www.telegraph.co.uk/business/202...
Public ownership =
🛤️planning to benefit passengers
💰reinvesting profits for better services
Richard Branson had to be bailed out on the East Coast line in 2018!
Well done ORR + @transportgovuk.bsky.social 🎉🚄
www.telegraph.co.uk/business/202...
Reposted by Ros
UK Government:
Publication of the long delayed Delivery Plan for ME/CFS has been delayed again. Advocacy group @thereforme.bsky.social give an update, saying they have been involved in the final stages and there is a plan, but no new funding.
substack.com/@karenlhargr...
#MEcfs #PwME #CFS
Publication of the long delayed Delivery Plan for ME/CFS has been delayed again. Advocacy group @thereforme.bsky.social give an update, saying they have been involved in the final stages and there is a plan, but no new funding.
substack.com/@karenlhargr...
#MEcfs #PwME #CFS
Campaign Update #22: Seeds of hope
We're chasing seeds of hope today despite some frustrating Delivery Plan news
substack.com
July 6, 2025 at 2:16 PM
UK Government:
Publication of the long delayed Delivery Plan for ME/CFS has been delayed again. Advocacy group @thereforme.bsky.social give an update, saying they have been involved in the final stages and there is a plan, but no new funding.
substack.com/@karenlhargr...
#MEcfs #PwME #CFS
Publication of the long delayed Delivery Plan for ME/CFS has been delayed again. Advocacy group @thereforme.bsky.social give an update, saying they have been involved in the final stages and there is a plan, but no new funding.
substack.com/@karenlhargr...
#MEcfs #PwME #CFS
Reposted by Ros
Dr Michelle Bull, one of the four @physiosforme.bsky.social gave a talk hosted by Sheffeld ME/CFS and FM group at their AGM. "Using national and international best practice to improve services locally with special mention of physiotherapy."
Duration 1 hour
www.youtube.com/watch?v=Y-M-...
Duration 1 hour
www.youtube.com/watch?v=Y-M-...
A talk from Dr Michelle Bull - Physios for ME
YouTube video by Sheffield ME & Fibromyalgia Group
www.youtube.com
July 6, 2025 at 2:23 PM
Dr Michelle Bull, one of the four @physiosforme.bsky.social gave a talk hosted by Sheffeld ME/CFS and FM group at their AGM. "Using national and international best practice to improve services locally with special mention of physiotherapy."
Duration 1 hour
www.youtube.com/watch?v=Y-M-...
Duration 1 hour
www.youtube.com/watch?v=Y-M-...
Reposted by Ros
As described in the latest Science for ME @scienceforme.bsky.social weekly update:
“The third article of a brilliant series bringing historical context and critical analysis of the psychosomatic approach to Long Covid and ME/CFS”
#MEcfs #LongCovid
“The third article of a brilliant series bringing historical context and critical analysis of the psychosomatic approach to Long Covid and ME/CFS”
#MEcfs #LongCovid
📬 New Article Drop
Part 3 of our Cognitive Therapies Series
We explore the:
🌱 Root theory of Sarno & its offspring
🚨 Danger-safety model
😵💫 The myth of being stuck in 'fight or flight'
💙 What a just model of mental health care could look like
www.longcovidadvoc.com/post/the-dan...
Part 3 of our Cognitive Therapies Series
We explore the:
🌱 Root theory of Sarno & its offspring
🚨 Danger-safety model
😵💫 The myth of being stuck in 'fight or flight'
💙 What a just model of mental health care could look like
www.longcovidadvoc.com/post/the-dan...
The Danger of ‘Feeling Safe’: Long Covid and the Return of Psychosomatic Medicine
Whilst brain re-training programs are more universally recognised as being problematic in Long Covid and ME, these other psychological approaches often fly under the radar. It is important that we…
www.longcovidadvoc.com
July 6, 2025 at 2:30 PM
As described in the latest Science for ME @scienceforme.bsky.social weekly update:
“The third article of a brilliant series bringing historical context and critical analysis of the psychosomatic approach to Long Covid and ME/CFS”
#MEcfs #LongCovid
“The third article of a brilliant series bringing historical context and critical analysis of the psychosomatic approach to Long Covid and ME/CFS”
#MEcfs #LongCovid
Reposted by Ros
I know everyone is exhausted, but if you can possibly bear it, please pop on this link, copy and paste the email, and get it sent to your MP today.
There’s a link here + MP address:
docs.google.com/document/d/e...
#BinUCBill
There’s a link here + MP address:
docs.google.com/document/d/e...
#BinUCBill
July 5, 2025 at 5:50 PM
I know everyone is exhausted, but if you can possibly bear it, please pop on this link, copy and paste the email, and get it sent to your MP today.
There’s a link here + MP address:
docs.google.com/document/d/e...
#BinUCBill
There’s a link here + MP address:
docs.google.com/document/d/e...
#BinUCBill
Reposted by Ros
#BinUCBill
Open letter from trade unionists to Secretary of State Liz Kendall over the deep concerns with the PIP & UC Bill link here
dpac.uk.net/2025/06/trad...
Open letter from trade unionists to Secretary of State Liz Kendall over the deep concerns with the PIP & UC Bill link here
dpac.uk.net/2025/06/trad...
Trade Unionists Against the Benefit Cuts open letter - DPAC
More than 500 trade unionists have signed a letter to the government opposing cuts to welfare and disability benefits.
dpac.uk.net
July 6, 2025 at 12:14 PM
#BinUCBill
Open letter from trade unionists to Secretary of State Liz Kendall over the deep concerns with the PIP & UC Bill link here
dpac.uk.net/2025/06/trad...
Open letter from trade unionists to Secretary of State Liz Kendall over the deep concerns with the PIP & UC Bill link here
dpac.uk.net/2025/06/trad...
Reposted by Ros
#BinUCBill
Email/lobby your MP ahead of the third reading of the UC Bill on Wednesday 9th July
How your MP voted on 2nd reading of the bill
Link here
www.independent.co.uk/news/uk/poli...
Email/lobby your MP ahead of the third reading of the UC Bill on Wednesday 9th July
How your MP voted on 2nd reading of the bill
Link here
www.independent.co.uk/news/uk/poli...
How your MP voted in Starmer’s welfare reforms
49 Labour MPs voted against the welfare cuts in what is believed to be the most significant rebellion of his premiership
www.independent.co.uk
July 5, 2025 at 8:40 PM
#BinUCBill
Email/lobby your MP ahead of the third reading of the UC Bill on Wednesday 9th July
How your MP voted on 2nd reading of the bill
Link here
www.independent.co.uk/news/uk/poli...
Email/lobby your MP ahead of the third reading of the UC Bill on Wednesday 9th July
How your MP voted on 2nd reading of the bill
Link here
www.independent.co.uk/news/uk/poli...
Reposted by Ros
#BinUCBill
📢Local Action Announcement
📢Organised by @dpacni.bsky.social
📢Bin UC Bill
📢Welfare Not Warfare
📢Wednesday 9th July 2025
📢12.30pm
📢Erskine House 20-32 Chichester Street Belfast BT1 4GF
Action supported by @nipsa.bsky.social
📢Local Action Announcement
📢Organised by @dpacni.bsky.social
📢Bin UC Bill
📢Welfare Not Warfare
📢Wednesday 9th July 2025
📢12.30pm
📢Erskine House 20-32 Chichester Street Belfast BT1 4GF
Action supported by @nipsa.bsky.social
July 6, 2025 at 9:59 AM
#BinUCBill
📢Local Action Announcement
📢Organised by @dpacni.bsky.social
📢Bin UC Bill
📢Welfare Not Warfare
📢Wednesday 9th July 2025
📢12.30pm
📢Erskine House 20-32 Chichester Street Belfast BT1 4GF
Action supported by @nipsa.bsky.social
📢Local Action Announcement
📢Organised by @dpacni.bsky.social
📢Bin UC Bill
📢Welfare Not Warfare
📢Wednesday 9th July 2025
📢12.30pm
📢Erskine House 20-32 Chichester Street Belfast BT1 4GF
Action supported by @nipsa.bsky.social
Reposted by Ros
#BinUCBill
DPAC sent a letter to Minister Stephen Timms listing the concerns we had regarding the PIP & UC bill
Here is his “response’ here
dpac.uk.net/2025/07/step...
DPAC sent a letter to Minister Stephen Timms listing the concerns we had regarding the PIP & UC bill
Here is his “response’ here
dpac.uk.net/2025/07/step...
Stephen Timms reply to DPAC letter - DPAC
Stephen Timms, the Minister of State for Social Security and Disability, has now replied to the letter from Disabled People Against Cuts sent three weeks ago.
dpac.uk.net
July 6, 2025 at 11:37 AM
#BinUCBill
DPAC sent a letter to Minister Stephen Timms listing the concerns we had regarding the PIP & UC bill
Here is his “response’ here
dpac.uk.net/2025/07/step...
DPAC sent a letter to Minister Stephen Timms listing the concerns we had regarding the PIP & UC bill
Here is his “response’ here
dpac.uk.net/2025/07/step...
Reposted by Ros
UK NICE: Clinical Knowledge Summary (CKS) on ME/CFS has been published. It summarises key points and provides guidance for clinicians:
cks.nice.org.uk/topics/myalg...
Science for ME forum discussion has raised significant issues with the document.
www.s4me.info/threads/nice...
#MEcfs #PwME #CFS
cks.nice.org.uk/topics/myalg...
Science for ME forum discussion has raised significant issues with the document.
www.s4me.info/threads/nice...
#MEcfs #PwME #CFS
CKS is only available in the UK
The NICE Clinical Knowledge Summary (CKS) site is only available to users in the UK, Crown Dependencies and British Overseas Territories
cks.nice.org.uk
July 6, 2025 at 2:12 PM
UK NICE: Clinical Knowledge Summary (CKS) on ME/CFS has been published. It summarises key points and provides guidance for clinicians:
cks.nice.org.uk/topics/myalg...
Science for ME forum discussion has raised significant issues with the document.
www.s4me.info/threads/nice...
#MEcfs #PwME #CFS
cks.nice.org.uk/topics/myalg...
Science for ME forum discussion has raised significant issues with the document.
www.s4me.info/threads/nice...
#MEcfs #PwME #CFS
Reposted by Ros
If your idea of greatness includes cages, cruelty, and repeating history’s darkest chapters, then congrats, mission accomplished.
And f*ck you!
And f*ck you!
July 2, 2025 at 9:05 PM
If your idea of greatness includes cages, cruelty, and repeating history’s darkest chapters, then congrats, mission accomplished.
And f*ck you!
And f*ck you!
Reposted by Ros
A remarkable piece of journalism.
I spent months on this investigation and gathered docs from the UK courts, Land Registry and a French local authority, to show that Raynor and Moth Winn's story is not as they claim. @tortoisemedia.bsky.social @observeruk.bsky.social
observer.co.uk/news/nationa...
observer.co.uk/news/nationa...
The real Salt Path: how the couple behind a bestseller le...
Penniless and homeless, the Winns found fame and fortune with the story of their 630-mile walk to salvation. We can reveal it was far from the truth
observer.co.uk
July 6, 2025 at 9:20 AM
A remarkable piece of journalism.
Reposted by Ros
The entire UK political/media narrative on welfare is that it is "burgeoning", "a burden" & "unsustainable". But how high is it compared to others? UK welfare at 10.8% of GDP in 2023 (including pensions). Finland spends 25.7% of GDP; France 23.8%: both double the UK.
July 6, 2025 at 8:44 AM
The entire UK political/media narrative on welfare is that it is "burgeoning", "a burden" & "unsustainable". But how high is it compared to others? UK welfare at 10.8% of GDP in 2023 (including pensions). Finland spends 25.7% of GDP; France 23.8%: both double the UK.