Rare Disease Research UK
49 followers
LightNews LightNews
Naomi
Naomi
@sianmichaela.bsky.social
naomi-by-the-sea.bsky.social
naomi-by-the-sea.bsky.social
@naomi-by-the-sea.bsky.social
APS Support UK
APS Support UK
@apssupportuk.bsky.social
albinoferret.bsky.social
albinoferret.bsky.social
@albinoferret.bsky.social
aendsley.bsky.social
aendsley.bsky.social
@aendsley.bsky.social
Kate Coldwell
Kate Coldwell
@katecoldwell.bsky.social
Leber's Congenital Amaurosis
Leber's Congenital Amaurosis
@ei-lca.bsky.social
Steven Tait
Steven Tait
@stevent8.bsky.social
CHANGE ECM MSCA Doctoral Network
CHANGE ECM MSCA Doctoral Network
@change-ecm.bsky.social
Pathfinders Neuromuscular Alliance
Pathfinders Neuromuscular Alliance
@pathfindersnma.bsky.social
Hannah May Scott
Hannah May Scott
@hannahmayscott.bsky.social
geneticallianceuk.bsky.social
geneticallianceuk.bsky.social
@geneticallianceuk.bsky.social
alexblakes.bsky.social
alexblakes.bsky.social
@alexblakes.bsky.social
Gavin Lingiah 🧬⚖️
Gavin Lingiah 🧬⚖️
@gav1nx.bsky.social
British Liver Trust
British Liver Trust
@britishlivertrust.bsky.social
Rupert Rivett
Rupert Rivett
@rupertrivett.bsky.social
aurelienjuven.bsky.social
aurelienjuven.bsky.social
@aurelienjuven.bsky.social
LifeArc
LifeArc
@lifearc.bsky.social
Cambridge Clinical Mitochondrial Research Group
Cambridge Clinical Mitochondrial Research Group
@mitocamb.bsky.social
European Journal of Human Genetics
European Journal of Human Genetics
@ejhg-journal.bsky.social
rachelfitz5.bsky.social
rachelfitz5.bsky.social
@rachelfitz5.bsky.social
Ian Stedman
Ian Stedman
@istedman.bsky.social
The PSP Association
The PSP Association
@pspassociation.bsky.social
EveryLife Foundation for Rare Diseases
EveryLife Foundation for Rare Diseases
@everylifeorg.bsky.social
Tom Wright
Tom Wright
@tomwrightuom.bsky.social
Emma Lake
@emmaladyofthelake.bsky.social
Rare Disease Clinical Trial Network
Rare Disease Clinical Trial Network
@rarediseasectn.bsky.social
n6
n6
@iconpcr.bsky.social
Children's Hyperinsulinism Charity UK and Ireland
Children's Hyperinsulinism Charity UK and Ireland
@chcharityuk.bsky.social
Zornitza Stark
Zornitza Stark
@zornitza.bsky.social
Kasia Pirog
Kasia Pirog
@kasiapirog.bsky.social
Cystic Fibrosis Trust
Cystic Fibrosis Trust
@cysticfibrosis.org.uk
Miranda Durkie
Miranda Durkie
@mirandadurkie.bsky.social
Exeter Rare Disease
Exeter Rare Disease
@rdexeter.bsky.social
Open Research and Public Engagement Roadmap
Open Research and Public Engagement Roadmap
@engagedroadmap.bsky.social
Mallory Freeberg
Mallory Freeberg
@malloryfreeberg.bsky.social
RAREvolution
RAREvolution
@rarevolution.bsky.social
www.MitoWorld.org
www.MitoWorld.org
@mitoworld.bsky.social
Health Research Charities Ireland
Health Research Charities Ireland
@hrci.bsky.social
Dr Maria O'Hanlon
Dr Maria O'Hanlon
@abioblog.bsky.social
James Lind Alliance
James Lind Alliance
@jameslindalliance.bsky.social
Angela Pyle
Angela Pyle
@angelapyle13.bsky.social
SCGE
SCGE
@scge.bsky.social
Jillian C. Banfield
Jillian C. Banfield
@jillianengages.bsky.social
Navin B. Ramakrishna
Navin B. Ramakrishna
@navinbr.bsky.social
Eva Bensasson
Eva Bensasson
@evabensasson.bsky.social
The Research and Development Forum
The Research and Development Forum
@therdforum.bsky.social
Jillian Hastings Ward
Jillian Hastings Ward
@jillianhw.bsky.social