Leber's Congenital Amaurosis
@ei-lca.bsky.social
E&ILCA's main focus is global liaising for genetically caused blindness. E&ILCA initiates and fosters vast networks of top life-science clusters and most influential groups.
@dubaieye.bsky.social #LCA10 #blindness #RNA #WRDD2026
@fnr.lu @middleeasteye-rss.bsky.social @iowalionseyebank.bsky.social @eye-tuebingen.bsky.social @newseye.bsky.social
Find more and read on (www.ei-lca.com)
@fnr.lu @middleeasteye-rss.bsky.social @iowalionseyebank.bsky.social @eye-tuebingen.bsky.social @newseye.bsky.social
Find more and read on (www.ei-lca.com)
November 25, 2025 at 7:02 AM
@dubaieye.bsky.social #LCA10 #blindness #RNA #WRDD2026
@fnr.lu @middleeasteye-rss.bsky.social @iowalionseyebank.bsky.social @eye-tuebingen.bsky.social @newseye.bsky.social
Find more and read on (www.ei-lca.com)
@fnr.lu @middleeasteye-rss.bsky.social @iowalionseyebank.bsky.social @eye-tuebingen.bsky.social @newseye.bsky.social
Find more and read on (www.ei-lca.com)
29th Feb, 2026. #ZebraTales #CareAboutRare. @globalgenes.bsky.social
" The Shadow on the Eye" is a heart-stirring story that masterfully weaves two compelling threads: a tender exploration of multi-generational family bonds & an urgent, high-stakes scientific journey to cure LCA10
Read @ ei-lca.com
" The Shadow on the Eye" is a heart-stirring story that masterfully weaves two compelling threads: a tender exploration of multi-generational family bonds & an urgent, high-stakes scientific journey to cure LCA10
Read @ ei-lca.com
November 4, 2025 at 10:03 AM
29th Feb, 2026. #ZebraTales #CareAboutRare. @globalgenes.bsky.social
" The Shadow on the Eye" is a heart-stirring story that masterfully weaves two compelling threads: a tender exploration of multi-generational family bonds & an urgent, high-stakes scientific journey to cure LCA10
Read @ ei-lca.com
" The Shadow on the Eye" is a heart-stirring story that masterfully weaves two compelling threads: a tender exploration of multi-generational family bonds & an urgent, high-stakes scientific journey to cure LCA10
Read @ ei-lca.com
Leber Congenital Amaurosis Market Report 2025-2034: Industry Overview, Trends, And Forecast Analysis
04-25-2025
www.openpr.com/news/3987464...
04-25-2025
www.openpr.com/news/3987464...
Leber Congenital Amaurosis Market Report 2025-2034: Industry Overview, Trends, And Forecast Analysis
The Leber Congenital Amaurosis Market Report by The Business Research Company delivers a detailed market assessment covering size projections from 2025 to 2034 This report explores crucial market tren...
www.openpr.com
August 27, 2025 at 6:51 AM
Leber Congenital Amaurosis Market Report 2025-2034: Industry Overview, Trends, And Forecast Analysis
04-25-2025
www.openpr.com/news/3987464...
04-25-2025
www.openpr.com/news/3987464...
September 16 & 17, 2025; Copenhagen, Denmark
nordicrarediseasesummit.org#ABODesire
Nordic Rare Disease Summit 2025
Act 2030: Pushing Boundaries for Rare
#RareDisease #lca10
nordicrarediseasesummit.org#ABODesire
Nordic Rare Disease Summit 2025
Act 2030: Pushing Boundaries for Rare
#RareDisease #lca10
Nordic Rare Disease Summit 2025
Act 2030: Pushing Boundaries for Rare - 16 & 17 September, Copenhagen
nordicrarediseasesummit.org
August 16, 2025 at 11:27 AM
September 16 & 17, 2025; Copenhagen, Denmark
nordicrarediseasesummit.org#ABODesire
Nordic Rare Disease Summit 2025
Act 2030: Pushing Boundaries for Rare
#RareDisease #lca10
nordicrarediseasesummit.org#ABODesire
Nordic Rare Disease Summit 2025
Act 2030: Pushing Boundaries for Rare
#RareDisease #lca10
The FDA has granted its Rare Pediatric Disease designation to Opus Genetics’s OPGx-LCA5
www.ophthalmologymanagement.com/news/2024/op...
www.ophthalmologymanagement.com/news/2024/op...
Opus Genetics Wins Rare Pediatric Disease designation from FDA
Conexiant Vision: Delivering trusted clinical content, deep audience engagement, and educational resources for eye care professionals. Discover more through our magazines, newsletters, and events.
www.ophthalmologymanagement.com
July 29, 2025 at 10:07 AM
The FDA has granted its Rare Pediatric Disease designation to Opus Genetics’s OPGx-LCA5
www.ophthalmologymanagement.com/news/2024/op...
www.ophthalmologymanagement.com/news/2024/op...
Register for the virtual experience. Stream convention general sessions, access the app, and get a chance to win door prizes.
July 8 through 13, 2025, plus pre-convention activities!
nfb.org/get-involved...
@fightblindness.bsky.social @riccobono.bsky.social #LCA10 #RareDisease #blindness
July 8 through 13, 2025, plus pre-convention activities!
nfb.org/get-involved...
@fightblindness.bsky.social @riccobono.bsky.social #LCA10 #RareDisease #blindness
National Convention Virtual Experience | National Federation of the Blind
Unable to attend convention in-person? Register for the virtual experience. Stream convention general sessions, access the app, and get a chance to win door prizes.
nfb.org
July 11, 2025 at 7:28 AM
Register for the virtual experience. Stream convention general sessions, access the app, and get a chance to win door prizes.
July 8 through 13, 2025, plus pre-convention activities!
nfb.org/get-involved...
@fightblindness.bsky.social @riccobono.bsky.social #LCA10 #RareDisease #blindness
July 8 through 13, 2025, plus pre-convention activities!
nfb.org/get-involved...
@fightblindness.bsky.social @riccobono.bsky.social #LCA10 #RareDisease #blindness
canadianrdn.ca/event/canair...
July 19th, Hybrid Workshop.
This workshop will co-design resources to support patients and families navigating the era of AI in medicine! The workshop is open to all and we welcome youth, adults, and families
@rnibradio.bsky.social #RareDisease #blindness
July 19th, Hybrid Workshop.
This workshop will co-design resources to support patients and families navigating the era of AI in medicine! The workshop is open to all and we welcome youth, adults, and families
@rnibradio.bsky.social #RareDisease #blindness
CANAIRI Co-Design Workshop - Canadian Rare Disease Network
This workshop will co-design resources to support patients and families navigating the era of AI in medicine! The workshop is open to all and we welcome youth, adults, and families!
canadianrdn.ca
June 29, 2025 at 3:02 PM
canadianrdn.ca/event/canair...
July 19th, Hybrid Workshop.
This workshop will co-design resources to support patients and families navigating the era of AI in medicine! The workshop is open to all and we welcome youth, adults, and families
@rnibradio.bsky.social #RareDisease #blindness
July 19th, Hybrid Workshop.
This workshop will co-design resources to support patients and families navigating the era of AI in medicine! The workshop is open to all and we welcome youth, adults, and families
@rnibradio.bsky.social #RareDisease #blindness
Wednesday, June 25th, 2025, 7:00 p.m. – 8:30 p.m. (PDT)
Presentation by Dr. Jacque Duncan from UCSF
www.fightingblindness.org/events/la-co...
@fightblindness.bsky.social @rnc.ac.uk #lca10 #RareDisease
Presentation by Dr. Jacque Duncan from UCSF
www.fightingblindness.org/events/la-co...
@fightblindness.bsky.social @rnc.ac.uk #lca10 #RareDisease
LA Community Connections - June Presentation
Presentation by Dr. Jacque Duncan from UCSF
www.fightingblindness.org
June 21, 2025 at 2:50 PM
Wednesday, June 25th, 2025, 7:00 p.m. – 8:30 p.m. (PDT)
Presentation by Dr. Jacque Duncan from UCSF
www.fightingblindness.org/events/la-co...
@fightblindness.bsky.social @rnc.ac.uk #lca10 #RareDisease
Presentation by Dr. Jacque Duncan from UCSF
www.fightingblindness.org/events/la-co...
@fightblindness.bsky.social @rnc.ac.uk #lca10 #RareDisease
@otdc-2026.bsky.social Oligonucleotide Therapeutics and Delivery Conference is all set to happen on March 23-24, 2026 as a hybrid event in Rome, Italy
oligo-nucleotide.com
#RareDisease #LCA10 #Blindness #oligonucleotide
oligo-nucleotide.com
#RareDisease #LCA10 #Blindness #oligonucleotide
Oligonucleotide Conferences 2026 | mRNA Therapeutics Conferences 2026| RNA Therapeutics Conference 2026| Oligonucleotide Events 2026 | Oligonucleotide Meetings 2026 | World Conference on Oligonucleoti...
Oligonucleotide Conferences 2026 , mRNA Therapeutics Conferences 2026, RNA Therapeutics Conference 2025, Oligonucleotide Events 2026 , Oligonucleotide Meetings 2026, World Conference on Oligonucleotid...
oligo-nucleotide.com
June 6, 2025 at 8:18 AM
@otdc-2026.bsky.social Oligonucleotide Therapeutics and Delivery Conference is all set to happen on March 23-24, 2026 as a hybrid event in Rome, Italy
oligo-nucleotide.com
#RareDisease #LCA10 #Blindness #oligonucleotide
oligo-nucleotide.com
#RareDisease #LCA10 #Blindness #oligonucleotide
Reposted by Leber's Congenital Amaurosis
Accelerate Ideas, Partnerships and Opportunities
Book your SLOT NOW
OTDC 2026
Oligonucleotide Therapeutics and Delivery Conference
March 23-24, 2026 | Rome, Italy
Website: oligo-nucleotide.com
Book your SLOT NOW
OTDC 2026
Oligonucleotide Therapeutics and Delivery Conference
March 23-24, 2026 | Rome, Italy
Website: oligo-nucleotide.com
May 31, 2025 at 5:25 AM
Accelerate Ideas, Partnerships and Opportunities
Book your SLOT NOW
OTDC 2026
Oligonucleotide Therapeutics and Delivery Conference
March 23-24, 2026 | Rome, Italy
Website: oligo-nucleotide.com
Book your SLOT NOW
OTDC 2026
Oligonucleotide Therapeutics and Delivery Conference
March 23-24, 2026 | Rome, Italy
Website: oligo-nucleotide.com
globalgenes.org/rare-advocac...
Global Genes’ RARE Advocacy Exchange is a virtual event designed to empower, equip, and elevate individuals with the leadership skills to help make a change through a series of 8 sessions.
@globalgenes.bsky.social #blindness #LCA10 #RareDisease
Global Genes’ RARE Advocacy Exchange is a virtual event designed to empower, equip, and elevate individuals with the leadership skills to help make a change through a series of 8 sessions.
@globalgenes.bsky.social #blindness #LCA10 #RareDisease
RARE Advocacy Exchange
Global Genes’ RARE Advocacy Exchange is a virtual event designed to empower, equip, and elevate individuals with the leadership skills to help make a change through a series of 8 sessions. We’re creat...
globalgenes.org
June 6, 2025 at 7:43 AM
globalgenes.org/rare-advocac...
Global Genes’ RARE Advocacy Exchange is a virtual event designed to empower, equip, and elevate individuals with the leadership skills to help make a change through a series of 8 sessions.
@globalgenes.bsky.social #blindness #LCA10 #RareDisease
Global Genes’ RARE Advocacy Exchange is a virtual event designed to empower, equip, and elevate individuals with the leadership skills to help make a change through a series of 8 sessions.
@globalgenes.bsky.social #blindness #LCA10 #RareDisease
May 29, 2025 at 7:17 AM
www.retinaaustralia.com.au
Retina Australia funds and facilitates the top medical research into inherited retinal diseases (IRDs) through a competitive annual Research Grants Program.
#LCA10 #RareDisease #OrphanDrugs
Retina Australia funds and facilitates the top medical research into inherited retinal diseases (IRDs) through a competitive annual Research Grants Program.
#LCA10 #RareDisease #OrphanDrugs
Home Page - Retina Australia
This is an example page. It's different from a blog post because it will stay in one place and will show up in your site navigation (in most themes). Most people start with an About page that introduc...
www.retinaaustralia.com.au
May 29, 2025 at 7:13 AM
www.retinaaustralia.com.au
Retina Australia funds and facilitates the top medical research into inherited retinal diseases (IRDs) through a competitive annual Research Grants Program.
#LCA10 #RareDisease #OrphanDrugs
Retina Australia funds and facilitates the top medical research into inherited retinal diseases (IRDs) through a competitive annual Research Grants Program.
#LCA10 #RareDisease #OrphanDrugs
Artificial intelligence (AI) is a computer program built to perform a specific task. It gets better at that task the more it does it. This ability to learn can solve problems in medical research.
eye2gene.com
#raredisease #lca10 #retina
@ucldiscovery.bsky.social
eye2gene.com
#raredisease #lca10 #retina
@ucldiscovery.bsky.social
Eye2Gene
Eye2Gene is a research project. The aim is to engineer artificial intelligence that can look through photographs and scans of retinas,
and accurately predict which inherited retinal disease may ...
eye2gene.com
May 25, 2025 at 9:51 AM
Artificial intelligence (AI) is a computer program built to perform a specific task. It gets better at that task the more it does it. This ability to learn can solve problems in medical research.
eye2gene.com
#raredisease #lca10 #retina
@ucldiscovery.bsky.social
eye2gene.com
#raredisease #lca10 #retina
@ucldiscovery.bsky.social
Study to Evaluate Sepofarsen in Subjects with Leber Congenital Amaurosis (LCA) Type 10 (HYPERION) (HYPERION)
clinical trial ID: NCT06891443
Sponsor- Laboratoires Thea. #blindness #LCA10 #CEP290
clinicaltrials.gov/study/NCT068...
clinical trial ID: NCT06891443
Sponsor- Laboratoires Thea. #blindness #LCA10 #CEP290
clinicaltrials.gov/study/NCT068...
ClinicalTrials.gov
clinicaltrials.gov
May 11, 2025 at 9:00 AM
Study to Evaluate Sepofarsen in Subjects with Leber Congenital Amaurosis (LCA) Type 10 (HYPERION) (HYPERION)
clinical trial ID: NCT06891443
Sponsor- Laboratoires Thea. #blindness #LCA10 #CEP290
clinicaltrials.gov/study/NCT068...
clinical trial ID: NCT06891443
Sponsor- Laboratoires Thea. #blindness #LCA10 #CEP290
clinicaltrials.gov/study/NCT068...
Leber Congenital Amaurosis (LCA) is a rare inherited eye disorder that causes blindness in childhood.
ei-lca.com/hope-on-the-...
ei-lca.com/hope-on-the-...
Hope on the Horizon
Blind people have a basic need to see. Novel therapeutic approaches are sorely needed for people suffering from CEP290-based disease. Scientists around the world work tirelessly to develop safe and…
ei-lca.com
May 11, 2025 at 5:07 AM
Leber Congenital Amaurosis (LCA) is a rare inherited eye disorder that causes blindness in childhood.
ei-lca.com/hope-on-the-...
ei-lca.com/hope-on-the-...
Reposted by Leber's Congenital Amaurosis
Groundbreaking gene therapy has restored vision in children born with leber congenital amaurosis (LCA), a severe genetic blindness.
www.bbc.co.uk/news/article...
1
www.bbc.co.uk/news/article...
1
Gene therapy experiment treats rare childhood blindness
Four toddlers born with a rare eye condition have seen
www.bbc.co.uk
March 13, 2025 at 8:59 PM
Groundbreaking gene therapy has restored vision in children born with leber congenital amaurosis (LCA), a severe genetic blindness.
www.bbc.co.uk/news/article...
1
www.bbc.co.uk/news/article...
1
Reposted by Leber's Congenital Amaurosis
Gene therapy shows genuine promise in a rare eye disease that causes blindness. The condition is known as Leber congenital amaurosis-1 & there have been "mind-boggling" effects, an ophthalmologist says, referring to eyesight returning to these patients www.medpagetoday.com/ophthalmolog...
Gene Therapy Shows Promise in Rare Eye Disease That Causes Early Blindness
'Mind-boggling' effects in small group with Leber congenital amaurosis 1, expert says
www.medpagetoday.com
September 14, 2024 at 6:11 PM
Gene therapy shows genuine promise in a rare eye disease that causes blindness. The condition is known as Leber congenital amaurosis-1 & there have been "mind-boggling" effects, an ophthalmologist says, referring to eyesight returning to these patients www.medpagetoday.com/ophthalmolog...
Reposted by Leber's Congenital Amaurosis
Guardian: Doctors in London cure blindness in children with rare condition,
Leber congenital amaurosis
www.theguardian.com/society/2025...
Leber congenital amaurosis
www.theguardian.com/society/2025...
Doctors in London cure blindness in children with rare condition
Four children can now see shapes, find toys, recognise their parents’ faces and some can read and write
www.theguardian.com
February 20, 2025 at 11:57 PM
Guardian: Doctors in London cure blindness in children with rare condition,
Leber congenital amaurosis
www.theguardian.com/society/2025...
Leber congenital amaurosis
www.theguardian.com/society/2025...