Systems4change
@rayh-s4c.bsky.social
I trained in medicine then as a psychiatrist specialising in medical psychotherapy(UK). Trained in working with human systems to facilitate change towards health now apply this to understanding all human systems
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Systems4change
@rayh-s4c.bsky.social
· Nov 24
COVID-19 lockdowns linked to accelerated brain aging in adolescents, particularly in girls
New research suggests pandemic lockdowns accelerated adolescent brain aging, with girls' brains aging 4.2 years and boys' 1.4 years. This may increase neuropsychiatric disorder risks, highlighting the...
flip.it
COVID-19 lockdowns linked to accelerated brain aging in adolescents, particularly in girls
flip.it/0TQXs9
This looks like bad science, this article there is no data on whether the subjects had had COVID which is known to have neurological effects and an impact on the brain. Dangerous conclusion
flip.it/0TQXs9
This looks like bad science, this article there is no data on whether the subjects had had COVID which is known to have neurological effects and an impact on the brain. Dangerous conclusion
Reposted by Systems4change
For #ME/CFS, genomics assessed in >15,000 indviduals
with 8 genomic loci identified.
"Validation of ME/CFS as a biomedical condition and an important corrective to psychologizing ‘all in the mind’ perspectives on the disease”
www.science.org/content/arti...
www.research.ed.ac.uk/en/publicati...
with 8 genomic loci identified.
"Validation of ME/CFS as a biomedical condition and an important corrective to psychologizing ‘all in the mind’ perspectives on the disease”
www.science.org/content/arti...
www.research.ed.ac.uk/en/publicati...
Possible genetic clues to ME/chronic fatigue syndrome identified in massive study
DNA analysis of more than 15,500 people with the debilitating condition identifies eight tentative “genetic signals”
www.science.org
August 7, 2025 at 2:26 PM
For #ME/CFS, genomics assessed in >15,000 indviduals
with 8 genomic loci identified.
"Validation of ME/CFS as a biomedical condition and an important corrective to psychologizing ‘all in the mind’ perspectives on the disease”
www.science.org/content/arti...
www.research.ed.ac.uk/en/publicati...
with 8 genomic loci identified.
"Validation of ME/CFS as a biomedical condition and an important corrective to psychologizing ‘all in the mind’ perspectives on the disease”
www.science.org/content/arti...
www.research.ed.ac.uk/en/publicati...
Reposted by Systems4change
Because in UK health journalism, “getting the facts” often means repeating what a GP mate told you over lunch, rather than reading the research and checking the facts.
These headlines aren’t just lazy. They echo the distortions that stalled ME research in the first place. 2/3
These headlines aren’t just lazy. They echo the distortions that stalled ME research in the first place. 2/3
August 7, 2025 at 5:41 PM
Because in UK health journalism, “getting the facts” often means repeating what a GP mate told you over lunch, rather than reading the research and checking the facts.
These headlines aren’t just lazy. They echo the distortions that stalled ME research in the first place. 2/3
These headlines aren’t just lazy. They echo the distortions that stalled ME research in the first place. 2/3
Reposted by Systems4change
The #DecodeME study is terrific - a milestone in biomedical science. But headlines like “ME is real” are not good journalism.
ME was already scientifically established by the mid-1990s. And clinical evidence has supported its reality since the 1950s.
So why do we get these headlines?
#pwME
1/3
ME was already scientifically established by the mid-1990s. And clinical evidence has supported its reality since the 1950s.
So why do we get these headlines?
#pwME
1/3
August 7, 2025 at 5:41 PM
Reposted by Systems4change
Rapid notes on a Trump-Putin meeting open.substack.com/pub/vladvexl...
Rapid notes on Trump-Putin meeting
Trump + Putin
open.substack.com
August 7, 2025 at 8:25 PM
Rapid notes on a Trump-Putin meeting open.substack.com/pub/vladvexl...
Reposted by Systems4change
bsky.app/profile/fran...
Listen and post this is important for 100s of thousands if not millions worldwide 🙏
Listen and post this is important for 100s of thousands if not millions worldwide 🙏
Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!
All participants IG handles tagged at the end 💙💙
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
All participants IG handles tagged at the end 💙💙
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
August 8, 2025 at 4:15 PM
bsky.app/profile/fran...
Listen and post this is important for 100s of thousands if not millions worldwide 🙏
Listen and post this is important for 100s of thousands if not millions worldwide 🙏
Reposted by Systems4change
Thanks for posting this video from those who live the experience for those who don't @lukecharters.bsky.social @wesstreeting.bsky.social
August 8, 2025 at 4:20 PM
Thanks for posting this video from those who live the experience for those who don't @lukecharters.bsky.social @wesstreeting.bsky.social
bsky.app/profile/fran...
Listen and post this is important for 100s of thousands if not millions worldwide 🙏
Listen and post this is important for 100s of thousands if not millions worldwide 🙏
Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!
All participants IG handles tagged at the end 💙💙
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
All participants IG handles tagged at the end 💙💙
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
August 8, 2025 at 4:15 PM
bsky.app/profile/fran...
Listen and post this is important for 100s of thousands if not millions worldwide 🙏
Listen and post this is important for 100s of thousands if not millions worldwide 🙏
Reposted by Systems4change
Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!
All participants IG handles tagged at the end 💙💙
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
All participants IG handles tagged at the end 💙💙
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
August 8, 2025 at 10:15 AM
Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!
All participants IG handles tagged at the end 💙💙
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
All participants IG handles tagged at the end 💙💙
#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
Reposted by Systems4change
"Today we honor the sickest among us. The ones who have been least lucky among some of the least lucky people on earth..."
A Moment of Silence for Severe ME/CFS Patients by @DafoeWhitney: ow.ly/QrCt50WBCZZ
#MEmomentOfSilence #UnitedForME
A Moment of Silence for Severe ME/CFS Patients by @DafoeWhitney: ow.ly/QrCt50WBCZZ
#MEmomentOfSilence #UnitedForME
A Moment of Silence for Severe ME/CFS Patients
To all those living in silence and darkness. Today we take a moment in silence and darkness to honor your courage, your bravery, your resilience, your strength, and we acknowledge your profound suffe...
ow.ly
August 8, 2025 at 2:18 PM
"Today we honor the sickest among us. The ones who have been least lucky among some of the least lucky people on earth..."
A Moment of Silence for Severe ME/CFS Patients by @DafoeWhitney: ow.ly/QrCt50WBCZZ
#MEmomentOfSilence #UnitedForME
A Moment of Silence for Severe ME/CFS Patients by @DafoeWhitney: ow.ly/QrCt50WBCZZ
#MEmomentOfSilence #UnitedForME
Reposted by Systems4change
Nearly always, anxiety is at the top of the differential diagnosis.
Every doctor, clinic, specialty that long Covid patients see are fixated on anxiety. Patients say ‘but I’m not anxious’. Usually this would be enough to disregard it.
No, apparently everyone has hidden anxiety.
Every doctor, clinic, specialty that long Covid patients see are fixated on anxiety. Patients say ‘but I’m not anxious’. Usually this would be enough to disregard it.
No, apparently everyone has hidden anxiety.
October 30, 2024 at 1:19 AM
Nearly always, anxiety is at the top of the differential diagnosis.
Every doctor, clinic, specialty that long Covid patients see are fixated on anxiety. Patients say ‘but I’m not anxious’. Usually this would be enough to disregard it.
No, apparently everyone has hidden anxiety.
Every doctor, clinic, specialty that long Covid patients see are fixated on anxiety. Patients say ‘but I’m not anxious’. Usually this would be enough to disregard it.
No, apparently everyone has hidden anxiety.
Reposted by Systems4change
Given all we know about Covid
That it’s a vascular disease
That it causes blood clots, myocarditis, pericarditis, angina, microvascular angina, pots and more..
We can do better.
We must do better.
We are currently tolerating a huge increase in heart attacks, strokes and blood clots.
That it’s a vascular disease
That it causes blood clots, myocarditis, pericarditis, angina, microvascular angina, pots and more..
We can do better.
We must do better.
We are currently tolerating a huge increase in heart attacks, strokes and blood clots.
October 30, 2024 at 1:21 AM
Given all we know about Covid
That it’s a vascular disease
That it causes blood clots, myocarditis, pericarditis, angina, microvascular angina, pots and more..
We can do better.
We must do better.
We are currently tolerating a huge increase in heart attacks, strokes and blood clots.
That it’s a vascular disease
That it causes blood clots, myocarditis, pericarditis, angina, microvascular angina, pots and more..
We can do better.
We must do better.
We are currently tolerating a huge increase in heart attacks, strokes and blood clots.
Reposted by Systems4change
Given that we know this from thousands of papers, the least we could do is find the pathology.
Then we could maybe start looking at preventing pathology and research trials.
Currently we do very little for acute Covid in most people. It may be possible to prevent damage…
Then we could maybe start looking at preventing pathology and research trials.
Currently we do very little for acute Covid in most people. It may be possible to prevent damage…
October 30, 2024 at 1:23 AM
Given that we know this from thousands of papers, the least we could do is find the pathology.
Then we could maybe start looking at preventing pathology and research trials.
Currently we do very little for acute Covid in most people. It may be possible to prevent damage…
Then we could maybe start looking at preventing pathology and research trials.
Currently we do very little for acute Covid in most people. It may be possible to prevent damage…
Reposted by Systems4change
We have normalised chest pain,shortness of breath&oxygen desaturations
in young people.
Pre-Covid we did not have this amount of people with these symptoms. It would usually result in swift investigation. I am
Seeing people who have had these symptoms for FIVE YEARS and not investigated.
in young people.
Pre-Covid we did not have this amount of people with these symptoms. It would usually result in swift investigation. I am
Seeing people who have had these symptoms for FIVE YEARS and not investigated.
October 30, 2024 at 1:03 AM
We have normalised chest pain,shortness of breath&oxygen desaturations
in young people.
Pre-Covid we did not have this amount of people with these symptoms. It would usually result in swift investigation. I am
Seeing people who have had these symptoms for FIVE YEARS and not investigated.
in young people.
Pre-Covid we did not have this amount of people with these symptoms. It would usually result in swift investigation. I am
Seeing people who have had these symptoms for FIVE YEARS and not investigated.
Reposted by Systems4change
A new study out of Germany found that nearly 40% of elite athletes across several sports had reduced performance lasting >4 months after acute COVID-19. This was despite the majority having mild acute infections and none of the athletes having pre-existing health conditions.
April 24, 2025 at 4:00 AM
A new study out of Germany found that nearly 40% of elite athletes across several sports had reduced performance lasting >4 months after acute COVID-19. This was despite the majority having mild acute infections and none of the athletes having pre-existing health conditions.
Reposted by Systems4change
PolyBio and WE&ME supported study identifies two distinct ME/CFS subtypes
🧪Collaborative research uncovers immune and biomarker patterns that could help subclassify ME/CFS and guide future treatments.
polybio.org/polybio-and-...
🧪Collaborative research uncovers immune and biomarker patterns that could help subclassify ME/CFS and guide future treatments.
polybio.org/polybio-and-...
May 20, 2025 at 3:27 PM
PolyBio and WE&ME supported study identifies two distinct ME/CFS subtypes
🧪Collaborative research uncovers immune and biomarker patterns that could help subclassify ME/CFS and guide future treatments.
polybio.org/polybio-and-...
🧪Collaborative research uncovers immune and biomarker patterns that could help subclassify ME/CFS and guide future treatments.
polybio.org/polybio-and-...
Reposted by Systems4change
She is not able to live in a shelter due to care needs, severe allergies and a severe dissociative disorder which makes a change to an unknown location distressing and causes amnesia. What she really needs is care and support at home and more connections locally to find a way out of this situation
January 14, 2025 at 11:21 AM
She is not able to live in a shelter due to care needs, severe allergies and a severe dissociative disorder which makes a change to an unknown location distressing and causes amnesia. What she really needs is care and support at home and more connections locally to find a way out of this situation
Reposted by Systems4change
The Guardian has spent a year with Darren - one of about 2 million people living with Covid in England and Scotland.
Watch it in 7 minutes.
V. important from my video colleagues.
www.theguardian.com/society/vide...
Watch it in 7 minutes.
V. important from my video colleagues.
www.theguardian.com/society/vide...
‘The pandemic isn’t over’: my year of long Covid – video
Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and...
www.theguardian.com
January 15, 2025 at 10:49 AM
The Guardian has spent a year with Darren - one of about 2 million people living with Covid in England and Scotland.
Watch it in 7 minutes.
V. important from my video colleagues.
www.theguardian.com/society/vide...
Watch it in 7 minutes.
V. important from my video colleagues.
www.theguardian.com/society/vide...
Reposted by Systems4change
Despite being severely unwell @katiamek.bsky.social spent her precious energy to speak out about this negligent treatment she’s been through in an effort to stop others experiencing the same. time.com/7206080/long...
January 15, 2025 at 11:07 AM
Despite being severely unwell @katiamek.bsky.social spent her precious energy to speak out about this negligent treatment she’s been through in an effort to stop others experiencing the same. time.com/7206080/long...
Reposted by Systems4change
Covid precaution wise- the visitors (my mum, sister and nephew) did a pooled pluslife test for covid, & had no symptoms of anything, we had 2 air filters & windows open & all wore FFP3 auras except Lachlan. Everyone hand san’d with hypochlorous acid, and I kept my mask on a while after they’d left
January 19, 2025 at 10:23 AM
Covid precaution wise- the visitors (my mum, sister and nephew) did a pooled pluslife test for covid, & had no symptoms of anything, we had 2 air filters & windows open & all wore FFP3 auras except Lachlan. Everyone hand san’d with hypochlorous acid, and I kept my mask on a while after they’d left
Reposted by Systems4change
I was so worried because I’m really not used to kids and obviously my body doesn’t let me be very loud or enthusiastic. But he didn’t mind. He also didn’t mind the masks at all. Gives me hope that was can build a good relationship despite my health and covid boundaries and him living so far away
January 19, 2025 at 10:21 AM
I was so worried because I’m really not used to kids and obviously my body doesn’t let me be very loud or enthusiastic. But he didn’t mind. He also didn’t mind the masks at all. Gives me hope that was can build a good relationship despite my health and covid boundaries and him living so far away
Reposted by Systems4change
knew who we were (from FaceTime too), he was obsessed with Salem (the cat). And let me pick him up (which my arms also somehow let me do!!?) and look after him a little tiny bit. We managed to find loads of things he was interested in just in my bedroom (helped by my large collection of plushies 😆)
January 19, 2025 at 10:19 AM
knew who we were (from FaceTime too), he was obsessed with Salem (the cat). And let me pick him up (which my arms also somehow let me do!!?) and look after him a little tiny bit. We managed to find loads of things he was interested in just in my bedroom (helped by my large collection of plushies 😆)