Raspberry ♾️🌈🧠
@raspberry0987.bsky.social
God’s greatest little contraption. CHRONIC MIGRAINE CRUSHER, ME/CFS MASTER, ORTHOSTATIC HYPOTENSION OCTAHEDRON, IBS INVADER, HYPERMOBILE EDS HAMMERHEAD, VASOVAGAL SYNCOPE VICTOR, MCAS MEGATRON. Woman in STEM. I like House MD. 21yo.
Pinned
Raspberry ♾️🌈🧠
@raspberry0987.bsky.social
· Jan 19
Hi, I’m Raspberry! (she/her)
I have hEDS and a ton of comorbidities which I talk about a lot. I use a screen reader part-time due to photophobia and difficulty processing text. Please make images accessible if you can! That includes avoiding untagged strobe effects or eyestrain (e.g. stripes) 🙂
I have hEDS and a ton of comorbidities which I talk about a lot. I use a screen reader part-time due to photophobia and difficulty processing text. Please make images accessible if you can! That includes avoiding untagged strobe effects or eyestrain (e.g. stripes) 🙂
Also I can’t remember if I posted I got diagnosed with Small Fiber Neuropathy, it was confirmed via skin biopsy, very grateful to have better answers
November 20, 2025 at 5:54 AM
Also I can’t remember if I posted I got diagnosed with Small Fiber Neuropathy, it was confirmed via skin biopsy, very grateful to have better answers
Sorry for my sudden inactivity again I’ve been having a lot of dissociative episodes on a daily basis. Physical health has been up and down, my neurogenic orthostatic hypotension is improving with treatment, I started Mestinon in addition to the two other dysautonomia drugs which has helped a lot
November 20, 2025 at 5:52 AM
Sorry for my sudden inactivity again I’ve been having a lot of dissociative episodes on a daily basis. Physical health has been up and down, my neurogenic orthostatic hypotension is improving with treatment, I started Mestinon in addition to the two other dysautonomia drugs which has helped a lot
Hi guys, things kinda suck right now but I’m alive, how are you all?
September 24, 2025 at 6:03 PM
Hi guys, things kinda suck right now but I’m alive, how are you all?
Feeling really dissociated and floaty and kind of hallucinating after eating my favorite brand of pickle flavored potato chips which I just discovered has citric acid in the ingredients
August 11, 2025 at 8:36 PM
Feeling really dissociated and floaty and kind of hallucinating after eating my favorite brand of pickle flavored potato chips which I just discovered has citric acid in the ingredients
I’m so nauseous and brain fogged and weak. I thought I could handle going to the mall if I paced myself to two hours limit + use of electric wheelchair but I was already having a migraine and extreme tachycardia from anxiety by the time I got to the bus stop (at least I learned how to use the bus)
August 10, 2025 at 5:19 PM
I’m so nauseous and brain fogged and weak. I thought I could handle going to the mall if I paced myself to two hours limit + use of electric wheelchair but I was already having a migraine and extreme tachycardia from anxiety by the time I got to the bus stop (at least I learned how to use the bus)
Content warning: mentions of sex trafficking, pedophilia, CSA
Hi can we not do posts like this? Not only is it bad for screen readers due to the lack of alt text/censored text that screws up even my screen reader which can read images, it’s impossible to mute the post via word muting, so those
🧵
Hi can we not do posts like this? Not only is it bad for screen readers due to the lack of alt text/censored text that screws up even my screen reader which can read images, it’s impossible to mute the post via word muting, so those
🧵
August 10, 2025 at 5:16 PM
Content warning: mentions of sex trafficking, pedophilia, CSA
Hi can we not do posts like this? Not only is it bad for screen readers due to the lack of alt text/censored text that screws up even my screen reader which can read images, it’s impossible to mute the post via word muting, so those
🧵
Hi can we not do posts like this? Not only is it bad for screen readers due to the lack of alt text/censored text that screws up even my screen reader which can read images, it’s impossible to mute the post via word muting, so those
🧵
Bruh even breathing deeply makes my joints pop
July 31, 2025 at 1:50 AM
Bruh even breathing deeply makes my joints pop
I’ve had a migraine all day and now for some godforsaken reason I’m seriously craving apple pie. I can’t even have apples or cinnamon or high glycemic index foods like pie 
July 31, 2025 at 1:12 AM
I’ve had a migraine all day and now for some godforsaken reason I’m seriously craving apple pie. I can’t even have apples or cinnamon or high glycemic index foods like pie 
I hate scheduling so much I’m genuinely getting worse care because of it. I should talk to my doctor about my constant chest pain, but I’m pretty sure it’s benign, probably costochondritis, but I’ve been putting off scheduling sleep specialty, optometry, endodontist, etc. and IDK what to do first
July 30, 2025 at 1:43 AM
I hate scheduling so much I’m genuinely getting worse care because of it. I should talk to my doctor about my constant chest pain, but I’m pretty sure it’s benign, probably costochondritis, but I’ve been putting off scheduling sleep specialty, optometry, endodontist, etc. and IDK what to do first
It was uncomfortable but it went well. All just intake stuff this time. My mom actually let me talk for more than a couple minutes which was very surprising
Going to family counseling with my mom in about an hour, which I haven’t done in months, we’re starting with a new counselor, one that’s covered by insurance thank god. I’m hoping to eventually discuss my mom’s strong belief that my illnesses are all psychosomatic and caused by my dad. Wish me luck
July 30, 2025 at 1:37 AM
It was uncomfortable but it went well. All just intake stuff this time. My mom actually let me talk for more than a couple minutes which was very surprising
Going to family counseling with my mom in about an hour, which I haven’t done in months, we’re starting with a new counselor, one that’s covered by insurance thank god. I’m hoping to eventually discuss my mom’s strong belief that my illnesses are all psychosomatic and caused by my dad. Wish me luck
July 29, 2025 at 4:15 PM
Going to family counseling with my mom in about an hour, which I haven’t done in months, we’re starting with a new counselor, one that’s covered by insurance thank god. I’m hoping to eventually discuss my mom’s strong belief that my illnesses are all psychosomatic and caused by my dad. Wish me luck
Not saying who but I had a recent falling out with an online friend and I ended up crashing because of it. It feels so stupid to get that upset over someone who apparently never cared about me and I only knew online but they had a lot of my same conditions and I thought we connected over that. 1/
July 28, 2025 at 2:54 AM
Not saying who but I had a recent falling out with an online friend and I ended up crashing because of it. It feels so stupid to get that upset over someone who apparently never cared about me and I only knew online but they had a lot of my same conditions and I thought we connected over that. 1/
Made it through the dentist today. I think I’m gonna cry. My new dentist is so kind and caring and doesn’t gaslight me and is so gentle and I’m realizing just what a shitty dentist/endodontist my last one was. He botched a root canal, leaving a piece of metal in my tooth, and had the audacity to- 1/
July 23, 2025 at 10:24 PM
Made it through the dentist today. I think I’m gonna cry. My new dentist is so kind and caring and doesn’t gaslight me and is so gentle and I’m realizing just what a shitty dentist/endodontist my last one was. He botched a root canal, leaving a piece of metal in my tooth, and had the audacity to- 1/
Finally said fuck it and got a bedpan and had my caregiver/dad assist with it. Most uncomfortable experience of this week and it took forever for me to push past the mental barrier that I’m not on the toilet so it was super frustrating trying to get the stream going but I did it eventually thank god
July 23, 2025 at 8:04 AM
Finally said fuck it and got a bedpan and had my caregiver/dad assist with it. Most uncomfortable experience of this week and it took forever for me to push past the mental barrier that I’m not on the toilet so it was super frustrating trying to get the stream going but I did it eventually thank god
Update: I’m now seemingly reacting to strawberries. Part of the exact same breakfast I have every single morning because I’m autistic and like it that way. FUCKING WHY
July 20, 2025 at 4:28 PM
Update: I’m now seemingly reacting to strawberries. Part of the exact same breakfast I have every single morning because I’m autistic and like it that way. FUCKING WHY
Reposted by Raspberry ♾️🌈🧠
July 7, 2025 at 3:55 PM
Update: I made it through finals okay, the crash ended earlier than expected and the extension was enough. Very happy I got it all done
I hate this condition so much I can barely think anymore and I have finals due tomorrow around noon. I’m so light sensitive and sound sensitive there’s no way I’m opening my laptop to do them right now. My accommodations don’t allow past 2 days of extensions on assignments and this crash will take 7
July 8, 2025 at 1:38 AM
Update: I made it through finals okay, the crash ended earlier than expected and the extension was enough. Very happy I got it all done
How long does everyone’s Visible armband last? I got mine in January and it’s been falling apart the last month or so. The buckle/fastener on mine keeps getting caught on the velcro bit that’s lifted up in a weird way, making it hard to remove #visiblearmband #visiblepacing #ME/CFS #MECFS #NEISVoid
June 19, 2025 at 12:19 AM
How long does everyone’s Visible armband last? I got mine in January and it’s been falling apart the last month or so. The buckle/fastener on mine keeps getting caught on the velcro bit that’s lifted up in a weird way, making it hard to remove #visiblearmband #visiblepacing #ME/CFS #MECFS #NEISVoid
I hate this condition so much I can barely think anymore and I have finals due tomorrow around noon. I’m so light sensitive and sound sensitive there’s no way I’m opening my laptop to do them right now. My accommodations don’t allow past 2 days of extensions on assignments and this crash will take 7
June 18, 2025 at 1:44 AM
I hate this condition so much I can barely think anymore and I have finals due tomorrow around noon. I’m so light sensitive and sound sensitive there’s no way I’m opening my laptop to do them right now. My accommodations don’t allow past 2 days of extensions on assignments and this crash will take 7
I’ve been crying on and off for hours because I think I’ve finally decided I’m not enrolling for classes this summer. My ME/CFS has gotten that bad. I’m upset because this feels like the end of my education and I failed to get my high school diploma even with 4 extra years to do so #MECFS #NEISVoid
June 8, 2025 at 2:47 AM
Noted: ICE agents can be warded off with black bear self defense techniques
San Diego neighborhood makes ICE agents retreat
June 3, 2025 at 9:51 PM
Noted: ICE agents can be warded off with black bear self defense techniques