Trying to more effectively pace with my me/cfs by actually lying in bed all day. It’s very boring but I actually don’t feel any anxiety for once? Maybe my body being hella anxious is its way of telling me I’m doing too much?? Hopefully it lasts anyway, boredom is a price I’ll very willingly pay 🙏

Depersonalisation hitting so hard today I keep getting jump scared by my own hand

Nobody in their right mind is pretending to be sick. We are clearly pretending to be healthy.

David Lynch spent the last portion of his life in isolation. He said it was due to being high-risk and unable to risk getting COVID.

He’s not the only person with disability or illness who’s been left behind.

Everywhere you go without an n95 is a place you’ve decided disabled people don’t belong.

Started playing the new Indiana Jones game and it’s somehow actually amazing? Honestly had 0 expectations but I’m loving punching nazis and looting pyramids, whilst wearing a cool hat 🤠

It's hard to reach out to friends you havent really spoken to since becoming chronically ill, even if you miss them. It feels like you're messaging them just to be like "hey hope you're good? my life has been bad actually". I think it's a fear of trauma dumping but not really sure how to go about it

I just signed the petition “Cochrane: Withdraw the harmful 2019/2024 Exercise therapy for CFS review” and wanted to see if you could help by adding your name.

Our goal is to reach 15,000 signatures and we need more support. You can read more and sign the petition here […]

This time the movie stats 🤙the Great Crash of August 2024 affected me greatly, but I recovered momentum. I also became a kdrama girly in 2024 which meant my record of 301 remains on top 💅(I live for stats)

Had some good escapism this year ✌️

How is it possible to be too tired to sleep? Can someone explain to my body that sleep would help pls

How can I sleep for over 11 hours and not even feel slightly well rested 😭

Found the monkey’s paw and wished for invisibility, so it made me disabled with long covid. Friends haven’t seen me since 👻

What I look and feel like after 2+ years of long covid, finding small joy in food (and then regretting it)

Fluctuating muscle weakness is crazy; one moment I can pick up the heaviest thing in the world (my sports direct mug full of tea) and the next I can’t push a pill out of the packaging so I can sleep at night

a lot of able bodied people don’t understand the daily mental battle required to live with a chronic illness like #longcovid or #MEcfs is like. Having the mental fortitude/strength required to keep surviving each day is honestly something I’m most proud of. Even if it’s not much of a choice.