POTS Radar
@potsradar.bsky.social
https://pots-radar.ghost.io/
Follow for the latest research on Postural Orthostatic Tachycardia Syndrome.
Follow for the latest research on Postural Orthostatic Tachycardia Syndrome.
Pinned
POTS Radar
@potsradar.bsky.social
· Jan 4
pots-radar.ghost.io/welcome/
Hello, world!
This is POTS Radar 📡
Follow for reviews of the latest research on Postural Orthostatic Tachycardia Syndrome (POTS).
Hello, world!
This is POTS Radar 📡
Follow for reviews of the latest research on Postural Orthostatic Tachycardia Syndrome (POTS).
Reposted by POTS Radar
Regeneron is recruiting for a phase 2 RCT of REGN7544 (an NPR1 antagonist mAb) for POTS. They’re seeking 81 patients in Pasadena, CA; Carlsbad, CA; Nashville, TN; and Clearwater, FL clinicaltrials.gov/study/NCT065...
ClinicalTrials.gov
clinicaltrials.gov
February 18, 2025 at 5:09 PM
Regeneron is recruiting for a phase 2 RCT of REGN7544 (an NPR1 antagonist mAb) for POTS. They’re seeking 81 patients in Pasadena, CA; Carlsbad, CA; Nashville, TN; and Clearwater, FL clinicaltrials.gov/study/NCT065...
Reposted by POTS Radar
Many of the unregulated proteins they found in post-Covid POTS patients have also been found to be unregulated in pre-Covid POTS patients pmc.ncbi.nlm.nih.gov/articles/PMC...
February 19, 2025 at 3:50 AM
Many of the unregulated proteins they found in post-Covid POTS patients have also been found to be unregulated in pre-Covid POTS patients pmc.ncbi.nlm.nih.gov/articles/PMC...
Reposted by POTS Radar
This is deeply shocking and disturbing, the opposite of scientific good practice. As I see it, a group of diehards promoting a discredited treatment (exercise "therapy" for ME/CFS patients) are seeking to stifle medical progress - to protect their reputations. And Cochrane has kowtowed to them. 🧵
I never thought a day would come when I would write a post this critical about the Cochrane Collaboration. But today was that day:
absolutelymaybe.plos.org/2025/01/24/w...
#mecfs
absolutelymaybe.plos.org/2025/01/24/w...
#mecfs
When Journal, Scientific Society, and Community Values Clash - Absolutely Maybe
A process I’ve been involved with at a journal recently exploded. It was meant to resolve a controversy about a publication, not…
absolutelymaybe.plos.org
January 29, 2025 at 8:57 AM
This is deeply shocking and disturbing, the opposite of scientific good practice. As I see it, a group of diehards promoting a discredited treatment (exercise "therapy" for ME/CFS patients) are seeking to stifle medical progress - to protect their reputations. And Cochrane has kowtowed to them. 🧵
Reposted by POTS Radar
1) There is some (cautious) excitement about this new ME/CFS paper that will soon be published.
It replicated abnormalities in B-cells that were found by 2 earlier studies, namely an increase in Immunoglobulin Heavy Variable IGHV3-30.
It replicated abnormalities in B-cells that were found by 2 earlier studies, namely an increase in Immunoglobulin Heavy Variable IGHV3-30.
January 16, 2025 at 8:47 AM
1) There is some (cautious) excitement about this new ME/CFS paper that will soon be published.
It replicated abnormalities in B-cells that were found by 2 earlier studies, namely an increase in Immunoglobulin Heavy Variable IGHV3-30.
It replicated abnormalities in B-cells that were found by 2 earlier studies, namely an increase in Immunoglobulin Heavy Variable IGHV3-30.
Reposted by POTS Radar
Important update from the European ME Coalition (EMEC) regarding European funding for ME/CFS 👇
1) It’s been a long time since you heard from us, but we can finally give an update of what we have been doing behind the scenes.
#MECFS #LongCovid
#MECFS #LongCovid
January 11, 2025 at 10:40 AM
Important update from the European ME Coalition (EMEC) regarding European funding for ME/CFS 👇
Visual symptoms in postural tachycardia syndrome
pots-radar.ghost.io/visual-sympt...
pots-radar.ghost.io/visual-sympt...
Visual symptoms in postural tachycardia syndrome
A prolific group of neurologists in Bern team up with biomedical engineers for a case-controlled study of posture-dependent visual symptoms in POTS.
pots-radar.ghost.io
January 4, 2025 at 10:01 PM
Visual symptoms in postural tachycardia syndrome
pots-radar.ghost.io/visual-sympt...
pots-radar.ghost.io/visual-sympt...
Reposted by POTS Radar
Not sure what to make of this (it was a single-blind study).
Press release from Dec. 19: www.biospace.com/press-releas...
Meeting abstract from Dec. 6, in the American Society of Hematology’s journal Blood: www.sciencedirect.com/science/arti...
Press release from Dec. 19: www.biospace.com/press-releas...
Meeting abstract from Dec. 6, in the American Society of Hematology’s journal Blood: www.sciencedirect.com/science/arti...
“Human Umbilical Cord Blood Infusion Improves Fatigue in Long-COVID”
“The phase IIa trial demonstrated significant improvements in fatigue symptoms for long-COVID patients, with 85% achieving complete relief.”
sleepreviewmag.com/sleep-treatm...
“The phase IIa trial demonstrated significant improvements in fatigue symptoms for long-COVID patients, with 85% achieving complete relief.”
sleepreviewmag.com/sleep-treatm...
Human Umbilical Cord Blood Infusion Improves Fatigue in Long-COVID
Clinical trial results show that HPC, cord blood effectively treats post-COVID fatigue, with 85% of patients experiencing relief.
sleepreviewmag.com
January 3, 2025 at 2:36 PM
Not sure what to make of this (it was a single-blind study).
Press release from Dec. 19: www.biospace.com/press-releas...
Meeting abstract from Dec. 6, in the American Society of Hematology’s journal Blood: www.sciencedirect.com/science/arti...
Press release from Dec. 19: www.biospace.com/press-releas...
Meeting abstract from Dec. 6, in the American Society of Hematology’s journal Blood: www.sciencedirect.com/science/arti...
Blood Pressure Regulation in Post–COVID POTS
pots-radar.ghost.io/blood-pressu...
pots-radar.ghost.io/blood-pressu...
Blood Pressure Regulation in Post–COVID POTS
Artur Fedorowski and colleagues are back with a case-controlled study that used 24-hour blood pressure monitoring on 100 patients with post-COVID-19 POTS.
pots-radar.ghost.io
January 4, 2025 at 4:46 PM
Blood Pressure Regulation in Post–COVID POTS
pots-radar.ghost.io/blood-pressu...
pots-radar.ghost.io/blood-pressu...
pots-radar.ghost.io/welcome/
Hello, world!
This is POTS Radar 📡
Follow for reviews of the latest research on Postural Orthostatic Tachycardia Syndrome (POTS).
Hello, world!
This is POTS Radar 📡
Follow for reviews of the latest research on Postural Orthostatic Tachycardia Syndrome (POTS).
January 4, 2025 at 4:45 PM
pots-radar.ghost.io/welcome/
Hello, world!
This is POTS Radar 📡
Follow for reviews of the latest research on Postural Orthostatic Tachycardia Syndrome (POTS).
Hello, world!
This is POTS Radar 📡
Follow for reviews of the latest research on Postural Orthostatic Tachycardia Syndrome (POTS).